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    • 3 hours, 21 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 3 hours, 23 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 3 hours, 24 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 3 hours, 25 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 3 hours, 33 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 25 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 5 hours, 26 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 5 hours, 28 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 28 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 11 hours, 31 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 13 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 16 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 12 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 12 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 12 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 12 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 49 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 50 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 2 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 15 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 31 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.

    Home > LC Polls > Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.
    Previous

    What is your ideal blood glucose level before doing 30 minutes of moderate-intensity aerobic exercise (e.g. going for a brisk walk, mowing the lawn, light bike riding)?

    Next

    If you currently use both an insulin pump and CGM, do you use any of the following automated insulin delivery (also known as “closed-loop”) algorithms to help keep your glucose in-range?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Nevin Bowman

      I had to evacuate one time for a severe flood. Always keep extra supplies on hand, and always have friends/relatives that you can contact anytime. Friends rescued me, and I lived with them for about a week-10 days until it was safe to return home.

      1
      4 years ago Log in to Reply
    2. Bonnie kenney

      I live in Montana….I have been evacuated 3 times because of wildfires. I have all my supplies easy to grab. Unfortunately I have gotten really good at it!

      1
      4 years ago Log in to Reply
    3. Tod Herman

      I had to evacuate my house a few years ago due to the threat of a wildfire consuming my neighborhood. I packed up and left, but was fortunate to be able to return in a short while due to a shift in the winds (and a creation of a new fire line).

      So in my case it wasn’t a big deal with my medications. I had brought enough to cover me for several weeks.

      4 years ago Log in to Reply
    4. Bob Durstenfeld

      Yes, California fires, keep your meds and supplies in one place and know your inventory.

      2
      4 years ago Log in to Reply
    5. Amy Malliett

      THIS is a reason why people with Type 1 DM need to stockpile supplies and scripts. Moreover, insurance and medical industries need to support our ability to do so. I had plenty of pump and CGM supplies, and enough insulin, to get me through the aftermath of a hurricane, when power was out for days and shipments weren’t being delivered.

      3
      4 years ago Log in to Reply
    6. M Fedor

      Stockpile supplies to the extent that insurance allows and have an evacuation plan.

      1
      4 years ago Log in to Reply
    7. Sahran Holiday

      I always have a kit with a vial of insulin several pods, batteries hung by the door. My my remote, strips and lancing device are in my purse. They go with me whenever I leave the house. Would grab an extra CGM on the way out.

      1
      4 years ago Log in to Reply
    8. Jaime Busquets

      I refilled prescriptions that I could prior to evacuating during hurricane.

      4 years ago Log in to Reply
    9. Carol Meares

      We have had to evacuate because of tsunami warnings. I have a travel bag with enough gear for a couple weeks that I toss in my vehicle and grab the insulin out of the fridge and toss it in frio containers and bring along.

      2
      4 years ago Log in to Reply
    10. BOB FISK

      In 1988 I was using a pump that had a proprietary battery that had to be charged once a day. I had 3 extra batteries that I kept charged, but a flood in our area knocked out electricity for 6 days. I tried using injected insulin, but ended up in the hospital with ketoacidosis. I was stupid that time.

      In 2015 our basement was flooded out in a major rainstorm but this time I had a pump that used a battery that lasted for a month. In addition, the battery could be purchased anywhere. So, that didn’t happen.

      I know live in an area susceptible to wildland fires, so I need to be prepared for quick evacuation. I have an array of orange waterproof boxes with all of the medications and supplies I would require to keep me safe for a month (or better).

      3
      4 years ago Log in to Reply
    11. James Goldman

      The authorities and decision makers before, during and after the hurricane notified us of all the options that we took to evacuate and we did not have any problems.

      4 years ago Log in to Reply
    12. dwines54@gmail.com

      In 1996, we had 5 feet of snowmelt + hours of torrential rain, leading to a 5 feet of water in out cellar. We had to evacuate because all utilities were shut off. I was not on a pump yet, so I packed up extra syringes, insulin, testing strips, my spare meter, alc swabs, snacks, pills in a backpack. All my other things ( clothes, etc. ) went in a separate suitcase. We were out of our house for 3 days, luckily finding a nearby motel with power and a working restaurant!!

      1
      4 years ago Log in to Reply
    13. Alan Altschuler

      I figured it out myself

      4 years ago Log in to Reply
    14. betsy valian

      Wildfire alert. Diabetes is the same for everything unexpected. have your supplies ready and a way to keep the insulin cool….. it shouldn’t be a last minute thought and cause MORE stress for everyone involved.

      1
      4 years ago Log in to Reply
    15. Gary Slater

      Always having a go bag for emergencies with all
      Medical supplies.

      4 years ago Log in to Reply
    16. ConnieT1D62

      Yes once during a county-wide power outage due to an ice storm in upstate NY. Sump pump stopped working and our basement was flooded. No heat, no electricity. Had to leave the house and stay in a nearby town at a friend’s bed & breakfast restaurant/inn property that was running on a pretty hefty generator.

      I took a week’s worth of self-care supplies, and threw together a stash of easy to prepare packaged food. Fortunately the municipality of the B&B we stayed in had power restored pretty quickly compared to the town we live in. The B&B suite had a kitchenette with a small fridge and a microwave so we were able to heat water and food.

      My husband is a general contractor whose work includes rescuing people and properties during crisis emergencies, so he had access to get groceries and frozen meals from a WalMart that had power. We had enough food supply to feed some other people who left their homes in a hurry with nothing other than the clothes they had on.

      We stayed at the B&B for 4 days until the city repaired the damaged electrical wires to restore power and we were able to return home. Some folks had no power for up to 10 days and stayed there until they could return home. The owners of the Inn did not charge anyone for staying there.

      2
      4 years ago Log in to Reply
    17. Patricia Dalrymple

      Hurricane Irma in 2017. Power was out for a week. It was the first week of classes where I work. They are in Baltimore. I work remotely in FLA so I had to find WiFi. Drove around for a couple of hours without working traffic lights until we got a tip for a hotel with power. Stayed there for a week. Had a Yeti for insulin but luckily had a working small fridge in hotel room. Went back home, packed up and drove the 40 minutes back to the hotel. We were lucky.

      4 years ago Log in to Reply
    18. Jillmarie61

      After losing my place to a fire years ago I’ve learned to be prepared. I pack at least a months worth of supplies (pump supplies, bg strips and meter, all meds, glucose tabs and insulin near the exit route of my back door in a large backpack, along with shoes and several days of clothes. In event of a brush fire or natural disaster I grab my bags and my dogs and head out to evacuate.

      1
      4 years ago Log in to Reply
    19. Stephen Woodward

      Summer fire season still has two more months. Let’s hope I do not have to.

      4 years ago Log in to Reply
    20. Wanacure

      If you use only use a CGM with a cell phone, what happens when your electricity is interrupted by tree limbs knocking down power lines? Goodbye WiFi. How will you get bg readings? Another reason to be wary of relying only on a cell phone for communication. Also, from Goodwill store I got a cheap clock radio that has a niche for a 9 volt battery backup so I can learn what happened & get public service announcements. My landline phone never went out during storms.

      4 years ago Log in to Reply

    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments. Cancel reply

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