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    • 1 hour, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    How many times in 2021 did you get a dilated eye exam (involving eye drops)?

    Home > LC Polls > How many times in 2021 did you get a dilated eye exam (involving eye drops)?
    Previous

    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Next

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Wanacure

      Even optometrists can dilate eyes to check for retinopathy. Better control resulted in zero retinopathy for me though it never was much of a problem. You can reverse minor retinopathy.

      4 years ago Log in to Reply
    2. Ahh Life

      This very straightforward numerical question is actually difficult for me. Even though I see a high-priced specialist twice a year and he attempts to dilate both eyes, only one eye cooperates fully. So how do I count the dilated eyes? Divide by ½?

      The left eye has had so many laser treatments, that the elasticity of the pupil cells (cones, I think) is diminished, if not kaput. However, do not under any circumstances let that deter you from having laser treatments if recommended. The handful of floaters will eventually, if you live long enough, diminish your eyesight.

      4
      4 years ago Log in to Reply
    3. TEH

      I have had 4 total eye exams 3 dilated exams in ’21. He took pictures and checks for retinopathy. And measures pressure for glaucoma each time. I hate the eyedrops but want to continue seeing.

      1
      4 years ago Log in to Reply
    4. Marina Kurkov

      I skipped the eye exam because I weighed the good eye exams of many previous years vs close up prolonged maskless contact. There are some eye tests one can do virtually— maybe I’ll try that… no sense in going now with the recent flare-up.

      4 years ago Log in to Reply
      1. Jim Cobbe

        Marina: Why maskless? At my ophthalmologist, all staff and patients are masked all the time — no maskless time at all. You do not want to skip eye exams if you have been diabetic for any substantial length of time.

        8
        4 years ago Log in to Reply
    5. John McHenery

      I had one examination but didn’t need the drops.

      4 years ago Log in to Reply
    6. Gary Taylor

      2x. Once was my regular yearly dilated retina exam and the other was part of the cataract surgery process.

      4 years ago Log in to Reply
    7. Andrew Stewart

      I had three this past year all related to a PVD in my right eye. All is good.

      In posterior vitreous detachment (PVD), the gel that fills the eyeball separates from the retina. It’s a common condition with age. PVD can cause floaters or flashes of light, which often fade over time. PVD isn’t painful or sight-threatening. But you should see an eye specialist right away to make sure you don’t have another retina problem.(https://my.clevelandclinic.org/health/diseases/14413-posterior-vitreous-detachment)

      2
      4 years ago Log in to Reply
    8. gary rind

      had an appointment for my annual exam with my ophthalmologist. guess he’s older than I thought, he fell and hurt his back so badly that he needed surgery so all appointments were canceled.

      4 years ago Log in to Reply
    9. Jane Cerullo

      Having cataract surgery today. Also had retina exam in other eye. Not a fan. But necessary evil.

      2
      4 years ago Log in to Reply
    10. Judith Marged

      Instead of using drops and wasting time for them to dilate the eyes, my ophthalmologist takes photographs of the eye. This makes for a quicker exam time and easier drive home, as my vision is not impaired from the dilation.

      4 years ago Log in to Reply
    11. LizB

      Had my annual eye exam in October after missing last year’s. No change to my eyes, or my eyeglass prescription. 34 years with Type 1 and no issues.

      4 years ago Log in to Reply
    12. Mark Schweim

      My normal annual Diabetic Eye Exams include dilation with the eye drops, but in 2021, every place around here offering the annual Diabetic Eye Exams said that they were unable to dilate the eyes for the exam due to COVID restrictions.

      4 years ago Log in to Reply
    13. Retired and glad

      I lost vision in my left eye in 1993 due to a central retinal vein occlusion. So since that time my right eye is very precious to me and I get it checked every quarter. Sometimes they dilate, sometimes they take pictures. So far, so good!

      4 years ago Log in to Reply
    14. Janis Senungetuk

      Once in February with the retina specialist I’ve had an annual appointment with for over a decade. I was diagnosed with proliferative diabetic retinopathy in my left eye in 1982 .

      4 years ago Log in to Reply
    15. Tina Roberts

      One. So far, no diabetic eye disease. Thank you Jesus. My mother is legally blind from diabetic retinopathy and MACTEL1.

      4 years ago Log in to Reply
    16. M C

      Due to having Diabetic macular edema, I have an exam, on average, once a month with eye dilation, and usually an injection in the eye having the worst of the problem…. Never seems to make much, if any, difference. (Not fun!!!)

      4 years ago Log in to Reply
    17. Christina Trudo

      Yikes!! I get checked twice a year… and your question prompted me to realize I have not been since late 2020. Called and made the appointment immediately.

      1
      4 years ago Log in to Reply
    18. Chrisanda

      I have had a yearly eye exam since I was a child. just because my parents stressed how important they are, even if you have no need for glasses (which I do now!). Once I was diagnosed with diabetes 24 years ago, the doctor automatically added the dilation yearly. So far, all is clear! Yea, and Thank you God!

      1
      4 years ago Log in to Reply
    19. PamK

      I opted for an Optomap photo instead. Had them done 2 times this year, as well as the past few years.

      4 years ago Log in to Reply
    20. Dennis Dacey

      Since my Retinopathy diagnosis in 1966 [began LASER treatments in 1967], I have had at least two dilated exams yearly. now in my later years after so many thousand LASER burns there isn’t any room left for LASER si we now do Avastin injections with dilation three times a year with “routine” dilated exams in-between, so at least one eye dilated for exam six times yearly.
      Although I was told in 1966 to expect total blindness within two years, I see well thanks to the awesome research and experimentation at Joslin, and earlier this year was issued a new motor vehicle operator license good until July 4, 2028.

      4
      4 years ago Log in to Reply
    21. Louise Jesserer

      In 1994, I was diagnosed with diabetic retinopathy. I was treated and have not had any further issues other than a 66 year history of diabetes!!

      4 years ago Log in to Reply
    22. Jillmarie61

      Fortunately, I don’t have diabetic retinopathy. Unfortunately, I was diagnosed with Age-Related Macular Degeneration just over two years ago. It’s the wet kind so it’s treatable. But that means I have to see a Retinologist every 2 months or so and have injections in both eyes to keep the disease at bay. ☹️

      4 years ago Log in to Reply
    23. Cheryl Seibert

      3 times. I’m blind in my left eye (from birth …. NOT T1D related) and am rapidly developing cataracts in my good eye. The doc is closely monitoring the changes in my vision.

      4 years ago Log in to Reply

    How many times in 2021 did you get a dilated eye exam (involving eye drops)? Cancel reply

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