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    • 12 hours, 17 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 19 hours, 18 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 19 hours, 19 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 19 hours, 29 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 19 hours, 29 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 19 hours, 37 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 19 hours, 51 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 20 hours, 26 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 20 hours, 26 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 20 hours, 26 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 23 hours, 35 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 13 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 14 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 16 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 17 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 20 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
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    When flying on an airplane, do you make any changes to your typical insulin dosage? Select all that apply to you!

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    On average, how long do you have to travel to see your primary diabetes health care provider?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Jonathan Strait

      Can’t forget to factor in healthcare premiums (or taxes if using gov’t funded healthcare system.) That gets complicated too, how much of that goes toward the negotiated or fully funded prices for these supplies and how much for other things? No matter how you cut it, diabetes ain’t cheap though.

      4 years ago Log in to Reply
    2. Sherolyn Newell

      I have a $3500 deductible/max out-of pocket. Since I use both pump and CGM, I usually meet that in the first quarter or shortly thereafter. Then I pay $0.

      4 years ago Log in to Reply
    3. connie ker

      I am on Medicare RX for insulin through Cigna but this plan designed for diabetics is

      4 years ago Log in to Reply
      1. connie ker

        I am on a supplement with Medicare which is Anthem Blue Cross, about $220 a month. It covers CGM supplies and what Medicare doesn’t cover for Dr. visits. I am also on Cigna RX plan which has diabetics in mind on their highest plan which is about a $50 monthly premium. The premiums are my biggest monthly cost and yearly cost is presently $3,240. Premiums increase with age too. When I hit the donut hole, it is a different story of coverage too. Medical costs keep going up and I am old enough to remember the pediatrician Dr. coming to our home because Mothers in the 50s didn’t have transportationian. The Dr. would leave a bottle of medicine on the counter and say “split this between the children”.

        1
        4 years ago Log in to Reply
    4. Ahh Life

      While it may be unfair to lump all my health insurance costs (I excluded my wife’s premiums), into “diabetic related,” many of the high-priced consultants I employ, with few exceptions, are because of and driven by the underlying diabetic condition. Therefore the $3,000+ calculation was arrived at as follows:

      CVS out of pocket yearly expense $1,303
      Medicare yearly premium $1,872
      Private insurance yearly expense $8,196
      Private insurance dental premium $672
      Summation = $12,043. Divide by 4 for a 3-month estimate of $3,011

      4 years ago Log in to Reply
    5. Amanda Barras

      I have a secondary insurance that picks up any balances not paid by primary. So, I pay nothing except primary premiums.

      4 years ago Log in to Reply
    6. Janis Senungetuk

      You left out “coinsurance” charges. Even with “good” coverage DME prices keep increasing.

      1
      4 years ago Log in to Reply
    7. Bill Williams

      With Medicare and a supplement, I pay nothing out of pocket for Libre. Also have a zero copay for insulin through Cigna Part D plan.

      4 years ago Log in to Reply
    8. Daniel Bestvater

      I seem to average about $800/month. That’s for insulin, test strips, pump supplies and Dexcom G6.
      I live in Canada so all doctor visits are covered but that’s it.

      4 years ago Log in to Reply
    9. Pauline M Reynolds

      I still haven’t figured out my insurance coverage. Now that I am in the Part D “gap”, I pay more for pump supplies, test strips and insulin, which I was under the impression fell under Durable Medical Equipment, not Part D. I’m told it is because my insurance is an HMO.

      4 years ago Log in to Reply
    10. Molly Jones

      The only thing I have to contribute to is glucagon. It costs me around twenty.

      4 years ago Log in to Reply
    11. Gerald Oefelein

      My answer $1001 – 1500 included a glucagon kit and backup insulin pens for use if pump fails (again).

      4 years ago Log in to Reply
    12. Sahran Holiday

      I pay a lot for health insurance which I guess doesn’t count for this question. All I have to pay for is insulin $40 for 90 days so 13.25 per month. DME; i.e., CGM, Pods, test strips covered at 100%.

      4 years ago Log in to Reply
    13. Babis Perantonakis

      I don’t pay anything (Greece). Everything is covered by the National Health System. All employers and employees contribute to this system with the 20% of the salary (13% Employers, 7% employees)

      1
      4 years ago Log in to Reply
    14. Wanacure

      In the last 3 months costs went over $1000, because I bought a $600 iPhone that would be compatible with the Dexcom 6 app. But the Dexcom monitor is so easy to use, I rather regret paying for all the expensive unneeded Apple iPhone’s other bells & whistles. The cheap flip phone I was originally using alerted me far better to incoming calls than the much more expensive iPhone. In the last 3 months I started using the CGM which will add $50 to $100 per month. Eyeglasses and hearing aids are not covered by my Medicare plan. But a recent state law limits cost of insulin vials so my copay for glargine + lispro is $90/28 days. I save $ by using syringes over and over till the needle bends, seldom change lancets. There’s a copay for foot care every 3 months.

      4 years ago Log in to Reply
      1. Tom Rintelmann

        Hi Wannacure, I was surprised to read that you were reusing needles until the needle bends and that you don’t replace lancets when checking your sugar via glucose meter. Are you boiling the needles or using rubbing alcohol topically? Everything I’ve read and heard cites the likely chance of infection, when reusing needles.
        Tom

        4 years ago Log in to Reply
    15. Patricia Kilwein

      Catch me next year. I just bought a new pump at the beginning of 2021…..supplies are usually $700 deductible, $200 every 3months for supplies.

      4 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

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