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    • 15 minutes ago
      Mary Coleman likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 hour, 47 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 1 hour, 47 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 1 hour, 48 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 1 hour, 48 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 1 hour, 48 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 13 hours, 18 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 13 hours, 18 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 13 hours, 19 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 16 hours, 22 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 20 hours, 19 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 21 hours, 27 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 50 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 22 hours, 50 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 22 hours, 50 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 23 hours, 14 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 23 hours, 14 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 23 hours, 14 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 23 hours, 15 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 23 hours, 24 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 23 hours, 25 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 23 hours, 25 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 23 hours, 26 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 23 hours, 26 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
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    How did you schedule your next appointment with your main T1D health care provider?

    Home > LC Polls > How did you schedule your next appointment with your main T1D health care provider?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. sweetcharlie

      I have not schedule an apointment with any doctor to discuss my diabetes for a long time.. ” many years “…. 70 years T1D, 91 years OLD..

      2
      2 months ago Log in to Reply
      1. MT

        How do you get the script for your insulin?

        2 months ago Log in to Reply
    2. Lawrence S.

      My last appointment was televideo on Zoom. So, I made my appointment via telephone. I tried using my hospital’s patient portal to make the appointment, but that was fruitless. By the way, my next appointment is tomorrow morning 🙂

      1
      2 months ago Log in to Reply
    3. Beckett Nelson

      If I had the choice it would’ve been phone, but he’s doing back in clinic now

      2 months ago Log in to Reply
    4. Rebecca Jervey

      They always schedule it before I leave. If something comes up and I need to reschedule I call but it’s super hard to find anything within 4 months if I do that so it’s always better to be on their calendar when I’m in the office.

      2 months ago Log in to Reply
    5. Annie Wall

      I always schedule my next appointment when I see either my endo or the NP. We alternate visits.

      2 months ago Log in to Reply
    6. LZ

      The doctor’s office schedules me, and tells me as I check out — was originally for the next visit in 3 months, then the next 2 visits. At my February visit, I found that they have now scheduled me for the next 3 visits, so through the end of the year. Since they make it the same day of the week and approximate time, I have only once, in recent years, had to change it.

      2 months ago Log in to Reply
    7. Tere North

      My appt was virtual, with next scheduled at end of appt.

      2 months ago Log in to Reply
    8. Thomas Brady

      Because of Medicare’s inflexibility on being seen every three months, my endo has a system. She books me for two appointments 3 and 6 months out. When I go in for the first in 3 months she books me for a new one 6 months out and gives me the lab orders she wants done. If there is any change in her schedule she works through lunch and gets her patients in so Medicare does not have a fit.

      3
      2 months ago Log in to Reply
      1. pru barry

        I sometimes wish it were Medicare having the fit instead of me. Too much stress for a disease that doesn’t respond so well to things like that!

        1
        2 months ago Log in to Reply
    9. Joan Fray

      They send me an appointment. It’s usually far into the future. Twice a year in person. Otherwise by email or phone.

      2 months ago Log in to Reply
    10. Janice Bohn

      After my visit with my provider when checking out I schedule my next visit

      1
      2 months ago Log in to Reply
      1. Lawrence S.

        I tried that today. They told me they don’t schedule out 3 months ahead. So, I have to play the guessing game about when to call for my next appointment.

        2 months ago Log in to Reply
    11. Barbara Bubar

      Scheduled at end of current appointment.

      1
      2 months ago Log in to Reply
    12. ConnieT1D62

      I am scheduled every 3 months for a year at at a time, usually for Sept, Dec, Mar, June and the schedule is renewed every September for the next year.

      2 months ago Log in to Reply
    13. Jane Cerullo

      I see my Endo every three months so I make my appointments at end of session. They also have a lab so I book those also.

      2 months ago Log in to Reply
    14. RegMunro

      I always schedule my next appointment as part of my current one. Usually I see my consultant every six months. The same person has looked after me for at least a decade now.

      1
      2 months ago Log in to Reply
    15. George Lovelace

      Always when checking out I am setting up the next visit and since on CIQ with A1c of 5.4 to 5.6 she doesn’t have an issue with Medicare approving every 4 months

      2 months ago Log in to Reply
    16. Patricia Kilwein

      The hardest part is the amount of time it takes to get an appointment. I have to book 6 months out now just to see the endocrinologist! I know I’m not the only one either, it’s just that it has become the norm here like we are in Canada or somewhere else besides the US….. just venting.

      2 months ago Log in to Reply
    17. qachemist

      I schedule my next appointment when I check out from my last appointment.

      2 months ago Log in to Reply
    18. Juha Kankaanpaa

      Usually I don’t book an appointment, they send me an invite for it.

      2 months ago Log in to Reply
    19. AnitaS

      They usually schedule my next appointment while at my current appointment, but for some reason they said they would call me to make my next appointment. Wasn’t sure why, but that was okay.

      2 months ago Log in to Reply

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