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    • 1 hour, 48 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 12 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 35 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 32 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 7 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 9 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How did you schedule your next appointment with your main T1D health care provider?

    Home > LC Polls > How did you schedule your next appointment with your main T1D health care provider?
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    What was your most recent A1c?

    Next

    If you use the Omnipod Eros system, how will you change your insulin delivery methods after the discontinuation of the Omnipod Eros on December 31, 2023? Share in the comments about the impact this discontinuation will have on you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. sweetcharlie

      I have not schedule an apointment with any doctor to discuss my diabetes for a long time.. ” many years “…. 70 years T1D, 91 years OLD..

      2
      3 years ago Log in to Reply
      1. MT

        How do you get the script for your insulin?

        3 years ago Log in to Reply
    2. Lawrence S.

      My last appointment was televideo on Zoom. So, I made my appointment via telephone. I tried using my hospital’s patient portal to make the appointment, but that was fruitless. By the way, my next appointment is tomorrow morning 🙂

      1
      3 years ago Log in to Reply
    3. Beckett Nelson

      If I had the choice it would’ve been phone, but he’s doing back in clinic now

      3 years ago Log in to Reply
    4. Rebecca Jervey

      They always schedule it before I leave. If something comes up and I need to reschedule I call but it’s super hard to find anything within 4 months if I do that so it’s always better to be on their calendar when I’m in the office.

      3 years ago Log in to Reply
    5. Annie Wall

      I always schedule my next appointment when I see either my endo or the NP. We alternate visits.

      3 years ago Log in to Reply
    6. LZ

      The doctor’s office schedules me, and tells me as I check out — was originally for the next visit in 3 months, then the next 2 visits. At my February visit, I found that they have now scheduled me for the next 3 visits, so through the end of the year. Since they make it the same day of the week and approximate time, I have only once, in recent years, had to change it.

      3 years ago Log in to Reply
    7. Tere North

      My appt was virtual, with next scheduled at end of appt.

      3 years ago Log in to Reply
    8. Thomas Brady

      Because of Medicare’s inflexibility on being seen every three months, my endo has a system. She books me for two appointments 3 and 6 months out. When I go in for the first in 3 months she books me for a new one 6 months out and gives me the lab orders she wants done. If there is any change in her schedule she works through lunch and gets her patients in so Medicare does not have a fit.

      3
      3 years ago Log in to Reply
      1. pru barry

        I sometimes wish it were Medicare having the fit instead of me. Too much stress for a disease that doesn’t respond so well to things like that!

        1
        3 years ago Log in to Reply
    9. Joan Fray

      They send me an appointment. It’s usually far into the future. Twice a year in person. Otherwise by email or phone.

      3 years ago Log in to Reply
    10. Janice Bohn

      After my visit with my provider when checking out I schedule my next visit

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I tried that today. They told me they don’t schedule out 3 months ahead. So, I have to play the guessing game about when to call for my next appointment.

        3 years ago Log in to Reply
    11. Barbara Bubar

      Scheduled at end of current appointment.

      1
      3 years ago Log in to Reply
    12. ConnieT1D62

      I am scheduled every 3 months for a year at at a time, usually for Sept, Dec, Mar, June and the schedule is renewed every September for the next year.

      3 years ago Log in to Reply
    13. Jane Cerullo

      I see my Endo every three months so I make my appointments at end of session. They also have a lab so I book those also.

      3 years ago Log in to Reply
    14. RegMunro

      I always schedule my next appointment as part of my current one. Usually I see my consultant every six months. The same person has looked after me for at least a decade now.

      1
      3 years ago Log in to Reply
    15. George Lovelace

      Always when checking out I am setting up the next visit and since on CIQ with A1c of 5.4 to 5.6 she doesn’t have an issue with Medicare approving every 4 months

      3 years ago Log in to Reply
    16. Patricia Kilwein

      The hardest part is the amount of time it takes to get an appointment. I have to book 6 months out now just to see the endocrinologist! I know I’m not the only one either, it’s just that it has become the norm here like we are in Canada or somewhere else besides the US….. just venting.

      3 years ago Log in to Reply
    17. qachemist

      I schedule my next appointment when I check out from my last appointment.

      3 years ago Log in to Reply
    18. Juha Kankaanpaa

      Usually I don’t book an appointment, they send me an invite for it.

      3 years ago Log in to Reply
    19. AnitaS

      They usually schedule my next appointment while at my current appointment, but for some reason they said they would call me to make my next appointment. Wasn’t sure why, but that was okay.

      3 years ago Log in to Reply

    How did you schedule your next appointment with your main T1D health care provider? Cancel reply

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