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    • 5 hours, 35 minutes ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 5 hours, 35 minutes ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 6 hours, 5 minutes ago
      KarenM6 likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 9 hours, 31 minutes ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 9 hours, 31 minutes ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      I do not qualify for most surveys and when I do, they want private information I do not want to give them, because I do not know how secure their computers ate.
    • 14 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      You get very few opportunities to volunteer when you're over 75.
    • 14 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      My age.
    • 14 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 14 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 16 hours, 21 minutes ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I have participated many times however at 69 I am now outside of their acceptable age range.
    • 16 hours, 22 minutes ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 16 hours, 22 minutes ago
      John Barbuto likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 16 hours, 59 minutes ago
      Steve Rumble likes your comment at
      What factors would affect your participation in diabetes-related research?
      I have participated many times however at 69 I am now outside of their acceptable age range.
    • 16 hours, 59 minutes ago
      Steve Rumble likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 16 hours, 59 minutes ago
      Steve Rumble likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 1 day, 11 hours ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Yes - many meter studies - and an actos study
    • 1 day, 11 hours ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Only a few. Mainly blood tests and surveys. The others often have restrictions that don’t allow me to participate.
    • 1 day, 11 hours ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in the Look Ahead program by Brown University and Miriam Hospital. It was about diabetes, heart disease and weight control. I was in the control group and the first year I gained weight and found out I had heart disease. The stress test at the beginning of the trial showed an abnormality, so I already had a cardiologist when I needed my first of 16 stents.
    • 1 day, 11 hours ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in Tandem's trial for ControlIQ and several Dexco. Adhesive trials. Long ago I participated in a study for non-invasive blood glucose testing using a technique called Ramen Spectrum Analysis using different frequenciesof light, that trial could not raise funds to continue.
    • 1 day, 11 hours ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Various studies at the Joslin Clinic, the first one back in 2010-2011 for CGMs to be covered by medical insurance companies. I also have done a pizza study to determine how to gauge the longer response by the body to eating pizzas with all its fats.
    • 1 day, 16 hours ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      Several times. Found out that my pancreas is about 25% of the size it “ought to be” for someone my age. Who knew? Just turned down an opportunity to transform into a lab rat for 8 months on tests of a new insulin product. Weekly clinic visits, four finger sticks a day, two additional devices to tote around and a change in CGM brand. Sorry, not for me.
    • 1 day, 16 hours ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      I’ve participated in a couple different ones. One was muscle biopsies on the legs…looking at how long term diabetes may affect muscles. Another on different pumps
    • 1 day, 17 hours ago
      Kathy Hanavan likes your comment at
      Have you ever participated in diabetes-related research?
      I have taken surveys about diabetes care and participate in All of US DNA research and I am doing that now answering these questions each day.
    • 2 days, 5 hours ago
      lis be likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 2 days, 10 hours ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022?
    Previous

    After how many hours of high blood glucose levels would you change your pump site or open a new insulin pen?

    Next

    For insulin pump users: When traveling to a time zone that is 1 hour different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Central Time, or traveling from Pacific Time to Mountain Time)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      $170

      4 years ago Log in to Reply
    2. Ahh Life

      Admitting full confirmation bias . . . the diabetic condition is not a poor man’s disease. Sigh! ◕︵◕

      2
      4 years ago Log in to Reply
    3. Lawrence S.

      Insulin $220, Supplies 0, Gvoke Hypo Pen $60, Telephone to use Dexcom G6 transmitter/sensor (which did not work btw) $110, plus trade in. I didn’t count Endocinologist visits $120. Luckily, I have a supplemental insurance program that covers supplies. However, the supplemental insurance costs several thousand dollars per year.

      4 years ago Log in to Reply
    4. Sherolyn Newell

      Met my $3500 deductible and it was at least 95% diabetes meds and supplies.

      1
      4 years ago Log in to Reply
    5. Sherolyn Newell

      Luckily, insurance pays 100% for the rest of the year.

      4 years ago Log in to Reply
    6. Joan Fray

      250. , but that doesn’t include the $3000 fir the am ulance, and $2000 co pay for the ER when I slipped doen a steep slippery driveway in January and broke my ankle. Three bones. Just read an article that said long term diabetics are more prone to bone fractures. 72 years old, almost 60 years T1d. Yet another consideration to add to the ever growing list of benefits!

      4 years ago Log in to Reply
    7. Jane Cerullo

      Since I went to MDI I pay $210 every three months for insulin. Also pay $9 a box for pen needles. Glucose tabs. Frio packs. Adds up. Would be 0 on pump but am in pump fatigue. Just went on vacation and the pens were so much more portable. Usually tons of pump supplies for “just in case”

      4 years ago Log in to Reply
    8. KCR

      I bought extra test strips and syringes this quarter plus the usual copays for pods and meds.

      4 years ago Log in to Reply
    9. Steve Rumble

      I answered 1500 – 2000 but that cost covered CGM supplies for several months into the future.

      4 years ago Log in to Reply
    10. mbulzomi@optonline.net

      Spent $6 dollars on the large size Glucose tablets. Thats it!

      4 years ago Log in to Reply
    11. Mick Martin

      $0, which MAY be misleading to SOME folks on here, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      3
      4 years ago Log in to Reply
    12. Kristine Warmecke

      OptumRX tried charing me $900 for my Novolog then it changed to $5,086, no way could I afford either. After much help from my endocrinologist office I am now able to receive my Novolog from my local pharmacy for $9 and change every month. My Pump and Dexcom supplies are $150 every 90 day’s, I just got the supplies.

      4 years ago Log in to Reply
    13. KarenM6

      I said 2k – 3k, but it could have been more than 3k. My deductible is 6k, so there is no insurance help for the first 3 or 4 months of the year.

      4 years ago Log in to Reply
    14. Kathleen Juzenas

      Relatively speaking, very little, just for alcohol swabs, pump batteries, and glucose tabs. I did not include Medicare and costly supplemental insurance premiums, which cover other health problems as well.

      4 years ago Log in to Reply
    15. Mig Vascos

      All my diabetes needs including pump supplies, sensors and insulin go under Part B and my secondary covers the copayments .

      4 years ago Log in to Reply
    16. Bill Williams

      Insulin is free under the Part D plan I’m on. Omnipod and insulin put me into the donut hole already, so I paid $354 for pods last week. It’s irritating that I could be on a tubed pump for nothing or MDIs for nothing, but the solution I like the best (Omnipod) is poorly covered by Medicare.

      4 years ago Log in to Reply
    17. Becky Hertz

      Unfortunate question as I have a build up of supplies and haven’t had to order much the first 3 months of 2022

      1
      4 years ago Log in to Reply
    18. PamK

      Just to clarify, I started on a new insurance plan in Feb. and am still working on getting Prior Authorizations for my CGM and Pump supplies. So, I have not been able to purchase any of these. Thankfully, I have been able to get some samples from my doctor’s office to hold me for several weeks. These are running out though, and I am hoping the approvals come soon!

      4 years ago Log in to Reply
    19. stillarobyn

      $1500+ to reach my insurance deductible.

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2022? Cancel reply

    You must be logged in to post a comment.




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