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    • 7 hours, 51 minutes ago
      Amanda Barras likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      It would depend on if it was blood sugar responsive. I currently have an A1c near 6 and don’t want to give up control.
    • 13 hours, 55 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      This sounds like a pipe dream to me. I said, "Not at all interested," with a little unsure. How would one dose a week of insulin handle high and low blood glucose? How would it handle exercise and work activities? If you're talking only as a long-acting insulin, and you have to take boluses, then it's NOT once-weekly. I took NPH years ago, and it was a horrible experience for me (for 25 yrs. ).
    • 13 hours, 55 minutes ago
      Bruce Schnitzler likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 17 hours, 50 minutes ago
      Molly Jones likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 22 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 21 hours, 22 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 21 hours, 22 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 22 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 21 hours, 23 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I said moderately because being on Medicare, I’d need much more information such as how many weeks would I be able to have on hand without additional prescriptions? Would I still need some kind of preauthorization once per year that’s a hassle getting? How long would it stay good - the same amount of time? Would the pump take a week’s worth or how does that work with pump supplies?
    • 21 hours, 33 minutes ago
      eherban1 likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 21 hours, 35 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 21 hours, 36 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 36 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 21 hours, 38 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 38 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 21 hours, 43 minutes ago
      Bonnie Lundblom likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 21 hours, 49 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I find I can normalize my BG in 15-30 minutes. But after ~50 years with T1D and maybe due to getting older I am fairly exhausted for hours after a hypo.
    • 21 hours, 50 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      To feel like it hadn’t happened I need a nap.
    • 21 hours, 52 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies from 5 minutes to 20 minutes. The exception to this is the very occasional low that's resistant to resolving and - as Anthony said in his comment - I continue adding more glucose until I begin to feel the symptoms ebb. Once the low is gone the extra glucose will slowly but surely result in a higher-than-desired blood sugar.
    • 21 hours, 52 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I answered 15-30 minutes, but there are times, especially at night, especially when very low, that it can take 1-2 hours. That's a real pain. I just keep throwing glucose at the problem which will creat high readings later, but I have to get the glucose reading to rise and it won't. Also, my best quality decisions are not made when awoken in the middle of the night.
    • 21 hours, 54 minutes ago
      Debbie Pine likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 22 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never! I think about my blood sugar so much less with all these devices attached. And I barely notice them once they are on. It’s such a blessing that when I have to take them off that’s more of a problem/inconvenience than a vacation.
    • 22 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 22 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 22 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      4 years ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      4 years ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      4 years ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      4 years ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      4 years ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      4 years ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      4 years ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      4 years ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      4 years ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      4 years ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      4 years ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      4 years ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      4 years ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      4 years ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      4 years ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      4 years ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      4 years ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      4 years ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      4 years ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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