Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 35 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 hour, 35 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 hour, 46 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 hour, 46 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 hour, 54 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 2 hours, 7 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 2 hours, 42 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 2 hours, 43 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 2 hours, 43 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 52 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 8 hours, 40 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 19 hours, 22 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 20 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 20 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 20 hours, 49 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 23 hours, 2 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 23 hours, 2 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 23 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 23 hours, 45 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 1 hour ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 3 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 18 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes?

    Home > LC Polls > Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes?
    Previous

    Are your blood glucose (BG) patterns different during weekends than weekdays? Select any that apply to you.

    Next

    If you use a device, how satisfied are you with the process of ordering replacement supplies for your sensors/sites that do not last their full standard duration?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 1 month ago 11 min read  

    25 Comments

    1. Steven Gill

      Guess I’ll bite.

      Prior to diagnosis I was an extremely heavy drinker, it had it’s consequences. That slowed my sexual “activities,” after diagnosis even although I all but stopped drinker (3-4 beers are a lot now) I’ve made a lot more solitude life. I made other priorities (taught myself automotive repair/small engines/appliances, rescued 19 dogs/kept 10, Mother and 3 brothers lived with me through the years, 2 nephews, got a few folks from shelters, and mentored neighbor kids). Basically kept myself too busy.

      I checked “unsure” because ummm… everything seems to work okay but work literally destroys my body (at 62 I have 20 year olds that have threatened to quit so I had to slow down). While I’ve dated kept it more in the “friend zone,” even if ummm…

      Everything seems to work okay so I clicked “unsure. “

      3
      4 years ago Log in to Reply
    2. Kathy Morison

      High sugar while having sex kills any chance of having an orgasm

      1
      4 years ago Log in to Reply
    3. Mary Dexter

      Dyspareunia. Very painful. Went to a therapist specializing in that area to try to get those muscles to relax, but she moved to Ohio. Current doctors ignore problem with the attitude that I am old and should be glad not to do such things anymore.

      3
      4 years ago Log in to Reply
    4. rick phillips

      Owner of penile prostheses

      4 years ago Log in to Reply
    5. connie ker

      I felt so bad before diagnosis that I had no interest in sexual activity. Frozen shoulders from high sugars also depleted interest. My older husband was supportive and understood all too well.

      4 years ago Log in to Reply
    6. Joan Fray

      Married 49 years to same guy . We are still active in that department. Not as often as he would like, but it’s fun once he initiates it. A glass of champagne before sex is a ‘must have’ for me. Woo hoo!

      5
      4 years ago Log in to Reply
      1. Ahh Life

        joie de vivre!

        4 years ago Log in to Reply
    7. denise miller-dolan

      I was fine until menopause hit. I don’t recall the diabetes ever being a factor.

      4 years ago Log in to Reply
    8. Natalie Daley

      Everything works except my husband. He’s 85 and wishes he could but that ship sailed ten years ago. Back in the day, between hip surgeries, I had to watch dropping blood sugars.

      4 years ago Log in to Reply
    9. Drina Nicole Jewell

      No sexual dysfunction but we have definitely had some funny stories that involve my diabetes hahahaha and with my new tandem pump we have had some moments haha

      4 years ago Log in to Reply
    10. Dave Akers

      Interesting and uncomfortable topic… but after 18yrs T1D I believe I’m okay. It’s only when I’m LOW I have trouble “enjoying” the moment. But introducing chocolate syrup to raise blood glucose isn’t a horrible idea.

      7
      4 years ago Log in to Reply
    11. Sue Martin

      I think all the medications I have been on have significantly decreased my libido. My husband is very understanding, though he would prefer if I had more interest.

      4 years ago Log in to Reply
    12. Patricia Dalrymple

      I am grateful for how honest people are being. I marked unsure because I don’t know if it was menopause or diabetes. But at some point right before a hysterectomy for a football sized non-cancerous tumor, it all went to pot. No interest, pain. Doctors don’t want to talk about it and I’m not sure I do. The doc who did my hysterectomy I may have been able to talk to but he was stripped of his medical license for cocaine use. Lots of my friends experience the same thing. It’s a problem.

      2
      4 years ago Log in to Reply
      1. Todd Thedell

        Soon after my late-in-life diagnosis was the last time I had a proper erectile function. The doctors just threw the blue pill at me but I never liked the way it makes me feel and it never really worked anyway.

        4 years ago Log in to Reply
    13. Nick Trubov

      I would have to agree!

      4 years ago Log in to Reply
    14. Mick Martin

      Absolutely! I’ve been totally impotent (suffer from erectile dysfunction) since the age of 27 … I’m 63 right now.

      Initially, I spoke with a medical doctor who was the Medical Officer for clients at the Home for Elderly, Mentally Infirm clients (that’s people suffering with one or more types of dementia [organic brain failure], and he laughed at me, presumably believing me to ‘having a laugh’ with him.

      As a Social Worker, I later referred myself for Sexual Health Counselling [Counseling] and they tried all sorts of combinations of Vitamin B compounds, hoping that that would ‘do the trick’. It didn’t. I asked to be referred on to see a Genito-Urinary Specialist who went on to carry out physical examinations, x-rays, intravenous injections with a ‘dye’ included that would show up if there were ‘leaking’ blood vessels, etc.

      I began having intracavernosal injections … the first of which was only approved, in the UK, for veterinary use on horses. I was also given a letter to carry around with me in case I was admitted to hospital for any reason and detumescence was required.

      Although this was, in my humble opinion, mildly effective I was still disappointed with the results. Further appointments were made to see a number of different ‘specialists’ who tried intrapenile implants (MUSE), oral medications, such as sildenafil (Viagra), vardenafil (Levitra, Staxyn), tadalafil (Cialis). I have not tried avanafil (Stendra) which MIGHT offer something that the other oral medications didn’t.

      I’ve tried vacuum therapy, but had an experience where one of the constriction bands snapped off at the ‘pull tab’ where it’s removed. I ended up anxiously using a scalpel to cut the damned thing off as I was too embarrassed to attend my local hospital and have it removed by someone that has more experience with using scalpels. 😉

      Although I still ‘get the urge’, nothing happens.

      1
      4 years ago Log in to Reply
    15. Mick Martin

      Oops! I meant to add that I had considered a surgical implant but doctors here were reluctant to carry out the procedure due to me having diabetes and not having the best diabetes control.

      4 years ago Log in to Reply
    16. KarenM6

      I believe the answer is yes, but I couldn’t say for sure. No doctor has ever asked and I’m too mortified by the topic to bring it up myself.
      Then there’s the problem that _generally_ speaking doctors treat women in general like hypochondriacs and older women in particular get this treatment. So, even when I had the guts to bring up things like menopause etc, my concerns were pretty much dismissed.

      4
      4 years ago Log in to Reply
    17. Andrew Aronoff

      Hard to tell. I’m 69 years old. I’m not the same as I was decades ago. Age or diabetes or expectations or all three?

      1
      4 years ago Log in to Reply
    18. Ed Alley

      Yes, but not all from diabetes. I’m not in great shape, and I take a few antidepressant medications that contribute.

      4 years ago Log in to Reply
    19. Molly Jones

      I still enjoy sex with my spouse, but my body feels nothing. This physical capability disappeared more than ten years ago (still not close to menopause), but I am on many medications unrelated to diabetes that could have caused this unwanted side effect.

      4 years ago Log in to Reply
    20. ConnieT1D62

      To be honest, blunt and frank – yes. In my younger years I enjoyed sex without experiencing any physical symptoms of distress or discomfort. As I aged and lived with diabetes for 40, 50, and almost 60 years intercourse became uncomfortable and painful because of vaginal dryness.

      Most health care professionals (mostly older males) in my experience never discussed the topic, nor ever mentioned possibility of sexual discomfort or dysfunction being a possibility of peripheral neuropathy in the process of aging, especially with long term type 1 diabetes. It wasn’t until I was under the care of a (1) female gynecologist and (2) a female endocrinologist that the issue was properly addressed and problem solving solutions were advised.

      To be fair, for us long-time T1Ds the medical professionals treating our diabetes in earlier days were limited in their knowledge about consequences, particularly of various peripheral neuropathies, stemming from advanced duration diabetes in the body. They just didn’t know then what they know now about how long duration diabetes affects the various body systems, including the nerves and organs of sexual function.

      2
      4 years ago Log in to Reply
    21. Rick Martin

      Yes, at age 47 – 36 years after diagnosis. I tried all known therapies known to man and nothing happened – except when using injections. They worked but I could never get the dosage right and after 4 trips to the hospice due to erections lasting more than 4 years and becoming extremely painful.

      4 years ago Log in to Reply
      1. Rick Martin

        Oops – not hospice – hospital. It was bad but I didn’t think I was dying!!! LOL

        4 years ago Log in to Reply
    22. Wanacure

      I marked unsure, but how much inability to get an election is due to old age (77) less testosterone and how much is due to T1D for 62 years? When younger I was sexually active. Diabetes didn’t interfere. But in last 3 years, I’ve had just one orgasm. Two different pills didn’t work at all. This is why I’m considering Longevity Medical Clinic (near Seattle) and testosterone ointment applied for only 8 hours out of 24 hour day. They’re very open about how they treat men and women with sexual (or other) problems based on latest medical research. I’d keep my my present health plan coverage, and would have to pay out of pocket for such an extra….about $4,000/year. No, I’m not talking about hormone injections or oral anabolic steroids.

      4 years ago Log in to Reply

    Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]