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    • 1 hour, 13 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 hour, 13 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 hour, 16 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 16 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 7 hours, 18 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 8 hours ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 4 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 8 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 8 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 8 hours, 30 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 8 hours, 33 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 37 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 37 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 8 hours, 50 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 19 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 15 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 34 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 23 hours, 35 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 36 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Home > LC Polls > How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Bob Durstenfeld

      I have not seen a CDE in more than a decade. One use to work in my Endo’s office, but not for a long time.

      5 years ago Log in to Reply
    2. DeAnn Johnson

      The last time I saw a CDE was right after diagnosis . I haven’t seen a CDE in almost 30 years

      5 years ago Log in to Reply
    3. Janis Senungetuk

      This year, four times. Two of the appointments were related to new pump training and downloading a pump management app. When I’ve had specific questions I’ve contacted her thru My Chart and not needed to make an appointment.

      5 years ago Log in to Reply
    4. Amanda Barras

      I never see a CDE. I only see an Endo 1x a year.

      5 years ago Log in to Reply
    5. Mick Martin

      I’ve met up with a CDE 4 times this year … 3 of those times were to do with a new Medtronic pump and CGM, the other occasion was a regular, scheduled appointment.

      5 years ago Log in to Reply
    6. Dave Barden

      Same here only see CDE when starting something new. This year it was the libre2 system which I still evaluating before committing to it. When I asked and pressed I was finally told that the sensors cost $200 each. That’s at least $1200 per 3mo supply. Yes I have insurance but I still want to know what things cost.

      5 years ago Log in to Reply
    7. ConnieT1D62

      None for diabetes education. Met via FaceTime with the regional Tandem pump trainer who is a CDE/CDCES for trouble shooting Q&A for the X2 CIQ. BTW CDEs are now called Certified Diabetes Care and Education Specialists (CDCES). In order to qualify, one must hold a current professional license in one of the following professions: as a RN, RD, MD, DO, Pharmacist, PT, OT, LCSW, PhD Psych, or MS in Exercise Physiology. Those that are certified have a wide range of professional experience from being a newly certified beginner on the diabetes educator spectrum to someone who has been doing diabetes care and education for dozens of years.

      5 years ago Log in to Reply
    8. Ernie Richmann

      Have not seen a diabetes educator personally but an educators does lead a support group I sometimes attend. I asked about it once snd was told that I would mot gain any new knowledge. I have a new endo and he wants me to meet with a diabetes educator so I will.

      5 years ago Log in to Reply
    9. Daniel Bestvater

      I answered N/A. I’m a pharmacist/CDE so I guess I meet with a CDE every day!!

      5 years ago Log in to Reply
    10. Carol Meares

      Met with CDE to discuss Control iQ

      5 years ago Log in to Reply
    11. connie ker

      I ask my questions to the diabetic NP I see twice a year. I can call their office any time I need help, so after 22 years with type 1, I handle issues as best I can on my own. You become your own Dr,, nurse, educator, physical therapist, counselor and dietician living with this disease. No paid time off vacation days for all the work either.

      5 years ago Log in to Reply
    12. Chip Brookes

      I haven’t met with a CDE in years other than a virtual hook up last Spring when I switched to a T:slim. Early on in my career I did meet with a CDE several times. Now I rely on my quarterly endo meetings

      5 years ago Log in to Reply
    13. MARIE PEELER

      We tried a couple of years ago but didn’t find it very helpful, except for one that did pump training. She had a child with diabetes, so she was very real and very helpful but the others seemed too academic, like all they knew came from books… and we all know, diabetes affects everyone differently. You can learn just so much from books, and then it’s ‘on-the-job’ training so to speak.

      5 years ago Log in to Reply
    14. Kristine Warmecke

      I haven’t had an appointment with my CDE in a couple years. I do call or message her a few times a year, though.

      5 years ago Log in to Reply
    15. Steven Gill

      I saw an educator initially 22 years ago, confirmed I understood counting carbs, reading nutritional labels, how to use a measuring cup (she sent me to a diabetic support group but they were to depressing: all the “I’m hungry,” ” I’m tired, ” ” No-one understands… ” Medtronic had me see an educator several times for the 760G closed loop system. Otherwise

      5 years ago Log in to Reply
    16. Sarah Grobe

      Newly diagnosed this year so it for sure has been more than 5 between the initial learning and pump training.

      5 years ago Log in to Reply
    17. Molly Jones

      I haven’t seen one for a while. Not since training for use of Tandem.

      5 years ago Log in to Reply

    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)? Cancel reply

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