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    • 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 28 minutes ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 4 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 4 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 5 hours, 39 minutes ago
      KSannie likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 6 hours, 2 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 6 hours, 2 minutes ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 6 hours, 8 minutes ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 6 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 6 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 6 hours, 25 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 7 hours, 16 minutes ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 21 hours, 1 minute ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 22 hours, 52 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 1 day, 4 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 1 day, 4 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
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    How many times in 2021 did you get a dilated eye exam (involving eye drops)?

    Home > LC Polls > How many times in 2021 did you get a dilated eye exam (involving eye drops)?
    Previous

    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Next

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Wanacure

      Even optometrists can dilate eyes to check for retinopathy. Better control resulted in zero retinopathy for me though it never was much of a problem. You can reverse minor retinopathy.

      4 years ago Log in to Reply
    2. Ahh Life

      This very straightforward numerical question is actually difficult for me. Even though I see a high-priced specialist twice a year and he attempts to dilate both eyes, only one eye cooperates fully. So how do I count the dilated eyes? Divide by ½?

      The left eye has had so many laser treatments, that the elasticity of the pupil cells (cones, I think) is diminished, if not kaput. However, do not under any circumstances let that deter you from having laser treatments if recommended. The handful of floaters will eventually, if you live long enough, diminish your eyesight.

      4
      4 years ago Log in to Reply
    3. TEH

      I have had 4 total eye exams 3 dilated exams in ’21. He took pictures and checks for retinopathy. And measures pressure for glaucoma each time. I hate the eyedrops but want to continue seeing.

      1
      4 years ago Log in to Reply
    4. Marina Kurkov

      I skipped the eye exam because I weighed the good eye exams of many previous years vs close up prolonged maskless contact. There are some eye tests one can do virtually— maybe I’ll try that… no sense in going now with the recent flare-up.

      4 years ago Log in to Reply
      1. Jim Cobbe

        Marina: Why maskless? At my ophthalmologist, all staff and patients are masked all the time — no maskless time at all. You do not want to skip eye exams if you have been diabetic for any substantial length of time.

        8
        4 years ago Log in to Reply
    5. John McHenery

      I had one examination but didn’t need the drops.

      4 years ago Log in to Reply
    6. Gary Taylor

      2x. Once was my regular yearly dilated retina exam and the other was part of the cataract surgery process.

      4 years ago Log in to Reply
    7. Andrew Stewart

      I had three this past year all related to a PVD in my right eye. All is good.

      In posterior vitreous detachment (PVD), the gel that fills the eyeball separates from the retina. It’s a common condition with age. PVD can cause floaters or flashes of light, which often fade over time. PVD isn’t painful or sight-threatening. But you should see an eye specialist right away to make sure you don’t have another retina problem.(https://my.clevelandclinic.org/health/diseases/14413-posterior-vitreous-detachment)

      2
      4 years ago Log in to Reply
    8. gary rind

      had an appointment for my annual exam with my ophthalmologist. guess he’s older than I thought, he fell and hurt his back so badly that he needed surgery so all appointments were canceled.

      4 years ago Log in to Reply
    9. Jane Cerullo

      Having cataract surgery today. Also had retina exam in other eye. Not a fan. But necessary evil.

      2
      4 years ago Log in to Reply
    10. Judith Marged

      Instead of using drops and wasting time for them to dilate the eyes, my ophthalmologist takes photographs of the eye. This makes for a quicker exam time and easier drive home, as my vision is not impaired from the dilation.

      4 years ago Log in to Reply
    11. LizB

      Had my annual eye exam in October after missing last year’s. No change to my eyes, or my eyeglass prescription. 34 years with Type 1 and no issues.

      4 years ago Log in to Reply
    12. Mark Schweim

      My normal annual Diabetic Eye Exams include dilation with the eye drops, but in 2021, every place around here offering the annual Diabetic Eye Exams said that they were unable to dilate the eyes for the exam due to COVID restrictions.

      4 years ago Log in to Reply
    13. Retired and glad

      I lost vision in my left eye in 1993 due to a central retinal vein occlusion. So since that time my right eye is very precious to me and I get it checked every quarter. Sometimes they dilate, sometimes they take pictures. So far, so good!

      4 years ago Log in to Reply
    14. Janis Senungetuk

      Once in February with the retina specialist I’ve had an annual appointment with for over a decade. I was diagnosed with proliferative diabetic retinopathy in my left eye in 1982 .

      4 years ago Log in to Reply
    15. Tina Roberts

      One. So far, no diabetic eye disease. Thank you Jesus. My mother is legally blind from diabetic retinopathy and MACTEL1.

      4 years ago Log in to Reply
    16. M C

      Due to having Diabetic macular edema, I have an exam, on average, once a month with eye dilation, and usually an injection in the eye having the worst of the problem…. Never seems to make much, if any, difference. (Not fun!!!)

      4 years ago Log in to Reply
    17. Christina Trudo

      Yikes!! I get checked twice a year… and your question prompted me to realize I have not been since late 2020. Called and made the appointment immediately.

      1
      4 years ago Log in to Reply
    18. Chrisanda

      I have had a yearly eye exam since I was a child. just because my parents stressed how important they are, even if you have no need for glasses (which I do now!). Once I was diagnosed with diabetes 24 years ago, the doctor automatically added the dilation yearly. So far, all is clear! Yea, and Thank you God!

      1
      4 years ago Log in to Reply
    19. PamK

      I opted for an Optomap photo instead. Had them done 2 times this year, as well as the past few years.

      4 years ago Log in to Reply
    20. Dennis Dacey

      Since my Retinopathy diagnosis in 1966 [began LASER treatments in 1967], I have had at least two dilated exams yearly. now in my later years after so many thousand LASER burns there isn’t any room left for LASER si we now do Avastin injections with dilation three times a year with “routine” dilated exams in-between, so at least one eye dilated for exam six times yearly.
      Although I was told in 1966 to expect total blindness within two years, I see well thanks to the awesome research and experimentation at Joslin, and earlier this year was issued a new motor vehicle operator license good until July 4, 2028.

      4
      4 years ago Log in to Reply
    21. Louise Jesserer

      In 1994, I was diagnosed with diabetic retinopathy. I was treated and have not had any further issues other than a 66 year history of diabetes!!

      4 years ago Log in to Reply
    22. Jillmarie61

      Fortunately, I don’t have diabetic retinopathy. Unfortunately, I was diagnosed with Age-Related Macular Degeneration just over two years ago. It’s the wet kind so it’s treatable. But that means I have to see a Retinologist every 2 months or so and have injections in both eyes to keep the disease at bay. ☹️

      4 years ago Log in to Reply
    23. Cheryl Seibert

      3 times. I’m blind in my left eye (from birth …. NOT T1D related) and am rapidly developing cataracts in my good eye. The doc is closely monitoring the changes in my vision.

      4 years ago Log in to Reply

    How many times in 2021 did you get a dilated eye exam (involving eye drops)? Cancel reply

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