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    • 21 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      Several times. Found out that my pancreas is about 25% of the size it “ought to be” for someone my age. Who knew? Just turned down an opportunity to transform into a lab rat for 8 months on tests of a new insulin product. Weekly clinic visits, four finger sticks a day, two additional devices to tote around and a change in CGM brand. Sorry, not for me.
    • 22 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      I’ve participated in a couple different ones. One was muscle biopsies on the legs…looking at how long term diabetes may affect muscles. Another on different pumps
    • 1 hour, 13 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever participated in diabetes-related research?
      I have taken surveys about diabetes care and participate in All of US DNA research and I am doing that now answering these questions each day.
    • 11 hours, 10 minutes ago
      Laurie B likes your comment at
      How important is diabetes research to you?
      Diabetes research is why I'm still alive and healthy. Research is how we have CGMs and pumps that can modify doses based on CGM data. Current insulins are much better than previous versions, Even test strips are wildly more consistently accurate than when I was diagnosed in the 1990s. Personally the improvements to diabetes care made based on research have made a bigger impact on my life than medications and devices. Doctors were presented with evidence showing threatening patients leads to worse outcomes and doctors changed their behavior.
    • 13 hours, 49 minutes ago
      lis be likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 14 hours, 7 minutes ago
      Phyllis Biederman likes your comment at
      In what ways has diabetes positively influenced your life?
      D.R.A.W. It’s a theme I’ve used in public speaking. D is for discipline; a concept some people have to join the army to learn. R is for reward. You must reward yourself for things well done. A is for awareness. Awareness of yourself and others keeps you alive. W is for wonderment. Believing or thinking about things bigger than yourself. ル˖ ♡ ₍ ᐢ..ᐢ ₎ 📍 ࣪ . >
    • 18 hours, 51 minutes ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 18 hours, 51 minutes ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Diabetes research is why I'm still alive and healthy. Research is how we have CGMs and pumps that can modify doses based on CGM data. Current insulins are much better than previous versions, Even test strips are wildly more consistently accurate than when I was diagnosed in the 1990s. Personally the improvements to diabetes care made based on research have made a bigger impact on my life than medications and devices. Doctors were presented with evidence showing threatening patients leads to worse outcomes and doctors changed their behavior.
    • 18 hours, 51 minutes ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 18 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 18 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      All we are doing is treating the symptoms. We need a cure that doesn't require anti rejection inections.
    • 18 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 21 hours, 56 minutes ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 21 hours, 57 minutes ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 21 hours, 57 minutes ago
      Patricia Dalrymple likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 22 hours, 15 minutes ago
      kristina blake likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 22 hours, 59 minutes ago
      Carol Meares likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      The list is great. Medications need to be on the list too.
    • 23 hours, 25 minutes ago
      Kristi Warmecke likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 1 day, 20 hours ago
      Patricia Dalrymple likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 1 day, 21 hours ago
      Sarah Berry likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    • 1 day, 21 hours ago
      Sarah Berry likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
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    If weight training is part of your exercise routine, what blood glucose (BG) patterns do you consistently notice during and after lifting weights? Select all that apply, if multiple answers apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Molly Jones

      I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

      4 years ago Log in to Reply
      1. rick phillips

        That is tough when the dog has celiac. God forbid they buy a parrot.

        1
        4 years ago Log in to Reply
    2. Natalie Daley

      Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

      4 years ago Log in to Reply
    3. Lawrence S.

      Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
      I find this to be more restricting than diabetes. It has been devestating for me.

      2
      4 years ago Log in to Reply
    4. Christine Gran

      No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

      1
      4 years ago Log in to Reply
    5. ELYSSE HELLER

      I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

      3
      4 years ago Log in to Reply
      1. AnitaS

        Never heard of that one!

        1
        4 years ago Log in to Reply
    6. Karen Newe

      Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

      4 years ago Log in to Reply
    7. Jan Brooks

      I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

      4 years ago Log in to Reply
    8. Lynn Smith

      I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

      4 years ago Log in to Reply
    9. Mary Ann Sayers

      No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

      4 years ago Log in to Reply
    10. Tina Roberts

      No. Not that I’m aware of.

      4 years ago Log in to Reply
    11. Margaret Moscrop

      No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
      Of the three she found ceiliac disease the most difficult.

      4 years ago Log in to Reply
    12. Maurine Bowser

      Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

      4 years ago Log in to Reply
    13. Jneticdiabetic

      I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      No and I was recently tested for it, again.

      4 years ago Log in to Reply
    15. Wanacure

      To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

      4 years ago Log in to Reply
    16. Kelly Wilhelm

      I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

      4 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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