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    • 7 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 19 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 20 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 hour, 35 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 3 hours, 32 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours, 32 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 34 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 35 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 43 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 49 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 51 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 52 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 4 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 4 hours, 9 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 9 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 4 hours, 9 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 4 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 4 hours, 10 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 4 hours, 29 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 4 hours, 29 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 4 hours, 31 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 5 hours, 1 minute ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!

    Home > LC Polls > Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!
    Previous

    Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a ā€œdevice vacationā€ for at least a few days this summer?

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    Multiple daily injections (MDI) users: Do you use an app or other device to track your insulin dosing? Share the tools you use in the comments below!

    Sarah Howard

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    30 Comments

    1. Janice B

      I was stopped because my bag was larger than allowed. Once I showed them my medical supplies and they ran the bag through the scanner everything was fine.

      2 years ago Log in to Reply
    2. Sherolyn Newell

      In my job, I occasionally have to go into data centers. They all have pretty heavy security, but one of them has a metal detector you have to walk through and an x-ray for bags. I thought that one of my devices wasn’t supposed to go through one of those. Naturally, I couldn’t remember which device or which thing. So I told them I couldn’t xray my controllers/receivers or walk through the metal detector. The guards didn’t seem like they had a procedure for the situation, but they let me in.

      2 years ago Log in to Reply
    3. connie ker

      Once going into a Cubs game, I was carrying a small cooler. Yes, I was asked about it, but when I told the man at the gate why I was bringing in the cooler, he allowed me to pass. I’m guessing this has all changed by now because that was quite awhile ago.

      2 years ago Log in to Reply
    4. Greg Felton

      Yes, but they were doing their job, and once I explained it was fine.

      2 years ago Log in to Reply
    5. gary rind

      Early on in T1D life, I went to Nashville for NCAA basketball playoffs. Entering the arena, I was carrying my little bag with needle tips, meter, stick, etc. Guard asked me what this was and I told him medical supplies. He didn’t open the bag but rubbed his hands over the outside of it. He said, “let me guess, you’re a diabetic”.

      3
      2 years ago Log in to Reply
    6. Britni

      I said “other.” I’ve not been prevented from entering anywhere, but I have had to work around “no bags/purses allowed” rules.

      2 years ago Log in to Reply
    7. Lawrence Stearns

      Yes, My bag has been checked at baseball games, airports, concerts. The most interesting was at my bank. The bank guard apologized, but I thanked him, and welcomed him to check my bag anytime. I have gotten to the point where I just walk up to any gate, or entry person, when I go somewhere and offer to allow them to look in my bag. Sometimes they look, sometimes they just wave me through. It’s funny because I carry a large variety of snacks, honey and juice bottles in my bag. I also carry my own food because of my celiac disease.

      2 years ago Log in to Reply
    8. Ann Auerbach

      I wasn’t stopped from going in but I had to put all my supplies in a clear bag that they provided. Now I have a clear zip bag that I use of going to an arena, etc. No issues with that.

      2 years ago Log in to Reply
    9. Nevin Bowman

      Yes, at sporting events, but they’ve always let me in with my supplies.

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      I haven’t been stopped because I know to read the policies ahead of time. They are getting more and more restrictive though.

      2 years ago Log in to Reply
    11. Danielle Eastman

      This is such a fun question, being a fruit mule is what I’m here for. Picnics forbidden? Not on my watch.

      2 years ago Log in to Reply
    12. Maureen Helinski

      Yes, at a small but popular museum on outskirts of Rome, Italy. I had to put my supplies in a plastic bag at coat check. I protested to no avail. I felt nervous the whole time because I was then wearing the Medtronic pump and not accurate Enlite sensor. There were many steps in the museum.

      2 years ago Log in to Reply
      1. Jonathan Strait

        Yikes. This reminds me of a nightmare I had once (twice?)

        2 years ago Log in to Reply
    13. Anthony Harder

      Hasn’t happened recently (haven’t gone anywhere in the past 15 months). Usually larger events with their own concessions (sports events). I tell them I’m a T1D, show my med bracelet (that’s helpful reinforcement), and they wave me through.

      1
      2 years ago Log in to Reply
    14. AimmcG

      I have. Now that there are metal detectors I always tell them I am wearing an insulin pump and have been asked about candy in my bag. I don’t carry a lot so it’s usually something that they let slide.

      2 years ago Log in to Reply
    15. Sahran Holiday

      Sneak snacks into the movies, carry snacks everywhere especially to the dance studio. Enough for everyone to rummage in my bag and help themselves. Movies it’s more cause the candy is so overpriced. Big jar of individually wrapped miniature chocolates on my desk for everyone. They know if my Dexcom G6 starts beeping to come over and see that I eat.

      1
      2 years ago Log in to Reply
    16. Amanda Barras

      Luckily when I explain they usually screen my bag privately off to the side and sometimes mark my bag with a medical tag so that any other security staff knows that I’ve already been screened and ok to be in the event with my bag.

      1
      2 years ago Log in to Reply
    17. Kathleen Begbie

      After 9/11 at an airport

      1
      2 years ago Log in to Reply
    18. Maggie Morgan

      I tell whoever is at the gate that I have type one diabetes and have the snacks for emergencies. They usually get too uncomfortable to ask questions and do not care enough so they just wave me through.

      1
      2 years ago Log in to Reply
    19. Yaffa Steubinger

      I had Skittles in my purse for low blood sugar. They saw them and said I couldn’t take food in. I told them I was T1 and they said ‘ok.’

      1
      2 years ago Log in to Reply
    20. Caitlin St. Jean

      I brought a bag that was too big for the venue so that I could carry my supplies, they said I should have checked the rules ahead of time, but ultimately let me go in.

      2 years ago Log in to Reply
    21. Chris Deutsch

      Yes, at Fenway Park once. But I was allowed in after I explained. At Denver Int’l Airport, however, I once needed to discard my 6 oz juice boxes since they were too big….it’s getting harder to find the smaller 4 oz size.

      2 years ago Log in to Reply
    22. Hilary Welter

      When I was in Mexico City the bouncer wouldn’t let me into the bar after finding my meter in my bag. They didn’t understand what it was and wanted to keep my meter as security until I was ready to leave the bar. Obviously that didn’t happen… I found someone to translate in Spanish to better explain the bouncer why I needed to keep my meter with me.

      2 years ago Log in to Reply
    23. Marla Peaslee

      I just explain the situation and have never had an issue.

      2 years ago Log in to Reply
    24. Jeff Perzan

      Happens all the time, particularly at large sporting events where everyone is wanded and limitations on food and liquids exist. Over the years, the good news is that most of the security people are a lot more knowledgeable about diabetes; that’s also the bad news as many have revealed they have family members with diabetes.

      2 years ago Log in to Reply
    25. Sara Weaver

      I’ve had to dispose of yogurt before boarding an airplane.

      2 years ago Log in to Reply
    26. Catherine Davis

      I was stopped by a young airline employee when boarding a plane with 3 bags, one of which (a big one-could fit a plump pillow) was for medical supplies. I think her attitude was influenced by my looking like a “healthy” person, not apparently old and decrepit. She asked whether I used a CPAP, which I do not, and then said I was not allowed to board. I said, “Would you like to see what is in here? Let’s have a look.” Some grownup employee made her let me pass before I got it open. All this after having the pat-down because I won’t go into their millimeter wave machine (damages devices) and even though they let parents with kids go through the metal detector instead, and I have TSA Precheck (gave fingerprints etc.), I’m not allowed that option. I drive whenever it’s within a couple of days’ travel.

      2 years ago Log in to Reply
    27. Amy Malliett

      Questioned and told outside food or beverage isn’t allowed, yes absolutely. But the moment I say it’s because I have T1Diabetes, I’ve been waved through. I be never been actually prevented from entering.

      2 years ago Log in to Reply
    28. Siri Lachmansingh

      The only place I’ve had a hard time entering with my pump was a temple in India. They were super strict about there not being any cell phones in the temple and I was stopped multiple time by people working there. After explaining to many different people I was able to keep my pump on.

      2 years ago Log in to Reply
    29. Jennifer Franklin

      I have never been prevented from entering an event due to the contents in my bag. Security will ask about it, but usually saying “I have type 1 diabetes” is enough for them. Most events I’ve attended have taken place in California, but I’ve also been to a concert in Dublin, Ireland and Barcelona, Spain, and had no issues there either. I usually carry fruit snacks or glucose tabs and no liquids.

      2 years ago Log in to Reply

    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments! Cancel reply

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