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    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 11 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.

    Home > LC Polls > Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.
    Previous

    What is your ideal blood glucose level before doing 30 minutes of moderate-intensity aerobic exercise (e.g. going for a brisk walk, mowing the lawn, light bike riding)?

    Next

    If you currently use both an insulin pump and CGM, do you use any of the following automated insulin delivery (also known as “closed-loop”) algorithms to help keep your glucose in-range?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Nevin Bowman

      I had to evacuate one time for a severe flood. Always keep extra supplies on hand, and always have friends/relatives that you can contact anytime. Friends rescued me, and I lived with them for about a week-10 days until it was safe to return home.

      1
      5 years ago Log in to Reply
    2. Bonnie kenney

      I live in Montana….I have been evacuated 3 times because of wildfires. I have all my supplies easy to grab. Unfortunately I have gotten really good at it!

      1
      5 years ago Log in to Reply
    3. Tod Herman

      I had to evacuate my house a few years ago due to the threat of a wildfire consuming my neighborhood. I packed up and left, but was fortunate to be able to return in a short while due to a shift in the winds (and a creation of a new fire line).

      So in my case it wasn’t a big deal with my medications. I had brought enough to cover me for several weeks.

      5 years ago Log in to Reply
    4. Bob Durstenfeld

      Yes, California fires, keep your meds and supplies in one place and know your inventory.

      2
      5 years ago Log in to Reply
    5. Amy Malliett

      THIS is a reason why people with Type 1 DM need to stockpile supplies and scripts. Moreover, insurance and medical industries need to support our ability to do so. I had plenty of pump and CGM supplies, and enough insulin, to get me through the aftermath of a hurricane, when power was out for days and shipments weren’t being delivered.

      3
      5 years ago Log in to Reply
    6. M Fedor

      Stockpile supplies to the extent that insurance allows and have an evacuation plan.

      1
      5 years ago Log in to Reply
    7. Sahran Holiday

      I always have a kit with a vial of insulin several pods, batteries hung by the door. My my remote, strips and lancing device are in my purse. They go with me whenever I leave the house. Would grab an extra CGM on the way out.

      1
      5 years ago Log in to Reply
    8. Jaime Busquets

      I refilled prescriptions that I could prior to evacuating during hurricane.

      5 years ago Log in to Reply
    9. Carol Meares

      We have had to evacuate because of tsunami warnings. I have a travel bag with enough gear for a couple weeks that I toss in my vehicle and grab the insulin out of the fridge and toss it in frio containers and bring along.

      2
      5 years ago Log in to Reply
    10. BOB FISK

      In 1988 I was using a pump that had a proprietary battery that had to be charged once a day. I had 3 extra batteries that I kept charged, but a flood in our area knocked out electricity for 6 days. I tried using injected insulin, but ended up in the hospital with ketoacidosis. I was stupid that time.

      In 2015 our basement was flooded out in a major rainstorm but this time I had a pump that used a battery that lasted for a month. In addition, the battery could be purchased anywhere. So, that didn’t happen.

      I know live in an area susceptible to wildland fires, so I need to be prepared for quick evacuation. I have an array of orange waterproof boxes with all of the medications and supplies I would require to keep me safe for a month (or better).

      3
      5 years ago Log in to Reply
    11. James Goldman

      The authorities and decision makers before, during and after the hurricane notified us of all the options that we took to evacuate and we did not have any problems.

      5 years ago Log in to Reply
    12. dwines54@gmail.com

      In 1996, we had 5 feet of snowmelt + hours of torrential rain, leading to a 5 feet of water in out cellar. We had to evacuate because all utilities were shut off. I was not on a pump yet, so I packed up extra syringes, insulin, testing strips, my spare meter, alc swabs, snacks, pills in a backpack. All my other things ( clothes, etc. ) went in a separate suitcase. We were out of our house for 3 days, luckily finding a nearby motel with power and a working restaurant!!

      1
      5 years ago Log in to Reply
    13. Alan Altschuler

      I figured it out myself

      5 years ago Log in to Reply
    14. betsy valian

      Wildfire alert. Diabetes is the same for everything unexpected. have your supplies ready and a way to keep the insulin cool….. it shouldn’t be a last minute thought and cause MORE stress for everyone involved.

      1
      5 years ago Log in to Reply
    15. Gary Slater

      Always having a go bag for emergencies with all
      Medical supplies.

      5 years ago Log in to Reply
    16. ConnieT1D62

      Yes once during a county-wide power outage due to an ice storm in upstate NY. Sump pump stopped working and our basement was flooded. No heat, no electricity. Had to leave the house and stay in a nearby town at a friend’s bed & breakfast restaurant/inn property that was running on a pretty hefty generator.

      I took a week’s worth of self-care supplies, and threw together a stash of easy to prepare packaged food. Fortunately the municipality of the B&B we stayed in had power restored pretty quickly compared to the town we live in. The B&B suite had a kitchenette with a small fridge and a microwave so we were able to heat water and food.

      My husband is a general contractor whose work includes rescuing people and properties during crisis emergencies, so he had access to get groceries and frozen meals from a WalMart that had power. We had enough food supply to feed some other people who left their homes in a hurry with nothing other than the clothes they had on.

      We stayed at the B&B for 4 days until the city repaired the damaged electrical wires to restore power and we were able to return home. Some folks had no power for up to 10 days and stayed there until they could return home. The owners of the Inn did not charge anyone for staying there.

      2
      5 years ago Log in to Reply
    17. Patricia Dalrymple

      Hurricane Irma in 2017. Power was out for a week. It was the first week of classes where I work. They are in Baltimore. I work remotely in FLA so I had to find WiFi. Drove around for a couple of hours without working traffic lights until we got a tip for a hotel with power. Stayed there for a week. Had a Yeti for insulin but luckily had a working small fridge in hotel room. Went back home, packed up and drove the 40 minutes back to the hotel. We were lucky.

      5 years ago Log in to Reply
    18. Jillmarie61

      After losing my place to a fire years ago I’ve learned to be prepared. I pack at least a months worth of supplies (pump supplies, bg strips and meter, all meds, glucose tabs and insulin near the exit route of my back door in a large backpack, along with shoes and several days of clothes. In event of a brush fire or natural disaster I grab my bags and my dogs and head out to evacuate.

      1
      5 years ago Log in to Reply
    19. Stephen Woodward

      Summer fire season still has two more months. Let’s hope I do not have to.

      5 years ago Log in to Reply
    20. Wanacure

      If you use only use a CGM with a cell phone, what happens when your electricity is interrupted by tree limbs knocking down power lines? Goodbye WiFi. How will you get bg readings? Another reason to be wary of relying only on a cell phone for communication. Also, from Goodwill store I got a cheap clock radio that has a niche for a 9 volt battery backup so I can learn what happened & get public service announcements. My landline phone never went out during storms.

      5 years ago Log in to Reply

    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments. Cancel reply

    You must be logged in to post a comment.




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