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    • 1 hour, 29 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 2 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 52 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 15 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 12 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How many times in 2021 did you have an appointment with your main T1D health care provider?

    Home > LC Polls > How many times in 2021 did you have an appointment with your main T1D health care provider?
    Previous

    If you use time in range reports, what BG level is set as your High range? If you have different target range settings depending on time of day, please answer with the High setting at 12 p.m. in your time zone.

    Next

    If you have met your health insurance prescription deductible for the year, how much is your co-pay for one month’s supply of insulin?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Wanacure

      When younger, I used to see specialists in diabetes care. A primary care physician has been my main doctor for past 20 or 30 years. If I want a specialist (e.g., endocrinologist) I must get a referral from him. Or volunteer for medical research which usually pays a token amount but also can be VERY informative. I was prescribed a CGM without actually seeing a specialist in person in 2021. But next month in 2022 I’ll go over the two week printout from my CGM with an endocrinologist specializing in diabetes. She’s an excellent doctor, but very cynical (as revealed in a leaked email) about ability of diabetics to follow recommended regimens. I really can’t blame her, after having met some newly diagnosed diabetics who are in denial. They ignore Bernstein, ignore low carb diets, ignore insulin or dietary changes. On the other hand I’ve met in person TIDs and pre-diabetics who successfully are very conscientious.

      4 years ago Log in to Reply
      1. gary rind

        I will ignore Bernstein till the day I die! not going to live my life like that!

        6
        4 years ago Log in to Reply
    2. Joan McGinnis

      I see my endo every 6 mo and if insurance dictates being seen every 3 mo I see NP in between endo visits

      4 years ago Log in to Reply
    3. Kathleen Juzenas

      Twice with the doctor and once with the nurse practitioner. My next visit is Jan 3, 2022. The doctor and nurse alternate visits.

      4 years ago Log in to Reply
    4. Lawrence S.

      Medicare requires me to see a “doctor” every 90 days to pay for my insulin pump and durable medical equipment (DME) supplies. I see an Endo nurse every three months. All of my appointments were telemed in 2021.

      4 years ago Log in to Reply
    5. Mark Schweim

      I’ve been seeing my Endo every 6 months, but last time a scheduling conflict left me seeing hi CDENP assistant and based on that appointment, I think I’d rather continue dealing with her than with him. She also uses an Insulin Pump and seems much more willing to discuss possibly needed dosage adjustments than my Endo himself is willing to look into.

      3
      4 years ago Log in to Reply
    6. KSannie

      Medicare requires me to see my endo every 3 months or they will not pay for pump supplies. Otherwise I would only need to go every 6 months. This is a waste of health insurance money.

      6
      4 years ago Log in to Reply
    7. Todd Thedell

      I suppose since I am considered ¨Controlled¨, they leave me alone. I just looked and it was March 2020 since I last had a phone visit. No news is good news?

      4 years ago Log in to Reply
    8. TEH

      In addition to the 4 in person visits, I had to call 3 times an extra blood test to prove I was T1D to medicare.

      1
      4 years ago Log in to Reply
    9. Janis Senungetuk

      I saw her 3 times and had 1 appointment with the CDE. My endo is so overloaded with patients I’m now scheduled to alternate 90 day appointments between her and the Diabetes Educator.

      4 years ago Log in to Reply
    10. Carol Meares

      One was telehealth

      4 years ago Log in to Reply
    11. LizB

      Had to get a new endo this year due to insurance and I saw him in January, April & July. In July he recommended 6 months for the next appointment as I don’t really have any concerns that warrant a visit every 3 months. He sent me a lab order in October to do some follow up tests.

      4 years ago Log in to Reply
    12. Bea Anderson

      Medicare controls this. Once or twice a year would be fine.

      4 years ago Log in to Reply
    13. Molly Jones

      My Endo says to see me every 3 months, but they are booked to the brink and I have no major concerns that cannot be dealt with over messaging and time can be made if necessary. I see her about every 4 months, with this last year having only 2 appointments as 2020’s last appt was on Dec 28.

      4 years ago Log in to Reply
    14. Lenora Ventura

      Every 3 months for 36+ years

      4 years ago Log in to Reply

    How many times in 2021 did you have an appointment with your main T1D health care provider? Cancel reply

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