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    • 20 hours, 22 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 20 hours, 23 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 21 hours, 28 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 21 hours, 30 minutes ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 23 hours, 5 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 23 hours, 6 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 23 hours, 7 minutes ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 23 hours, 16 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 23 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 19 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 1 day, 19 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 1 day, 19 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 1 day, 19 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 20 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 1 day, 23 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 23 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 23 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 23 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 1 day, 23 hours ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 23 hours ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Home > LC Polls > Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?
    Previous

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Next

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Ahh Life

      Yes, regularly. Mostly for upcoming appointments. But it was invaluable one time when I replaced pumps and all the ratios and equations were dead in the water and un-resurrect-able along with the pump. ( ͡ᵔ ͜ʖ ͡ᵔ)

      1
      3 years ago Log in to Reply
    2. Lena Selbrand

      I also check that what they write about me is correct. Last time I had grown 8″ but of course my BMI was great due to that!! Lol!

      3
      3 years ago Log in to Reply
      1. Lori Lehnen

        I had the opposite happen. The dietitian accidentally clicked my weight in kg instead of lb so my weight was listed as 2.2 times what it actually was. I contacted them quickly to correct it because I did not want an erroneous “morbidly obese” designation showing up in my medical records. Who knows what the insurance company would do with that information.

        3 years ago Log in to Reply
    3. Pete Murphy

      Yes…..BUT…unfortunately in our state, the portals are all stand alone….so doctor A has no idea what you are doing with doctor B

      SO…I use the portal for the interaction with the specific practice.

      1
      3 years ago Log in to Reply
    4. Jane Cerullo

      It’s either good or bad depending. It’s really the only way to get in touch with office. Sometimes takes days for a response so can be frustrating

      3 years ago Log in to Reply
    5. Lawrence S.

      Yes. My T1D provider is at a local hospital. So, everything is on the hospital portal. And, all of my doctors, and different specialists can see all of my data.

      3 years ago Log in to Reply
    6. Ms Cris

      Yes, and it’s why I slowly moved all my providers to that hospital network, for better coordination of care.

      Other providers, pre-diagnoses, were not using that records system, and so transferring records/tests/history was an absolute pain. Shouldn’t be this difficult!

      3 years ago Log in to Reply
    7. Mick Martin

      My T1D health care provider DOES offer access to an online patient portal where you can access your medical records, contact your provider, but I use it infrequently.

      I generally use the patient portal to check what any blood tests that I’ve had done have revealed.

      I have personal email addresses for my endocrinologist, diabetes specialist nurse, etc. which I use to contact them if I need to.

      3 years ago Log in to Reply
    8. Joan Benedetto

      Yes, but we use it only to obtain a script refill when in between visits.

      3 years ago Log in to Reply
    9. Antsy

      My last 3 endocrinologists have used the same portal; it’s fine for paying a bill or checking an appt date. But I dislike the fact that messages sent to my doc or their staff is not private. Other physician offices or hospital depts (in many hospitals, in many states) who use this EMR system are able to view messages not expressly meant for them. While most of the thousands of employees within this massive group of hospitals & clinics would never bother to go into my chart, the fact that they are allowed to is worrisome. Using this portal, a friend had one doc read a msg that had been addressed to ANOTHER doc, and let’s just say it created a long-term, painful problem for her.

      3 years ago Log in to Reply
      1. Mark Schweim

        What makes you thing ALL the Doctors or Doctor offices using the service can read all your messages? And if that’s the case then why does the system require me to not only specify which Doctor’s office, but specify which Doctor I’m sending the message to?

        I have never seen or heard anything from any of my Doctors offices mentioning anything in a message I’d sent to another Doctor even when in that message I had asked that Doctor to mention the question or concern to one of my other doctors in the same office.

        3 years ago Log in to Reply
      2. Antsy

        Mark, I know they can because my spouse works for this hospital group, and he confirmed he has access to messages of any patient in the system. I also checked with my END’s office, who agreed.

        3 years ago Log in to Reply
    10. Robin Melen

      My medical group has a patient portal, but it’s really only good for emailing my doctors and paying bills. It claims to post medical records, but the most recent ones on mine are from 2020! It’s really a terrible platform. I’ve seen others that are much more robust.

      1
      3 years ago Log in to Reply
    11. KarenM6

      My endocrinologist does not have a portal, but other of my doctors do. Of the two or three different systems from those doctors that have a portal, only one is super hard to use.
      But, none to figure out at the endo… so really easy! ;p (jk)

      3 years ago Log in to Reply
    12. Janis Senungetuk

      Yes, andI’ve used it often to contact my endo and Educator with questions.Until recently I was getting a response to a question by the next day. Now the HMO has put up another layer of “physician guardians” and too often the first reply is from staff who haven’t glanced at my medical records or at least their action/answers indicate that they have no knowledge of my medical history. My primary physician is with a different healthcare organization and that makes it my responsibility to coordinate communication re. lab test results and Rx. I’m definitely not happy about that and have let them know that they need to make an effort to communicate with each other.

      1
      3 years ago Log in to Reply
    13. Kim Murphy

      I used to use it a lot, unfortunately they changed it and now it doesn’t work anymore.

      3 years ago Log in to Reply
    14. Steven Gill

      I see a small time neighborhood doctor just a few miles from my place. He doesn’t even have email, everything’s done over the phone.

      1
      3 years ago Log in to Reply
    15. Carol Meares

      I use it regularly but the results of my tests are not put up on there. I like to have access to my results so that when I am visiting another place I can call that information up for a new or temporary doctor or care provider when needed.

      3 years ago Log in to Reply
    16. Wanacure

      I’m hoping to use it more often after getting a newer more powerful, more secure electronic device and connection.

      3 years ago Log in to Reply
    17. mbulzomi@optonline.net

      His medical association keeps the records, but if I went to a Hospital in California, your local medical staff/ doctor cannot review their records. So much for electronics records!

      3 years ago Log in to Reply
    18. HMW

      Yes, I use it regularly, but it is quite poor for viewing medical records (my provider tells me to look at her notes, but they don’t seem to be available to me). I mostly use it to pay bills, message my provider, video telehealth appointments and print out lab request forms.

      3 years ago Log in to Reply
    19. PamK

      I really don’t like using the online portal, but it seems to be the only way I can contact my endo or get my lab results. It’s very frustrating to use it though!

      3 years ago Log in to Reply

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.? Cancel reply

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