Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 11 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 54 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 16 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 40 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 40 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 hour, 41 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 56 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 2 hours, 56 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 2 hours, 57 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 17 hours, 57 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 17 hours, 58 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 17 hours, 58 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 45 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 45 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Have you ever used expired insulin? If so, tell us in the comments about your experience.

    Home > LC Polls > Have you ever used expired insulin? If so, tell us in the comments about your experience.
    Previous

    If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you?

    Next

    If you have T1D and have had COVID-19, did you notice any impact on your blood sugar?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    37 Comments

    1. Janis Senungetuk

      Yes, I’ve used “expired” insulin. I was told by my CDE that as long as it was kept refrigerated while stored, it would be good 2 years past the expiration date.

      5 years ago Log in to Reply
    2. Kathy Hanavan

      Yes, but it was only barely expired and I wanted to see if it would still work, which it did. It is the same with insulin that has been out of the frig for longer than recommended – works fine for so much longer than they say. That being said, I don’t make it a practice, just in case..

      5 years ago Log in to Reply
    3. Franklin Rios

      I already used it after the recommended period for disposal. it gets very unstable. you need to increase the dose predicted to have the effect, as it gets weaker.

      5 years ago Log in to Reply
    4. Amanda Barras

      Long expired Lantus during a pump failure. It didn’t seem to do much good so I switched to MDI of fast acting only until my new pump arrived.

      5 years ago Log in to Reply
    5. Gene Maggard

      When I was preparing to retire and go on Medicare, I was concerned about the cost, so began to “stockpile” it (ordering it every time it came up for renewal even if I still had some left over). This was because my current employer-provided insurance had a much lower price for insulin. When I actually started on Medicare I still had more than a year’s worth, some of it already expired. I realize that was gaming the insurance system but by the same token the amount charged for insulin is way high compared to other medications that aren’t as critically necessary.

      5 years ago Log in to Reply
    6. Jana Wardian

      It worked just fine. I was given the insulin from a family who lost a loved one.

      5 years ago Log in to Reply
    7. Mike S

      Last year I found a bottle of Novolog hiding in the fridge that was 4 months past expiration. We (T1s) pay too much for insulin, so I did decide to try using it: Just kept a close eye on how it was working. I noticed no difference in the amounts I needed.

      5 years ago Log in to Reply
    8. Steven Gill

      Decades ago (literally) had my LANTUS last for 5-6 weeks. Took several months to finally read the fine print that explained poor levels every 6-7 weeks.

      5 years ago Log in to Reply
    9. Sherolyn Newell

      @Gene I refill my prescription every month even though I always have leftover. It’s not our fault that our prescriptions can’t exactly match what we use. Doctors can’t prescribe 1.5 bottles. I don’t feel like it’s gaming the insurance, it’s just how it’s packaged. I’m afraid if I don’t refill it every month, the insurance company will start wondering why my prescription is for more than I use.

      5 years ago Log in to Reply
    10. Elizabeth T.

      Each vial is recommended to be used within 28 days. I often have some left after 28 days and it’s fine to use. That’s not quite the same as using expired insulin or perhaps it is!?!

      5 years ago Log in to Reply
    11. connie ker

      We were given insulin once that was not refrigerated and it was unstable. If I go over 45 days with the Lantus, it becomes impotent too. I use the Humalog until gone and don’t seem to notice it not working. I keep all of my insulin in the refrigerator and take the insulin cold. We are all totally aware of the cost of insulin and it is so hard to toss it in the trash.

      5 years ago Log in to Reply
    12. Maureen Helinski

      Yes and it worked fine.

      5 years ago Log in to Reply
    13. Germaine Sarda

      Only a couple of times over the past 45 years. It was noticeable with my levels.

      5 years ago Log in to Reply
    14. Rick Martin

      Yes, somewhat frequently and I’ve never had a problem. Also, I do keep it refrigerated and then remove the vial I’m using and don’t re-refrigerate and even though it often is in our un-airconditioned house at temperatures 90+ for 45 or more days, still no issues. Just lucky?!

      5 years ago Log in to Reply
    15. Mark Schweim

      When I lost my job in 2012, I also lost insurance so my Doctor cleared out his sample fridge and gave me ALL the Humalog he had at the time. Some of those vials were “expired” already when he gave them to me and even the newest vial he gave me was “expired” by the time I started using it. Some of those Humalog vials were up to two years past marked expiration when I used them, but they still worked just as well as the brand new vial of Humalog I bought when I had new insurance and employment and was about to again run out of Insulin.

      5 years ago Log in to Reply
    16. Candace Jackson

      Yes, worked just fine…

      5 years ago Log in to Reply
    17. Patricia Dalrymple

      No, but I don’t change my pump insulin except once per week. Usually it is fine.

      5 years ago Log in to Reply
    18. Martin Fuhrer

      In the past I’ve used Levemir that had expired over one year ago (but remained in the fridge), and did not encounter any issues. In fact I’m currently using expired Levemir because for the past year all the pharmacies I’ve visited in Muscat, Oman were supplying me with Levemir with an expiry date of November 2020 (I suspect pharmacies in the country are using the same supply chain). Last month my pharmacy was unable to sell me any more Levemir because their stocks had expired; fortunately I still have a four or five month supply in the fridge, and even though it is expired, I’m confident it will work fine.

      5 years ago Log in to Reply
    19. Carol Meares

      No, but I have used insulin far past the 30 days once initially “opened.” I use both a pump and pens. The pens I use only as needed because it gets my bs down faster by putting it in a fresh spot than through the infusion site. It will sometimes take 2 months to use up a pen. I have recently realized I can use up the insulin faster in the pen by using the insulin to load pump. The simple things….

      5 years ago Log in to Reply
    20. Nick Trubov

      A LONG time ago (1968?) I found that my NPH and my “regular” insulin’s worked just fine for months after expiration dates.

      5 years ago Log in to Reply
    21. Daniel Bestvater

      Yes I have used insulin(Humalog) that was expired by about one year. It seemed to work just fine. I use only 15-20 units of insulin each day so I use my opened vial for about 60-70 days far beyond the recommended 28 days. I have not noticed any changes in it’s activity.

      5 years ago Log in to Reply
    22. Chester Oby

      Yes I have used u500 that had expired a year before. It had been it the refrigerator all that time before I used it.

      5 years ago Log in to Reply
    23. George Lovelace

      In 1966 while on NPH I bought a vial that was not only expired but also not refrigerated, it was horrible but I was desperate.

      5 years ago Log in to Reply
    24. Melinda Lipe

      I did and it didn’t make any difference.

      5 years ago Log in to Reply
    25. Becky Hertz

      I’ve not used expired insulin, but I have tried to use insulin that has been used and then sat in the fridge for I don’t know how long. It has lost its potency.

      5 years ago Log in to Reply
    26. Pat Reynolds

      It was many, many years ago.i found it a little more variable in action than insulated, but since that varied between 60 and 120 of what I boluses, over 9 to 16 hours, another hour or two duration, or 80% effectiveness didn’t make any real difference

      5 years ago Log in to Reply
    27. Karen Mielish-Clausell

      I used expired Humalog and it didn’t realize it

      5 years ago Log in to Reply
    28. Cheyenne Weems

      I am currently using expired insulin and have had no issues!! My last endo wrote my Rx for more than I was using so I have an excess. It has worked just fine. I think it is ok as long as it is kept at the right temp the whole time.

      5 years ago Log in to Reply
    29. Kristine Warmecke

      Yes I have, but only by a week or so. No difference in it. With the cost of insulin, no one can afford to just throw it away.

      5 years ago Log in to Reply
    30. Jeannie Hickey

      Have used expired fast actings by easily a year and did not notice any difference.

      5 years ago Log in to Reply
    31. Jenny Richardson

      The expired insulin I’ve used was a year expired and worked just fine!

      5 years ago Log in to Reply
    32. Magnus Hiis

      Yes I’ve used expired insulin when I’ve forgotten to renew my prescription especially when I was a teenager, I did never notice any difference but that was the time I used Actrapid and after that Humalog.

      5 years ago Log in to Reply
    33. Britni Steingard

      I’ve never used a bottle that was past the date written on the box/bottle, but I rarely throw out a bottle after only 28 days. I don’t want it to go to waste. I’ve never noticed a trend in my blood sugar’s as a bottle reaches its end, but I’m trying to track it now so I can see if it actually makes a difference.

      5 years ago Log in to Reply
    34. Bonnie Lundblom

      Yes, and I didn’t see any change in it’s effectiveness.

      5 years ago Log in to Reply
    35. ConnieT1D62

      Yes and it worked just fine. I keep the bottle currently in use at room temperature and store unopened or rarely used insulin (like short & long acting back-up pens when not using my pump) in the fridge. I second what Janis said in her comments – that insulin can remain stable for up to years past expiration date if it remains refrigerated when not in use. I do not discard insulin past 28 days after opening vial or use of pen. I use every unit – good to the last drop!

      5 years ago Log in to Reply
    36. Bekki Weston

      Glad to hear, that for the most part, it seems to work past the expiration date.

      5 years ago Log in to Reply
    37. Martha Arnold

      I just opened a bottle last night dated 10/19. I have gone without before.

      5 years ago Log in to Reply

    Have you ever used expired insulin? If so, tell us in the comments about your experience. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]