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    • 2 hours, 44 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 2 hours, 45 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 2 hours, 46 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 2 hours, 46 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 4 hours, 58 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 7 hours, 31 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 9 hours, 25 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 10 hours, 50 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 11 hours, 33 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 11 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 12 hours, 7 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 23 hours, 57 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 57 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 1 hour ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 8 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 8 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 9 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.

    Home > LC Polls > Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments.
    Previous

    What is your ideal blood glucose level before doing 30 minutes of moderate-intensity aerobic exercise (e.g. going for a brisk walk, mowing the lawn, light bike riding)?

    Next

    If you currently use both an insulin pump and CGM, do you use any of the following automated insulin delivery (also known as “closed-loop”) algorithms to help keep your glucose in-range?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Nevin Bowman

      I had to evacuate one time for a severe flood. Always keep extra supplies on hand, and always have friends/relatives that you can contact anytime. Friends rescued me, and I lived with them for about a week-10 days until it was safe to return home.

      1
      5 years ago Log in to Reply
    2. Bonnie kenney

      I live in Montana….I have been evacuated 3 times because of wildfires. I have all my supplies easy to grab. Unfortunately I have gotten really good at it!

      1
      5 years ago Log in to Reply
    3. Tod Herman

      I had to evacuate my house a few years ago due to the threat of a wildfire consuming my neighborhood. I packed up and left, but was fortunate to be able to return in a short while due to a shift in the winds (and a creation of a new fire line).

      So in my case it wasn’t a big deal with my medications. I had brought enough to cover me for several weeks.

      5 years ago Log in to Reply
    4. Bob Durstenfeld

      Yes, California fires, keep your meds and supplies in one place and know your inventory.

      2
      5 years ago Log in to Reply
    5. Amy Malliett

      THIS is a reason why people with Type 1 DM need to stockpile supplies and scripts. Moreover, insurance and medical industries need to support our ability to do so. I had plenty of pump and CGM supplies, and enough insulin, to get me through the aftermath of a hurricane, when power was out for days and shipments weren’t being delivered.

      3
      5 years ago Log in to Reply
    6. M Fedor

      Stockpile supplies to the extent that insurance allows and have an evacuation plan.

      1
      5 years ago Log in to Reply
    7. Sahran Holiday

      I always have a kit with a vial of insulin several pods, batteries hung by the door. My my remote, strips and lancing device are in my purse. They go with me whenever I leave the house. Would grab an extra CGM on the way out.

      1
      5 years ago Log in to Reply
    8. Jaime Busquets

      I refilled prescriptions that I could prior to evacuating during hurricane.

      5 years ago Log in to Reply
    9. Carol Meares

      We have had to evacuate because of tsunami warnings. I have a travel bag with enough gear for a couple weeks that I toss in my vehicle and grab the insulin out of the fridge and toss it in frio containers and bring along.

      2
      5 years ago Log in to Reply
    10. BOB FISK

      In 1988 I was using a pump that had a proprietary battery that had to be charged once a day. I had 3 extra batteries that I kept charged, but a flood in our area knocked out electricity for 6 days. I tried using injected insulin, but ended up in the hospital with ketoacidosis. I was stupid that time.

      In 2015 our basement was flooded out in a major rainstorm but this time I had a pump that used a battery that lasted for a month. In addition, the battery could be purchased anywhere. So, that didn’t happen.

      I know live in an area susceptible to wildland fires, so I need to be prepared for quick evacuation. I have an array of orange waterproof boxes with all of the medications and supplies I would require to keep me safe for a month (or better).

      3
      5 years ago Log in to Reply
    11. James Goldman

      The authorities and decision makers before, during and after the hurricane notified us of all the options that we took to evacuate and we did not have any problems.

      5 years ago Log in to Reply
    12. dwines54@gmail.com

      In 1996, we had 5 feet of snowmelt + hours of torrential rain, leading to a 5 feet of water in out cellar. We had to evacuate because all utilities were shut off. I was not on a pump yet, so I packed up extra syringes, insulin, testing strips, my spare meter, alc swabs, snacks, pills in a backpack. All my other things ( clothes, etc. ) went in a separate suitcase. We were out of our house for 3 days, luckily finding a nearby motel with power and a working restaurant!!

      1
      5 years ago Log in to Reply
    13. Alan Altschuler

      I figured it out myself

      5 years ago Log in to Reply
    14. betsy valian

      Wildfire alert. Diabetes is the same for everything unexpected. have your supplies ready and a way to keep the insulin cool….. it shouldn’t be a last minute thought and cause MORE stress for everyone involved.

      1
      5 years ago Log in to Reply
    15. Gary Slater

      Always having a go bag for emergencies with all
      Medical supplies.

      5 years ago Log in to Reply
    16. ConnieT1D62

      Yes once during a county-wide power outage due to an ice storm in upstate NY. Sump pump stopped working and our basement was flooded. No heat, no electricity. Had to leave the house and stay in a nearby town at a friend’s bed & breakfast restaurant/inn property that was running on a pretty hefty generator.

      I took a week’s worth of self-care supplies, and threw together a stash of easy to prepare packaged food. Fortunately the municipality of the B&B we stayed in had power restored pretty quickly compared to the town we live in. The B&B suite had a kitchenette with a small fridge and a microwave so we were able to heat water and food.

      My husband is a general contractor whose work includes rescuing people and properties during crisis emergencies, so he had access to get groceries and frozen meals from a WalMart that had power. We had enough food supply to feed some other people who left their homes in a hurry with nothing other than the clothes they had on.

      We stayed at the B&B for 4 days until the city repaired the damaged electrical wires to restore power and we were able to return home. Some folks had no power for up to 10 days and stayed there until they could return home. The owners of the Inn did not charge anyone for staying there.

      2
      5 years ago Log in to Reply
    17. Patricia Dalrymple

      Hurricane Irma in 2017. Power was out for a week. It was the first week of classes where I work. They are in Baltimore. I work remotely in FLA so I had to find WiFi. Drove around for a couple of hours without working traffic lights until we got a tip for a hotel with power. Stayed there for a week. Had a Yeti for insulin but luckily had a working small fridge in hotel room. Went back home, packed up and drove the 40 minutes back to the hotel. We were lucky.

      5 years ago Log in to Reply
    18. Jillmarie61

      After losing my place to a fire years ago I’ve learned to be prepared. I pack at least a months worth of supplies (pump supplies, bg strips and meter, all meds, glucose tabs and insulin near the exit route of my back door in a large backpack, along with shoes and several days of clothes. In event of a brush fire or natural disaster I grab my bags and my dogs and head out to evacuate.

      1
      5 years ago Log in to Reply
    19. Stephen Woodward

      Summer fire season still has two more months. Let’s hope I do not have to.

      5 years ago Log in to Reply
    20. Wanacure

      If you use only use a CGM with a cell phone, what happens when your electricity is interrupted by tree limbs knocking down power lines? Goodbye WiFi. How will you get bg readings? Another reason to be wary of relying only on a cell phone for communication. Also, from Goodwill store I got a cheap clock radio that has a niche for a 9 volt battery backup so I can learn what happened & get public service announcements. My landline phone never went out during storms.

      4 years ago Log in to Reply

    Have you ever had to evacuate your home due to a natural disaster while living with T1D? If so, share any resources or info that helped you in the comments. Cancel reply

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