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    • 9 hours, 2 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 9 hours, 9 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 9 hours, 34 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 11 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 31 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 14 hours, 31 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 32 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 14 hours, 51 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 9 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!

    Home > LC Polls > Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!
    Previous

    Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a “device vacation” for at least a few days this summer?

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    Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Janice B

      I was stopped because my bag was larger than allowed. Once I showed them my medical supplies and they ran the bag through the scanner everything was fine.

      2 years ago Log in to Reply
    2. Sherolyn Newell

      In my job, I occasionally have to go into data centers. They all have pretty heavy security, but one of them has a metal detector you have to walk through and an x-ray for bags. I thought that one of my devices wasn’t supposed to go through one of those. Naturally, I couldn’t remember which device or which thing. So I told them I couldn’t xray my controllers/receivers or walk through the metal detector. The guards didn’t seem like they had a procedure for the situation, but they let me in.

      2 years ago Log in to Reply
    3. connie ker

      Once going into a Cubs game, I was carrying a small cooler. Yes, I was asked about it, but when I told the man at the gate why I was bringing in the cooler, he allowed me to pass. I’m guessing this has all changed by now because that was quite awhile ago.

      2 years ago Log in to Reply
    4. Greg Felton

      Yes, but they were doing their job, and once I explained it was fine.

      2 years ago Log in to Reply
    5. gary rind

      Early on in T1D life, I went to Nashville for NCAA basketball playoffs. Entering the arena, I was carrying my little bag with needle tips, meter, stick, etc. Guard asked me what this was and I told him medical supplies. He didn’t open the bag but rubbed his hands over the outside of it. He said, “let me guess, you’re a diabetic”.

      3
      2 years ago Log in to Reply
    6. Britni

      I said “other.” I’ve not been prevented from entering anywhere, but I have had to work around “no bags/purses allowed” rules.

      2 years ago Log in to Reply
    7. Lawrence Stearns

      Yes, My bag has been checked at baseball games, airports, concerts. The most interesting was at my bank. The bank guard apologized, but I thanked him, and welcomed him to check my bag anytime. I have gotten to the point where I just walk up to any gate, or entry person, when I go somewhere and offer to allow them to look in my bag. Sometimes they look, sometimes they just wave me through. It’s funny because I carry a large variety of snacks, honey and juice bottles in my bag. I also carry my own food because of my celiac disease.

      2 years ago Log in to Reply
    8. Ann Auerbach

      I wasn’t stopped from going in but I had to put all my supplies in a clear bag that they provided. Now I have a clear zip bag that I use of going to an arena, etc. No issues with that.

      2 years ago Log in to Reply
    9. Nevin Bowman

      Yes, at sporting events, but they’ve always let me in with my supplies.

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      I haven’t been stopped because I know to read the policies ahead of time. They are getting more and more restrictive though.

      2 years ago Log in to Reply
    11. Danielle Eastman

      This is such a fun question, being a fruit mule is what I’m here for. Picnics forbidden? Not on my watch.

      2 years ago Log in to Reply
    12. Maureen Helinski

      Yes, at a small but popular museum on outskirts of Rome, Italy. I had to put my supplies in a plastic bag at coat check. I protested to no avail. I felt nervous the whole time because I was then wearing the Medtronic pump and not accurate Enlite sensor. There were many steps in the museum.

      2 years ago Log in to Reply
      1. Jonathan Strait

        Yikes. This reminds me of a nightmare I had once (twice?)

        2 years ago Log in to Reply
    13. Anthony Harder

      Hasn’t happened recently (haven’t gone anywhere in the past 15 months). Usually larger events with their own concessions (sports events). I tell them I’m a T1D, show my med bracelet (that’s helpful reinforcement), and they wave me through.

      1
      2 years ago Log in to Reply
    14. AimmcG

      I have. Now that there are metal detectors I always tell them I am wearing an insulin pump and have been asked about candy in my bag. I don’t carry a lot so it’s usually something that they let slide.

      2 years ago Log in to Reply
    15. Sahran Holiday

      Sneak snacks into the movies, carry snacks everywhere especially to the dance studio. Enough for everyone to rummage in my bag and help themselves. Movies it’s more cause the candy is so overpriced. Big jar of individually wrapped miniature chocolates on my desk for everyone. They know if my Dexcom G6 starts beeping to come over and see that I eat.

      1
      2 years ago Log in to Reply
    16. Amanda Barras

      Luckily when I explain they usually screen my bag privately off to the side and sometimes mark my bag with a medical tag so that any other security staff knows that I’ve already been screened and ok to be in the event with my bag.

      1
      2 years ago Log in to Reply
    17. Kathleen Begbie

      After 9/11 at an airport

      1
      2 years ago Log in to Reply
    18. Maggie Morgan

      I tell whoever is at the gate that I have type one diabetes and have the snacks for emergencies. They usually get too uncomfortable to ask questions and do not care enough so they just wave me through.

      1
      2 years ago Log in to Reply
    19. Yaffa Steubinger

      I had Skittles in my purse for low blood sugar. They saw them and said I couldn’t take food in. I told them I was T1 and they said ‘ok.’

      1
      2 years ago Log in to Reply
    20. Caitlin St. Jean

      I brought a bag that was too big for the venue so that I could carry my supplies, they said I should have checked the rules ahead of time, but ultimately let me go in.

      2 years ago Log in to Reply
    21. Chris Deutsch

      Yes, at Fenway Park once. But I was allowed in after I explained. At Denver Int’l Airport, however, I once needed to discard my 6 oz juice boxes since they were too big….it’s getting harder to find the smaller 4 oz size.

      2 years ago Log in to Reply
    22. Hilary Welter

      When I was in Mexico City the bouncer wouldn’t let me into the bar after finding my meter in my bag. They didn’t understand what it was and wanted to keep my meter as security until I was ready to leave the bar. Obviously that didn’t happen… I found someone to translate in Spanish to better explain the bouncer why I needed to keep my meter with me.

      2 years ago Log in to Reply
    23. Marla Peaslee

      I just explain the situation and have never had an issue.

      2 years ago Log in to Reply
    24. Jeff Perzan

      Happens all the time, particularly at large sporting events where everyone is wanded and limitations on food and liquids exist. Over the years, the good news is that most of the security people are a lot more knowledgeable about diabetes; that’s also the bad news as many have revealed they have family members with diabetes.

      2 years ago Log in to Reply
    25. Sara Weaver

      I’ve had to dispose of yogurt before boarding an airplane.

      2 years ago Log in to Reply
    26. Catherine Davis

      I was stopped by a young airline employee when boarding a plane with 3 bags, one of which (a big one-could fit a plump pillow) was for medical supplies. I think her attitude was influenced by my looking like a “healthy” person, not apparently old and decrepit. She asked whether I used a CPAP, which I do not, and then said I was not allowed to board. I said, “Would you like to see what is in here? Let’s have a look.” Some grownup employee made her let me pass before I got it open. All this after having the pat-down because I won’t go into their millimeter wave machine (damages devices) and even though they let parents with kids go through the metal detector instead, and I have TSA Precheck (gave fingerprints etc.), I’m not allowed that option. I drive whenever it’s within a couple of days’ travel.

      2 years ago Log in to Reply
    27. Amy Malliett

      Questioned and told outside food or beverage isn’t allowed, yes absolutely. But the moment I say it’s because I have T1Diabetes, I’ve been waved through. I be never been actually prevented from entering.

      2 years ago Log in to Reply
    28. Siri Lachmansingh

      The only place I’ve had a hard time entering with my pump was a temple in India. They were super strict about there not being any cell phones in the temple and I was stopped multiple time by people working there. After explaining to many different people I was able to keep my pump on.

      2 years ago Log in to Reply
    29. Jennifer Franklin

      I have never been prevented from entering an event due to the contents in my bag. Security will ask about it, but usually saying “I have type 1 diabetes” is enough for them. Most events I’ve attended have taken place in California, but I’ve also been to a concert in Dublin, Ireland and Barcelona, Spain, and had no issues there either. I usually carry fruit snacks or glucose tabs and no liquids.

      2 years ago Log in to Reply

    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments! Cancel reply

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