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    • 1 hour, 55 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 55 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours, 10 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 11 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 32 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 41 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 41 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 38 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 54 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Has a stranger ever approached you to talk about your visible diabetes device(s)?

    Home > LC Polls > Has a stranger ever approached you to talk about your visible diabetes device(s)?
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    26 Comments

    1. PamK

      I was shopping at Costco and a woman approached me. She asked if she could ask me something personal. I said okay. She then pointed at the tubing at my waistband and asked if it was to an insulin pump. I told her it was. She went on to explain that her son was diagnosed at a young age and had just started pumping. He noticed my tube and told her I had a pump like his. She told him she didn’t think so, but he insisted that she ask me. Well, he was right!
      I told her that I was diagnosed when I was 2 1/2 years old (her son was 3) and had been living with diabetes for several decades. She told me I had given her great hope for his future. šŸ™‚
      I’m glad you asked this because this is a very fond memory for me!

      7
      7 months ago Log in to Reply
    2. Steve Rumble

      I wear a CGM but it is normally covered by my clothing, only occasionally visible on my upper arm.

      7 months ago Log in to Reply
    3. Patricia Dalrymple

      I was in a restaurant and got up to leave and this teenager ran up to me and said: is that an insulin pump very excitedly. I said yes and he said he just got his and did I like mine. I told him it was a game changer and I loved it. He was too cute. Like the person below, it is a fond memory. I’ve approached a couple of people. One young man I did not because he was with a group of friends at a bar and I didn’t want to interrupt. I like talking to others about it.

      2
      7 months ago Log in to Reply
    4. Liz Avery

      I answered ā€œotherā€ as strangers haven’t asked, but people that are part of a large group of acquaintances often do. They aren’t ā€˜t strangers, but less than friends. I have encouraged many grandparents to get their grandchildren pumping.

      1
      7 months ago Log in to Reply
    5. Maureen Helinski

      Often when I have the G6 on my arm people say, oh my son has one, or how do you like it.

      2
      7 months ago Log in to Reply
    6. Lisa Coyne

      When walking in my neighborhood, a gentleman called out, as I passed by, ā€œIs that a thing for your blood sugar?ā€ My Dexcom was on the back of my arm at the time. He had seen a commercial on TV about CGMS and was excited to see one in person!

      1
      7 months ago Log in to Reply
    7. Hieromonk Alexis

      My pump is visible only briefly if I’m entering a bolus and the same goes for my G6 receiver whenever I check my levels. I do attract attention if starts beeping, in which case I tell curious strangers that I’m backing up.

      4
      7 months ago Log in to Reply
    8. Lawrence S.

      I have always worn my pump out in the open where it is easily visible. I want people to know that I am diabetic in case I need help. Anyway, yes, I’ve been approached a few times. Occasionally, a person might ask, and I am eager to have a discussion about my pump. One occasion, I was asked at a pool by two persons. They said that their granddaughter was recently diagnosed and just started on a pump. Those folks became two of my now closest friends. Another time, I was at another pool, and a woman called over to her son who was in the pool, “Hey, you have a friend with a device like yours.” At the time, he was wearing an Omnipod, I was wearing a Medtronic pump. We had a nice discussion about the similarities and differences between our pumps.
      I love to talk to people about my pump.

      2
      7 months ago Log in to Reply
    9. Lyn McQuaid

      I’ve never been approached because I hide everything but I have approached other people wearing diabetes devices to chat with them.

      2
      7 months ago Log in to Reply
    10. Louise Robinson

      I live in Florida and wear my DexG6 on my upper arm. Because of the heat, I don’t scruple about wearing sleeveless blouses. As I was leaving the Publix Supermarket checkout clerk, yesterday, the clerk commented, “Hey, I have a Dexcom too!”.

      2
      7 months ago Log in to Reply
    11. Trisha Oldenkamp

      One time it even led to a new friendship!

      7 months ago Log in to Reply
    12. gary rind

      I answered no but should have answered that my device isn’t (usually) visible. Libre2 on the tricep so it normally can’t be seen.

      7 months ago Log in to Reply
    13. Cheryl Seibert

      We were dining in a Bob Evans restaurant and I was bolusing for dinner. A nearby customer came over and asked about the pump

      7 months ago Log in to Reply
    14. Sue Herflicker

      YES, not only asked but touched. An older gentleman in an elevator started rubbing his finger on my dex located on my arm. I was very uncomfortable at the time, he asked me what it was. Thank Goodness I was getting off on the 2nd floor!!

      7 months ago Log in to Reply
    15. Jillmarie61

      All the time! Most of the time I wear my pump hidden inside or under clothing, but I wear my Dexcom G6 on my arm right out in the open. It always leads me to taking about my pump and telling them how the two connect up with each other and how it’s changed my life. I’ve even had physicians ask me about it when they see one because most of the don’t deal with diabetes. It never hurts to eaducate someone.

      3
      7 months ago Log in to Reply
    16. Greg Felton

      I’m usually wearing several layers of clothes in this part of the US, so devices are rarely visible. When the are, I have had a few people approach me, but the majority are other T1Ds, rather than curious strangers.

      2
      7 months ago Log in to Reply
    17. TomH

      I don’t try to hide them, if they show, they show. I don’t get questioned often, but try to take advantage of any question to educate. On a recent cruise, a lady next to me asked; she turned out to be T2, gut wasn’t aware (despite Dexcom’s ads) about CGMs. I explained the various types/makers as well as how I was using Loop to integrate my CGM and Omni Dash to work together better and more automated.

      7 months ago Log in to Reply
    18. Tina Roberts

      All the time.

      7 months ago Log in to Reply
    19. Ahh Life

      Back in the paleolithic period when CGM’s weren’t invented, pump usage was rare, and Southwest Airlines was a little puddle jumper of an airline, I stayed seated between flights while whipping out my glucometer to test BG. The young stewardess busy cleaning up between flights stopped to ask what the number was? Then she pulled out her glucometer just to show me she had one.

      I thought, ā€œWhat a great company. They hired her for one of the most difficult jobs in the world and she was showing a kindred spirit with one of them.ā€ ( Ķ”ā›ā€ÆĶœŹ– Ķ”ā›)✊

      3
      7 months ago Log in to Reply
    20. Donna Condi

      Yes/no. I was at a breakfast buffet at a hotel when I was approached by a lady who asked if she could pray for me. I said yes and I stopped and she began her prayer. I later figured out that I was wearing my Omnipod on my arm and it looks just like the cancer ā€œafter chemo next day shotā€ that she must have assumed I had cancer.

      7 months ago Log in to Reply
    21. Tb-well

      I am someone who asks others about their tattoos and their devices. I want to know if they like what they have and what they suggest.

      7 months ago Log in to Reply
    22. Douglas Holt

      Most people can’t believe I’m still using a pager…

      2
      7 months ago Log in to Reply
    23. ConnieT1D62

      So far only other PWDs who are also wearing a device in a nod of solidarity, or a person w/o diabetes and other PWDs who ask if I like wearing wearing it and to describe the pros and cons between the device (pump &/or cgm) as opposed to injections and finger prick testing.

      7 months ago Log in to Reply
    24. mbulzomi@optonline.net

      I have been asked if Pagers were still being used. Had a good laugh.

      7 months ago Log in to Reply
    25. Molly Jones

      “Oh! You have one too.” Then usually waits for a response.

      7 months ago Log in to Reply
    26. Nicholas Argento

      Many times but like others it is usually someone who has T1D or has a friend-relative-child w diabetes. Often in airports- I see lots of DM devices there. I find it contributes to a sense of community. Once someone in church thought I had cancer – and said she would pray for me…

      7 months ago Log in to Reply

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