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    • 52 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 42 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 48 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 2 hours, 48 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 50 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 2 hours, 51 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 5 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 7 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 8 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 25 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 26 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 45 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 45 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 47 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 18 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 31 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 40 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 42 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 5 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
    Previous

    If you wear both an insulin pump and a CGM, how often do you put both devices on the same area of your body? (ex: pump site and CGM in the same section of your abdomen, both on the same arm, etc.)

    Next

    Before you were diagnosed with type 1 diabetes, did a healthcare provider tell you that you had prediabetes, or inform you that you had elevated blood glucose levels?

    Sarah Howard

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    28 Comments

    1. Retired and glad

      Good Medicare Advantage plan insurance!

      3
      1 year ago Log in to Reply
    2. Sahran Holiday

      July 1 my insurance CIGNA changed the vendors for DME and raised prices. The vendors Express Scripts and Edgepark are incoherent, careless. I pay 19% of my net salary for employer provided health coverage. Switching the end of this year.

      1
      1 year ago Log in to Reply
    3. Gerald Oefelein

      With traditional Medicare my pump and CGM supplies are covered as Part B Durable Medical Equipment with Medicare paying 80% and my CIGNA supplemental insurance paying the remaining 20%.

      1
      1 year ago Log in to Reply
    4. George Lovelace

      Just a little concerned with possible Medicare changes

      1
      1 year ago Log in to Reply
    5. Karen Maffucci

      Since I have been on Medicare on May 1st it has been extremely stressful and financially challenging. The costs may force me to go back to multiple shots a day.

      3
      1 year ago Log in to Reply
    6. Lawrence Stearns

      For the time being, I am getting the supplies I need that are covered by Medicare and my supplemental UHC insurance.
      However, I’ve gone through two Dexcom receivers that stopped working. Medicare will not pay for another for 5 years. I bought a new telephone so I could use the Dexcom G6 app. The app kept losing the transmitter signal and didn’t work properly.
      Otherwise, cost is not currently my major concern. My currently problems is getting my supplies (CGM) on time from Edgepark.

      2
      1 year ago Log in to Reply
      1. Bob Durstenfeld

        Call, Dexcom, there is a simple setting on your phone that fixes the lost signal.

        2
        1 year ago Log in to Reply
    7. ConnieT1D62

      I answered “A little concerned”. Am on Medicare with a fairly decent Advantage plan, but am in the donut hole so things are bit more pricey. I wish they would just get rid of the donut hole nonsense and evenly distribute reasonable payments across the entire 12 month period so senior adults with T1D can plan and budget accordingly. Our spending needs don’t change when we reach the “donut hole”; in fact because T1D is an ongoing expensive health concern we often reach the donut hole by mid-year and then we are stuck with having to pay more for what we need to stay alive.

      5
      1 year ago Log in to Reply
    8. Eadie Laro

      My greatest concern is receiving my supplies at the appropriate time.

      4
      1 year ago Log in to Reply
    9. Mary Dexter

      Negotiating the coordination of doctor’s office, insurance company, and third-party DME is stressful. Their stories don’t jive so I wonder who is lying or if anyone is telling the truth. Tuesday everything is fine; then Friday 4PM I am told my order cannot be shipped, and this pattern repeats week after week until just before I will no longer be able to use my CGM because my transmitter will expire or I won’t have sensors, and then they relent. I get my stuff, but the next time I need stuff, the cycle begins again.

      4
      1 year ago Log in to Reply
    10. Natalie Daley

      Although we have reasonable retirement earnings, my copay for insulin despite Medicare and bridge insurance is over $700 every other month. I’ve stopped eating lunch, which eliminates a dose of novolog and lowers my Tresciba. I’ve lost 25 lbs over the years, lowered my A1C. If I get hungry, I have a non-carb snack such as nuts or coffee with a splash of milk.

      1
      1 year ago Log in to Reply
      1. Kristine Warmecke

        There are other’s who do the same. I’m one of them.
        If it weren’t for the cost of my Novolog, my Medicare Advantage plan would be awesome. They cover none of it though, because it’s not on their formulary & I am allergic to Humalog.

        1 year ago Log in to Reply
    11. Bob Durstenfeld

      Supplies have been part of or budget forever. That does not mean they are affordable. We give up other things.

      2
      1 year ago Log in to Reply
    12. Tom Caesar

      It costs me roughly $14 per day for supplies, mainly towards insurance that covers CGM, pump, and insulin needs. My prescription insurance has a $400 yearly deductible and my first vial eats up most of that, no help from medicare. After that the price drops to $25 per vial until the doughnut hole pushes it up to $100. Try to get samples from my Dr each visit. Having diabetes for over 50 years the total cost is enormous! PS had very poor service from Edgepark, US Medical so much more organized.

      1 year ago Log in to Reply
    13. Anthony Angel

      Due to a “surgery” I had due to diabetic retinopathy my copay and out of pocket have all been met. So I am good at least til the end of the year.
      .

      1
      1 year ago Log in to Reply
    14. Sjoymex

      Right now I’m blessed with great insurance and a full time job. However in the past I have had to either go without, minimize the amount of supplies used, or even sell belingingdms in order to afford insulin, strips, etc.

      1 year ago Log in to Reply
    15. Mick Martin

      Not at all concerned as I live in the United Kingdom of Great Britain and Northern Ireland so do not have to pay anything for my diabetes supplies. (They are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      1
      1 year ago Log in to Reply
    16. Sadie Robinson

      I am concerned because the supplies to maintain safe levels of blood glucose are expensive on a fixed income. Those of us that try to keep up with the technology have struggles.

      1 year ago Log in to Reply
    17. Henry Renn

      I’m in Medicare. If I had to pay for majority of supplies I’d have to go back to MDIs.

      1 year ago Log in to Reply
    18. Ahh Life

      The costs referenced by most here are the direct peel-off-the-dollar-bills to pay someone costs. However, as we’re learning about crypto currency, money in the digital age does not have to be foldable.

      The cost that everyone hints at but never explicitly mentions is the ā€œtime costsā€ of the American medical system. The time spent waiting on the phone; the time spent talking to medicare; the time spent talking to secondary insurance; the time spent talking to MD’s; the time spent talking to CGM vendors; the time spent talking to pump vendors; the time spent talking to pharmaceutical companies; the spent talking to local drug stores.

      Now multiply all those times together, since in each and every case someone is on the other end of the phone with you. They waste time calling each other trying to get ā€œthe other guyā€ to pay for something.

      I do not know what your time nor mine is worth. But you could estimate the physician’s time, the insurance guy’s time, etc. etc. When all is said and done, it amounts to a time tax. It doesn’t appear to have a monetary value, but, boy, does it cost a lot. ĀÆ\_( Ķ”ā›ā€Æē›Š Ķ”ā›)_/ĀÆ

      1 year ago Log in to Reply
    19. Janice B

      As others have stated above coverage of care and supplies is very dependent on the particular insurance plan people are on. Right now I am covered well, but through out my 25 years I have had many different company supplied insurance plans some of which were so expensive I was struggling to pay for MID.

      1 year ago Log in to Reply
    20. Ronald Troyer

      while I’m not particularly concerned about affording it I will say that because of Medicare’s restrictions on ordering cgm supplies I’m concerned that I won’t receive them in time for my next extended time away from home. When traveling it’s especially hard to get that timing right. There should definitely be some provision for this

      1 year ago Log in to Reply
    21. PamK

      As the end of the Recovery Act comes closer I am very concerned. We have not been recalled to work yet, and finding new jobs at our ages is difficult. Not sure what we will do.

      1 year ago Log in to Reply
    22. Dorian Dowell

      Fortunately, I receive supplies and equipment via the VA. Hopefully, this doesn’t change!

      1 year ago Log in to Reply
    23. Adam Wright

      I more concerned FedEx is going to lose them again and give me the run around. The regional facility in my area is known for shipping packages by mistake across the country. There are multiple reviews stating it is the Bermuda Triangle of FedEx.

      1
      1 year ago Log in to Reply
    24. Antsy

      My supplies are affordable; I’m lucky to have great insurance. MY problem is receiving them safely & securely each time. Medtronic uses only UPS, and I learned yesterday drivers are not supposed to ring a doorbell when they leave a package UNLESS the shipper pays extra to require a signature. Now I know why they ignored the sign I’d taped on the door, asking them to ring before leaving.. I stay home when I know supplies are supposed to arrive, as we’ve had packages stolen before (including pump supplies) when we were home, despite signing up for UPS notifications. Thieves are fast here.. I think I’ve talked Medtronic into requiring a signature every time (without requiring a lengthy phone call every 3 months). We’ll see if it works. One would think getting a driver to ring a dang doorbell when they leave expensive medical supplies should be easy for the user to request, but it isn’t. If it happens again, I’ll switch to Tandem and Dexcom so most supplies will come from my pharmacy. Time for a new pump anyway…

      1 year ago Log in to Reply
    25. Wanacure

      I contribute to groups that are working to preserve and expand social security and Medicare for all. I hope at least future American generations will have single payer universal health care. There are other countries where private health insurance companies are required to be non-profit. Result? Better health care for more people at half the cost of US health care. It took organized political struggle to get social security and to finally get Medicare. Why stop now?

      1 year ago Log in to Reply
    26. NAK Marshall

      My Medicare plan is great. I am lucky. I did at one time in my career leave a job I loved at a non-profit and return to teaching in a public school for the health insurance though. At one time in my late 30’s I was on the “Colorado Health Insurance for the Uninsurable,” which cost as much just for me as the insurance we had for the 3 other members of our family.

      1 year ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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