Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 6 hours, 45 minutes ago
      kilupx likes your comment at
      Do you currently take metformin?
      Before I was correctly diagnosed the primary care physician said I must be type 2 due to my age of 36, even though I was always very thin and had rapidly lost even more weight. He prescribed metformin- I proceeded to get sicker and sicker. Finally got to an endocrinologist who tested and said I was T1D, and I was put immediately on insulin. What a game changer.
    • 6 hours, 46 minutes ago
      kilupx likes your comment at
      Do you currently take metformin?
      Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
    • 14 hours, 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
    • 16 hours, 39 minutes ago
      Kristi Warmecke likes your comment at
      Do you currently take metformin?
      Wow!
    • 16 hours, 40 minutes ago
      Kristi Warmecke likes your comment at
      Do you currently take metformin?
      I've had T1D for 50 years. I started taking Metformin 9 months ago. I take full dose at bedtime to manage my morning glucose rise. It keeps the liver from releasing glucose. It has helped.
    • 19 hours, 41 minutes ago
      Lawrence S. likes your comment at
      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
    • 19 hours, 42 minutes ago
      Lawrence S. likes your comment at
      Do you currently take metformin?
      I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
    • 19 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
    • 19 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
    • 19 hours, 44 minutes ago
      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
    • 1 day, 5 hours ago
      René Wagner likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      I hate formulary changes mid year. They should not be allowed!
    • 1 day, 5 hours ago
      René Wagner likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      I will be possibly switching from Humalog to Novalog next year. There is NO Medicare Part D plan in my county that now covers Humalog. Complicated by the fact that I use a Humalog specific Smart Pen, it will be one more hassle in T1 world. My endo will submit a formulary exception request next year. My hoarded supply of cartridges will carry me through while waiting for the response 🤞🏻I cannot believe that this is the broken system that we have to settle for in the richest country in the world.
    • 1 day, 14 hours ago
      NANCY NECIA likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      My doctor switched me without telling me from Humalog to novolog and told me it was due to insurance. I’m on Medicare and I never saw anything that said that was necessary. They call me periodically to see how I’m doing and I told them I didn’t appreciate being switched without being told. I thought initially it was a mistake when I picked it up at the pharmacy but they said that’s what the doctor ordered. Then the next visit, he told me all my issues with insulin switching and preauthorization holdups was my fault basically because he says “I have the wrong insurance”. Like I’m going to NOT use Medicare. My opinion? I think I have the wrong doctor, but it’s a hassle to switch.
    • 1 day, 14 hours ago
      NANCY NECIA likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      Not this year, but in 2026, I need to switch from Humalog to Novolog.
    • 1 day, 16 hours ago
      mojoseje likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      NEVER accerptable or appropriate. Nobody's healthcare should ever be determined by a third party's profit margin(s) to determine what we are forced to take.
    • 1 day, 18 hours ago
      Phyllis Biederman likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      My doctor switched me without telling me from Humalog to novolog and told me it was due to insurance. I’m on Medicare and I never saw anything that said that was necessary. They call me periodically to see how I’m doing and I told them I didn’t appreciate being switched without being told. I thought initially it was a mistake when I picked it up at the pharmacy but they said that’s what the doctor ordered. Then the next visit, he told me all my issues with insulin switching and preauthorization holdups was my fault basically because he says “I have the wrong insurance”. Like I’m going to NOT use Medicare. My opinion? I think I have the wrong doctor, but it’s a hassle to switch.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 1 day, 19 hours ago
      Marty likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      Had to, no. But Medicare is adding coverage for FIASP in '26 so it will be "bye, bye, bye, bye, bye" to Lyumjev!
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      Had to, no. But Medicare is adding coverage for FIASP in '26 so it will be "bye, bye, bye, bye, bye" to Lyumjev!
    • 1 day, 20 hours ago
      Scott Rudolph likes your comment at
      Have you had to switch diabetes medications in the past year due to health insurance changes?
      Had to, no. But Medicare is adding coverage for FIASP in '26 so it will be "bye, bye, bye, bye, bye" to Lyumjev!
    • 2 days, 16 hours ago
      eherban1 likes your comment at
      Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!
      I use InPen and it's great. Except they aren't keeping up with iOS so you now have to unlock your phone and open the app to check IOB instead of simply looking at the home screen. You can tell when app developers aren't users, otherwise they'd know how much of a pain this is when you check 50 times a day
    • 2 days, 17 hours ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Insurance won't cover and it was several hundred dollars.
    • 2 days, 17 hours ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      Glucagon is $425 for me on Medicare. It is cheaper to get an ambulance! I have an expired one that will work if I ever need it, but I won't.
    • 2 days, 17 hours ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      No. During the past century I threw out many glucagon doses about 5 years after each had expired - having never used a single glucagon dose.. This century, two dose kits were disposed of and never used. At this point, in my opinion, with modern tools for accurately monitoring one's body glucose levels, AND common awareness of how one is feeling, severe low BGL can be easily avoided thus not needing "emergency' glucagon. NOTE WELL!!! what I wrote in the last sentence, does NOT apply to the very young, and some newly diagnosed who have not yet mastered insulin dosing and who have not yet been accustomed to recognizing low or quickly dropping BGL.
    • 2 days, 18 hours ago
      Trish Bowers likes your comment at
      Do you have Glucagon on hand that is not expired? If not, please share why in the comments.
      I do because it Costc me over $300 to replace it. Too expensive.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

    Home > LC Polls > How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?
    Previous

    If you wear a CGM, how do you get your supplies?

    Next

    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 18 hours ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 5 days ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  
    Meet the Expert

    Meet the Expert: Centering the Voices of Youth and Families from Vulnerable Populations 

    Jewels Doskicz, 4 weeks ago 8 min read  

    16 Comments

    1. Janice B

      Not concerned at this time as I am still working. I am very concerned once I am retired and no longer working.

      5 years ago Log in to Reply
    2. Bonnie Lundblom

      I said “Other” since Medicare Part B along with my Medicare Supplemental insurance cover my insulin, pump and Dexcom CGM supplies. Hoping the increases the Medicare Supplemental plan seems to charge each year stay reasonable and affordable.

      5 years ago Log in to Reply
    3. Sherolyn Newell

      Also still working.

      5 years ago Log in to Reply
    4. Annie Wall

      Not concerned about insulin costs personally because I found a Medicare Part D plan where I pay no copays for insulin or any diabetic supplies. I am concerned for others who have far more out of pocket costs for this essential, lifesaving drug. Shame on this country for allowing that.

      5 years ago Log in to Reply
    5. Gene Maggard

      My Medicare Advantage plan pays everything except for insulin which is still a little high. As long as the Congress doesn’t do anything to change Medicare (for the worse), I’ll be fine.

      5 years ago Log in to Reply
    6. Grey Gray

      Thanks for reminding me to order supplies

      5 years ago Log in to Reply
    7. Thomas Hatton

      I just ordered infusion sets, resivors, and Sensors from minimed and they came within a week, about their usual time.

      5 years ago Log in to Reply
    8. Tina Roberts

      The sensors are a killer.

      5 years ago Log in to Reply
    9. Phyllis Donahue

      Very concerned I stopped using my cgm it was and is too expensive. My insurance does not pay for them.

      5 years ago Log in to Reply
    10. Becky Hertz

      Thankfully I can still afford to pay, however, it does limit other expenses and experiences. Insulin costs are what’s out of control for me. I wish all medicine and equipment for ALL with diabetes was much more affordable.

      5 years ago Log in to Reply
    11. Ahh Life

      The comment by Tina Roberts says it best, “The sensors are a killer.” Both in terms of medical advice (you can’t live without them) and in terms of expense (you can’t afford them without excellent insurance). Doh! (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ

      5 years ago Log in to Reply
    12. Patricia Maddix

      Right now my Medicare and Medicare supplement pays for everything but I am using NovoLog insulin which is covered under part B as it is used in an insulin pump. However I am hoping to try one of the new ultra rapid acting insulin’s and don’t know if Medicare will cover this.

      5 years ago Log in to Reply
    13. Mick Martin

      Not at all concerned, but this is because I live in the UK where ALL of my diabetes supplies are paid for by our NHS (National Health Service). The NHS is financed by direct taxation of all working people that earn over a prescribed amount.

      5 years ago Log in to Reply
    14. Molly Jones

      The insurance with my husband is very good and his job is stable at the this time. I do not pay for diabetic supplies: Dexcom, tandem, insulin. I do not look forward to retirement.

      5 years ago Log in to Reply
    15. Pam Butler

      Getting my supplies has been one of the largest stressor of my life! I can’t afford them often. I was off my pump for several months but on increased prednisone dose for my Lupus, therefore my BS were out of control. I’m a former RN. Now disabled on Medicare that doesn’t cover it all. I don’t qualify for Medicaid because I make too much on SSDI… because I worked throughout my life. A whopping $1262 a month to live on. Medicaid will kick in and help after I meet Spenddown of spending around $2500 every 6 months on medical out if pocket. This is so broken and wrong. My life centers around balancing 3 autoimmune diseases with virtually no money after normal living expenses. I want to fix this broken system. Is there anyone working on this I can join?

      5 years ago Log in to Reply
    16. ConnieT1D62

      With the Medicare Advantage plan I am on it actually got easier and more affordable once I turned 65.

      5 years ago Log in to Reply

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]