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    • 20 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.

    Home > LC Polls > During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.
    Previous

    If you wear a CGM, on a scale of 1-5 how much additional stress or anxiety would you feel if you were unable to wear a sensor for a full week? (1 = very little stress added, 5 = the most stress added)

    Next

    How long, on average, would you say that it takes for you to start feeling better after treating a moderately low blood sugar?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Carol Meares

      Turned out to be not significant because I try to do plan ahead. Living in Alaska one always has to plan ahead because of shipping. Sometimes insurance makes it difficult to plan ahead because they refuse to pay. I always want to have 30-60 days of backup insulin, supplies, and meds. I have learned that lesson through times like 911 and now the pandemic.

      5 years ago Log in to Reply
    2. Jana Wardian

      It’s really hard to know if shipping delays are related to the pandemic or other factors. It’s important to order early and try not to get short on supplies.

      5 years ago Log in to Reply
    3. connie ker

      I was so thankful to have all supplies and medications delivered to my front door during this pandemic. No problem in receiving or no delays in receiving. All positive news for Mail Order pharmacies !

      5 years ago Log in to Reply
    4. Yaffa Steubinger

      No shipping delays during the pandemic but I’m suffering from shipping delays since we had a little winter storm here in TX. Been working for two weeks to get my Dexcom order and only have a few days left on my last Dexcom.

      5 years ago Log in to Reply
    5. Anthony Harder

      I had delays getting CGM sensors, but I attribute that to extremely poor customer service from my supplier, not particularly related to pandemic.

      5 years ago Log in to Reply
    6. Anne Blayney

      I had an order of Dexcom sensors that got “stuck” in a FedEx warehouse for several days in December. I called FedEx and explained that they were medical supplies, and the absolutely incredible agent called me back with daily updates until the package was delivered. I can’t measure the extent to which she was able to expedite the parcel (versus when it would have arrived if I hadn’t called in), but the customer service was phenomenal. I did run out of sensors and had to resort to fingerpricks only for several days, but better to run out of sensors than pump supplies or insulin!

      5 years ago Log in to Reply
    7. Peter Shank

      Shipping got plugged up around the holidays.

      5 years ago Log in to Reply
    8. Rose Lentzke

      The winter weather has caused delays more than Covid has caused issues.

      5 years ago Log in to Reply
    9. Maureen Helinski

      I could not get my Dexcom G6 sensors from Solara-they didn’t have them. I also had a new doctor so a problem with prescription. Dexcom would not let me buy them from them because I am on Medicare. I found a Giant Pharmacy that did let me buy some. Eventually Solara sent them.

      5 years ago Log in to Reply
    10. John Henninger

      Having multiple inputs to my source for supplies, the delay from the time they post they have the order until it gets shipped is sometimes extraordinary. I understand one day or a hold over a weekend. But up to five days to get it into shipping is not necessary. It has happened a couple of times. But the worst thing is the Medicare rule of only a thirty day supply! Really? I plan to be around for more than a thirty day supply.

      5 years ago Log in to Reply
    11. ConnieT1D62

      Nope. Byram for pump and CGM supplies has been great and everything has arrived in a timely way. CVS for insulin and other meds with no delay issues.

      5 years ago Log in to Reply
    12. Ernie Richmann

      Amazingly no but letters I mailed weeks ago have not arrived at destinations and I am hopeful all Christmas cards sent my way will arrive before Spring.

      5 years ago Log in to Reply
    13. Lakesha McDonald Kee

      Not sure if the shipping delay for my pump supplies were pandemic or holiday related, but I never received the order. It was just pending in the tracking system with no movement. The supplier sent the next set out overnight shipping.

      5 years ago Log in to Reply
    14. Mary Ann Sayers

      NO!!! At age 7, there’s no such thing as a “honeymoon” stage! All I knew was I got a shot every day AND I HATED SHOTS!!! (You could put one of today’s needles down the barrel of one used on me then!)

      5 years ago Log in to Reply
    15. George Lovelace

      Located in N TX so there were massive delays, had Dex Sensors scheduled for Tue 16th, not received until Tue 23rd. It felt like being back in the dark ages before any help, sort of like going back to urine testing. I need a Spare Sensor.

      5 years ago Log in to Reply
    16. Cheryl Seibert

      I only had one delay. It was minor (just a couple of days). EdgePark immediately notified me of the delay.

      5 years ago Log in to Reply
    17. Grey Gray

      Answered yes but I think mimimed was just back ordered on cgm sensors at the time

      5 years ago Log in to Reply
    18. Kristine Warmecke

      I don’t know if it was related to COVID-19 or not. Could be many things, mostly Byram sending the wrong supplies repeatedly. That made me have to to pay out of pocket for insulin pump and Dexcom supplies or go without for months on end. Since Medicare wouldn’t pay another company for the correct ones and Byram refused to send the correct ones.

      5 years ago Log in to Reply
    19. Dennis Dacey

      I responded NO, and I’ll supplement that response with, since COVID-19, DELIVERY FROM MY SUPPLIERS HAS IMPROVED. All my pump supplies, and all my CGM supplies come through Byram, and with doctor prescription, my CGM orders are placed and shipped on a timely basis by Byram technology without need for my action. Additionally, my other prescriptive medications are shipped automatically, usually much sooner than I need, by the United Health OPTUM Px – I assume the “early delivery is because of this SARS-voX2 pandemic.

      5 years ago Log in to Reply
    20. Donald Cragun

      I have had numerous problems getting Solara to send me CGM sensors and transmitters, and pump infusion sets (and they keep sending me more cartridges than I need). During the past year I have been unable to use my CGM for more than a week twice. I’m looking for a new supplier.

      5 years ago Log in to Reply
    21. Jillmarie61

      Items tops longer than before the pandemic.

      5 years ago Log in to Reply
    22. Mel Jackson

      My supplies that the supplier insisted on shipping USPS were two to seven weeks late, so I had to pay extra to have them shipped UPS or FedEx.

      5 years ago Log in to Reply
    23. Marie Seymour-Green

      3 weeks late and I’m still waiting. (Better Living Now)

      5 years ago Log in to Reply
    24. Karen Maffucci

      My OmniDash just quit working. I called and support team was to send me a replacement. This was a Friday evening. Sent via FedEx. No pump by the following Tues. Called and spoke to the support team again. Due to weather issues I was told it was held up. They sent me another one that Tuesday and I did not get the second one until a week later on Wednesday evening. I went 13 days having to take injections.

      5 years ago Log in to Reply

    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled. Cancel reply

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