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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Home > LC Polls > Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?
    Previous

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Ahh Life

      Yes, regularly. Mostly for upcoming appointments. But it was invaluable one time when I replaced pumps and all the ratios and equations were dead in the water and un-resurrect-able along with the pump. ( ͡ᵔ ͜ʖ ͡ᵔ)

      1
      4 years ago Log in to Reply
    2. Lena Selbrand

      I also check that what they write about me is correct. Last time I had grown 8″ but of course my BMI was great due to that!! Lol!

      3
      4 years ago Log in to Reply
      1. Lori Lehnen

        I had the opposite happen. The dietitian accidentally clicked my weight in kg instead of lb so my weight was listed as 2.2 times what it actually was. I contacted them quickly to correct it because I did not want an erroneous “morbidly obese” designation showing up in my medical records. Who knows what the insurance company would do with that information.

        4 years ago Log in to Reply
    3. Pete Murphy

      Yes…..BUT…unfortunately in our state, the portals are all stand alone….so doctor A has no idea what you are doing with doctor B

      SO…I use the portal for the interaction with the specific practice.

      1
      4 years ago Log in to Reply
    4. Jane Cerullo

      It’s either good or bad depending. It’s really the only way to get in touch with office. Sometimes takes days for a response so can be frustrating

      4 years ago Log in to Reply
    5. Lawrence S.

      Yes. My T1D provider is at a local hospital. So, everything is on the hospital portal. And, all of my doctors, and different specialists can see all of my data.

      4 years ago Log in to Reply
    6. Ms Cris

      Yes, and it’s why I slowly moved all my providers to that hospital network, for better coordination of care.

      Other providers, pre-diagnoses, were not using that records system, and so transferring records/tests/history was an absolute pain. Shouldn’t be this difficult!

      4 years ago Log in to Reply
    7. Mick Martin

      My T1D health care provider DOES offer access to an online patient portal where you can access your medical records, contact your provider, but I use it infrequently.

      I generally use the patient portal to check what any blood tests that I’ve had done have revealed.

      I have personal email addresses for my endocrinologist, diabetes specialist nurse, etc. which I use to contact them if I need to.

      4 years ago Log in to Reply
    8. Joan Benedetto

      Yes, but we use it only to obtain a script refill when in between visits.

      4 years ago Log in to Reply
    9. Antsy

      My last 3 endocrinologists have used the same portal; it’s fine for paying a bill or checking an appt date. But I dislike the fact that messages sent to my doc or their staff is not private. Other physician offices or hospital depts (in many hospitals, in many states) who use this EMR system are able to view messages not expressly meant for them. While most of the thousands of employees within this massive group of hospitals & clinics would never bother to go into my chart, the fact that they are allowed to is worrisome. Using this portal, a friend had one doc read a msg that had been addressed to ANOTHER doc, and let’s just say it created a long-term, painful problem for her.

      4 years ago Log in to Reply
      1. Mark Schweim

        What makes you thing ALL the Doctors or Doctor offices using the service can read all your messages? And if that’s the case then why does the system require me to not only specify which Doctor’s office, but specify which Doctor I’m sending the message to?

        I have never seen or heard anything from any of my Doctors offices mentioning anything in a message I’d sent to another Doctor even when in that message I had asked that Doctor to mention the question or concern to one of my other doctors in the same office.

        4 years ago Log in to Reply
      2. Antsy

        Mark, I know they can because my spouse works for this hospital group, and he confirmed he has access to messages of any patient in the system. I also checked with my END’s office, who agreed.

        4 years ago Log in to Reply
    10. Robin Melen

      My medical group has a patient portal, but it’s really only good for emailing my doctors and paying bills. It claims to post medical records, but the most recent ones on mine are from 2020! It’s really a terrible platform. I’ve seen others that are much more robust.

      1
      4 years ago Log in to Reply
    11. KarenM6

      My endocrinologist does not have a portal, but other of my doctors do. Of the two or three different systems from those doctors that have a portal, only one is super hard to use.
      But, none to figure out at the endo… so really easy! ;p (jk)

      4 years ago Log in to Reply
    12. Janis Senungetuk

      Yes, andI’ve used it often to contact my endo and Educator with questions.Until recently I was getting a response to a question by the next day. Now the HMO has put up another layer of “physician guardians” and too often the first reply is from staff who haven’t glanced at my medical records or at least their action/answers indicate that they have no knowledge of my medical history. My primary physician is with a different healthcare organization and that makes it my responsibility to coordinate communication re. lab test results and Rx. I’m definitely not happy about that and have let them know that they need to make an effort to communicate with each other.

      1
      4 years ago Log in to Reply
    13. Kim Murphy

      I used to use it a lot, unfortunately they changed it and now it doesn’t work anymore.

      4 years ago Log in to Reply
    14. Steven Gill

      I see a small time neighborhood doctor just a few miles from my place. He doesn’t even have email, everything’s done over the phone.

      1
      4 years ago Log in to Reply
    15. Carol Meares

      I use it regularly but the results of my tests are not put up on there. I like to have access to my results so that when I am visiting another place I can call that information up for a new or temporary doctor or care provider when needed.

      4 years ago Log in to Reply
    16. Wanacure

      I’m hoping to use it more often after getting a newer more powerful, more secure electronic device and connection.

      4 years ago Log in to Reply
    17. mbulzomi@optonline.net

      His medical association keeps the records, but if I went to a Hospital in California, your local medical staff/ doctor cannot review their records. So much for electronics records!

      4 years ago Log in to Reply
    18. HMW

      Yes, I use it regularly, but it is quite poor for viewing medical records (my provider tells me to look at her notes, but they don’t seem to be available to me). I mostly use it to pay bills, message my provider, video telehealth appointments and print out lab request forms.

      3 years ago Log in to Reply
    19. PamK

      I really don’t like using the online portal, but it seems to be the only way I can contact my endo or get my lab results. It’s very frustrating to use it though!

      3 years ago Log in to Reply

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.? Cancel reply

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