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    • 8 hours, 6 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 13 hours, 6 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 13 hours, 7 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 13 hours, 8 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 10 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    Have you ever used insulin that was unrefrigerated for more than 28 days?

    Home > LC Polls > Have you ever used insulin that was unrefrigerated for more than 28 days?
    Previous

    When you have unexpected high blood glucose levels, what are the most common reasons why? Select all options which most often apply to you.

    Next

    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Beckett Nelson

      I don’t know, but probably

      3 months ago Log in to Reply
    2. Andrew Aronoff

      Information about insulin deterioration at room temperature is very hard to find, but results were published in 2001-2002 by the Insulin Dependent Diabetes Trust that quoted the study “Galenics of Insulin” by J Brange M.Sc et al: [Novo Research Institute, Denmark] Springer-Verlag, 1987. At 25° C (77° F), Actrapid will lose 2% of its activity in 12 months and 5% in 31 months.

      1
      3 months ago Log in to Reply
    3. Dennis Dacey

      Yes, and without any apparent problems.
      This only applies to my use of analog insulin formulation and not to rDNA formulations – of course I kept high-spoilage animal extract insulin cool / refrigerated as often as possible.

      1
      3 months ago Log in to Reply
    4. Lawrence S.

      No. I always keep my insulin refrigerated. When I travel, I keep it on ice.

      3 months ago Log in to Reply
    5. Joan Fray

      All the time. A bottle lasts me about a month. I fill my pump every three days. I store the current bottle in a drawer in my desk with my other supplies. My house is normally 68 degrees. Cool SF bay area, in a canyon. Sweatshirts and sweaters all year around.

      3 months ago Log in to Reply
    6. Janice Bohn

      I keep all my insulin in the refrigerator or when traveling I have a Frio and also a plug in cooler

      1
      3 months ago Log in to Reply
    7. Stephen Woodward

      Yup, for the last 50 T1D years, another pharma myth broken.

      2
      3 months ago Log in to Reply
    8. Stephen Woodward

      New studies make it clear that 28 days means little.

      Real world insulin Download .pdf (1.71MB)

      https://www.thelancet.com/journals/landia/article/PIIS2213-8587(23)00028-1/fulltext

      Insulin Storage and Africa, Dagahaley refugee camp study
      https://www.doctorswithoutborders.org/what-we-do/news-stories/news/msf-study-shows-some-insulin-can-be-stored-warmer-temperatures

      Insulin Durability – 2012
      https://www.diabetesdaily.com/blog/insulin-may-withstand-high-temperatures-better-than-you-realize-700059/

      4
      3 months ago Log in to Reply
      1. cynthia jaworski

        thanks for the references.

        3 months ago Log in to Reply
      2. sweetcharlie

        thanks!!

        3 months ago Log in to Reply
    9. Lori COLLINS

      Always. I haven’t refrigerated my insulin since the early 80’s. If we’re traveling, I use common sense and don’t leave it in a hot car, but don’t specifically pack it in a cooler.

      1
      3 months ago Log in to Reply
    10. Jane Cerullo

      Do not count days and have never noticed a problem with insulin efficacy.

      1
      3 months ago Log in to Reply
    11. Mark Schweim

      Since using insulin pumps, my insulin usage of only the one type of insulin is about 1 vial every 30 days, so I rarely use a vial longer than 28 days anymore, but before I started using insulin pumps, and was using two types of insulin on MDI dosing, one vial would routinely last me longer than 90 days and back then my insulin in use was rarely, if ever, stored in the fridge yet I never noticed any effectiveness difference between the last bit of insulin from my vial that had been out of the fridge longer than 90 days and the new vial freshly opened and removed from the fridge.

      2
      3 months ago Log in to Reply
    12. cynthia jaworski

      I have heard that at least one pump manufacturer is planning for a pump with a 7 day span before site changes. Does this mean the pup reservoir would be filled only at the beginning, or would a refill be done in situ? How do people feel about this?

      3 months ago Log in to Reply
    13. TomH

      I answered “no,” but wouldn’t have an issue in doing so as long as I knew the circumstances (time/conditions). I’ve participated in discussions with people I trust, who have tested use of insulin’s refrigerated, frozen, left in cars in the heat of summer, etc. for various periods. While there has been some noted deterioration of longer term frozen/heated products (less impact to BG), they have still worked to control/lower BG to a large degree. Note: tests included validating insulin’s were discolored, cloudy, bits floating around, etc. That said, I still keep my supply refrigerated until I need to use it or travel short term and refrigerate/cool it (Frio case, etc.) until I need it.

      4
      3 months ago Log in to Reply
      1. Lawrence S.

        Tom, I had an experience where we had a hurricane. My wife turned up the refrigerator as cold as it would go before the storm. All of my insulin froze. That insulin did not work well enough afterward. I ended up throwing out all of my insulin, and buying new insulin.

        2
        3 months ago Log in to Reply
    14. Amy Jo

      I answered IDK but I probably have. My needs are pretty low so I likely don’t get through a whole vial in 28 days all the time, but I never actually keep track of when I open the vial.

      1
      3 months ago Log in to Reply
    15. Sherrie Johnson

      Back in the day when we didn’t know anything like 1967 I went to Europe for three months with a girlfriend, and I had all my medicine with me never knew where I was kind of archaic. It’s amazing I made it.

      1
      3 months ago Log in to Reply
    16. Becky Hertz

      I go through a vial in less than 30 days.

      3 months ago Log in to Reply
    17. Joan Benedetto

      Yes. Our son was diagnosed at 18mos. We often used a vial for up to 40 days, and, even then, discarded half a vial. Obviously, if we had concerns about the efficacy of a vial, we pitched it immediately. Now, age eleven, he goes through a vial in about 23 days, so no longer a consideration.

      3 months ago Log in to Reply
      1. Lawrence S.

        Your answer implies that you don’t refrigerate the insulin?

        3 months ago Log in to Reply
    18. Janis Senungetuk

      During the years I lived in Alaska and bought my insulin from small, local pharmacies, I have no way of knowing if it had been refrigerated the entire time from being manufactured to my purchase. I’ve always kept it stored in the refrigerator or a cooler/frio.

      3 months ago Log in to Reply
    19. terrih57@msn.com

      I was actually advised to leave my insulin at room temp for tandem Tslim pump.

      3 months ago Log in to Reply
    20. KIMBERELY SMITH

      I have just got my DEXCON G 6 yesterday I am newbie

      2
      3 months ago Log in to Reply
      1. Lawrence S.

        Hello Kimberely. This website is a good place for you to be. Best wishes to you.

        1
        3 months ago Log in to Reply
    21. sweetcharlie

      Way back 60 to 70 years ago, I camped out a lot and I had no way to keep it cool… But I keep it cool all the time since then… I am very carefull with food also… “use what you want and put it back in the fridge” !!!!!!!

      1
      3 months ago Log in to Reply
    22. kilupx

      Yes, but never longer than 35 or 36 days.

      3 months ago Log in to Reply
    23. PamK

      One time, I went to pick up an order of insulin at a pharmacy and saw the person behind the counter take the insulin off the shelf – – not refrigerated! I told him I could not use that insulin and he proceeded to argue with me that it says “does not need to be refrigerated” on a sticker on the box. I took this issue up with the pharmacy management and got no where. So, I also contacted the manufacturer, who verified that it should be refrigerated in the pharmacy. Per the manufacturer rep, the sticker refers to a vial once you have started using it. I sent an email to the pharmacy with this information as well. I then found a new pharmacy on my plan that did refrigerate the insulin.

      3 months ago Log in to Reply
    24. Jeff Balbirnie

      Daily! No valid need to refrigerate ever where I live. It never lasts much longer than 30 days once its started though.

      3 months ago Log in to Reply

    Have you ever used insulin that was unrefrigerated for more than 28 days? Cancel reply

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