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    • 31 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 12 hours, 55 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 13 hours, 17 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 14 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 14 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 14 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 14 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 14 hours, 34 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 14 hours, 38 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 14 hours, 39 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 15 hours, 26 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 8 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 13 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 14 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 1 hour ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 1 hour ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 8 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 8 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 8 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 8 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 13 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 13 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 14 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 14 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 14 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
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    Do you typically have your lab work performed before, during, or after your appointments with your T1D health care provider?

    Home > LC Polls > Do you typically have your lab work performed before, during, or after your appointments with your T1D health care provider?
    Previous

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    Do you currently have a low treatment close enough to your bed that you do not have to get out of bed at night when treating a low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Molly Jones

      Online messaging has improved communication with my healthcare team.
      I currently have my blood tests immediately in clinic after seeing my endocrinologist and hear back from her within a day or two of any instructions, usually only my thyroid, if needed.
      Decisions on insulin changes are usually made from Dexcom and Tandem during my appointment.

      4
      2 years ago Log in to Reply
      1. ConnieT1D62

        That’s how it is for me too.

        1
        2 years ago Log in to Reply
    2. KIMBERELY SMITH

      Protein in urine

      2 years ago Log in to Reply
    3. Jane Cerullo

      Usually go for labs two weeks prior to appointment. That way o know results so I can ask questions if necessary.

      1
      2 years ago Log in to Reply
    4. Robert Holman

      after 30 years as a Type I – it’s the only thing we discuss, at this point I know far more about my disease and how to manage it for me than my Endo

      2 years ago Log in to Reply
    5. Lawrence S.

      I don’t think my Endo would see me without blood and urine labs before hand. I usually get my labs done about 3 hours before my visit with my Endo. Then we review the labs during my visit with her. Sometimes I do my labs a day or two before the visit if I’m going for a morning Endo visit.

      2 years ago Log in to Reply
    6. Eva

      I have AIC checked at my appointment and we look over the numbers together during the appointment and discuss changes. As far as other labs like Comprehensive Metabolic Panel, Lipids, TSH etc… those are done afterward.

      2 years ago Log in to Reply
    7. Edward Geary

      I started this several years ago and the process has become much easier with the growth of patient portals and laboratory networks. Especially helpful in determining kidney function and taking proactive medication decisions.

      2 years ago Log in to Reply
      1. Dennis Dacey

        Edward, I also am “restricted” by Medicare, so each doctor I see who needs lab tests writes the order as I leave the appointment and enters on the lab prescription that the wirk is to be done 2 weeks before my next visit. That way, all results are handy for discussion.
        Also, as the lab finishes the work, I get an email with all results so I’m ready before the visit with any questions I might have,

        1
        2 years ago Log in to Reply
    8. David Hedeen

      I’m Medicare, lab orders not available until close of visit.

      2 years ago Log in to Reply
      1. KSannie

        I’m on Medicare and I can always get my labs done the week before.

        2 years ago Log in to Reply
      2. Lawrence S.

        I’m on Medicare. I get my labs done 3 hours before my endo visit. There appears to be no restrictions because of Medicare.

        2 years ago Log in to Reply
    9. Sue Martin

      I get labs done mostly due to my kidney transplant, rarely does my Endo ask for labs.

      2 years ago Log in to Reply
    10. lis be

      two weeks before. I like to have the results available to discuss. but it’s a half day round trip to the lab for me… so unfortunately it adds to the long list of doc appointments.

      3
      2 years ago Log in to Reply
    11. Kristine Warmecke

      I get my A1C done in the office at my appointment, since it’s a finger stick. We discus the results during my visit and then if she feels I need more or it’s time for a TSH, Free T4 she orders them and I have them done when I go for my oncology appointment and get all labs drawn at the same time through my port.

      2 years ago Log in to Reply
    12. Bruce and Audrey Coleman

      I get my lab work done at the in-house lab after meeting with my doctor. I would prefer to have it done before so we migth be able to discuss the results.

      2 years ago Log in to Reply
    13. Kristen Clifford

      “All of the above” should be an option here because depending on my situation, it could be any number of these! Sometimes I get work done right before my appointments. Other times it’s right after. Then there are times when I have to wait anywhere from a day to a month to get other work done.

      2 years ago Log in to Reply
    14. Natalie Daley

      A1C is done by a nurse before I see my doctor, who will order annual tests.

      2 years ago Log in to Reply
    15. T1D4LongTime

      My endo schedules labs 1 week prior to appointment. This gives time for results to come back on various tests. He discusses results in depth.

      2 years ago Log in to Reply
    16. Kris van Bergen

      WHEN we have our daughter’s lab work done, it’s separate from her appointment with her provider. This is because she lives with a panic disorder rooted in medical trauma, so we have to be very mindful about how much time she spends in clinical environments, and the activities that occur when she’s in them. That’s where the emphasis on WHEN comes in … she has not been able to engage in regular phlebotomy in almost three years due to the panic attacks triggered by that activity.

      2 years ago Log in to Reply

    Do you typically have your lab work performed before, during, or after your appointments with your T1D health care provider? Cancel reply

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