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    • 5 hours, 10 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 5 hours, 11 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 5 hours, 11 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 10 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 10 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 10 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 12 hours, 48 minutes ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 13 hours, 30 minutes ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 14 hours, 42 minutes ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 9 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 14 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 10 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 13 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 2 days, 14 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 15 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 2 days, 15 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 2 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 2 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 10 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 3 days, 14 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 3 days, 15 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 3 days, 15 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 3 days, 15 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
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    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Home > LC Polls > Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?
    Previous

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Next

    If you have T1D, has anyone ever misinterpreted your low blood glucose for intoxication?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Ahh Life

      Yes, regularly. Mostly for upcoming appointments. But it was invaluable one time when I replaced pumps and all the ratios and equations were dead in the water and un-resurrect-able along with the pump. ( ͡ᵔ ͜ʖ ͡ᵔ)

      1
      3 years ago Log in to Reply
    2. Lena Selbrand

      I also check that what they write about me is correct. Last time I had grown 8″ but of course my BMI was great due to that!! Lol!

      3
      3 years ago Log in to Reply
      1. Lori Lehnen

        I had the opposite happen. The dietitian accidentally clicked my weight in kg instead of lb so my weight was listed as 2.2 times what it actually was. I contacted them quickly to correct it because I did not want an erroneous “morbidly obese” designation showing up in my medical records. Who knows what the insurance company would do with that information.

        3 years ago Log in to Reply
    3. Pete Murphy

      Yes…..BUT…unfortunately in our state, the portals are all stand alone….so doctor A has no idea what you are doing with doctor B

      SO…I use the portal for the interaction with the specific practice.

      1
      3 years ago Log in to Reply
    4. Jane Cerullo

      It’s either good or bad depending. It’s really the only way to get in touch with office. Sometimes takes days for a response so can be frustrating

      3 years ago Log in to Reply
    5. Lawrence S.

      Yes. My T1D provider is at a local hospital. So, everything is on the hospital portal. And, all of my doctors, and different specialists can see all of my data.

      3 years ago Log in to Reply
    6. Ms Cris

      Yes, and it’s why I slowly moved all my providers to that hospital network, for better coordination of care.

      Other providers, pre-diagnoses, were not using that records system, and so transferring records/tests/history was an absolute pain. Shouldn’t be this difficult!

      3 years ago Log in to Reply
    7. Mick Martin

      My T1D health care provider DOES offer access to an online patient portal where you can access your medical records, contact your provider, but I use it infrequently.

      I generally use the patient portal to check what any blood tests that I’ve had done have revealed.

      I have personal email addresses for my endocrinologist, diabetes specialist nurse, etc. which I use to contact them if I need to.

      3 years ago Log in to Reply
    8. Joan Benedetto

      Yes, but we use it only to obtain a script refill when in between visits.

      3 years ago Log in to Reply
    9. Antsy

      My last 3 endocrinologists have used the same portal; it’s fine for paying a bill or checking an appt date. But I dislike the fact that messages sent to my doc or their staff is not private. Other physician offices or hospital depts (in many hospitals, in many states) who use this EMR system are able to view messages not expressly meant for them. While most of the thousands of employees within this massive group of hospitals & clinics would never bother to go into my chart, the fact that they are allowed to is worrisome. Using this portal, a friend had one doc read a msg that had been addressed to ANOTHER doc, and let’s just say it created a long-term, painful problem for her.

      3 years ago Log in to Reply
      1. Mark Schweim

        What makes you thing ALL the Doctors or Doctor offices using the service can read all your messages? And if that’s the case then why does the system require me to not only specify which Doctor’s office, but specify which Doctor I’m sending the message to?

        I have never seen or heard anything from any of my Doctors offices mentioning anything in a message I’d sent to another Doctor even when in that message I had asked that Doctor to mention the question or concern to one of my other doctors in the same office.

        3 years ago Log in to Reply
      2. Antsy

        Mark, I know they can because my spouse works for this hospital group, and he confirmed he has access to messages of any patient in the system. I also checked with my END’s office, who agreed.

        3 years ago Log in to Reply
    10. Robin Melen

      My medical group has a patient portal, but it’s really only good for emailing my doctors and paying bills. It claims to post medical records, but the most recent ones on mine are from 2020! It’s really a terrible platform. I’ve seen others that are much more robust.

      1
      3 years ago Log in to Reply
    11. KarenM6

      My endocrinologist does not have a portal, but other of my doctors do. Of the two or three different systems from those doctors that have a portal, only one is super hard to use.
      But, none to figure out at the endo… so really easy! ;p (jk)

      3 years ago Log in to Reply
    12. Janis Senungetuk

      Yes, andI’ve used it often to contact my endo and Educator with questions.Until recently I was getting a response to a question by the next day. Now the HMO has put up another layer of “physician guardians” and too often the first reply is from staff who haven’t glanced at my medical records or at least their action/answers indicate that they have no knowledge of my medical history. My primary physician is with a different healthcare organization and that makes it my responsibility to coordinate communication re. lab test results and Rx. I’m definitely not happy about that and have let them know that they need to make an effort to communicate with each other.

      1
      3 years ago Log in to Reply
    13. Kim Murphy

      I used to use it a lot, unfortunately they changed it and now it doesn’t work anymore.

      3 years ago Log in to Reply
    14. Steven Gill

      I see a small time neighborhood doctor just a few miles from my place. He doesn’t even have email, everything’s done over the phone.

      1
      3 years ago Log in to Reply
    15. Carol Meares

      I use it regularly but the results of my tests are not put up on there. I like to have access to my results so that when I am visiting another place I can call that information up for a new or temporary doctor or care provider when needed.

      3 years ago Log in to Reply
    16. Wanacure

      I’m hoping to use it more often after getting a newer more powerful, more secure electronic device and connection.

      3 years ago Log in to Reply
    17. mbulzomi@optonline.net

      His medical association keeps the records, but if I went to a Hospital in California, your local medical staff/ doctor cannot review their records. So much for electronics records!

      3 years ago Log in to Reply
    18. HMW

      Yes, I use it regularly, but it is quite poor for viewing medical records (my provider tells me to look at her notes, but they don’t seem to be available to me). I mostly use it to pay bills, message my provider, video telehealth appointments and print out lab request forms.

      3 years ago Log in to Reply
    19. PamK

      I really don’t like using the online portal, but it seems to be the only way I can contact my endo or get my lab results. It’s very frustrating to use it though!

      3 years ago Log in to Reply

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.? Cancel reply

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