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    • 35 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 36 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 39 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 39 minutes ago
      John Barbuto likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 41 minutes ago
      Mike S likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 3 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Sure, if you can call it a plan to flush with liquids and take electrolytes and insulin as needed.
    • 1 hour, 4 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      Inject. Inject. Inject. All other considerations are secondary, tertiary, or way down the list. Why would anyone ever rearrange the deck chairs on the Titanic? Might as well strike up the band to play Nearer My God to Thee!. ☹
    • 1 hour, 5 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 1 hour, 5 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      It would depend on the symptoms and vary.
    • 1 hour, 6 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 hour, 6 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      With all the deliberately misleading information out there, AI cannot discriminate. And, each patient is completely different in their rate of things like food digestion or insulin absorption. AI really is not up to this. And it cannot differentiate between highs due to stress of traveling, which go down as soon as I arrive, and highs due to illness, which can stay high for days, and gradually taper to normal at some variable rate. Once I was high due to illness, got better and then worse. I am afraid of getting too much insulin. It lasts 5 hours in the blood, including the basal amount. And the AI not being able to correct fast enough.
    • 1 hour, 7 minutes ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      2 It already is. But needs to be checked occasionally. I don't want a person inside me every five minutes.
    • 1 hour, 10 minutes ago
      KCR likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 16 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 24 minutes ago
      Lawrence S. likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 hour, 33 minutes ago
      KSannie likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 1 hour, 34 minutes ago
      Gerald Oefelein likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 35 minutes ago
      Gerald Oefelein likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I am comfortable using AI as a helpful tool, while fully cognizant of hallucinatory tendencies. If I may paraphrase a famous writer about a week ago analyzing universities (as well as AI): “the over-intellectualized nature of academic culture—the idea that all inquiry should be depersonalized, dispassionate, data-driven, objective. Being a good person is more about having the right emotions, perceptions, and intentions toward others in the concrete circumstances of life than it is about logic-chopping games and dry dissertations.” 𐚁
    • 1 hour, 44 minutes ago
      Judith Halterman likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 hour, 44 minutes ago
      Judith Halterman likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’m uncomfortable not knowing when and when it isn’t being used, but I’m not sure why really. A “singer” named Benny Rivers popped up in one of my feeds. I really liked the music, until I found out it was a total AI fabrication. Then I was uncomfortable. Why? I felt “taken”, like someone pulled a fast one on me, pulled the wool over my eyes. I liked the music less then. I didn’t like that I couldn’t find a tour date, things like that. But I was most uncomfortable not truly understanding why it made me uncomfortable. The music was still enjoyable.
    • 23 hours, 26 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 1 day ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 1 day ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
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    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.

    Home > LC Polls > Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.
    Previous

    What is your ideal blood glucose level before doing 30 minutes of moderate-intensity aerobic exercise (e.g. going for a brisk walk, mowing the lawn, light bike riding)?

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    If you currently use both an insulin pump and CGM, do you use any of the following automated insulin delivery (also known as “closed-loop”) algorithms to help keep your glucose in-range?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    20 Comments

    1. Nevin Bowman

      I had to evacuate one time for a severe flood. Always keep extra supplies on hand, and always have friends/relatives that you can contact anytime. Friends rescued me, and I lived with them for about a week-10 days until it was safe to return home.

      1
      5 years ago Log in to Reply
    2. Bonnie kenney

      I live in Montana….I have been evacuated 3 times because of wildfires. I have all my supplies easy to grab. Unfortunately I have gotten really good at it!

      1
      5 years ago Log in to Reply
    3. Tod Herman

      I had to evacuate my house a few years ago due to the threat of a wildfire consuming my neighborhood. I packed up and left, but was fortunate to be able to return in a short while due to a shift in the winds (and a creation of a new fire line).

      So in my case it wasn’t a big deal with my medications. I had brought enough to cover me for several weeks.

      5 years ago Log in to Reply
    4. Bob Durstenfeld

      Yes, California fires, keep your meds and supplies in one place and know your inventory.

      2
      5 years ago Log in to Reply
    5. Amy Malliett

      THIS is a reason why people with Type 1 DM need to stockpile supplies and scripts. Moreover, insurance and medical industries need to support our ability to do so. I had plenty of pump and CGM supplies, and enough insulin, to get me through the aftermath of a hurricane, when power was out for days and shipments weren’t being delivered.

      3
      5 years ago Log in to Reply
    6. M Fedor

      Stockpile supplies to the extent that insurance allows and have an evacuation plan.

      1
      5 years ago Log in to Reply
    7. Sahran Holiday

      I always have a kit with a vial of insulin several pods, batteries hung by the door. My my remote, strips and lancing device are in my purse. They go with me whenever I leave the house. Would grab an extra CGM on the way out.

      1
      5 years ago Log in to Reply
    8. Jaime Busquets

      I refilled prescriptions that I could prior to evacuating during hurricane.

      5 years ago Log in to Reply
    9. Carol Meares

      We have had to evacuate because of tsunami warnings. I have a travel bag with enough gear for a couple weeks that I toss in my vehicle and grab the insulin out of the fridge and toss it in frio containers and bring along.

      2
      5 years ago Log in to Reply
    10. BOB FISK

      In 1988 I was using a pump that had a proprietary battery that had to be charged once a day. I had 3 extra batteries that I kept charged, but a flood in our area knocked out electricity for 6 days. I tried using injected insulin, but ended up in the hospital with ketoacidosis. I was stupid that time.

      In 2015 our basement was flooded out in a major rainstorm but this time I had a pump that used a battery that lasted for a month. In addition, the battery could be purchased anywhere. So, that didn’t happen.

      I know live in an area susceptible to wildland fires, so I need to be prepared for quick evacuation. I have an array of orange waterproof boxes with all of the medications and supplies I would require to keep me safe for a month (or better).

      3
      5 years ago Log in to Reply
    11. James Goldman

      The authorities and decision makers before, during and after the hurricane notified us of all the options that we took to evacuate and we did not have any problems.

      5 years ago Log in to Reply
    12. dwines54@gmail.com

      In 1996, we had 5 feet of snowmelt + hours of torrential rain, leading to a 5 feet of water in out cellar. We had to evacuate because all utilities were shut off. I was not on a pump yet, so I packed up extra syringes, insulin, testing strips, my spare meter, alc swabs, snacks, pills in a backpack. All my other things ( clothes, etc. ) went in a separate suitcase. We were out of our house for 3 days, luckily finding a nearby motel with power and a working restaurant!!

      1
      5 years ago Log in to Reply
    13. Alan Altschuler

      I figured it out myself

      5 years ago Log in to Reply
    14. betsy valian

      Wildfire alert. Diabetes is the same for everything unexpected. have your supplies ready and a way to keep the insulin cool….. it shouldn’t be a last minute thought and cause MORE stress for everyone involved.

      1
      5 years ago Log in to Reply
    15. Gary Slater

      Always having a go bag for emergencies with all
      Medical supplies.

      5 years ago Log in to Reply
    16. ConnieT1D62

      Yes once during a county-wide power outage due to an ice storm in upstate NY. Sump pump stopped working and our basement was flooded. No heat, no electricity. Had to leave the house and stay in a nearby town at a friend’s bed & breakfast restaurant/inn property that was running on a pretty hefty generator.

      I took a week’s worth of self-care supplies, and threw together a stash of easy to prepare packaged food. Fortunately the municipality of the B&B we stayed in had power restored pretty quickly compared to the town we live in. The B&B suite had a kitchenette with a small fridge and a microwave so we were able to heat water and food.

      My husband is a general contractor whose work includes rescuing people and properties during crisis emergencies, so he had access to get groceries and frozen meals from a WalMart that had power. We had enough food supply to feed some other people who left their homes in a hurry with nothing other than the clothes they had on.

      We stayed at the B&B for 4 days until the city repaired the damaged electrical wires to restore power and we were able to return home. Some folks had no power for up to 10 days and stayed there until they could return home. The owners of the Inn did not charge anyone for staying there.

      2
      5 years ago Log in to Reply
    17. Patricia Dalrymple

      Hurricane Irma in 2017. Power was out for a week. It was the first week of classes where I work. They are in Baltimore. I work remotely in FLA so I had to find WiFi. Drove around for a couple of hours without working traffic lights until we got a tip for a hotel with power. Stayed there for a week. Had a Yeti for insulin but luckily had a working small fridge in hotel room. Went back home, packed up and drove the 40 minutes back to the hotel. We were lucky.

      5 years ago Log in to Reply
    18. Jillmarie61

      After losing my place to a fire years ago I’ve learned to be prepared. I pack at least a months worth of supplies (pump supplies, bg strips and meter, all meds, glucose tabs and insulin near the exit route of my back door in a large backpack, along with shoes and several days of clothes. In event of a brush fire or natural disaster I grab my bags and my dogs and head out to evacuate.

      1
      5 years ago Log in to Reply
    19. Stephen Woodward

      Summer fire season still has two more months. Let’s hope I do not have to.

      5 years ago Log in to Reply
    20. Wanacure

      If you use only use a CGM with a cell phone, what happens when your electricity is interrupted by tree limbs knocking down power lines? Goodbye WiFi. How will you get bg readings? Another reason to be wary of relying only on a cell phone for communication. Also, from Goodwill store I got a cheap clock radio that has a niche for a 9 volt battery backup so I can learn what happened & get public service announcements. My landline phone never went out during storms.

      5 years ago Log in to Reply

    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments. Cancel reply

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