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    • 8 hours, 30 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 8 hours, 37 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 3 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 39 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 13 hours, 59 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 14 hours ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 19 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    Have you ever used expired insulin? If so, tell us in the comments about your experience.

    Home > LC Polls > Have you ever used expired insulin? If so, tell us in the comments about your experience.
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    37 Comments

    1. Janis Senungetuk

      Yes, I’ve used “expired” insulin. I was told by my CDE that as long as it was kept refrigerated while stored, it would be good 2 years past the expiration date.

      2 years ago Log in to Reply
    2. Kathy Hanavan

      Yes, but it was only barely expired and I wanted to see if it would still work, which it did. It is the same with insulin that has been out of the frig for longer than recommended – works fine for so much longer than they say. That being said, I don’t make it a practice, just in case..

      2 years ago Log in to Reply
    3. Franklin Rios

      I already used it after the recommended period for disposal. it gets very unstable. you need to increase the dose predicted to have the effect, as it gets weaker.

      2 years ago Log in to Reply
    4. Amanda Barras

      Long expired Lantus during a pump failure. It didn’t seem to do much good so I switched to MDI of fast acting only until my new pump arrived.

      2 years ago Log in to Reply
    5. Gene Maggard

      When I was preparing to retire and go on Medicare, I was concerned about the cost, so began to “stockpile” it (ordering it every time it came up for renewal even if I still had some left over). This was because my current employer-provided insurance had a much lower price for insulin. When I actually started on Medicare I still had more than a year’s worth, some of it already expired. I realize that was gaming the insurance system but by the same token the amount charged for insulin is way high compared to other medications that aren’t as critically necessary.

      2 years ago Log in to Reply
    6. Jana Wardian

      It worked just fine. I was given the insulin from a family who lost a loved one.

      2 years ago Log in to Reply
    7. Mike S

      Last year I found a bottle of Novolog hiding in the fridge that was 4 months past expiration. We (T1s) pay too much for insulin, so I did decide to try using it: Just kept a close eye on how it was working. I noticed no difference in the amounts I needed.

      2 years ago Log in to Reply
    8. Steven Gill

      Decades ago (literally) had my LANTUS last for 5-6 weeks. Took several months to finally read the fine print that explained poor levels every 6-7 weeks.

      2 years ago Log in to Reply
    9. Sherolyn Newell

      @Gene I refill my prescription every month even though I always have leftover. It’s not our fault that our prescriptions can’t exactly match what we use. Doctors can’t prescribe 1.5 bottles. I don’t feel like it’s gaming the insurance, it’s just how it’s packaged. I’m afraid if I don’t refill it every month, the insurance company will start wondering why my prescription is for more than I use.

      2 years ago Log in to Reply
    10. Elizabeth T.

      Each vial is recommended to be used within 28 days. I often have some left after 28 days and it’s fine to use. That’s not quite the same as using expired insulin or perhaps it is!?!

      2 years ago Log in to Reply
    11. connie ker

      We were given insulin once that was not refrigerated and it was unstable. If I go over 45 days with the Lantus, it becomes impotent too. I use the Humalog until gone and don’t seem to notice it not working. I keep all of my insulin in the refrigerator and take the insulin cold. We are all totally aware of the cost of insulin and it is so hard to toss it in the trash.

      2 years ago Log in to Reply
    12. Maureen Helinski

      Yes and it worked fine.

      2 years ago Log in to Reply
    13. Germaine Sarda

      Only a couple of times over the past 45 years. It was noticeable with my levels.

      2 years ago Log in to Reply
    14. Rick Martin

      Yes, somewhat frequently and I’ve never had a problem. Also, I do keep it refrigerated and then remove the vial I’m using and don’t re-refrigerate and even though it often is in our un-airconditioned house at temperatures 90+ for 45 or more days, still no issues. Just lucky?!

      2 years ago Log in to Reply
    15. Mark Schweim

      When I lost my job in 2012, I also lost insurance so my Doctor cleared out his sample fridge and gave me ALL the Humalog he had at the time. Some of those vials were “expired” already when he gave them to me and even the newest vial he gave me was “expired” by the time I started using it. Some of those Humalog vials were up to two years past marked expiration when I used them, but they still worked just as well as the brand new vial of Humalog I bought when I had new insurance and employment and was about to again run out of Insulin.

      2 years ago Log in to Reply
    16. Candace Jackson

      Yes, worked just fine…

      2 years ago Log in to Reply
    17. Patricia Dalrymple

      No, but I don’t change my pump insulin except once per week. Usually it is fine.

      2 years ago Log in to Reply
    18. Martin Fuhrer

      In the past I’ve used Levemir that had expired over one year ago (but remained in the fridge), and did not encounter any issues. In fact I’m currently using expired Levemir because for the past year all the pharmacies I’ve visited in Muscat, Oman were supplying me with Levemir with an expiry date of November 2020 (I suspect pharmacies in the country are using the same supply chain). Last month my pharmacy was unable to sell me any more Levemir because their stocks had expired; fortunately I still have a four or five month supply in the fridge, and even though it is expired, I’m confident it will work fine.

      2 years ago Log in to Reply
    19. Carol Meares

      No, but I have used insulin far past the 30 days once initially “opened.” I use both a pump and pens. The pens I use only as needed because it gets my bs down faster by putting it in a fresh spot than through the infusion site. It will sometimes take 2 months to use up a pen. I have recently realized I can use up the insulin faster in the pen by using the insulin to load pump. The simple things….

      2 years ago Log in to Reply
    20. Nick Trubov

      A LONG time ago (1968?) I found that my NPH and my “regular” insulin’s worked just fine for months after expiration dates.

      2 years ago Log in to Reply
    21. Daniel Bestvater

      Yes I have used insulin(Humalog) that was expired by about one year. It seemed to work just fine. I use only 15-20 units of insulin each day so I use my opened vial for about 60-70 days far beyond the recommended 28 days. I have not noticed any changes in it’s activity.

      2 years ago Log in to Reply
    22. Chester Oby

      Yes I have used u500 that had expired a year before. It had been it the refrigerator all that time before I used it.

      2 years ago Log in to Reply
    23. George Lovelace

      In 1966 while on NPH I bought a vial that was not only expired but also not refrigerated, it was horrible but I was desperate.

      2 years ago Log in to Reply
    24. Melinda Lipe

      I did and it didn’t make any difference.

      2 years ago Log in to Reply
    25. Becky Hertz

      I’ve not used expired insulin, but I have tried to use insulin that has been used and then sat in the fridge for I don’t know how long. It has lost its potency.

      2 years ago Log in to Reply
    26. Pat Reynolds

      It was many, many years ago.i found it a little more variable in action than insulated, but since that varied between 60 and 120 of what I boluses, over 9 to 16 hours, another hour or two duration, or 80% effectiveness didn’t make any real difference

      2 years ago Log in to Reply
    27. Karen Mielish-Clausell

      I used expired Humalog and it didn’t realize it

      2 years ago Log in to Reply
    28. Cheyenne Weems

      I am currently using expired insulin and have had no issues!! My last endo wrote my Rx for more than I was using so I have an excess. It has worked just fine. I think it is ok as long as it is kept at the right temp the whole time.

      2 years ago Log in to Reply
    29. Kristine Warmecke

      Yes I have, but only by a week or so. No difference in it. With the cost of insulin, no one can afford to just throw it away.

      2 years ago Log in to Reply
    30. Jeannie Hickey

      Have used expired fast actings by easily a year and did not notice any difference.

      2 years ago Log in to Reply
    31. Jenny Richardson

      The expired insulin I’ve used was a year expired and worked just fine!

      2 years ago Log in to Reply
    32. Magnus Hiis

      Yes I’ve used expired insulin when I’ve forgotten to renew my prescription especially when I was a teenager, I did never notice any difference but that was the time I used Actrapid and after that Humalog.

      2 years ago Log in to Reply
    33. Britni Steingard

      I’ve never used a bottle that was past the date written on the box/bottle, but I rarely throw out a bottle after only 28 days. I don’t want it to go to waste. I’ve never noticed a trend in my blood sugar’s as a bottle reaches its end, but I’m trying to track it now so I can see if it actually makes a difference.

      2 years ago Log in to Reply
    34. Bonnie Lundblom

      Yes, and I didn’t see any change in it’s effectiveness.

      2 years ago Log in to Reply
    35. ConnieT1D62

      Yes and it worked just fine. I keep the bottle currently in use at room temperature and store unopened or rarely used insulin (like short & long acting back-up pens when not using my pump) in the fridge. I second what Janis said in her comments – that insulin can remain stable for up to years past expiration date if it remains refrigerated when not in use. I do not discard insulin past 28 days after opening vial or use of pen. I use every unit – good to the last drop!

      2 years ago Log in to Reply
    36. Bekki Weston

      Glad to hear, that for the most part, it seems to work past the expiration date.

      2 years ago Log in to Reply
    37. Martha Arnold

      I just opened a bottle last night dated 10/19. I have gone without before.

      2 years ago Log in to Reply

    Have you ever used expired insulin? If so, tell us in the comments about your experience. Cancel reply

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