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    • 9 hours, 22 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 16 hours, 23 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 16 hours, 23 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 16 hours, 34 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 16 hours, 34 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 16 hours, 42 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 16 hours, 55 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 17 hours, 30 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 17 hours, 31 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 17 hours, 31 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 20 hours, 40 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 23 hours, 28 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 10 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 13 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 14 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 15 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.

    Home > LC Polls > Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    39 Comments

    1. mbulzomi@optonline.net

      Very simple answer, “NO”.

      1
      1 year ago Log in to Reply
    2. Janice B

      While I try to eat lower carbohydrate foods I do not follow a keto diet

      1
      1 year ago Log in to Reply
    3. Franklin Rios

      it is the princpal way for manegement my glicemia

      1 year ago Log in to Reply
    4. Shelly Smith

      I was on a diet that was low carb more as a way of weight management than glucose management, and that was several years ago! The only diabetes benefit I noticed was that I took less insulin.

      1 year ago Log in to Reply
    5. Jane Cerullo

      Have always done low carb high protein. Tried actual keto which incorporates high fat. This did not work for me. Did not tolerate higher fat even so called good fats. Raised my BS.

      1 year ago Log in to Reply
    6. Gary Taylor

      My wife is on a low carb, high protein diet, so I guess I am too. However, I tend to cheat.

      1 year ago Log in to Reply
    7. Daniel Bestvater

      I’ve never been on a keto diet. But for my 46 years of T1D I have normally eaten 20-40gm of carbs 3 times a day with a snack of 10-15gb carbs if I’m active.

      1 year ago Log in to Reply
    8. William Ervin

      I started on a zero carb diet in January and have lost 15 pounds and I’m using 35% less insulin each day. It has made a gigantic difference in my overall quality of life. I’ve stopped eating pasta, bread, rice, and potatoes

      1 year ago Log in to Reply
    9. Dennis Stephens

      I have done a Keto diet, and while it helps you to loose weight, I don’t feel its the healthy way to do so. The other issue I see with me and most any others that try Keto, is when you try to add carbs back in, even good carbs, the body reacts and starts to immediately put the weight back on.

      1
      1 year ago Log in to Reply
    10. Dahne Rodriguez

      I was eating Keto for 8 years but had issues with vegetable fiber. I now eat carnivore and my bg’s couldn’t be better.

      1
      1 year ago Log in to Reply
    11. Tom Rintelmann

      I was on a Keto diet for a short time.
      It’s hard for my T1D food also must follow alongside the Keto.
      Tom R

      1 year ago Log in to Reply
    12. cynthia jaworski

      I minimize the amount of carbs I eat, but I cannot classify my diet. The keto, paleo, low-carb, carnivore, etc. all overlap as far as I can tell. The differences are fodder for nit-picking. For me, the real aim is to require less insulin and to avoid blood sugar spikes.

      1
      1 year ago Log in to Reply
    13. Louise Robinson

      Yes. After reading Dr Richard Bernstein’s book, Diabetes Solution nearly 20 years ago, I immediately became “carb aware” and reduced my daily intake of carbohydrates I was dx’d with Type 1 diabetes 48 years ago in 1976. Reducing carbs enabled me to reduce my hbA1c scores into the low 6’s which was my goal. I’ve gone as low as 5.8 for an A1c. I’ve had to further reduce my carb intake as I’ve aged to maintain good glucose control. I never did go as low as Dr Bernstein recommends. My current carb intake is 95 grams per day. I credit my “carb awareness” and control with helping me to stave off those dreaded diabetes complications….so far. Aging with diabetes has presented additional control challenges. I’m currently in my mid-70’s. Life has been good!

      2
      1 year ago Log in to Reply
    14. Bea Anderson

      I am currently. My go-to diet to return to perfect control, lose weight, better medical test scores. But I do go off at times because I’m a human, not a machine!

      1
      1 year ago Log in to Reply
    15. Cristina Jorge Schwarz

      Yes, I follow a ketogenic diet, which is technically low carb and high fat. Only fad keto diets are high protein.

      In a nutritional keto diet, you calculate your body’s protein needs (approx 1g per kg body weight), add in your personal net carb target, and based on your daily total caloric need, the rest of your calories are from fat.

      I started about 7 months into my diagnosis, when the ADA recommendations didn’t work for me. I’ve followed a keto diet since then, about 7 years total now

      1
      1 year ago Log in to Reply
    16. GiGi

      I tried for several months, but I didn’t like how I felt. I had no energy and I didn’t like the ketone odor of my breath, sweat, and urine! It also wasn’t something I could stay on long-term.

      1 year ago Log in to Reply
    17. Eva

      Good question! Yes, I am following a keto diet. It requires a totally different perspective on carbs, protein and fat. I recommend reading Keto Continuum

      0
      1 year ago Log in to Reply
    18. Juha Kankaanpaa

      I first started to experiment with ketogenic diet when I wad training for an ultra marathon. It worked out a treat. My bg stayed nice and level regardless of what I was doing. At the ultra marathon I had some almonds and macadamia nuts and this was enough to keep me going. At my earlier runs I needed to (continuously) eat carbs for energy while trying to stay at a reasonable bg level. I loved the food I was eating, but found it really difficult to eat out.

      1 year ago Log in to Reply
    19. Steven Gill

      In ’98 I was diagnosed TYPE2, “counted carbs” which is how I got off insulin, off medication, but 3 years diet alone my glucose levels went crazy. My first endocrinologist kept wanting me to loss more weight so though I was at my weight after basic training (’78 at 18). Kept changing prescription even when I asked about insulin (“I was too old to need insulin, too old to be a TYPE 1”). Went to the original ATKINS diet (before his kids got involved with bars and shakes), dropped from a healthy 170lbs to 148.

      My diagnosis changed at those med trials to TYPE 1, told 25-30lbs underweight. I now generally do “moderate carbs,” although I make a point not to restrict anything now.

      There’s room for various eating styles to make our glucose control stable, as much as we’re able to stay healthy.

      1 year ago Log in to Reply
    20. Randy Molen

      I have done a low car diet in the past and had good success losing weight and controlling blood sugar levels. It can be a bit difficult at time to maintain for long periods of time.

      1 year ago Log in to Reply
    21. Sue Herflicker

      I answered I will share in comments, but. have never been on a strict keto diet , however I do watch my carbs. My sugars run better on a low carb diet. However last night I splurged and had 2 big pieces of pizza, using the extended bolus I never got higher than a 150. I shocked myself. LOL

      1 year ago Log in to Reply
    22. Vicki Andersen

      Yes, I still eat a high protein, low carb diet, however I wonder if that has created my gastrointestinal issues.

      1 year ago Log in to Reply
    23. Lavell Velez

      I have been a TID for over 52 years. I was like every 14 y/o crazy about sweets. But it wasn’t until I learned to control my carbs and know which ones to shy away from, I wasn’t able to control my glucose levels. Now I am making more conscientious choices and the trends registered in my pump show more of a flat line below 135. But it is a day to day challenge. For women post menopause, hormones, or lack there of is another challenge.

      1 year ago Log in to Reply
    24. T1D4LongTime

      I don’t believe in “fad” diet trends. I eat a well-balanced diet and try to consume reduced carbs (NOT eliminating carbs… your body needs some carbs for proper function .. in my opinion). My endo agrees with this approach

      1
      1 year ago Log in to Reply
    25. Joindy23

      I eat low carb due to T1D, it keeps my blood sugar in range. I’d never eat a high protein diet because that taxes the kidneys.

      1 year ago Log in to Reply
    26. Miracle102375@windstream.net

      Yes, my 14yo t1d eats lower carb (less than 45 g carbs a day) & loads up on protein.

      1 year ago Log in to Reply
    27. Beckett Nelson

      I did keto for a while when struggling with post concussion syndrome. It seemed to help

      1 year ago Log in to Reply
    28. Sparklee

      I tried to stick to a 30 carb/day diet for about 2 years. It definitely makes it easier to control blood sugars & weight. My A1c remains 5.9 or below. I’ve loosened up for the past few months, eating low carb, but not as strict, & am still doing quite well with blood sugars, but have gained a little weight again.

      1 year ago Log in to Reply
    29. Amanda Barras

      I’ve done low carb/dirty keto and it works! I just love food too much in general and am swayed by social gatherings to be able to stay on it like I should. I never maintained a daily carb limit but I only chose meat, low carb veg, and cheese during that time along side low carb yogurts and other snacks. I lost 12 lbs in 4 months and my blood sugar was no longer on a rollar coaster!

      1 year ago Log in to Reply
    30. Jeff Balbirnie

      Very bad idea, bad science as far as I can tell.

      1 year ago Log in to Reply
    31. Samantha Altman

      I attempted the diet Dr. Bernstein subscribed pre-CGM while in grad school.

      1 year ago Log in to Reply
    32. Alexis Newman

      Yes, I followed a low carb diet- high protein diet. I found that I needed to take insulin for the protein. I worked with my educator to figure out the ratio. I didn’t lose weight, i actually gained.

      1 year ago Log in to Reply
    33. Patricia Dalrymple

      I have never dieted in my life. I’ve been fortunate to be thin. I just try to eat smart. I try not to eat processed food. There is nothing in my freezer. We eat fresh. My husband and I are both retired so we go to the store often. We both cook. It works for us. I eat as much as he does for dinner but he snacks more. I do not eat between meals unless CGM tells me I am going low.

      1 year ago Log in to Reply
    34. eherban1

      I go no carbs and fast periodically. When eating a strict no carb (<5g per meal) or fasting I do not have to take ANY bolus insulin at all and my BG will stay within 20 mg/dL the entire time. It's unsettling in a way. I wouldn't know that I was diabetic but for the fact that I still need to take my basal insulin (while on pump, just set it and forget it' while on MDI, just 1 shot of Tresiba per day). Too bad I don't have very long term resolve to stay on that kind of diet.

      1 year ago Log in to Reply
    35. Paul Madden

      Lower carb typically but not necessarily ketogenic.

      1 year ago Log in to Reply
    36. Andrea Hultman

      Have been doing low carb since 2019. It really helps keep my BGs lower and in range for most of the day.

      1 year ago Log in to Reply
    37. Ernie Richmann

      I’m trying to eat less ultra processed foods. I am extremely active and not sure a keto diet would support my activity level. I eat a fair amount of vegetables and fruits (mostly berries and sometimes peaches, bananas, apples. Willing to tesd comments. Think I need carbs on 20 mile hikes, walks, bike rides.

      11 months ago Log in to Reply
    38. Jeanine Quigley

      I didn’t have much success with it as my blood sugar kept tanking.

      5 months ago Log in to Reply
    39. Randy Campbell

      I stay on a keto diet. I don’t like using more insulin for carbs. My pancreas barely functions and treating highs becomes a roller coaster!

      4 months ago Log in to Reply

    Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments. Cancel reply

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