Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 4 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 4 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 4 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 5 hours, 26 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 5 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 5 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 5 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 5 hours, 36 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 5 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 5 hours, 58 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 59 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 19 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 6 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 6 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 6 hours, 29 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 6 hours, 29 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Clinics
      • Resources
        • Change Packages
        • Sick Day Guide
        • Meet the Experts
      • Portal
      • Health Equity
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Donate

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Home > LC Polls > How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.
    Previous

    Have you ever followed a particular diet specifically for the purpose of maintaining blood glucose levels?

    Next

    For how many years have you (or your loved one) been living with T1D so far?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

    Related Stories

    Meet the Expert

    Meet the Expert: Looking Beyond A1c at a Patient’s Quality of Life 

    Jewels Doskicz, 3 days ago 8 min read  
    Research

    Fear of Hypoglycemia: New Tool Helps Docs Identify “FoH” in People with Diabetes 

    Ginger Vieira, 6 days ago 5 min read  
    Meet the Expert

    Meet the Expert: Evaluating Telemedicine in T1D Patient Care 

    Jewels Doskicz, 1 week ago 9 min read  
    Lifestyle

    T1D Exchange Team: Our Type 1 Diabetes Diagnosis Stories  

    Tara Mayo, 2 weeks ago 3 min read  
    Insulin & Meds

    Total Transparency: How Cost Plus Drugs Sells Affordable Medications 

    Ginger Vieira, 2 weeks ago 10 min read  
    Technology

    All About the Medtronic Minimed 780G Closed-Loop Automated Insulin Pump System 

    Ginger Vieira, 4 weeks ago 8 min read  

    15 Comments

    1. Janice B

      Sad but true that the majority of my family does not understand the difference between T1D or T2D. Or what my devices or insulin does. They think my pump takes care of everything.

      4
      2 years ago Log in to Reply
    2. Mary Dexter

      Some of my relatives think I should be over this, as if it were a bad cold, and resent that it still inconveniences them.

      1
      2 years ago Log in to Reply
    3. Ernie Richmann

      I am type 1 diagnosed after age 57. Some doctors insist I am type 2. My endo says I am type 1.

      2 years ago Log in to Reply
    4. T1DGJ

      When the subject arises, I say, “T2 is most people you know. They still produce some insulin. Either not enough, or their body doesn’t use it well. My T1 means my body No longer produces insulin. So when you eat, your body sends insulin to turn your food into energy. My body does not make any, so I have to “shoot it in” to process my food.”

      2 years ago Log in to Reply
    5. Sahran Holiday

      Type 1, few beyond my immediate family know. Don’t discuss it. Better things to talk about.

      2 years ago Log in to Reply
    6. Sherolyn Newell

      I was diagnosed TID around 55 years old, so it’s new to my family. I have one sister who still asks me “can you eat…?” I think my three sisters pretty much understand it though, my sons as well. Extended family doesn’t, except the ones that have asked me questions about it.

      2 years ago Log in to Reply
    7. Denise Lyons

      Diagnosed at 50 so this is new for even my immediate family. I’ve known the basic differences between type 1 and 2 but before my diagnosis I was pretty ignorant of diabetes tech so I don’t fault my family for not understanding it. Definitely alot of people think my pump handles it, before diagnosis that’s what I thought as well. So I try to educate because just over a year ago I was equally as ignorant.

      2 years ago Log in to Reply
    8. Janis Senungetuk

      Their knowledge and interest is very limited.

      1
      2 years ago Log in to Reply
    9. ConnieT1D62

      I have often been the one to explain and educate my immediate and extended family members about diabetes – the difference between T1 and T2, the role of insulin in the body, what a person with diabetes can eat, that diabetes of all types (T1 or T2) can occur in adults and children of all ages and at any age – from as young as infancy into ripe old age, and that T1 diabetes does not turn into T2 diabetes when a child goes into adulthood.

      In my family of origin, there is a history of youth onset T1 diabetes and LADA; as well as youth onset pre-diabetes and T2 diabetes, and adult onset pre-diabetes and T2 diabetes on both sides extending through first, second and third cousins. Despite a full spectrum of diabetes there still a lot of denial, false beliefs and misunderstanding amongst some of my relatives.

      2 years ago Log in to Reply
    10. connie ker

      When I was trying to figure out what was happening to my body at the age of 49 other than menopause, even the Drs. are very confused about the difference between type 1 and type 2. I was considered a type 2, type 1 and 1/2, and a type 1 finally with LADA. 23 years later LADA is now the diagnosis term that was misunderstood. When in the hospital or nursing home care, type 1s go by the same chart as type 2 for insulin management. This should be changed as well.

      2
      2 years ago Log in to Reply
    11. Brandon Denson

      I believe they have a general idea about my devices and insulin usage but don’t necessarily know the exact reason or process for using the technology or what taking insulin actually does for me.

      1
      2 years ago Log in to Reply
    12. Molly Jones

      I would say that about 20 percent of my family understand the difference of type 1 and 2 and what my devices do, the same for the effects of insulin. There are a few healthcare workers and others who have type 2.

      2 years ago Log in to Reply
    13. Amy Jo

      I once had an uncle tell me that if I eat enough beans, it will cure my T1. I told him I’ll keep taking insulin in the meantime.

      2 years ago Log in to Reply
    14. Wanacure

      I have many relatives, but don’t know them. Outside my brother and a surviving cousin, I’ve no idea what my distant relatives think or know about anything. I know I have distant relatives on the eastern US, southern US, Canada, and west coast and probably Ireland, Scotland, and England. That’s why I checked “other.”

      2 years ago Log in to Reply
    15. keith johnson

      I have two paternal cousins with type 1, a paternal aunt, an aunt by marriage with type 1. A dad who and brother who are type 2 diabetics you control it with meds and insulin. We have a ” diabetes cluster.” Family yearly holiday celebrations and yearly family reunions are like diabetes conventions. We share information. There is not a person over 10 who does not know something about diabetes.

      2 years ago Log in to Reply

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you. Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2023 T1D Exchange.
    All Rights Reserved.

    © 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    7 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    2023 ATTD

    6 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Advocacy

    21 Stories Related

    ATTD

    16 Stories Related

    Blood Sugar

    0 Stories Related

    Conditions

    7 Stories Related

    COVID-19

    14 Stories Related

    EASD

    0 Stories Related

    General Publications

    73 Stories Related

    Get Involved

    11 Stories Related

    Insulin & Meds

    15 Stories Related

    ISPAD

    1 Stories Related

    Journal of Diabetes

    21 Stories Related

    Lifestyle

    12 Stories Related

    Lifestyles

    0 Stories Related

    Meet the Expert

    17 Stories Related

    Mental Health

    11 Stories Related

    News

    35 Stories Related

    Our team

    25 Stories Related

    Partner Content

    7 Stories Related

    Press Release

    6 Stories Related

    Question of the Day

    24 Stories Related

    Research

    66 Stories Related

    Stories

    18 Stories Related

    T2D

    1 Stories Related

    Technology

    23 Stories Related

    Uncategorized

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category