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    • 15 hours, 13 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 15 hours, 14 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 15 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 16 hours, 21 minutes ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 7 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 8 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 11 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 11 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 14 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 14 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 15 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 15 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 16 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. LizB

      This past April marked 34 years for me.

      1
      4 years ago Log in to Reply
    2. rick phillips

      Amazing that 17% of us are in the over 50 group

      7
      4 years ago Log in to Reply
    3. Beverly Crosby

      67 years and counting. Use to have to boil my syringes and needles on the stove. Used strips to check my urine that told me what my blood sugar was 2 hours prior. We’ve come a LONG way baby.

      18
      4 years ago Log in to Reply
      1. Sue Martin

        It’s nice to have the tools and insulin that have gotten better during my duration as well (36 years). I hope they continue to improve.

        4
        4 years ago Log in to Reply
    4. Kristen Clifford

      13 years this past April

      4 years ago Log in to Reply
    5. Lawrence Stearns

      This is one of the more interesting statistics. Being a T1D, I almost always feel alone with this disease, and am unaware of other T1D’s out there. I thought I might be one of the longest living T1D’s with the disease for 44 years. Now I know that there are many who have lived much longer. Congratulations to all of the long timers. I hope to get to the top of the percentile.

      11
      4 years ago Log in to Reply
      1. T1DGJ

        I feel exactly the same! And I thought I was a long-timer at 37 years. This is so encouraging and delightful!!

        3
        4 years ago Log in to Reply
      2. Jonathan Lowenson

        It is “many” in our group, but we are enriched in long timers. I wonder what the national/international numbers are…

        4 years ago Log in to Reply
    6. Joan Fray

      59 long years.

      6
      4 years ago Log in to Reply
    7. Jen Smith

      49 years next month. No complications, praise God! 🙌🏼

      3
      4 years ago Log in to Reply
    8. lynda meyer

      68 years here!

      7
      4 years ago Log in to Reply
    9. Richard Vaughn

      Diagnosed in Sept, 1945. Type 1 for 75 years. No serious complications.

      14
      4 years ago Log in to Reply
    10. ConnieT1D62

      59 years, diagnosed at age 8. And I figure I have another 12 to 18 of good life years before I depart this earthly body.

      1
      4 years ago Log in to Reply
      1. Sydney Bush

        Hopefully, you’ll have many more than that! My parents were told I’d be lucky to get to 20 years old (diagnosed at 16 months), but I turned 70 in March and am doing pretty well.

        2
        4 years ago Log in to Reply
    11. Ronny Samuels

      Some days living, Some days surviving

      2
      4 years ago Log in to Reply
    12. Anneyun

      43 years.

      4 years ago Log in to Reply
    13. Kristine Warmecke

      I’m 39 years, this year, my younger brother is 49 years and his daughter is 17 years as T1D.

      4 years ago Log in to Reply
    14. Kathy Krapohl

      Dx. June 8 or 15 1983, 38 years

      1
      4 years ago Log in to Reply
    15. Brandon Denson

      I’m a Diabetes Warrior!

      1
      4 years ago Log in to Reply
    16. Kaylea Bowers

      21 years on July 20 :-\

      1
      4 years ago Log in to Reply
    17. Sydney Bush

      I turned 70 in March and next Thursday, July 8, (my mom’s 94th birthday), I will have been diagnosed with Type 1 for 69 years!

      4
      4 years ago Log in to Reply
    18. Bob Durstenfeld

      I was Dx’d in 1956, 65 years for me. Not doing too bad. Better than my dad at this age, he was Dx’d in 1931 and died in 2000. My eldest of three sons (34 years with T1D) and his daughter (1.5 years with T1D) also have T1D.

      2
      4 years ago Log in to Reply
    19. Marla Peaslee

      20 years for my son. 53 years for me.

      4 years ago Log in to Reply
    20. Janis Senungetuk

      66 yrs, dx at 8 in 1955

      4 years ago Log in to Reply
    21. Angela Naccari

      I will have been diagnosed 60 years in November! Age 6 in 1961.

      4 years ago Log in to Reply
    22. George Lovelace

      I was a ‘late bloomer’, 15 yo at Dx in ’64 so I’m at T1 year 57. Dad was a LADA Dxed in ’40, passed after 49 yrs T1. On Dex & Tandem CIQ, hope to replace it at least 2 more times (at least 82 yo)

      1
      4 years ago Log in to Reply
    23. Christina Trudo

      59 years this month- diagnosed at age 11 in 1962

      1
      4 years ago Log in to Reply
    24. Linda Smith

      Diagnosed in April of 1963. That makes 58 years.

      1
      4 years ago Log in to Reply
    25. Mitch Chernoff

      It’s 56 years. Diagnosed when I was 12. Used UltraLente for something like the first 25 years, sometimes mixed with Regular. Lots has changed.

      1
      4 years ago Log in to Reply
    26. Carlin Sadowski

      Seeing these comments from yall more seasoned diabetics make me really happy. So amazing to see so many long lives with diabetes. Just had my 18th dx anniversary myself!

      1
      4 years ago Log in to Reply
    27. Daniel Bestvater

      I have been T1D for about 45 years. No serious complications, just frozen & sore shoulders for the past ~ 10 years.

      4 years ago Log in to Reply
    28. Brenda Lipscomb

      53+ years.
      Diagnosed at 11 months old, Jan 1968. I’m blessed to not have any other autoimmune issues, nor any complications from diabetes. Happy, Healthy… and unless I die of something else, I’ll probably live to be at least 95, therefore be possibly the oldest living T1. ??? 🙂

      1
      4 years ago Log in to Reply
    29. KarenM6

      50 years in November this year!

      4 years ago Log in to Reply
    30. Ben Galindo

      64 yrs & counting, my original Endo said if I took perfect care I might see 40 74 & still kicking!

      1
      4 years ago Log in to Reply
    31. JoAnn Pinkowitz

      Diagnosed 55 years ago and doing well with no complications.

      1
      4 years ago Log in to Reply
    32. MikeeB.

      Fifty four years (54) and I’m a US Naval Aviation Vet.

      4 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

    You must be logged in to post a comment.




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