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    • 4 hours, 24 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 4 hours, 24 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 5 hours, 23 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 5 hours, 34 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 5 hours, 43 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 6 hours, 2 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 6 hours, 5 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 6 hours, 18 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 1 hour ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 1 hour ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 3 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 3 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 3 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 4 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 5 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 5 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 5 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 5 hours ago
      John Barbuto likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 6 hours ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 6 hours ago
      KCR likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
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    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?

    Home > LC Polls > How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months?
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    When flying on an airplane, do you make any changes to your typical insulin dosage? Select all that apply to you!

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    On average, how long do you have to travel to see your primary diabetes health care provider?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Jonathan Strait

      Can’t forget to factor in healthcare premiums (or taxes if using gov’t funded healthcare system.) That gets complicated too, how much of that goes toward the negotiated or fully funded prices for these supplies and how much for other things? No matter how you cut it, diabetes ain’t cheap though.

      5 years ago Log in to Reply
    2. Sherolyn Newell

      I have a $3500 deductible/max out-of pocket. Since I use both pump and CGM, I usually meet that in the first quarter or shortly thereafter. Then I pay $0.

      5 years ago Log in to Reply
    3. connie ker

      I am on Medicare RX for insulin through Cigna but this plan designed for diabetics is

      5 years ago Log in to Reply
      1. connie ker

        I am on a supplement with Medicare which is Anthem Blue Cross, about $220 a month. It covers CGM supplies and what Medicare doesn’t cover for Dr. visits. I am also on Cigna RX plan which has diabetics in mind on their highest plan which is about a $50 monthly premium. The premiums are my biggest monthly cost and yearly cost is presently $3,240. Premiums increase with age too. When I hit the donut hole, it is a different story of coverage too. Medical costs keep going up and I am old enough to remember the pediatrician Dr. coming to our home because Mothers in the 50s didn’t have transportationian. The Dr. would leave a bottle of medicine on the counter and say “split this between the children”.

        1
        5 years ago Log in to Reply
    4. Ahh Life

      While it may be unfair to lump all my health insurance costs (I excluded my wife’s premiums), into “diabetic related,” many of the high-priced consultants I employ, with few exceptions, are because of and driven by the underlying diabetic condition. Therefore the $3,000+ calculation was arrived at as follows:

      CVS out of pocket yearly expense $1,303
      Medicare yearly premium $1,872
      Private insurance yearly expense $8,196
      Private insurance dental premium $672
      Summation = $12,043. Divide by 4 for a 3-month estimate of $3,011

      5 years ago Log in to Reply
    5. Amanda Barras

      I have a secondary insurance that picks up any balances not paid by primary. So, I pay nothing except primary premiums.

      5 years ago Log in to Reply
    6. Janis Senungetuk

      You left out “coinsurance” charges. Even with “good” coverage DME prices keep increasing.

      1
      5 years ago Log in to Reply
    7. Bill Williams

      With Medicare and a supplement, I pay nothing out of pocket for Libre. Also have a zero copay for insulin through Cigna Part D plan.

      5 years ago Log in to Reply
    8. Daniel Bestvater

      I seem to average about $800/month. That’s for insulin, test strips, pump supplies and Dexcom G6.
      I live in Canada so all doctor visits are covered but that’s it.

      5 years ago Log in to Reply
    9. Pauline M Reynolds

      I still haven’t figured out my insurance coverage. Now that I am in the Part D “gap”, I pay more for pump supplies, test strips and insulin, which I was under the impression fell under Durable Medical Equipment, not Part D. I’m told it is because my insurance is an HMO.

      5 years ago Log in to Reply
    10. Molly Jones

      The only thing I have to contribute to is glucagon. It costs me around twenty.

      5 years ago Log in to Reply
    11. Gerald Oefelein

      My answer $1001 – 1500 included a glucagon kit and backup insulin pens for use if pump fails (again).

      5 years ago Log in to Reply
    12. Sahran Holiday

      I pay a lot for health insurance which I guess doesn’t count for this question. All I have to pay for is insulin $40 for 90 days so 13.25 per month. DME; i.e., CGM, Pods, test strips covered at 100%.

      5 years ago Log in to Reply
    13. Babis Perantonakis

      I don’t pay anything (Greece). Everything is covered by the National Health System. All employers and employees contribute to this system with the 20% of the salary (13% Employers, 7% employees)

      1
      5 years ago Log in to Reply
    14. Wanacure

      In the last 3 months costs went over $1000, because I bought a $600 iPhone that would be compatible with the Dexcom 6 app. But the Dexcom monitor is so easy to use, I rather regret paying for all the expensive unneeded Apple iPhone’s other bells & whistles. The cheap flip phone I was originally using alerted me far better to incoming calls than the much more expensive iPhone. In the last 3 months I started using the CGM which will add $50 to $100 per month. Eyeglasses and hearing aids are not covered by my Medicare plan. But a recent state law limits cost of insulin vials so my copay for glargine + lispro is $90/28 days. I save $ by using syringes over and over till the needle bends, seldom change lancets. There’s a copay for foot care every 3 months.

      5 years ago Log in to Reply
      1. Tom Rintelmann

        Hi Wannacure, I was surprised to read that you were reusing needles until the needle bends and that you don’t replace lancets when checking your sugar via glucose meter. Are you boiling the needles or using rubbing alcohol topically? Everything I’ve read and heard cites the likely chance of infection, when reusing needles.
        Tom

        5 years ago Log in to Reply
    15. Patricia Kilwein

      Catch me next year. I just bought a new pump at the beginning of 2021…..supplies are usually $700 deductible, $200 every 3months for supplies.

      5 years ago Log in to Reply

    How much have you spent (deductible, copay, out-of-pocket) on all of your diabetes supplies in the past three months? Cancel reply

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