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    • 12 hours, 31 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 12 hours, 36 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours, 43 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover?

    Home > LC Polls > For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover?
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    During which month were you (or your loved one) diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      I was pleasantly surprised when I ordered my Tandem pump last month. Insurance had told me I’d have to meet my deductible ($2,000) and co-insurance (30%) after that but the supplies would be covered by a $30 “diabetes management” co-pay. Instead, both the supplies and the pump were covered by the $30 co-pay so my total cost for the t:slim X2, 90 days of set and 90 days of cartridges was $90.

      1
      3 years ago Log in to Reply
    2. Janice Bohn

      I have found that I have to place the order for the provider to then check insurance coverage. Then once I have the coverage amount I can cancel – or proceed with shipping seems to be a backwards system.

      2
      3 years ago Log in to Reply
    3. Jen Farley

      I work for a company who supplies pumps and CGMs and diabetic supplies. We check insurance coverage before we give a number for cost. If you get a out of pocket cost and it changed, check the company you work with!

      1
      3 years ago Log in to Reply
    4. Gary Taylor

      I used an upgrade offer from Medtronic that was not covered by insurance. Total was $400. Now that I think about it, I should have answered “I knew my coverage and cost before I ordered” instead of “other”.

      3 years ago Log in to Reply
    5. TEH

      I had researched the cost for the T:slim X2 and I knew medicare would cover 100% after deductable. The pump supplier did not know that I had all ready met my deductible. So that was the only variable.

      3 years ago Log in to Reply
    6. Trina Blake

      I learned my out of pocket costs during the orer process phone call.

      3 years ago Log in to Reply
    7. Greg Felton

      A related story: I ordered the pump through a supply company, which I also used for CGM supplies. I was promised that I didn’t need to pay for the pump for 90 days, which I planned to take advantage of until I went to reorder CGM sensors and couldn’t place an order with an outstanding balance! 🙃 It was not resolved after several phone calls and emails, so I eventually had to pay rather than run out of supplies.

      3 years ago Log in to Reply
    8. Bob Durstenfeld

      I was perplexed to find the insurance company had “leased” the insulin pump from a third party supplier and when I changed insurance I owed the difference as the new insurance company would not assume the lease agreement. I was angry.

      1
      3 years ago Log in to Reply
    9. Janis Senungetuk

      I carefully checked before starting the ordering process because I was aware that Medicare, my secondary insurance, would not pay a penny and I’d be responsible for that portion in addition to my copay. My Animus Vibe pump was 2 years old at the time Animus shut down. I wanted a Tandem pump to replace it. My primary insurance was willing but Medicare wouldn’t waver from their 5 year rule, leaving me with a $940 bill. I made the decision to purchase the Tandem pump knowing that the cost would drain my small savings account.

      2
      3 years ago Log in to Reply
      1. George Lovelace

        I began Pumping in 1998 and was aware of the “4 Year Warranty” but not with the Medicare rules I was subject to when I chose the Tandem. There was just a small balance to pay as I had well over 4 years on my current Animas when they went out of business.

        3 years ago Log in to Reply
    10. Kathryn Keller

      After trying to figure out how to get dash pods covered by insurance for awhile, the nurse at endo did something and I got a notice it was ready at my pharmacy, so didn’t find the price till I went and picked up.

      3 years ago Log in to Reply
    11. mojoseje

      I’m due for a new pump but cannot get a cost before I order it. I don’t understand why. So frustrating and annoying and it makes me not want to give these multi-billionaires my money in protest—even if my diabetes management suffers.

      3
      3 years ago Log in to Reply
    12. Gustavo Avitabile

      I knew my cost and it is zero! I live in a country, Italy, where the National Health System provides free cures to all citizens that need it. I think this is better than the insurance system that holds in other countries, including US.

      2
      3 years ago Log in to Reply
    13. Pauline M Reynolds

      I don’t remember the details, but I do remember thinking that everyone was keeping a secret – the cost!

      1
      3 years ago Log in to Reply
    14. Mick Martin

      There was nothing for me to pay. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes consumables are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      3 years ago Log in to Reply
    15. Steven Gill

      I was totally ignorant and didn’t think to investigate the costs, after a year discontinued the CGM because of the costs. In a way I’m glad, I’d have never opted to pump/CGM had I known although still unsure if there were options. Kept thinking my deductible threshold would be reached but no.

      3 years ago Log in to Reply
    16. AnitaS

      I really don’t remember, but I am pretty sure I would have looked into the price before ordering so as not to be hit with a large bill. Luckily, all of my CGM and pump supplies are paid by my insurance. The only thing I pay is $35 for my insulin per prescription.

      3 years ago Log in to Reply
    17. T1D4LongTime

      Edgepark does a good job of showing my out-of-pocket costs before I add the items to the cart. This applies even to the first order of the year where the deductible applies.

      3 years ago Log in to Reply
    18. Michael Andrews

      I haven’t used an insulin pump b/c I’m concerned about the costs.

      3 years ago Log in to Reply

    For insulin pump users: When you were ordering your current insulin pump, at what point during the ordering process did you learn how much of the device costs your insurance plan would cover? Cancel reply

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