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    • 6 hours, 54 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 7 hours, 45 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 8 hours, 40 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 23 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 43 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 10 hours, 14 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 19 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 14 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 15 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 44 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 52 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 11 hours, 57 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 23 hours, 13 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 23 hours, 13 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 23 hours, 13 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 4 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 6 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 7 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a “device vacation” for at least a few days this summer?

    Home > LC Polls > Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a “device vacation” for at least a few days this summer?
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    Have you ever been stopped from entering a large event (concert, sports game, etc.) because you were carrying your T1D supplies or snacks in your bag? Share how you handled the situation in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    28 Comments

    1. Ahh Life

      No. Not now. Not never
      The T1D condition is eternal. And when miracle technological devices are miraculously available for use (both theologically and economically) I am determined to make use of them, even when they frequently fail, rip off, go kaput, and occasionally wander into never never land. Keep a stiff technological upper lip and carry on. Cheers!

      4
      2 years ago Log in to Reply
    2. Cheryl Seibert

      As a T1D for 54 years since age 6, I don’t understand why anyone would ‘take a vacation’ from the devices that provide them better control and thus a longer life. I would never consider going back to multiple daily injections and 10-12 finger pokes a day. Sounds like a nightmare back to my childhood to me!

      1
      2 years ago Log in to Reply
    3. Rex Franklin

      I am taking a two month break from my pump and CGM. My pump warranty expires at the end of August. My CGM transmitter is failing causing the sensors to last only two to three days. I spoke with my Endo and when I finish my pump/CGM supplies I will be going back to MDI. She wants me to think about changing pump and CGM brands.

      1
      2 years ago Log in to Reply
      1. Lawrence Stearns

        Rex,
        I am sorry to hear that you are having so many problems with your pump and CGM. I don’t know what you mean by MNI. I had many problems with my CGM and found that changing locations/sites helped tremendously. I now wear my CGM soley on my upper glutes. I also try to keep my pump on the same side of my body as the CGM transmitter. I use the Dexcom G6 transmitter and find it to work better than other transmitters. I wish you well, and don’t give up. Larry

        1
        2 years ago Log in to Reply
      2. Lawrence Stearns

        I forgot to mention that sensors/transmitter that go bad before their expiration dates are replace by the company.

        2 years ago Log in to Reply
      3. Christina Trudo

        Rex, I had to change brands a few years ago after I went on Medicare, which basically only covers Dexcom CGMs which pair with Tandem pumps. WOW!! I had been on a pump almost 30 years, a CGM for 15, and this was a whole new level of helpful, ESPECIALLY the CGM. Accuracy, reliability, all superior to my longtime loyal “Other” brand.

        1
        2 years ago Log in to Reply
    4. Larry Martin

      More device shamming from T1D. We all should just leave here.

      2 years ago Log in to Reply
    5. Sahran Holiday

      Sounds absurd. Put both. on the upper gluteals

      2 years ago Log in to Reply
    6. AimmcG

      There is absolutely no reason to take a break! Vanity is no reason to not wear a device. I didnt begin wearing a pump until I was 30 because I was concerned about how I would look wearing a pump. I starting wearing one because I knew it was the best way to manage my blood glucose levels when it came time to start a family. Best thing I ever did…ever! Looking back I want to slap myself for waiting. I wear my pump loud and proud. I might get looks or get questions but so what? It’s part of who I am. If you explain to someone it allows me to live a better life then they are al for it too!

      1
      2 years ago Log in to Reply
    7. Lawrence Stearns

      It just seems absurd to take a “vacation” from T1D devices, on several levels. My T1D devices give me the best control of my diabetes, and good health. Also, my health insurance will not buy syringes and blood test strips (but why would I want to regress back to an inferior method of taking care of myself). I’ve been a diabetic for 44 years. There are no vacations from this disease. It is 24/7. I find this question to be counter productive to diabetes care. Shame on T1D for promoting such a negative idea!

      2 years ago Log in to Reply
      1. Sue Herflicker

        When my boys were younger and they were due for a site change, if their tests were good, I would let them go swim or out to play for a bit without their pumps. There were no CGMs back then so we would finger stick and depending on the numbers maybe take a shot or hook back up. they called it their FREE time!! As adults I still catch them once in a while without their CGMs, but never their pumps. I being only diagnosed 4 years ago, will not take mine off only to swim and like someone said I will check in every 30 minutes or so to make sure I don’t need a bolus. I don’t think this is a negative question at all!! My brother takes vacations from his pump for weeks at a time and goes to MDIs. He is in construction and working out in the heat has trouble with the insulin going bad and he says its just nice not having to worry about his pump getting caught on something, like my little boys would say, “It’s Freeing Mom” !

        3
        2 years ago Log in to Reply
    8. Danielle Eastman

      When one sensor expires before I put a new one on I sometimes take the opportunity to take a bath, so maybe same with swimming if I find myself near a pool. I haven’t tried with G6 but it was end of session for it’s predecessor whenever I tried to swim, even with great tape, maybe the tape was the problem. Advice welcome!

      2 years ago Log in to Reply
      1. Dave Akers

        I only wear CGM… no break from that as it provides more freedom from having to also carry a SMBG device around. No problem keeping G6 on while swimming or playing Ocean Waterpolo. Good adhesive is the key!!

        1
        2 years ago Log in to Reply
    9. Retired and glad

      Take a “vacation” from something that will improve my health? No Way! The only time I take my pump off for an extended period is when I want to swim, and then it’s only for a maximum of about 30 minutes. It’s not because of vanity, but more because I don’t trust the “guarantee” the pump will work after time in the water. My sensors I don’t worry about and never take them off and have had no problems. I even forgot to take one off during an MRI test and it didn’t impact it. As others have said, why would anyone want to take a “vacation” and not want to take advantage of current technology, when it is so critical to your health? We’re all going to be diabetics our entire life, and the chances of having a better and longer life will be improved by using the best tools.

      4
      2 years ago Log in to Reply
    10. Chip Brookes

      Ditto. Won’t take off anything that keeps me healthy.

      Device Shaming? Hmmmm. I don’t take any offense to questions like this.

      4
      2 years ago Log in to Reply
    11. ConnieT1D62

      I have on occasion taken a pump vacation for a period of 10 days to 3 weeks to give my insertion sites a rest. I use MDI with my CGM and do okay – mainly because I am well trained by my pump algorithms. I have done it in July and took advantage of swimming in a pool without wearing pump paraphernalia. It was enjoyable.

      3
      2 years ago Log in to Reply
    12. Jenny Richardson

      I take a CGM break every time I get a new transmitter. I believe it’s important to remember how to keep in control using our meters. We can’t get too comfortable with technology and forget how to do it old school in my opinion.

      3
      2 years ago Log in to Reply
      1. KarenM6

        Hi Jenny –
        Yes, it is quite helpful to remember how to do diabetes old school! First time my pump died and a replacement would take 3 or 4 days to arrive, my first thought was, “Oh… how much long-term insulin do I take? I don’t remember how to do this!” (I also used my cat’s long-term insulin because I had none of my own on hand.) But, it was quite a learning curve.

        But, to answer the question:
        I don’t take intentional breaks. Mine always are when technology fails me. So, I get a lot of practice.

        Anyway, it’s good to be flexible, IMHO! 🙂

        2 years ago Log in to Reply
    13. Donna Condi

      I finally have a great system (Tandem pump and Dexcom) to take care of diabetes. It reduces my stress and work and I don’t have to think about it as much. Why would I want to go back to that hassle.

      1
      2 years ago Log in to Reply
    14. MARIE

      Would not want a “break” except to go in to the water. The devices make life so much easier, it would not be much of a “break” without them.

      2
      2 years ago Log in to Reply
    15. Bonnie Lundblom

      No I don’t take any device vacations during the summer months. My Tslim x2 pump and Dexcom CGM6 help keep me healthy and with great A1C’s so it wouldn’t make sense for me to stop using these during the warm weather months. I’ve lived in Florida my entire life and had more than my fair share of severe sunburns. So far just 1 skin cancer, but also have vitiligo, so I avoid the sun as much as possible.

      2 years ago Log in to Reply
    16. Nicholas Argento

      I would rather be safe and secure….

      2 years ago Log in to Reply
    17. Amy Jo

      Have no desire to take a break from my pump, but sometimes when my CGM sensor session ends, I’ll wait a day or two to place a new one.

      2 years ago Log in to Reply
    18. Donna Owens

      I’m not currently wearing devices for other reasons, but when I do, I do not take breaks in summer.

      2 years ago Log in to Reply
    19. Catherine Davis

      I see no shame in mentioning this. When I was a new pumper in the 90s I was getting frustrated by all the new things I had to do, and my CDE (Della Matheson <3) said if I wanted to take a break for a few days, I could. It let me relax for a bit and then get back on them. Also I have learned that insulin spoils in Miami Beach sun so I always bring a cooler and baggie for my pump to stay in. I detach pump before going for a swim.

      2 years ago Log in to Reply
    20. Jamie W

      I have been at the beach 3 times already and stopped myself before diving in because of my Dexcom CGM transmitter on my arm. There is no way to take it off without ruining the 10-day sensor. It would be nice if you could snap it in and out, or if there was a good waterproof patch.

      2 years ago Log in to Reply
      1. Germaine Sarda

        I go to the beach often every summer and swim. I keep my CGM in place but remove my pump while swimming and reattach it when I’m done. The only time I use long acting insulin rather than my pump is when I kayak just in case I fall in and risk my pump getting wet. I only kayak once or twice a summer. I don’t really take vacations from my pump since I prefer having it on.

        2 years ago Log in to Reply
    21. T1D5/1971

      I only take off my pump to shower. The CGM stays all the time. I’ve used waterproof patches for years.
      If my clothes don’t have pockets (and most women’s clothing doesn’t) or the usual site of a waistband, I go with an alternate solution like a belly band. If I go in the pool, I put my pump in a waterproof microphone case and clip it to a necklace.
      It just isn’t necessary to abandon control to enjoy life.

      2 years ago Log in to Reply

    Many people take a break from wearing T1D devices during summers when they’ll be more active, wearing clothes that might have fewer pockets, or spending time at the beach. If you wear a pump or CGM, do you expect to take a “device vacation” for at least a few days this summer? Cancel reply

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