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    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 55 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 18 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 15 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 50 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 45 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover?

    Home > LC Polls > For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover?
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    During which month were you (or your loved one) diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      I was pleasantly surprised when I ordered my Tandem pump last month. Insurance had told me I’d have to meet my deductible ($2,000) and co-insurance (30%) after that but the supplies would be covered by a $30 “diabetes management” co-pay. Instead, both the supplies and the pump were covered by the $30 co-pay so my total cost for the t:slim X2, 90 days of set and 90 days of cartridges was $90.

      1
      3 years ago Log in to Reply
    2. Janice Bohn

      I have found that I have to place the order for the provider to then check insurance coverage. Then once I have the coverage amount I can cancel – or proceed with shipping seems to be a backwards system.

      2
      3 years ago Log in to Reply
    3. Jen Farley

      I work for a company who supplies pumps and CGMs and diabetic supplies. We check insurance coverage before we give a number for cost. If you get a out of pocket cost and it changed, check the company you work with!

      1
      3 years ago Log in to Reply
    4. Gary Taylor

      I used an upgrade offer from Medtronic that was not covered by insurance. Total was $400. Now that I think about it, I should have answered “I knew my coverage and cost before I ordered” instead of “other”.

      3 years ago Log in to Reply
    5. TEH

      I had researched the cost for the T:slim X2 and I knew medicare would cover 100% after deductable. The pump supplier did not know that I had all ready met my deductible. So that was the only variable.

      3 years ago Log in to Reply
    6. Trina Blake

      I learned my out of pocket costs during the orer process phone call.

      3 years ago Log in to Reply
    7. Greg Felton

      A related story: I ordered the pump through a supply company, which I also used for CGM supplies. I was promised that I didn’t need to pay for the pump for 90 days, which I planned to take advantage of until I went to reorder CGM sensors and couldn’t place an order with an outstanding balance! 🙃 It was not resolved after several phone calls and emails, so I eventually had to pay rather than run out of supplies.

      3 years ago Log in to Reply
    8. Bob Durstenfeld

      I was perplexed to find the insurance company had “leased” the insulin pump from a third party supplier and when I changed insurance I owed the difference as the new insurance company would not assume the lease agreement. I was angry.

      1
      3 years ago Log in to Reply
    9. Janis Senungetuk

      I carefully checked before starting the ordering process because I was aware that Medicare, my secondary insurance, would not pay a penny and I’d be responsible for that portion in addition to my copay. My Animus Vibe pump was 2 years old at the time Animus shut down. I wanted a Tandem pump to replace it. My primary insurance was willing but Medicare wouldn’t waver from their 5 year rule, leaving me with a $940 bill. I made the decision to purchase the Tandem pump knowing that the cost would drain my small savings account.

      2
      3 years ago Log in to Reply
      1. George Lovelace

        I began Pumping in 1998 and was aware of the “4 Year Warranty” but not with the Medicare rules I was subject to when I chose the Tandem. There was just a small balance to pay as I had well over 4 years on my current Animas when they went out of business.

        3 years ago Log in to Reply
    10. Kathryn Keller

      After trying to figure out how to get dash pods covered by insurance for awhile, the nurse at endo did something and I got a notice it was ready at my pharmacy, so didn’t find the price till I went and picked up.

      3 years ago Log in to Reply
    11. mojoseje

      I’m due for a new pump but cannot get a cost before I order it. I don’t understand why. So frustrating and annoying and it makes me not want to give these multi-billionaires my money in protest—even if my diabetes management suffers.

      3
      3 years ago Log in to Reply
    12. Gustavo Avitabile

      I knew my cost and it is zero! I live in a country, Italy, where the National Health System provides free cures to all citizens that need it. I think this is better than the insurance system that holds in other countries, including US.

      2
      3 years ago Log in to Reply
    13. Pauline M Reynolds

      I don’t remember the details, but I do remember thinking that everyone was keeping a secret – the cost!

      1
      3 years ago Log in to Reply
    14. Mick Martin

      There was nothing for me to pay. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes consumables are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      3 years ago Log in to Reply
    15. Steven Gill

      I was totally ignorant and didn’t think to investigate the costs, after a year discontinued the CGM because of the costs. In a way I’m glad, I’d have never opted to pump/CGM had I known although still unsure if there were options. Kept thinking my deductible threshold would be reached but no.

      3 years ago Log in to Reply
    16. AnitaS

      I really don’t remember, but I am pretty sure I would have looked into the price before ordering so as not to be hit with a large bill. Luckily, all of my CGM and pump supplies are paid by my insurance. The only thing I pay is $35 for my insulin per prescription.

      3 years ago Log in to Reply
    17. T1D4LongTime

      Edgepark does a good job of showing my out-of-pocket costs before I add the items to the cart. This applies even to the first order of the year where the deductible applies.

      3 years ago Log in to Reply
    18. Michael Andrews

      I haven’t used an insulin pump b/c I’m concerned about the costs.

      3 years ago Log in to Reply

    For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover? Cancel reply

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