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    • 11 hours, 28 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 11 hours, 28 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 11 hours, 29 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 12 hours, 43 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 16 hours, 16 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 16 hours, 17 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 19 hours, 41 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 19 hours, 41 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 19 hours, 41 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 19 hours, 42 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 19 hours, 43 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 20 hours, 6 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 7 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 20 hours, 56 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 52 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 23 hours, 52 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 23 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 19 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 19 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 21 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 21 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    Have you participated in a diabetes-related clinical trial this year?

    Home > LC Polls > Have you participated in a diabetes-related clinical trial this year?
    Previous

    What was your A1c at the time of your T1D diagnosis?

    Next

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    37 Comments

    1. Melinda Lipe

      I tried, but did not qualify for one.

      2 years ago Log in to Reply
    2. Brian Vodehnal

      Remotely thru the University of Michigan. Hypoglycemia and tips to help prevent them. Sharing CGM results thru clarity.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      This year

      2 years ago Log in to Reply
    4. Eve Rabbiner

      Age 77. Considered too old for all the trials I’ve seen.

      2 years ago Log in to Reply
    5. Gary Rind

      tried to qualify for the Vertex trial that didn’t require immunosuppressant drugs but my A1C was too low

      2 years ago Log in to Reply
      1. Clare Fishman

        Mine was too low as well. And they wanted lots of hypos which required medical intervention. I haven’t had that happen in 7 years.

        2 years ago Log in to Reply
      2. Gary Rind

        knock wood, never have had a hypo that required medical intervention.

        other trials for Vertex required having hypos that needed outside intervention but this one didn’t.

        2 years ago Log in to Reply
      3. Nevin Bowman

        Same here. They only want to help those unwilling to help themselves 😳

        2 years ago Log in to Reply
      4. Anne Blayney

        Same here! But I had a lovely chat with one of the nurses who does the screening. Even that was an interesting process. (Here in Canada, there are fewer trials available so this was my first opportunity.)

        2 years ago Log in to Reply
      5. lis be

        same here. I didn’t qualify because my A1c was reasonable.

        2 years ago Log in to Reply
    6. Patrick Burner

      University of Michigan and Boston Hospital. Shared CGM values, took lengthy surveys, gave permission for A1c tests, etc

      2 years ago Log in to Reply
    7. JOAN ULMER

      How do you participate in diabetes related clinical trails?

      2 years ago Log in to Reply
      1. Gary Rind

        try the all of us research program

        2 years ago Log in to Reply
    8. rick phillips

      I want too.

      2 years ago Log in to Reply
    9. Ahh Life

      Michigan studies. And Eli Lily dementia study. However, in the Lily study you had to remember at least 2 of the 10 things they mentioned at the start of a conversation. I could only remember 1.

      Now, what was I talking about? 😴🤔

      3
      2 years ago Log in to Reply
    10. Clare Fishman

      I participated in 2 clinical trials this year. One was at Mass General called T1D Beacon was a study of bone health in people with T1D over age 50. It involves 2 visits over 2 years with blood draw, ct scan, and surveys. The aim is to develop preventive measures and treatment to improve bone health in people with T1D who have a 2 to 7 fold increased risk for broken bones. The second study was the Joslin Heart & Kidney study to further understand connections between changes in cardiovascular system and early kidney disease in people with T1D. This one involved ct scan and mri of heart and kidney, blood tests, urine tests and ekg.

      1
      2 years ago Log in to Reply
    11. cynthia jaworski

      Too old for most, but I did share cgm results with U of Michigan.

      1
      2 years ago Log in to Reply
      1. Gary Rind

        did Michigan as well

        2 years ago Log in to Reply
    12. Janis Senungetuk

      I’ve applied to several but wasn’t selected. Guess at 77, I’m now too old.

      2
      2 years ago Log in to Reply
      1. George Lovelace

        I know and I’m only 3 years short of you {never mind my height 🙂 } 60 yrs T1, I’m a Survivor

        2 years ago Log in to Reply
    13. Paul McGuigan

      39 years in DCCT/EDIC

      2 years ago Log in to Reply
    14. Lindsey Whitnell

      We just did TrialNet for our youngest. Waiting for results!

      2 years ago Log in to Reply
    15. James Cheairs

      I have not this year but have participated in several over the years. Unfortunately, there are few trials for seniors with T1D. Most have an age cut off of 65. Otherwise, I would participate in more.

      2
      2 years ago Log in to Reply
    16. Janice B

      Not a clinical trial as such, but have participated in numerous surveys and questionnaires from multiple university studies

      1
      2 years ago Log in to Reply
    17. Edward Geary

      PERL fenofibrate study conducted by Joslin Diabetes Center and others. Study hopes to determine if fenofibrates slow progression of kidney disease in Type 1 diabetics.

      2 years ago Log in to Reply
    18. Nevin Bowman

      No because my A1c was too low 😡

      1
      2 years ago Log in to Reply
    19. PamK

      Other – I tried, but did not get through the qualification round for any of them (3 total tries).

      2 years ago Log in to Reply
    20. Dave Akers

      Would love to participate but I don’t usually qualify for 1 of 2 reasons.
      1) I’m on AFREZZA.
      2) my A1c is too good.

      2 years ago Log in to Reply
    21. Russell Buckbee

      I am in EDICT the longterm epidimological follow up to DCCT.

      2 years ago Log in to Reply
    22. Karen Newe

      CGM with 15 day life.

      2 years ago Log in to Reply
    23. Janelle Stallkamp

      EDIC study for years, which studies how the large organs are affected by diabetes.

      2 years ago Log in to Reply
    24. Molly Jones

      I have only participated in the multiple surveys for diabetes this year but keep me eye on clinicaltirals.gov and my doctors are aware of my desire for this body to be useful for science and inform me when they know of a good trial.

      1
      2 years ago Log in to Reply
    25. qachemist

      I’ve applied but I’m always too old (68) and I was diagnosed with LADA so no one wants to deal with that quirk. I would think that diagnosis of LADA at age 65 (with normal BG up to that time) would interest someone.

      2 years ago Log in to Reply
    26. Jennifer Farley

      I have filled out many questionnaires but not sure I am meeting requirements. Would like to contribute anyway I can.

      2 years ago Log in to Reply
    27. Thomas Emge

      It was for a Dexcom sensor and a meter trial.

      2 years ago Log in to Reply
    28. Jeff Balbirnie

      Nope, but keep looking forward to qualifying

      2 years ago Log in to Reply
    29. Anita Stokar

      I haven’t, but my doctor said she would let me know when a glucagon pump clinical trial is started in my area.

      2 years ago Log in to Reply

    Have you participated in a diabetes-related clinical trial this year? Cancel reply

    You must be logged in to post a comment.




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