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  • Activity
    • 2 hours, 36 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 4 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 4 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 6 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 21 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 22 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 23 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 6 hours, 24 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 24 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 30 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 6 hours, 34 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 50 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 13 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 8 hours, 6 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 53 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 55 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 9 hours, 20 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 2 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 33 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 10 hours, 34 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 10 hours, 55 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    How easy or difficult do you find the overall process of re-filling your insulin prescription?

    Home > LC Polls > How easy or difficult do you find the overall process of re-filling your insulin prescription?
    Previous

    Based on your insurance benefits, are insulin pumps and CGMs covered under your pharmacy benefit, durable medical equipment (DME) benefit, a combination of those two, or some other benefit(s)?

    Next

    If you have ever been prescribed steroids, did they have a noticeable effect on your blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    15 Comments

    1. Jneticdiabetic

      Personally put very easy. I have my monthly insulin vial on auto refill at my local CVS pharmacy. They text me when ready for pick up and submit refill request to my Endo. However, I have decent HMO insurance visa employer. My mom is on Medicare and has to jump through more hoops.

      2 years ago Log in to Reply
    2. LizB

      The actual process of requesting the refill is easy enough. I do it online and 1-3 days later I get an email and text letting me know it’s ready to pick up. But there is always a long line and long wait at Walgreens when I go to pick it up and that’s the annoying part.

      2 years ago Log in to Reply
    3. Mary Dexter

      Most of the time it’s easy. However, every few years some doctor will screw it up (arbitrarily reduce the amount, neglect to prescribe it, or cancel it) based on their mistaken belief that Type 1s are little kids who don’t produce any insulin and Type 2s are fat,old, lazy adults, so I couldn’t possibly need insulin. Many refuse to believe that LADA exists or believe that they can get along without insulin.

      2 years ago Log in to Reply
    4. Tb-well

      I have had so many problems with my pharmacy, I have called their corporate affairs group and written to their board of directors. From prescriptions misfiled, to medications missing, to misshipping and over shipping, my pharmacy very very rarely gets it right. But thanks to my insurance, they are the only one I can use without a sizable cost increase. I used to use the pharmacy by the college simply because they did a better job, but thanks to covid I am back to the neighborhood pharmacy which is a freaking train wreck.

      2 years ago Log in to Reply
    5. Dorian Dowell

      VA supplies as a prescription refill on demand. Usually delivered in 2 days (FEDEX)!

      2 years ago Log in to Reply
    6. Becky Hertz

      Very easy except for the question “do you know how expensive your prescription is?”.

      2 years ago Log in to Reply
    7. TEH

      I selected moderately easy. I stepped over to Medicare in August and the last order was my first on Medicare. I had to have a C-peptide test again, and my Endo had to document medical necessity. After be T1d for 30 years, I thought that was incredibly obvious to the most casual observer. Nobody wants to put up will all this mess if they didn’t have to. Would they?

      My Endo had a lot of work to do, but I just called his office up an asked them to send a prescription on to my mail order provider. I was charged $87.50 (for 8 vials) because I had not yet met my deductible. And it took over 3 weeks to get my order.

      2 years ago Log in to Reply
    8. Kristine Warmecke

      I chose moderately difficult, because I can’t afford my insulin most of the time; I have to confirm I am who I am, they can’t find my prescription so a new one is needed, then a new exception is needed because of my allergy to preferred brand, etc. They do pack it well & it arrives fast once everything is in order per insurance. It would be SO much nicer & easier if Medicare just cover all insulin for $35/month.

      2 years ago Log in to Reply
    9. Donna Condi

      Every third month Medicare rules cause a delay and I miss getting insulin that month. Thankfully I have a small stockpile since I only usually use one and a half vials per month.

      1
      2 years ago Log in to Reply
    10. Bonnie Lundblom

      I use CVS for my insulin and the pharmacist there told me the billing they do is quite difficult and there are specific code numbers that have to be entered so that Medicare Part B and my Medicare supplement will cover 100%. My only problem is when they don’t enter the information correctly and then want me to pay a huge amount since it’s a 3 month supply. I’ve learned to go there to pick up my insulin with a large dose of patience in my pocket!

      2 years ago Log in to Reply
    11. Cheryl Seibert

      Refilling through the PBM is easy as long as you wait the number of days until refill is permitted. RENEWAL is a nightmare….. faxes to the doctor either are not correctly sent or are lost. Every year, I have to play middle man to get the prescription renewed. It is not the doctor’s fault as far as I can tell. PBM suppliers are just too large and many diabetic supplies are not ‘pills’ with consistent daily dosages and strengths. Average units per day varies and PBM computer systems will not go up one vial if the number of vials for a 90 day supply calculates to 6.42. Frustration.

      2 years ago Log in to Reply
    12. James Cheairs

      I don’t work with an endo. I have a primary care doc who is willing to work with me with T1D and follows my direction in writing scripts to fulfill my insulin needs.

      2 years ago Log in to Reply
    13. Hieromonk Alexis

      I’m in a supportive living facility where there’s always a vial of Lispro available upon request.

      2 years ago Log in to Reply
    14. Lawrence S.

      I order on line every 90 days. It is mailed to me. The last order was delayed by UPS and came spoiled. But, it was refilled quickly and shipped overnight. I pay a $55 copay with each order

      2 years ago Log in to Reply
    15. Carlene Vaitones

      My insurance company changes their formulary once a year so I go through requesting different prescriptions. My doctors office is very busy so this is sometimes a 2 week process because of mistakes and do-overs. Recently, my pharmacy stopped carrying BD Nano Pens, but the one they switched to wasn’t covered by my insurance so had to switch pharmacies. Last month, my Rite Aid wasn’t able to get Tresiba for 2 weeks. Fortunately, I had kept some Lantus from two years ago that had not been opened or expired. If I hadn’t had that my doctor would have provided Tresiba samples. Refilling prescriptions used to be simple, smooth and dependable. Now it’s arduous.

      1 year ago Log in to Reply

    How easy or difficult do you find the overall process of re-filling your insulin prescription? Cancel reply

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