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    • 12 hours, 44 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 16 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 34 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 5 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 32 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 34 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 13 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.

    Home > LC Polls > During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.
    Previous

    If you wear a CGM, on a scale of 1-5 how much additional stress or anxiety would you feel if you were unable to wear a sensor for a full week? (1 = very little stress added, 5 = the most stress added)

    Next

    How long, on average, would you say that it takes for you to start feeling better after treating a moderately low blood sugar?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Carol Meares

      Turned out to be not significant because I try to do plan ahead. Living in Alaska one always has to plan ahead because of shipping. Sometimes insurance makes it difficult to plan ahead because they refuse to pay. I always want to have 30-60 days of backup insulin, supplies, and meds. I have learned that lesson through times like 911 and now the pandemic.

      2 years ago Log in to Reply
    2. Jana Wardian

      It’s really hard to know if shipping delays are related to the pandemic or other factors. It’s important to order early and try not to get short on supplies.

      2 years ago Log in to Reply
    3. connie ker

      I was so thankful to have all supplies and medications delivered to my front door during this pandemic. No problem in receiving or no delays in receiving. All positive news for Mail Order pharmacies !

      2 years ago Log in to Reply
    4. Yaffa Steubinger

      No shipping delays during the pandemic but I’m suffering from shipping delays since we had a little winter storm here in TX. Been working for two weeks to get my Dexcom order and only have a few days left on my last Dexcom.

      2 years ago Log in to Reply
    5. Anthony Harder

      I had delays getting CGM sensors, but I attribute that to extremely poor customer service from my supplier, not particularly related to pandemic.

      2 years ago Log in to Reply
    6. Anne Blayney

      I had an order of Dexcom sensors that got “stuck” in a FedEx warehouse for several days in December. I called FedEx and explained that they were medical supplies, and the absolutely incredible agent called me back with daily updates until the package was delivered. I can’t measure the extent to which she was able to expedite the parcel (versus when it would have arrived if I hadn’t called in), but the customer service was phenomenal. I did run out of sensors and had to resort to fingerpricks only for several days, but better to run out of sensors than pump supplies or insulin!

      2 years ago Log in to Reply
    7. Peter Shank

      Shipping got plugged up around the holidays.

      2 years ago Log in to Reply
    8. Rose Lentzke

      The winter weather has caused delays more than Covid has caused issues.

      2 years ago Log in to Reply
    9. Maureen Helinski

      I could not get my Dexcom G6 sensors from Solara-they didn’t have them. I also had a new doctor so a problem with prescription. Dexcom would not let me buy them from them because I am on Medicare. I found a Giant Pharmacy that did let me buy some. Eventually Solara sent them.

      2 years ago Log in to Reply
    10. John Henninger

      Having multiple inputs to my source for supplies, the delay from the time they post they have the order until it gets shipped is sometimes extraordinary. I understand one day or a hold over a weekend. But up to five days to get it into shipping is not necessary. It has happened a couple of times. But the worst thing is the Medicare rule of only a thirty day supply! Really? I plan to be around for more than a thirty day supply.

      2 years ago Log in to Reply
    11. ConnieT1D62

      Nope. Byram for pump and CGM supplies has been great and everything has arrived in a timely way. CVS for insulin and other meds with no delay issues.

      2 years ago Log in to Reply
    12. Ernie Richmann

      Amazingly no but letters I mailed weeks ago have not arrived at destinations and I am hopeful all Christmas cards sent my way will arrive before Spring.

      2 years ago Log in to Reply
    13. Lakesha McDonald Kee

      Not sure if the shipping delay for my pump supplies were pandemic or holiday related, but I never received the order. It was just pending in the tracking system with no movement. The supplier sent the next set out overnight shipping.

      2 years ago Log in to Reply
    14. Mary Ann Sayers

      NO!!! At age 7, there’s no such thing as a “honeymoon” stage! All I knew was I got a shot every day AND I HATED SHOTS!!! (You could put one of today’s needles down the barrel of one used on me then!)

      2 years ago Log in to Reply
    15. George Lovelace

      Located in N TX so there were massive delays, had Dex Sensors scheduled for Tue 16th, not received until Tue 23rd. It felt like being back in the dark ages before any help, sort of like going back to urine testing. I need a Spare Sensor.

      2 years ago Log in to Reply
    16. Cheryl Seibert

      I only had one delay. It was minor (just a couple of days). EdgePark immediately notified me of the delay.

      2 years ago Log in to Reply
    17. Grey Gray

      Answered yes but I think mimimed was just back ordered on cgm sensors at the time

      2 years ago Log in to Reply
    18. Kristine Warmecke

      I don’t know if it was related to COVID-19 or not. Could be many things, mostly Byram sending the wrong supplies repeatedly. That made me have to to pay out of pocket for insulin pump and Dexcom supplies or go without for months on end. Since Medicare wouldn’t pay another company for the correct ones and Byram refused to send the correct ones.

      2 years ago Log in to Reply
    19. Dennis Dacey

      I responded NO, and I’ll supplement that response with, since COVID-19, DELIVERY FROM MY SUPPLIERS HAS IMPROVED. All my pump supplies, and all my CGM supplies come through Byram, and with doctor prescription, my CGM orders are placed and shipped on a timely basis by Byram technology without need for my action. Additionally, my other prescriptive medications are shipped automatically, usually much sooner than I need, by the United Health OPTUM Px – I assume the “early delivery is because of this SARS-voX2 pandemic.

      2 years ago Log in to Reply
    20. Donald Cragun

      I have had numerous problems getting Solara to send me CGM sensors and transmitters, and pump infusion sets (and they keep sending me more cartridges than I need). During the past year I have been unable to use my CGM for more than a week twice. I’m looking for a new supplier.

      2 years ago Log in to Reply
    21. Jillmarie61

      Items tops longer than before the pandemic.

      2 years ago Log in to Reply
    22. Mel Jackson

      My supplies that the supplier insisted on shipping USPS were two to seven weeks late, so I had to pay extra to have them shipped UPS or FedEx.

      2 years ago Log in to Reply
    23. Marie Seymour-Green

      3 weeks late and I’m still waiting. (Better Living Now)

      2 years ago Log in to Reply
    24. Karen Maffucci

      My OmniDash just quit working. I called and support team was to send me a replacement. This was a Friday evening. Sent via FedEx. No pump by the following Tues. Called and spoke to the support team again. Due to weather issues I was told it was held up. They sent me another one that Tuesday and I did not get the second one until a week later on Wednesday evening. I went 13 days having to take injections.

      2 years ago Log in to Reply

    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled. Cancel reply

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