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    • 3 hours, 57 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 58 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 54 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 21 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 9 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 12 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 54 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 54 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 56 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 1 minute ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 2 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 3 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 40 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 51 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 3 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 4 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Have you experienced a hypoglycemia episode that resulted in a loss of consciousness?

    Home > LC Polls > Have you experienced a hypoglycemia episode that resulted in a loss of consciousness?
    Previous

    CGM sensors are only approved for specific areas of the body, but many people use other locations. If you wear a CGM, do you have an area of your body where you feel you get the most accurate sensor readings? Select all that apply!

    Next

    If you are currently wearing a CGM, where on your body is your sensor placed right now?

    Sarah Howard

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    43 Comments

    1. William Schaffer

      Down into the low 20s twice, but still semi-lucid. First time was deliberate during a study of counterregulatory hormones back in the 1970s.

      2 years ago Log in to Reply
      1. Lori Lorsch

        Yes I fell to 21 woke up in a ambulance to the hospital .

        2 years ago Log in to Reply
    2. Jose Almodovar

      Close, but it does take a lot out of me. After stabilizing then it’s time for a nap.

      1
      2 years ago Log in to Reply
    3. Ken Raiche

      I’ve had to many of these types of episodes in my life time of living with T1D. Thank God for the improvements over the last 6 or so years with pumps and CGM’s. I haven’t experienced any blackouts since 2015šŸ‘šŸ‘šŸ‘šŸ‘

      2
      2 years ago Log in to Reply
    4. connie ker

      Yes, only one time in public at the Little League Ball park. The coach took my son out of the game, so he was terribly embarassed and upset with me. I woke up on the ground with an IV in my arm on the dirty ground. 2 other times, I was at home and husband helped me with something sugary. Now that I use the 14 day Freestyle Libre, I check sugars often during the day and night which helps me know where I am running and where the arrows are pointing. Thanks Abbott

      2 years ago Log in to Reply
    5. Henry Renn

      Only as a child in middle of night. Most times parents would force feed me until I gained consciousness. I needed a bath afterward bc sugar & OJ would be all over me. I only remember one time parents took me to ER. In recent years I’ve had 1 episode of semi-conscioousness in middle of night & called for my wife’s assistance with glucagon.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Ah yes, I remember those days and the aftereffects of being sticky all over from OJ and Karo Syrup residue, the clammy cold sweats, and being escorted to the tub filled with warm bubble bath. I sat shivering in the tub as my body temp warmed up and I recovered enough to go back to bed.

        2 years ago Log in to Reply
    6. ConnieT1D62

      Yes. Several times throughout my life. I also had several hypoglycemic induced seizures as a child and young adult where I didn’t lose consciousness but had an out of body experience. As my body was seizing on the floor or kitchen chair I was aware of myself being outside of my body and witnessing what was happening from a near distance.

      1
      2 years ago Log in to Reply
    7. Rob Smith

      Yes, a while ago, and learned this lesson. Don’t mix up your fast acting and long acting insulins. Lol

      2
      2 years ago Log in to Reply
    8. Amanda Barras

      Plenty before switching to pump therapy. I would either not wake up on my own and have to be awoken by paramedics or I would be in the midst of things during the day and just check out… they could get me to intermittently talk or respond during these events but they weren’t rational communication or they were combative responses in my stooper of a state.

      2 years ago Log in to Reply
    9. Natalie Daley

      When my glucose is below 40, I’m not hungry but will fall asleep. When that happened I tried to make dinner, but it was too late. I passed out, and my husband called the EMTs. I’m 75, and I made sure that never happened again. My CGM has a welcome alarm system.

      1
      2 years ago Log in to Reply
    10. Derek West

      Many moons ago, at work at my desk, before blood glucose meters, pumps and CGM’s. Even though we had an on-site nurse, who was also diabetic, I finished up in hospital.

      2 years ago Log in to Reply
    11. Kristine Warmecke

      I have only a couple times. The worst on the embarrassment was during a nursing clinical. I went to get something out the nourishment room for my patient and couldn’t remember what I was doing when I got there. When they found me sitting on the floor, I had no idea what who I was or what was going. Thank goodness for my amazing clinical instructor who knew what was going on.

      2
      2 years ago Log in to Reply
    12. George Lovelace

      T1 57 yrs, of course, disturbing to wake in bed to EMTs asking questions after a dose of D-50 – “Who is the President” I was asked in 2009, “Bush” I answered “close enough” they said. Told me wife I was thinking Geo H. W. Bush!

      2
      2 years ago Log in to Reply
    13. Richard Vaughn

      Several times, starting in 1945, the year I was diagnosed. One time when I was driving my car, 1958.

      1
      2 years ago Log in to Reply
    14. kristina blake

      I used to have them often, it took being included in Endo CME to learn that the meter I was using read higher than actual for people with anemia. After changing meters (out of pocket) and relying on my Dexcom, it’s been years since I’ve had major lows.

      The worst one was at home, my partner call EMS, there I am stark naked. He ran around hiding his Playboy mags, leaving me there – in all my naked glory. After it was over I told him if he ever found me like that again, to cover me. They don’t really care about his magazines. He responded by saying they see naked people all the time. I responded with “Dude, those guys are my co-workers.” They were – co-workers I worked for a large city fire department.

      1
      2 years ago Log in to Reply
      1. Sahran Holiday

        Had severe anemia 2 years ago. Complaining about my glucose levels being erratic.

        2 years ago Log in to Reply
    15. Anthony Harder

      I have, yes, but it was a long, long time ago. I work really hard to avoid those problems.

      2 years ago Log in to Reply
    16. William Bennett

      I’ve had my eyesight go out a few times, but never loss of consciousness.

      2 years ago Log in to Reply
    17. Robert Kovalik

      No, and that is over 47 years, taking 3 shots a day.

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Yes, long before personal glucose meters. The last time was in the early 80’s after shoveling my car out of a snowed-in apartment parking lot. I made it back up to our apartment where my spouse found me three hours later getting home from work. I had passed out on the living room carpet, still dressed in outdoor gear. Out two cats were sitting on top of me. Fortunately, she was able to revive me without needing to call for assistance. Now, with CGM alarms I’m aware of approaching lows and highs and take preventative action.

      2 years ago Log in to Reply
    19. carl adams

      Never a loss of consciousness but I have been low enough to have no memory of an episode.

      2 years ago Log in to Reply
    20. Stephen Woodward

      Once in 51 yrs, people around helped, EMS was great, no hospital.

      2 years ago Log in to Reply
    21. M C

      After over 44 years, I’ve come close to unconsciousness but it has never happened. Even with my sight blacking out, due to the low level of BG – I’ve been able to stumble around to find a sugar source, on my own, or with some help, and, in time, recovered. Luckily, those events have been few and far between!

      2 years ago Log in to Reply
    22. Christina Trudo

      After reading comments I feel so grateful. I never have had such an episode, and after 59 years still have a fairly recognizable autoimmune response. Sometimes I just feel “off” and sure enough, my dexcom follows shortly. Lucky for me since I live alone. I do remember those years before home glucose monitoring…. it is hard to overstate how much in the dark one could be with urine tests alone.

      2 years ago Log in to Reply
    23. KarenM6

      Twice.
      Once at a buffet with my Mom who was somehow able to get OJ or sugared soda or something down me. I became conscious at a table with food all around me.
      Once at home where EMS had to be called. I had been having seizures which my doctor didn’t explain fully… and on this incident, it was reported to me that they were really bad. I became conscious in the ER.

      2 years ago Log in to Reply
    24. Jennifer Wilson

      No, but came close to it a couple of times.

      2 years ago Log in to Reply
    25. KSannie

      It happened to me right after lunch while I was driving out of the ATM at my bank. I was pregnant, and BG drops in the first trimester. It was in California, and it was hot, but my car lacked AC, so I had the windows cracked open. That made it easy for the EMT’s to get into the car. That was 43 years ago, when I was on a single injection a day. It was my only time in 51 years of diabetes. And with hypoglycemic unawareness, I now rely on the alarms from my CGM to prevent this.

      2 years ago Log in to Reply
    26. Beth Baskett

      One time in 33 years. I didn’t wake up and was in the hospital for a month. I only remember the last week of it. I was conscious but not speaking. I had to be put in a nursing home for almost two weeks for physical, occupational and speech therapy. Apparently I padded out while trying to treat my low.

      2 years ago Log in to Reply
    27. Abraham Remson

      just once thank God. I passed out trying to go up a set of stairs. My wife found me and gave me a shot with an emergence kit. I woke up in the ambulance on the way to the hospital.

      2 years ago Log in to Reply
    28. Ronald Troyer

      I’ve had two episodes. One while driving a car and the other while operating a lawn mower. In both cases it’s miraculous that I survived. I have obviously become much more careful when doing both.

      2 years ago Log in to Reply
      1. Sahran Holiday

        Always test before driving or operating machinery.

        1
        2 years ago Log in to Reply
    29. Marsha Miller

      Yes, but it was many years ago. The cgm has been a HUGE game changer for me. I am so thankful for this technology.

      1
      2 years ago Log in to Reply
    30. BOB FISK

      In my 58 years as a diabetic, I have never actually passed out. I stopped having any of the typical hypoglycemic symptoms long ago, after about 20 years. Instead, the changes that occur are all CNS issues that manifest as loss of muscle control, and what would be regarded as psychological/behavioral changes from the norm. For example, I may become very talkative. However, the oddest is a change to an altered consciousness in which I am aware of what is going on around me, but I can’t problem-solve (cognitive issues). I did find myself in this state once when driving. I drove around town, responding to stop lights, etc., but ended up taking a freeway and driving 30 miles/hour in the fast lane. The police pulled me over on that one and I realized I was having a hypoglycemic episode. I ate some quick carbs and it was over.

      2 years ago Log in to Reply
    31. Catherine Davis

      First grade teacher called 911 when I didn’t wake up from a nap (she should have known to give me sugar instead of letting me nap). Woke up in the hospital at least twice in fifth grade, after a week at the Joslin Clinic in Boston where they increased my insulin dose. Had a seizure after sexercise in my early 20s. Never had glucagon emergency treatment.

      2 years ago Log in to Reply
    32. Jneticdiabetic

      Historically, yes. Most of my severe hypoglycemia was overnight and not being able to “regain” consciousness. Prior prior to my diabetes diagnosis, I had several fainting episodes, which I now recognize were likely hypoglycemia.

      2 years ago Log in to Reply
    33. Sahran Holiday

      Many too many. Since CGM mostly only overnight. Severe lows are disturbing. Still have too many but fewer with the CGM. Working on my basal rates and bolus doses.

      2 years ago Log in to Reply
    34. David Smith

      Just two, about 25 years ago when I was newly diagnosed with T1D. Hadn’t learned to recognize the symptoms of hypoglycemia onset and, in one of those two instances (my first), my source of quick supplemental glucose was a small box of raisins, as suggested by my endocrinologist at the time. Needless to say, that didn’t work out! Today I carry glucose tabs and always have a small juice box readily available. I’m also on CGM.

      2 years ago Log in to Reply
    35. TEH

      I woke up twice in the hospital wondering where I was and how I go there with BG of around 20. This happened in the first years after my diagnosis. I was taking a split mix of Regular and NPH. This was a awful regiment. I haven’t had as severe lows with the pump and only “mild” lows (~50 or so) with CGM.

      2 years ago Log in to Reply
    36. Angela Naccari

      Yes, first time was in 1973 – my first week in college. This was before pumps and CGMS. I knew nothing about how to change dosages for different activities and physician at time made no recommendations. Second time was in the late 1990s prior to having a GCM. I accidentally put glucose in my allergy shot which was a major over dose! These are the only two times in 60 years of TD1

      2 years ago Log in to Reply
    37. Brandon Denson

      Wow this answer currently right now is a 50% split. It’s a scary thought to know that you could pass out from your blood sugars being too low. Diabetes has no days off —- NO DAYS OFF.

      2 years ago Log in to Reply
    38. Steven Gill

      Boy these long-term TYPE 1 diabetics make me optimistic. I try for “tight” control, but work physically, often to exhaustion. Often worked 12-13 hours a day, plus taught myself to repair appliances and small engines (these were after work, until early hours). I’ve lost it in my garage/shop floor 3 times, once in my BR (preparing to shower), once after a shower, the last time this part October by just compounding my bolus after a year of horrible levels.

      Wearing a sensor a few years ago taught me for some tasks I just don’t need insulin. I’m now faster at stopping the basal dose (tearing out a crawlspace, cutting grass, demo-ing a house) but…

      To try go achieve that tight glucose control you want go strive for a “sugar level” about 7% or less, that gives you 2% or less range for error. Over year 7% you risk permanent physical damage. I do test before driving, before some tasks (when working alone in risky situations) but I see just sometimes until technology catches up it’s a risk for long-term health.

      But as an active 61 year old TYPE1 making 20 year olds cry I feel I’m winning, TYPE 1 over 23 years I might survive.

      2 years ago Log in to Reply
    39. T1D5/1971

      Prior to CGM it was all too frequent. Seizures at home and on vacations. EMTs standing over me everywhere – at work, the grocery store, dentist’s chair, my graduation party, bedroom and finally, at the scene of a car accident. That car accident frightened me so badly that it pushed me to demand CGM. Never had an EMT episode since. Never want to go back to those horrible days.

      1 year ago Log in to Reply

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