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Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
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Never heard of a doctor doing this before!
Yes I am a Type 1 Diabetic for 50 years and my Doctor gives me Farxiga, a type 2 medication for my Kidneys which does help keep my protein level down.
Many years ago a T2 med was prescribed. Really evened out my bg but FDA pulled drug. Didn’t take any after that bc of potential side effects. After 67 yrs of T1 have kidney disease so couldn’t take any.
T1D for 35 years. Chronic Kidney Disease the last five years, now in stage 4. My endo prescribed Farxiga 13 months ago and the kidney disease progression has significantly slowed. Farxiga is being called the miracle drug of the decade by some endocrinologists. I would have started taken it sooner, but FDA was still only approving it for T2D, so my insurance wouldn’t cover it. Now the FDA approves it for anyone with kidney disease. My co-pay is still high, as this medication is still under patent.
PS – Farxiga is an SGLT-2 inhibitor.
Was prescribed Metformin back when I was still on MDI on the theory taking it at night would help with Dawn Phenomenon. It didn’t, but it didn’t seem to hurt anything so I kept taking it after I got a pump (which was the answer to DP). More recently my endo recommended trying me on Jardiance, which has made a huge difference in attenuating highs and lows. They warn about hypos for T1s using it, but hasn’t been a problem for me. I recommend it, if anyone’s thinking of trying it.
My endo is willing to prescribe, but my insurance doesn’t cover and I cannot afford to pay out of pocket myself.
Medicare will not cover either.
I was diagnosed in 1945, and diagnosed with insulin resistance in 1998. I have used Metformin for 13 years.
When these meds were first available (2012-2015) my endo and I agreed to off-label use. I loved the weight and blood sugar control. I voluntarily stopped after 2 days in the ICU from DKA. (Farxiga)
I have been put on both Metformin and Ozempic over the years. I have discontinued the use of both on my own. I felt both those meds did not improve insulin resistance nor did it aid in weight loss so I stopped taking both.
I had been prescribed a SGLt2 inhibitor. It made my leg muscles feel funny so I stopped. Recently I convinced the endo to let me try metformin. The minimal dose was tolerable, so I tried adding a second daily dose, and I just didn’t feel well. I am trying to address my insulin resistance by lowering my carb intake.
No, my endocrinologist knows I most likely won’t take it. Though I have had other doctors who do not understand diabetes, will recommend medications and tell me to tell my endocrinologist to prescribe it. Then he and I will laugh about it.
While I currently am not prescribed any T2 meds of-label, I’ve be prescribed both a GLP-1 and SGLT-2, not at the same time.
When my endo dx chronic kidney disease four years ago, I asked her about Farxiga, an SGLT-2 inhibitor. She said no, because it was ‘off-label’. I’m going to ask her again.
I was prescribed Ozempic but I chose not to take it.
I take a cocktail of 3 off label drugs; Jardiance, Metformin and Acarbose. All for sustained insulin resistance. The cocktail help cut my insulin load from 55units per day to 40, and also helps manage my weight.
I answered no. I have been a Type 1 for over 55 years.
Insulin pen
I have taken metformin and victoza in the past when I took statins. I no longer take statins and am no longer insulin resistant. While on statins I could not get my A1c below 8.3. After quitting them my A1c dropped to the 6-6.5 range. My cholesterol has always been in the low normal range.
Yes, Rybelsus to be exact. Was having unheard of success by increased sensitivity, decreased daily usage by 40%, decreased my A1C by one full point, 7.3 to 6.3 and lost 40 lbs in 9 months. Insurance changed 1.1.23 and the new provider won’t cover because I am not a type 2. Very, very frustrating to say the least…..
I have been on a low dose of Victoza for several years. I only take 0.8 mg daily in the morning. It helps with appetite satiety to curb emotional stress overeating tendencies. It has helped with BG management and weight control in the long run because I no longer experience uncontrollable urges to overeat.
I requested the GLP-1. Dr. said it was “off-label,” so the cost is about $119 per month. I like the GLP-1. Will continue to use it.
I wish my doctor would. I have asked, but he just says that “he drug(s) are not FDA approved for type 1″…. I don’t care, I wish I could get them, I really believe that it would help me in many ways.
I asked for SGL due to albumin in my urine. it has been lifechanging. My TIR is up my albuminuria is down and my post prandial glucose has never been better.