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    • 43 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 2 hours, 5 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 2 hours, 5 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 5 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 4 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 4 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 6 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 7 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 23 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 4 days, 1 hour ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
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    How did you schedule your next appointment with your main T1D health care provider?

    Home > LC Polls > How did you schedule your next appointment with your main T1D health care provider?
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    Next

    If you use the Omnipod Eros system, how will you change your insulin delivery methods after the discontinuation of the Omnipod Eros on December 31, 2023? Share in the comments about the impact this discontinuation will have on you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. sweetcharlie

      I have not schedule an apointment with any doctor to discuss my diabetes for a long time.. ” many years “…. 70 years T1D, 91 years OLD..

      2
      3 years ago Log in to Reply
      1. MT

        How do you get the script for your insulin?

        3 years ago Log in to Reply
    2. Lawrence S.

      My last appointment was televideo on Zoom. So, I made my appointment via telephone. I tried using my hospital’s patient portal to make the appointment, but that was fruitless. By the way, my next appointment is tomorrow morning 🙂

      1
      3 years ago Log in to Reply
    3. Beckett Nelson

      If I had the choice it would’ve been phone, but he’s doing back in clinic now

      3 years ago Log in to Reply
    4. Rebecca Jervey

      They always schedule it before I leave. If something comes up and I need to reschedule I call but it’s super hard to find anything within 4 months if I do that so it’s always better to be on their calendar when I’m in the office.

      3 years ago Log in to Reply
    5. Annie Wall

      I always schedule my next appointment when I see either my endo or the NP. We alternate visits.

      3 years ago Log in to Reply
    6. LZ

      The doctor’s office schedules me, and tells me as I check out — was originally for the next visit in 3 months, then the next 2 visits. At my February visit, I found that they have now scheduled me for the next 3 visits, so through the end of the year. Since they make it the same day of the week and approximate time, I have only once, in recent years, had to change it.

      3 years ago Log in to Reply
    7. Tere North

      My appt was virtual, with next scheduled at end of appt.

      3 years ago Log in to Reply
    8. Thomas Brady

      Because of Medicare’s inflexibility on being seen every three months, my endo has a system. She books me for two appointments 3 and 6 months out. When I go in for the first in 3 months she books me for a new one 6 months out and gives me the lab orders she wants done. If there is any change in her schedule she works through lunch and gets her patients in so Medicare does not have a fit.

      3
      3 years ago Log in to Reply
      1. pru barry

        I sometimes wish it were Medicare having the fit instead of me. Too much stress for a disease that doesn’t respond so well to things like that!

        1
        3 years ago Log in to Reply
    9. Joan Fray

      They send me an appointment. It’s usually far into the future. Twice a year in person. Otherwise by email or phone.

      3 years ago Log in to Reply
    10. Janice Bohn

      After my visit with my provider when checking out I schedule my next visit

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I tried that today. They told me they don’t schedule out 3 months ahead. So, I have to play the guessing game about when to call for my next appointment.

        3 years ago Log in to Reply
    11. Barbara Bubar

      Scheduled at end of current appointment.

      1
      3 years ago Log in to Reply
    12. ConnieT1D62

      I am scheduled every 3 months for a year at at a time, usually for Sept, Dec, Mar, June and the schedule is renewed every September for the next year.

      3 years ago Log in to Reply
    13. Jane Cerullo

      I see my Endo every three months so I make my appointments at end of session. They also have a lab so I book those also.

      3 years ago Log in to Reply
    14. RegMunro

      I always schedule my next appointment as part of my current one. Usually I see my consultant every six months. The same person has looked after me for at least a decade now.

      1
      3 years ago Log in to Reply
    15. George Lovelace

      Always when checking out I am setting up the next visit and since on CIQ with A1c of 5.4 to 5.6 she doesn’t have an issue with Medicare approving every 4 months

      3 years ago Log in to Reply
    16. Patricia Kilwein

      The hardest part is the amount of time it takes to get an appointment. I have to book 6 months out now just to see the endocrinologist! I know I’m not the only one either, it’s just that it has become the norm here like we are in Canada or somewhere else besides the US….. just venting.

      3 years ago Log in to Reply
    17. qachemist

      I schedule my next appointment when I check out from my last appointment.

      3 years ago Log in to Reply
    18. Juha Kankaanpaa

      Usually I don’t book an appointment, they send me an invite for it.

      3 years ago Log in to Reply
    19. AnitaS

      They usually schedule my next appointment while at my current appointment, but for some reason they said they would call me to make my next appointment. Wasn’t sure why, but that was okay.

      3 years ago Log in to Reply

    How did you schedule your next appointment with your main T1D health care provider? Cancel reply

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