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    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 5 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 5 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 7 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 14 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 5 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 8 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 11 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 13 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
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    How important is the A1c measurement to you?

    Home > LC Polls > How important is the A1c measurement to you?
    Previous

    When evaluating your T1D, is your A1c or your time in range more important to you?

    Next

    For caregivers of children with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    34 Comments

    1. Barb Robertson

      I answered somewhat unimportant. Time in range is much more important and more precise

      7
      2 years ago Log in to Reply
    2. Douglas Kosmicki

      With CGM data and a hgba1c between 5 to 5.4 for over 5 years now I don’t check it more than every 6-12 months. However this my choice and would check more often if blood sugars were not normal.

      2 years ago Log in to Reply
    3. Kathy Hanavan

      I answered moderately important even though I view TIR as much more valuable because the medical world, other than in diabetes providers is focused on A1c still. One day soon, I hope that changes.

      3
      2 years ago Log in to Reply
    4. Lawrence S.

      I answered “very important”, but felt perhaps somewhere between very important and somewhat important. I view all of my T1D numbers as important. My A1c is just one important part of the the puzzle. Time in Range is important, as are trends, actual CGM readings, and a myriad of other important blood test and urine test results.

      4
      2 years ago Log in to Reply
    5. Patrick Burner

      The older you get the more important it becomes just like kidney health.

      1
      2 years ago Log in to Reply
    6. John Barbuto

      TIR most important.

      2
      2 years ago Log in to Reply
    7. Dennis Dacey

      I answered “neutral” as this measurement is treated by me as a guidepost on my journey through diabetes.
      Yes, what we now call HgA1c/HbA1c is certainly an important measurement guide, I do not use this reading as a goal. I say that even though, in 1974, my body and blood was used in the development of this test.

      2
      2 years ago Log in to Reply
    8. Jane Cerullo

      I try to keep eye on A1c, TIR standard deviation. Keeps me honest

      2
      2 years ago Log in to Reply
    9. Rex Franklin

      I answered ‘Very Important’ because my A1C shows to my Endo and Medical Insurance that I am compliant and well controlled T1D.

      1
      2 years ago Log in to Reply
    10. Marty

      I care about A1c’s only to the extent that it affects some health care providers’ (not my endo’s) impression of my blood sugar control. Particularly because I have irregularities with hemoglobin metabolism, A1c’s don’t mean much for me and actual blood sugar measurements are far more informative.

      2
      2 years ago Log in to Reply
      1. Lorri McLuckie

        This is exactly how I feel. My Dexcom predicted A1C is always much lower than the actual test result comes back. And all other doctors besides my endo, look at A1c and don’t think that my control is as good as it actually is.

        1
        2 years ago Log in to Reply
    11. Lyn McQuaid

      It used to be more important in the days before CGMs. I am suspicious of it for me now because it is always significantly lower than the average blood sugar values my Dexcom gives for 30, 60, and 90 days. For example, my Dexcom will say the average would result in an A1C of 6.1 while my A1C result is a 5.4. It’s been consistently like this ever since I got my first Dexcom eight years ago and my endo can’t explain it.

      1
      2 years ago Log in to Reply
      1. Bruce Schnitzler

        Same trends for me. My endocrinologist thinks it may be due to (1) my severe anemia or (2) the cancer medications I take.

        1
        2 years ago Log in to Reply
      2. Lyn McQuaid

        Thanks for your reply, Bruce! I am neither anemic nor take cancer meds so I’m not sure what my issue is but that is interesting to know. My endo originally thought that perhaps the meter I was using for finger stick calibrations (back when I used a Dexcom that required calibration) was inaccurate so I got a new meter that is supposed to the most accurate on the market but nothing changed. (Shrugs)

        1
        2 years ago Log in to Reply
    12. Janice B

      I am much more concerned with time in range. Which gives a better measure of blood sugar measurement

      7
      2 years ago Log in to Reply
    13. Kristi Warmecke

      My TIR (time in range) is more import to me and my endocrinologist.

      1
      2 years ago Log in to Reply
    14. Sharon Gerdik

      My A1C results have never been accurate. My Endo says I probably have a protein in my blood that negates the results. I always get a Fructosamine test and that result correlates with my TIR.

      1
      2 years ago Log in to Reply
    15. Pauline M Reynolds

      It was all important in the past, but just moderately important since I have had a CGM.

      1
      2 years ago Log in to Reply
    16. Ernie Richmann

      A1c is important- just understand that it is an average. Also very important is time in range. An acceptable average doesn’t tell the whole story especially if an individual is experiencing many lows and highs.

      2
      2 years ago Log in to Reply
    17. Melissa Childers

      A1c is not as important now that 6 are CGM’S with TIR.

      1
      2 years ago Log in to Reply
    18. Christine Gran

      As the mother of a teen with T1 it is very important to me, but not important enough for my son to change his habits to have better blood sugar management.

      1
      2 years ago Log in to Reply
    19. Carol Meares

      The 3 major pieces of data I use to assess how well I am doing:
      A1c, Time in range, and Standard deviation. Occasionally, I will delve deeper if numbers are getting out of whack.

      2
      2 years ago Log in to Reply
    20. David Hedeen

      A1c somewhat important yet TIR tell a better story of diabetic control

      2
      2 years ago Log in to Reply
    21. Ahh Life

      1. Time in range
      2. Standard deviation
      3. CGM hourly one month report.

      These are the most useful for my management. A1c is very useful for me to educate non-endocrinologist physicians who erroneously believe:

      1. Everyone should have lower A1c’s,
      2. The A1c is the be-all and end-all of diabetic management, and
      3. A1c is the gold standard for diabetic management. 🤕🤠

      2
      2 years ago Log in to Reply
    22. Janis Senungetuk

      I consider TIR far more important, because the A1c is an average and after 68 years living with T1D “average” is an illusion. A1c results from the same time period have varied from one certified lab to another. My endo agrees with me, unlike the other physicians I see who treat the A1c number as the decisive judgement on my glucose management skills.

      2
      2 years ago Log in to Reply
    23. Becky Hertz

      Time in range is the more important measurement for me. A1c is important for insurance reasons but TIR gives a better indication of how steady I am.

      2 years ago Log in to Reply
    24. TomH

      I use GMI, SD, and CoV more, A1c is only because my Endo still uses due to Medicare and medical community reliance on it.

      2 years ago Log in to Reply
    25. Juha Kankaanpaa

      Since using a cgm, the A1c measurement is no longer important to me. The cgm gives me real information on my bg levels whereas A1c is, and always has been, an estimate with high individual variation.

      2
      2 years ago Log in to Reply
    26. cynthia jaworski

      one doesn’t get a complete picture unless multiple statistics are used. I like to see a1c, TIR and SD.

      2 years ago Log in to Reply
      1. lis be

        Hi, what’s SD?

        2 years ago Log in to Reply
    27. Stephen Woodward

      Given that the A1C testing technology is decades old and directly impacted by ethnicity, health, recent big, lab variabilities, food, drugs, and more, it is not a valuable daily management assessment tool, CGM data is far more effective at assessing daily management.

      2 years ago Log in to Reply
    28. Kim Murphy

      I didn’t realize how important A1C was in relation to things besides T1D. I had a sholder injury and needed rotator cuff repair. Two surgeons said oh you are diabetic so it is just Normal age related wear and tear. When I finally found a surgeon that agreed I had an actual injury he said he would only do surgery if my A1C was under 7. So I am glad I keep it at 6.3- 6.6

      2 years ago Log in to Reply
    29. Jeff Balbirnie

      Zero importance. I understand how the information is used. Most white coats utilize it in the manner of as “moral” scythe (e.g. entirely negative) at every possible opportunity. I understand it well, I reject any import

      2 years ago Log in to Reply
    30. T1D4LongTime

      A1C is important because it is the only current measure of T1D control that reflects actual physical lab-obtained BG. However, it alone is not a good measure of control. TIR and SD are dependent on BG meters (point in time) or CGMs (continuous measuring). Both meters and CGMs can vary from lab-drawn BG values.

      2 years ago Log in to Reply

    How important is the A1c measurement to you? Cancel reply

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