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    • 1 hour, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 15 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 38 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 35 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 22 hours, 58 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 1 minute ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 10 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    Do you have any appointments currently scheduled with your main T1D healthcare provider?

    Home > LC Polls > Do you have any appointments currently scheduled with your main T1D healthcare provider?
    Previous

    In 2023, how many appointments did you have with your main T1D healthcare provider?

    Next

    Over the past 12 months, how many telehealth appointments have you had with your main diabetes care provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Rob Smith

      Yes I have an appointment but no I will not be going. My endo was convicted of a felony so is no longer certified. The search begins…

      2 years ago Log in to Reply
      1. Lyn McQuaid

        Yikes!

        1
        2 years ago Log in to Reply
      2. Kristi Warmecke

        Oh my!

        2 years ago Log in to Reply
      3. Chrisanda

        And it’s not like the supply of endo’s is overwhelming! Good luck!!

        2 years ago Log in to Reply
    2. Jane Cerullo

      Go every three months. Make appointment at finish of my appointment.

      3
      2 years ago Log in to Reply
    3. Lawrence S.

      Yes. Every 3 months, as required by Medicare.

      2 years ago Log in to Reply
    4. William Bennett

      Every 3 months to the day or medicare won’t cover my supplies. So yeah.

      1
      2 years ago Log in to Reply
    5. Marthaeg

      My endo books up 6 months in advance. I go every 3 months so I always have 2 booked in advance.

      1
      2 years ago Log in to Reply
    6. Kristi Warmecke

      Yes I’m scheduled for the until the end of 2024, I believe. I get the day and time I want this way AND make sure I can see her, as her schedule fills very fast.

      1
      2 years ago Log in to Reply
    7. Mick Martin

      Yes, my first appointment is this coming Thursday (11th January 2024) … All being well, I will be attending, assuming, of course, that my health allows it. (My wife believes that I suffered a stroke (CVA (Cerebrovascular Accident) or a TIA (Transient Ischaemic [Ischemic] Attack) on Friday morning as she heard me fall to the floor, but she states that I had a ‘vacant expression’ on my face and I’d pee’d myself. Unfortunately, by the time I’d recovered sufficiently it was a bit too late to summon an ambulance, but she did give me soluble Aspirin, which is the ‘normal’ first action taken when taken to hospital …. over here, in the UK, at least.

      2 years ago Log in to Reply
    8. Thomas Cline

      Yes because either my insurance or DEXCOM requires a visit every six months, which seems ridiculous to me. It is not as if my insulin dependence is going to suddenly disappear and I’ll no longer require a CGM! So many of these regulations seem designed to keep money flowing to the medical and pharmaceutical establishment with only marginal real health considerations being involved. At least I am fortunate enough to have insurance coverage.

      2 years ago Log in to Reply
    9. Janis Senungetuk

      Yes, I have two appointments plus labs scheduled at the urging of my HMO. Endo appointments are very difficult to schedule as needed, so I heeded their warnings. The Medicare requirement for a 90 day appointment definitely needs to be revisited.

      2 years ago Log in to Reply
    10. David Hedeen

      I alway hav next 90 visit scheduled before leaving current visit. If 90 day window is missed, Medicare refuses to pay for Required medical supplies : > (

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I have one scheduled with a staff in their office.

      2 years ago Log in to Reply
    12. KIMBERELY SMITH

      Next month

      2 years ago Log in to Reply
    13. George Lovelace

      My Endo Follows my Dex so can make change suggestions as needed. A1c in low 6’s. first of 2013 I hit 5.4 but I’ve had a lot of stress, wife died in Oct. I plan to have 2 Televisits and 1 for A1c

      2 years ago Log in to Reply
    14. Becky Hertz

      So difficult to get in, I’m scheduled 2 ahead.

      2 years ago Log in to Reply
    15. Jeff Balbirnie

      My sole point of contact w/ that doctor left the practice!!! I saw nobody there but her. Zero warning, zero notification of any kind from the practice, am still waiting for it in fact! Until they do so, I have zero interest or desire. They are never, ever to be trusted…

      2 years ago Log in to Reply
    16. T1D4LongTime

      I always have a scheduled appointment with my endo. I go regularly every 4 months. If I’m losing good control of my BGs or have other complications, I go more frequently.

      2 years ago Log in to Reply
    17. ConnieT1D62

      I am scheduled for 4 visits a year at a time – q 3 months. In 2023 I had two extra visits to problem solve insulin absorption issues.

      2 years ago Log in to Reply
    18. PamK

      At the end of each appointment they schedule me for my next appointment. I think this is the norm.

      2 years ago Log in to Reply

    Do you have any appointments currently scheduled with your main T1D healthcare provider? Cancel reply

    You must be logged in to post a comment.




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