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    • 1 hour, 24 minutes ago
      Lawrence S. likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 7 hours, 28 minutes ago
      atr likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 7 hours, 46 minutes ago
      Gerald Oefelein likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 7 hours, 50 minutes ago
      Sarah Berry likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 16 hours, 54 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 1 day, 5 hours ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 5 hours ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 1 day, 6 hours ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 7 hours ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 7 hours ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 7 hours ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 2 days ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 2 days, 6 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 3 days, 6 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 17 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 17 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 4 days ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 4 days ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 4 days ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 4 days ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 4 days, 5 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
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    Do you have hyperglycemia (high blood glucose) unawareness?

    Home > LC Polls > Do you have hyperglycemia (high blood glucose) unawareness?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    22 Comments

    1. Molly Jones

      If hyperglycemia is above 200, I never feel any of the symptoms mentioned and am completely unaware. I only ever feel these symptoms when my BG is above 350 which is a rare occurrence.
      My blood sugar quickly soars and falls. I use @7 units of basal insulin daily with a correction factor of 90-120mg/dL.

      2
      2 years ago Log in to Reply
    2. Kathy Hanavan

      It depends on how high I am. Low 200’s – no symptoms, but as it rises, I get thirsty and tired.

      2
      2 years ago Log in to Reply
    3. Jim Andrews

      … and hypo as well. I can be at 40 or 300 and not feel a thing.

      2
      2 years ago Log in to Reply
    4. Lawrence S.

      When my blood sugars rise above 240, I generally feel irritable; above 300 exhausted. But, is my awareness, exhaustion, lethargy, irritability, thirst. I said sometimes. There are times when I can work right through it. Generally, I know when I’m going high because I am constantly looking at the numbers on my insulin pump, or it’s beeping. I also go high after most meals, especially breakfast.

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      My CGM will alert at 180. I rarely go over 200.

      2 years ago Log in to Reply
    6. Daniel Bestvater

      I would have to say always. I think anything above about 90 would be the onset of hyperglycaemia in a non diabetic. I rely on my cgm to head off elevated glucose levels.

      2 years ago Log in to Reply
      1. Anita Stokar

        I would doubt that anything above 90 in a non-diabetic would set off hyperglycemia. Anything under 100 is fine in a fasting state in a non-diabetic. From what I have read, non-diabetics can easily go to 130-140 after eating but their systems quickly get their blood sugar back under control.

        2 years ago Log in to Reply
    7. Sherolyn Newell

      I’ve messed up and forgotten insulin a few times. I can get up to 350 without symptoms. Dexcom lets me know.

      1
      2 years ago Log in to Reply
    8. LuckyPineapple

      I think I only really start noticing anything if I’m over 400 for a while, and even then, it’s just having to pee often. I bet I could probably push well into the 600 range before physically feeling anything.

      I am SUPER aware of lows though, so I am almost never low. If I could feel my highs like my lows, I’d most likely do whatever I could to avoid that feeling and I’d stay in better range. It sucks.

      2 years ago Log in to Reply
    9. Annie Wall

      I’ve always felt that symptoms of hyperglycemia are not obvious. Maybe that’s why I lived for six months of being thirsty, peeing all time. It wasn’t until I had unexplained weight loss that I finally thought something was wrong. Even then I didn’t realize how utterly exhausted I was. Today I don’t feel the symptoms and my pump alerts me when I’m arising above 170.

      2 years ago Log in to Reply
    10. Shelly Smith

      As others have mentioned, if it wasn’t for my CGM, I would hardly know when my bg went up. I rarely feel any of the symptoms.

      2 years ago Log in to Reply
    11. lis be

      I answered, “yes, sometimes”. I must say that is probably the same answer my Dexcom would give if asked. 🙂

      2 years ago Log in to Reply
      1. lis be

        separate thought, I only get hungry when my blood sugar rises, which was my tip off before I had CGM. Otherwise, I wouldn’t know my sugar is raising.

        2 years ago Log in to Reply
    12. mbulzomi@optonline.net

      Thank God for my Dexcom Sensors and TandemX2 Pump. Sure, takes the worry out of UNAWARENESS!

      2 years ago Log in to Reply
    13. Bea Anderson

      My bg levels can creep up unnoticed to 200-250 when I begin to feel lethargic. Higher, I’d feel sleepy. BUT I have CGM alarm set at 140 when home and 160 when out and about.

      2 years ago Log in to Reply
    14. Carol Meares

      It depends what you call high or hyper.

      2 years ago Log in to Reply
    15. William Bennett

      I mean, I dunno if I’d call it “unawareness.” I rarely peak over 200, and then only for a limited time, and that doesn’t feel like anything. Is it supposed to? I do seem to recall feeling yucky and peeing a lot back on the old insulins when hitting 300 and staying up there for hours was occasionally a thing, but that was decades ago, back on the old R/NPH regimen. With modern insulins, pump and above all CGM I’d freak if I saw those kinds of numbers now.

      2 years ago Log in to Reply
    16. Trina Blake

      My “pre-CGM” system worked very well – I get horrid heartburn at 130+ bg. So, no – especially with my Dexcom/Tandem system.

      2 years ago Log in to Reply
    17. KIMBERELY SMITH

      Whole lot

      2 years ago Log in to Reply
    18. KarenM6

      For sure. The symptoms of high BG don’t show up until much later than they used to!

      2 years ago Log in to Reply
    19. Anita Stokar

      It is weird, but I seem use the bathroom more often at 150 than I do if I happen to hit 180 or higher.

      2 years ago Log in to Reply
    20. Steve Rumble

      Not physically, but yes via my CGM!

      2 years ago Log in to Reply

    Do you have hyperglycemia (high blood glucose) unawareness? Cancel reply

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