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    • 9 hours, 16 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 16 hours, 17 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 16 hours, 17 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 16 hours, 28 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 16 hours, 28 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 16 hours, 35 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 16 hours, 49 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 17 hours, 24 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 17 hours, 24 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 17 hours, 24 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 20 hours, 33 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 23 hours, 21 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 10 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 14 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 15 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?

    Home > LC Polls > How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
    Previous

    How many people in your family — grandparents, aunts, uncles, cousins, parents, siblings, spouse, etc. — live with type 2 diabetes? Share who in the comments!

    Next

    If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    23 Comments

    1. Molly Jones

      I am the only one with T1D, but 75% of my immediate family have autoimmune issues.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        My reply is the same as yours, Molly.

        2 years ago Log in to Reply
    2. mlettinga

      My younger brother and I have type 1. I was diagnosed at 8 and was 5. I do have several 2nd cousins from my mom side who do also.

      2 years ago Log in to Reply
    3. Gary Taylor

      Myself and my oldest daughter. I was 18 when diagnosed. She was 23 when diagnosed.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Step dad passed away from Type 2 Dietetic

      2 years ago Log in to Reply
    5. Alyne Branson

      I am adopted and have always told doctors, etc. that when asked if anyone in my family has type 1. Now I have 2 children and neither have it. I just found out that the daughter of my birth father (biological 1/2 sister) has had type 1 since she was 6 yrs old.

      2 years ago Log in to Reply
    6. Brian Vodehnal

      Honestly anyone living with you , you’re the only one, lives with diabetes. Kinda vague on the “living” term.

      3
      2 years ago Log in to Reply
    7. Tanya Levchuk

      My older half brother and I both have type 1. He was diagnosed at 12 and I was at 8.

      2 years ago Log in to Reply
    8. Nichole Pleisch

      Myself, a parent and my fiancé

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      My dad was the first, then me, then two of my younger siblings, then my eldest son, then his eldest daughter. All of us were diagnosed under age 2.

      2 years ago Log in to Reply
    10. Donal Conway

      Two cousins on my Mothers side have T1 since their before and after their teenage years. A few more developed T2 on the same side of the family. I was the first diabetes T1 diagnosed 53 years ago in my family. None of my children or Grandchildren so far have fortunately escaped the condition. I preach the gospel that there are a lot worse conditions out there that some people are unfortunately been discovered with? Diabetes is a very manageable condition to get. I am trying to prove that in a very positive and visible way.

      2 years ago Log in to Reply
    11. Mick Martin

      I selected “I am the only one in my family who lives with T1D”, which is true, but I did have a younger brother, also T1D, that died a couple of years ago.

      Other members of my extended family, two cousins, also have T1D, and 2 of my siblings have T2D.

      2 years ago Log in to Reply
    12. Carol Meares

      To be clear. My sister and I both have LADA. I put 2, counting myself.

      2 years ago Log in to Reply
    13. Lyn McQuaid

      My father is the only other person in my family with type one diabetes and we were both diagnosed right around the same age. We were both in our early 20s but when he was diagnosed in the early 1960’s, he was misdiagnosed as type two because of his age. Fortunately, when I was diagnosed in 1993, I was diagnosed correctly immediately, perhaps because of my father.

      2 years ago Log in to Reply
    14. Pauline M Reynolds

      I am the only one with Type I, but Type 2 has had its way with us. My husband, and four out of five children have/had Type 2!

      2 years ago Log in to Reply
    15. Kristen Clifford

      Pretty sure this one has been asked before

      2 years ago Log in to Reply
    16. Natalie Daley

      Live or lived? My older brother was T1D and died 13 years ago at age 67. I’m 77 and 4.5 years younger than he was, but I became T1D 17 years later than he did at age 23. I was 40.

      2 years ago Log in to Reply
    17. Lenora Ventura

      I chose I am the only one living with T1D but my dad had T1D for 40 years before a heart attack ended his journey. We had 15 years together as moral support which I greatly miss.

      2 years ago Log in to Reply
    18. Twinniepoo74

      My niece and I. I was diagnosed 1 year before my niece was diagnosed.

      2 years ago Log in to Reply
    19. Bruce Johnson

      My younger sister⁷

      2 years ago Log in to Reply
    20. Rex Franklin

      I’m the only T1D in my immediate family.

      2 years ago Log in to Reply
    21. Steve Rumble

      I answered 1 because my spouse was T1D, however she died of cancer 3 years ago, so now no one in my immediate family is T1D.

      2 years ago Log in to Reply
    22. PamK

      I wish I could have answered “Other,” but chose 1 other person. One of my parents has LADA and was diagnosed after I have had lived with T1D for over 20 years.

      2 years ago Log in to Reply

    How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes? Cancel reply

    You must be logged in to post a comment.




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