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    • 13 hours, 24 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 25 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 16 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 44 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 14 hours, 56 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 15 hours, 49 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 15 hours, 56 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 17 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 20 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 27 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 17 hours, 51 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 8 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.

    Home > LC Polls > During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.
    Previous

    If you wear a CGM, on a scale of 1-5 how much additional stress or anxiety would you feel if you were unable to wear a sensor for a full week? (1 = very little stress added, 5 = the most stress added)

    Next

    How long, on average, would you say that it takes for you to start feeling better after treating a moderately low blood sugar?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Carol Meares

      Turned out to be not significant because I try to do plan ahead. Living in Alaska one always has to plan ahead because of shipping. Sometimes insurance makes it difficult to plan ahead because they refuse to pay. I always want to have 30-60 days of backup insulin, supplies, and meds. I have learned that lesson through times like 911 and now the pandemic.

      2 years ago Log in to Reply
    2. Jana Wardian

      It’s really hard to know if shipping delays are related to the pandemic or other factors. It’s important to order early and try not to get short on supplies.

      2 years ago Log in to Reply
    3. connie ker

      I was so thankful to have all supplies and medications delivered to my front door during this pandemic. No problem in receiving or no delays in receiving. All positive news for Mail Order pharmacies !

      2 years ago Log in to Reply
    4. Yaffa Steubinger

      No shipping delays during the pandemic but I’m suffering from shipping delays since we had a little winter storm here in TX. Been working for two weeks to get my Dexcom order and only have a few days left on my last Dexcom.

      2 years ago Log in to Reply
    5. Anthony Harder

      I had delays getting CGM sensors, but I attribute that to extremely poor customer service from my supplier, not particularly related to pandemic.

      2 years ago Log in to Reply
    6. Anne Blayney

      I had an order of Dexcom sensors that got “stuck” in a FedEx warehouse for several days in December. I called FedEx and explained that they were medical supplies, and the absolutely incredible agent called me back with daily updates until the package was delivered. I can’t measure the extent to which she was able to expedite the parcel (versus when it would have arrived if I hadn’t called in), but the customer service was phenomenal. I did run out of sensors and had to resort to fingerpricks only for several days, but better to run out of sensors than pump supplies or insulin!

      2 years ago Log in to Reply
    7. Peter Shank

      Shipping got plugged up around the holidays.

      2 years ago Log in to Reply
    8. Rose Lentzke

      The winter weather has caused delays more than Covid has caused issues.

      2 years ago Log in to Reply
    9. Maureen Helinski

      I could not get my Dexcom G6 sensors from Solara-they didn’t have them. I also had a new doctor so a problem with prescription. Dexcom would not let me buy them from them because I am on Medicare. I found a Giant Pharmacy that did let me buy some. Eventually Solara sent them.

      2 years ago Log in to Reply
    10. John Henninger

      Having multiple inputs to my source for supplies, the delay from the time they post they have the order until it gets shipped is sometimes extraordinary. I understand one day or a hold over a weekend. But up to five days to get it into shipping is not necessary. It has happened a couple of times. But the worst thing is the Medicare rule of only a thirty day supply! Really? I plan to be around for more than a thirty day supply.

      2 years ago Log in to Reply
    11. ConnieT1D62

      Nope. Byram for pump and CGM supplies has been great and everything has arrived in a timely way. CVS for insulin and other meds with no delay issues.

      2 years ago Log in to Reply
    12. Ernie Richmann

      Amazingly no but letters I mailed weeks ago have not arrived at destinations and I am hopeful all Christmas cards sent my way will arrive before Spring.

      2 years ago Log in to Reply
    13. Lakesha McDonald Kee

      Not sure if the shipping delay for my pump supplies were pandemic or holiday related, but I never received the order. It was just pending in the tracking system with no movement. The supplier sent the next set out overnight shipping.

      2 years ago Log in to Reply
    14. Mary Ann Sayers

      NO!!! At age 7, there’s no such thing as a “honeymoon” stage! All I knew was I got a shot every day AND I HATED SHOTS!!! (You could put one of today’s needles down the barrel of one used on me then!)

      2 years ago Log in to Reply
    15. George Lovelace

      Located in N TX so there were massive delays, had Dex Sensors scheduled for Tue 16th, not received until Tue 23rd. It felt like being back in the dark ages before any help, sort of like going back to urine testing. I need a Spare Sensor.

      2 years ago Log in to Reply
    16. Cheryl Seibert

      I only had one delay. It was minor (just a couple of days). EdgePark immediately notified me of the delay.

      2 years ago Log in to Reply
    17. Grey Gray

      Answered yes but I think mimimed was just back ordered on cgm sensors at the time

      2 years ago Log in to Reply
    18. Kristine Warmecke

      I don’t know if it was related to COVID-19 or not. Could be many things, mostly Byram sending the wrong supplies repeatedly. That made me have to to pay out of pocket for insulin pump and Dexcom supplies or go without for months on end. Since Medicare wouldn’t pay another company for the correct ones and Byram refused to send the correct ones.

      2 years ago Log in to Reply
    19. Dennis Dacey

      I responded NO, and I’ll supplement that response with, since COVID-19, DELIVERY FROM MY SUPPLIERS HAS IMPROVED. All my pump supplies, and all my CGM supplies come through Byram, and with doctor prescription, my CGM orders are placed and shipped on a timely basis by Byram technology without need for my action. Additionally, my other prescriptive medications are shipped automatically, usually much sooner than I need, by the United Health OPTUM Px – I assume the “early delivery is because of this SARS-voX2 pandemic.

      2 years ago Log in to Reply
    20. Donald Cragun

      I have had numerous problems getting Solara to send me CGM sensors and transmitters, and pump infusion sets (and they keep sending me more cartridges than I need). During the past year I have been unable to use my CGM for more than a week twice. I’m looking for a new supplier.

      2 years ago Log in to Reply
    21. Jillmarie61

      Items tops longer than before the pandemic.

      2 years ago Log in to Reply
    22. Mel Jackson

      My supplies that the supplier insisted on shipping USPS were two to seven weeks late, so I had to pay extra to have them shipped UPS or FedEx.

      2 years ago Log in to Reply
    23. Marie Seymour-Green

      3 weeks late and I’m still waiting. (Better Living Now)

      2 years ago Log in to Reply
    24. Karen Maffucci

      My OmniDash just quit working. I called and support team was to send me a replacement. This was a Friday evening. Sent via FedEx. No pump by the following Tues. Called and spoke to the support team again. Due to weather issues I was told it was held up. They sent me another one that Tuesday and I did not get the second one until a week later on Wednesday evening. I went 13 days having to take injections.

      2 years ago Log in to Reply

    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled. Cancel reply

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