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    • 37 minutes ago
      Marty likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      I always pack (in carry on if flying) double what I’ll need in terms of pump supplies, cgm supplies and insulin. I use a frio cool pack for insulin storage and avoid hotel refrigeration. I also bring glucagon, ketostix, a few syringes, long acting insulin, an extra meter, test strips, alcohol swabs, charging cord for pump, and a charging battery. I include a note with all my pump settings, a printed note for TSA from Tandem and a list of all my other meds (which I also double up on) and their dosages. Plus, I always have a DM emergency card in my wallet and wear a medical ID.
    • 37 minutes ago
      Marty likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Bring 3x what you would normally use or more if you can get more. Do not put insulin in a hotel refrigerator! It might freeze! Be sure you have phone number for getting supplies at your location.
    • 38 minutes ago
      Marty likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Pack twice as much as you think you will need
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Bring 3x what you would normally use or more if you can get more. Do not put insulin in a hotel refrigerator! It might freeze! Be sure you have phone number for getting supplies at your location.
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Create a To Go bag with extra CGM, Insulin, Pump supplies, needles, test scripts, glucose tabs, and orange juice. I also have a portable charger for my phone and for my pump. I always think about being a few hours away from home & having to spend the night.
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Carry more supplies than needed. Get a Frio bag for insulin and keep all supplies in carryon bag.
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      With the failures happening with Dexcom, pack three extra in addition to what you think you need.
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Pack twice as much as you think you will need
    • 54 minutes ago
      Lawrence S. likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Take enough medicine and supplies to last all the days you will be travelling. Then, add in at least one more of everything, just in case plans change.
    • 58 minutes ago
      Phyllis Biederman likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Bring 3x what you would normally use or more if you can get more. Do not put insulin in a hotel refrigerator! It might freeze! Be sure you have phone number for getting supplies at your location.
    • 58 minutes ago
      Phyllis Biederman likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Create a To Go bag with extra CGM, Insulin, Pump supplies, needles, test scripts, glucose tabs, and orange juice. I also have a portable charger for my phone and for my pump. I always think about being a few hours away from home & having to spend the night.
    • 58 minutes ago
      Phyllis Biederman likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Carry more supplies than needed. Get a Frio bag for insulin and keep all supplies in carryon bag.
    • 59 minutes ago
      Phyllis Biederman likes your comment at
      What tips would you share for someone traveling long distances with T1D? Share your advice in the comments.
      Pack twice as much as you think you will need
    • 16 hours, 24 minutes ago
      KarenM6 likes your comment at
      On a scale of 1-5, how much does T1D impact decisions you make in other areas of your life?
      The elephant in the room. The ghost in the mansion. (pancreatic poltergeist?) I know they're their, even if I never talk to them. · · ─ ·𖥸· ─ · ·
    • 16 hours, 26 minutes ago
      KarenM6 likes your comment at
      On a scale of 1-5, how much does T1D impact decisions you make in other areas of your life?
      I said "5". T1D is a part of every decision I make, large or small. It affects what and when I eat. It affect when I can do something, or do I need to make a glucose adjustment. Sometimes it affects where I can go. It affects how I approach an obstacle or an endeavor. Basically, it pervades every facet of my life.
    • 16 hours, 28 minutes ago
      KarenM6 likes your comment at
      How well does your T1D healthcare provider keep you informed about new devices and therapies available to you?
      Keep us posted Bill!
    • 16 hours, 36 minutes ago
      KarenM6 likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      I felt very comfortable doing blood tests and taking insulin. Usually, I was able to do it privately. But, when privacy was not available, I did what I needed to do.
    • 17 hours, 23 minutes ago
      Bill Williams likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      In the beginning of my diabetes “career”, I was very uncomfortable with checking my BG or giving injections. Now it doesn’t bother me at all!
    • 21 hours, 4 minutes ago
      Derek West likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      Ianswered very compfortable, as I had workded with the same group of people for many years. It is no longer an issue as I have adopted Dexcom G7 CGM and Omnipod 5 pump so such reviews and insulin injections are handled discreetly through my phone and pump controller.
    • 22 hours, 26 minutes ago
      kristina blake likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      Because I wear a Dexcom and have an Apple watch, I often tell people ahead of time, while in a meeting or out to eat, that when I'm looking at my watch, I'm checking my blood sugars and not checking the time. I've had people ask me when I check my watch, 'do you need to go somewhere?' So I nip it in the bud by telling them ahead of time.
    • 22 hours, 26 minutes ago
      kristina blake likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      I used to hide everything, especially when in a restaurant/ dining situation. I’d even go to the bathroom to check bg and take insulin. Then one day, after someone said something like, “Do you have to do that at the table?” I said, “Where would YOU like ME to go? I need to do this to be able to eat. Do you want me to go to the bathroom, the most unsanitary room in the building to perform a medical procedure so that you’re not inconvenienced? Seriously. How about next time, I’ll announce it and give you the opportunity to get up and walk away.” After that, I’ve never felt uncomfortable treating my T1D whenever and wherever I need to.
    • 23 hours, 52 minutes ago
      atr likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      I am now retired, wear a DexCom G6 so checking BG is simply looking at my IPhone. I also have a pump, so insulin delivery is not an issue.
    • 23 hours, 53 minutes ago
      atr likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      Because I wear a Dexcom and have an Apple watch, I often tell people ahead of time, while in a meeting or out to eat, that when I'm looking at my watch, I'm checking my blood sugars and not checking the time. I've had people ask me when I check my watch, 'do you need to go somewhere?' So I nip it in the bud by telling them ahead of time.
    • 23 hours, 55 minutes ago
      atr likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      Now, I am very comfortable with it. When I was younger, however, I was not comfortable at all. I would always go into a bathroom so others wouldn't watch me. Glad I got over that in my late 20s/early 30s!
    • 23 hours, 55 minutes ago
      atr likes your comment at
      When you’re at work or school, how comfortable do you feel checking your glucose or taking insulin in front of others?
      Ianswered very compfortable, as I had workded with the same group of people for many years. It is no longer an issue as I have adopted Dexcom G7 CGM and Omnipod 5 pump so such reviews and insulin injections are handled discreetly through my phone and pump controller.
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Molly Jones

      I have had this tested with both tissue sample and blood tests and I do not have celiac disease according to current measures. My family has friends who have tried to make me understand this is the way to improve my health conditions. Even their dog has celiac.

      4 years ago Log in to Reply
      1. rick phillips

        That is tough when the dog has celiac. God forbid they buy a parrot.

        1
        4 years ago Log in to Reply
    2. Natalie Daley

      Hashimto’s Syndrome, stomach trouble that has been tested for everything and medicated on and off, genital schleraderma

      4 years ago Log in to Reply
    3. Lawrence S.

      Yes, I was tested by my doctor years ago. I have been following strict celiac diet for years.
      I find this to be more restricting than diabetes. It has been devestating for me.

      2
      4 years ago Log in to Reply
    4. Christine Gran

      No, but my son has the genetic markers for it in addition to having low IGa levels, so he’s at a greater risk of developing it.

      1
      4 years ago Log in to Reply
    5. ELYSSE HELLER

      I do have what is now called EPI (exocrine diabetic insufficiency) which was commonly known as “diabetic diarrhea). Now that a pharmaceutical company has come out with a medication for this condition, it has a fancier name.

      3
      4 years ago Log in to Reply
      1. AnitaS

        Never heard of that one!

        1
        4 years ago Log in to Reply
    6. Karen Newe

      Not as far as I know but 23andMe says I have 1 of the 2 genes they test for Celiac and I do have IBS.

      4 years ago Log in to Reply
    7. Jan Brooks

      I have lymphocytic colitis which one doc says indicates celiac disease and another says it does not.

      4 years ago Log in to Reply
    8. Lynn Smith

      I agree with Lawrence S. My celiac disease feels, in regards to food, even more restrictive than my T1D.

      4 years ago Log in to Reply
    9. Mary Ann Sayers

      No, but my granddaughter has been diagnosed with it and it looks like her son, my great-grandson has it too.

      4 years ago Log in to Reply
    10. Tina Roberts

      No. Not that I’m aware of.

      4 years ago Log in to Reply
    11. Margaret Moscrop

      No I don’t. However my sister who was T1D for over 60 years also had eiliac disease and sarcoidosis.
      Of the three she found ceiliac disease the most difficult.

      4 years ago Log in to Reply
    12. Maurine Bowser

      Blood levels do not indicate I have celiac but I suspect I do because of some symptoms. I am fearful of an endoscope procedure for final diagnosis as well as the mechanics of the procedure. I can’t imagine how strict this diet can be. And truly dread the day I am diagnosis with it. Which I probably will be- 56 yrs T1D with familial ties. What next?

      4 years ago Log in to Reply
    13. Jneticdiabetic

      I do not have celiac (screened by blood test only), but 1 of my 2 sons does and 1 aunt.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      No and I was recently tested for it, again.

      4 years ago Log in to Reply
    15. Wanacure

      To my surprise an endoscopy and lab test indicate I have celiac disease or gluten intolerance. Makes little difference to me since I was already on a low carbohydrate diet. My T1D brother claimed he was gluten intolerant years ago, but I thought it was just a fad. So most alcohol drinks are out, with exception of dry sake (rice), rum (sugarcane), a Texas vodka made from only corn, tequila (cactus), kombucha, and wine. Most booze is a blend of alcohols, including that which distilled from wheat. So do your internet research.

      4 years ago Log in to Reply
    16. Kelly Wilhelm

      I don’t have issues with gluten but 2 of my kids (non T1D) have severe reactions to it (non celiac). So I fear something is lurking there…

      4 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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