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    • 12 hours, 44 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 15 hours, 19 minutes ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 15 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 15 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 15 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 16 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 1 day, 3 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 1 day, 7 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 1 day, 7 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 1 day, 10 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 1 day, 10 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 1 day, 13 hours ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 1 day, 14 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 2 days, 12 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 12 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 14 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 14 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 15 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 15 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 15 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 15 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 16 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 3 days, 7 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 7 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 3 days, 11 hours ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
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    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Home > LC Polls > Do you have any appointments currently scheduled with your main T1D healthcare provider?
    Previous

    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Next

    Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Rob Smith

      Yes I have an appointment but no I will not be going. My endo was convicted of a felony so is no longer certified. The search begins…

      2 years ago Log in to Reply
      1. Lyn McQuaid

        Yikes!

        1
        2 years ago Log in to Reply
      2. Kristi Warmecke

        Oh my!

        2 years ago Log in to Reply
      3. Chrisanda

        And it’s not like the supply of endo’s is overwhelming! Good luck!!

        2 years ago Log in to Reply
    2. Jane Cerullo

      Go every three months. Make appointment at finish of my appointment.

      3
      2 years ago Log in to Reply
    3. Lawrence S.

      Yes. Every 3 months, as required by Medicare.

      2 years ago Log in to Reply
    4. William Bennett

      Every 3 months to the day or medicare won’t cover my supplies. So yeah.

      1
      2 years ago Log in to Reply
    5. Marthaeg

      My endo books up 6 months in advance. I go every 3 months so I always have 2 booked in advance.

      1
      2 years ago Log in to Reply
    6. Kristi Warmecke

      Yes I’m scheduled for the until the end of 2024, I believe. I get the day and time I want this way AND make sure I can see her, as her schedule fills very fast.

      1
      2 years ago Log in to Reply
    7. Mick Martin

      Yes, my first appointment is this coming Thursday (11th January 2024) … All being well, I will be attending, assuming, of course, that my health allows it. (My wife believes that I suffered a stroke (CVA (Cerebrovascular Accident) or a TIA (Transient Ischaemic [Ischemic] Attack) on Friday morning as she heard me fall to the floor, but she states that I had a ‘vacant expression’ on my face and I’d pee’d myself. Unfortunately, by the time I’d recovered sufficiently it was a bit too late to summon an ambulance, but she did give me soluble Aspirin, which is the ‘normal’ first action taken when taken to hospital …. over here, in the UK, at least.

      2 years ago Log in to Reply
    8. Thomas Cline

      Yes because either my insurance or DEXCOM requires a visit every six months, which seems ridiculous to me. It is not as if my insulin dependence is going to suddenly disappear and I’ll no longer require a CGM! So many of these regulations seem designed to keep money flowing to the medical and pharmaceutical establishment with only marginal real health considerations being involved. At least I am fortunate enough to have insurance coverage.

      2 years ago Log in to Reply
    9. Janis Senungetuk

      Yes, I have two appointments plus labs scheduled at the urging of my HMO. Endo appointments are very difficult to schedule as needed, so I heeded their warnings. The Medicare requirement for a 90 day appointment definitely needs to be revisited.

      2 years ago Log in to Reply
    10. David Hedeen

      I alway hav next 90 visit scheduled before leaving current visit. If 90 day window is missed, Medicare refuses to pay for Required medical supplies : > (

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I have one scheduled with a staff in their office.

      2 years ago Log in to Reply
    12. KIMBERELY SMITH

      Next month

      2 years ago Log in to Reply
    13. George Lovelace

      My Endo Follows my Dex so can make change suggestions as needed. A1c in low 6’s. first of 2013 I hit 5.4 but I’ve had a lot of stress, wife died in Oct. I plan to have 2 Televisits and 1 for A1c

      2 years ago Log in to Reply
    14. Becky Hertz

      So difficult to get in, I’m scheduled 2 ahead.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      My sole point of contact w/ that doctor left the practice!!! I saw nobody there but her. Zero warning, zero notification of any kind from the practice, am still waiting for it in fact! Until they do so, I have zero interest or desire. They are never, ever to be trusted…

      2 years ago Log in to Reply
    16. T1D4LongTime

      I always have a scheduled appointment with my endo. I go regularly every 4 months. If I’m losing good control of my BGs or have other complications, I go more frequently.

      2 years ago Log in to Reply
    17. ConnieT1D62

      I am scheduled for 4 visits a year at a time – q 3 months. In 2023 I had two extra visits to problem solve insulin absorption issues.

      2 years ago Log in to Reply
    18. PamK

      At the end of each appointment they schedule me for my next appointment. I think this is the norm.

      2 years ago Log in to Reply

    Do you have any appointments currently scheduled with your main T1D healthcare provider? Cancel reply

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