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    • 5 hours, 3 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 5 hours, 3 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 14 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 14 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 22 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 35 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 6 hours, 10 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 6 hours, 11 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 6 hours, 11 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 20 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 12 hours, 8 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 50 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

    Home > LC Polls > How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?
    Previous

    If you wear a CGM, how do you get your supplies?

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    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Janice B

      Not concerned at this time as I am still working. I am very concerned once I am retired and no longer working.

      5 years ago Log in to Reply
    2. Bonnie Lundblom

      I said “Other” since Medicare Part B along with my Medicare Supplemental insurance cover my insulin, pump and Dexcom CGM supplies. Hoping the increases the Medicare Supplemental plan seems to charge each year stay reasonable and affordable.

      5 years ago Log in to Reply
    3. Sherolyn Newell

      Also still working.

      5 years ago Log in to Reply
    4. Annie Wall

      Not concerned about insulin costs personally because I found a Medicare Part D plan where I pay no copays for insulin or any diabetic supplies. I am concerned for others who have far more out of pocket costs for this essential, lifesaving drug. Shame on this country for allowing that.

      5 years ago Log in to Reply
    5. Gene Maggard

      My Medicare Advantage plan pays everything except for insulin which is still a little high. As long as the Congress doesn’t do anything to change Medicare (for the worse), I’ll be fine.

      5 years ago Log in to Reply
    6. Grey Gray

      Thanks for reminding me to order supplies

      5 years ago Log in to Reply
    7. Thomas Hatton

      I just ordered infusion sets, resivors, and Sensors from minimed and they came within a week, about their usual time.

      5 years ago Log in to Reply
    8. Tina Roberts

      The sensors are a killer.

      5 years ago Log in to Reply
    9. Phyllis Donahue

      Very concerned I stopped using my cgm it was and is too expensive. My insurance does not pay for them.

      5 years ago Log in to Reply
    10. Becky Hertz

      Thankfully I can still afford to pay, however, it does limit other expenses and experiences. Insulin costs are what’s out of control for me. I wish all medicine and equipment for ALL with diabetes was much more affordable.

      5 years ago Log in to Reply
    11. Ahh Life

      The comment by Tina Roberts says it best, “The sensors are a killer.” Both in terms of medical advice (you can’t live without them) and in terms of expense (you can’t afford them without excellent insurance). Doh! (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ

      5 years ago Log in to Reply
    12. Patricia Maddix

      Right now my Medicare and Medicare supplement pays for everything but I am using NovoLog insulin which is covered under part B as it is used in an insulin pump. However I am hoping to try one of the new ultra rapid acting insulin’s and don’t know if Medicare will cover this.

      5 years ago Log in to Reply
    13. Mick Martin

      Not at all concerned, but this is because I live in the UK where ALL of my diabetes supplies are paid for by our NHS (National Health Service). The NHS is financed by direct taxation of all working people that earn over a prescribed amount.

      5 years ago Log in to Reply
    14. Molly Jones

      The insurance with my husband is very good and his job is stable at the this time. I do not pay for diabetic supplies: Dexcom, tandem, insulin. I do not look forward to retirement.

      5 years ago Log in to Reply
    15. Pam Butler

      Getting my supplies has been one of the largest stressor of my life! I can’t afford them often. I was off my pump for several months but on increased prednisone dose for my Lupus, therefore my BS were out of control. I’m a former RN. Now disabled on Medicare that doesn’t cover it all. I don’t qualify for Medicaid because I make too much on SSDI… because I worked throughout my life. A whopping $1262 a month to live on. Medicaid will kick in and help after I meet Spenddown of spending around $2500 every 6 months on medical out if pocket. This is so broken and wrong. My life centers around balancing 3 autoimmune diseases with virtually no money after normal living expenses. I want to fix this broken system. Is there anyone working on this I can join?

      5 years ago Log in to Reply
    16. ConnieT1D62

      With the Medicare Advantage plan I am on it actually got easier and more affordable once I turned 65.

      5 years ago Log in to Reply

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)? Cancel reply

    You must be logged in to post a comment.




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