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    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 30 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 35 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 35 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
    • 36 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
    • 38 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
    • 39 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
    • 40 minutes ago
      TEH likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
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    Based on your experiences with customer service representatives from insurance companies, do you feel that they understand the needs of people with T1D?

    Home > LC Polls > Based on your experiences with customer service representatives from insurance companies, do you feel that they understand the needs of people with T1D?
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    15 Comments

    1. Bob Durstenfeld

      Having used 11 different medical insurance companies over the years, I have NEVER had a customer service representative or agent that understood the need of a person with T1D. Some would listen and try and understand. Often I would ask to transfer to a supervisor, they didn’t understand either, but at least they had more decision making ability.

      2 years ago Log in to Reply
    2. Steve Rumble

      My health insurance is provided through an HMO, so the providers and insurance company are the same. I do not have to deal with two separate entities.

      2 years ago Log in to Reply
    3. connie ker

      If you get a customer service person who is uninformed about people with T1D, ask for their supervisor or kindly ask for someone who knows about T1D. This has helped me in the past phone calls and if you ask for a supervisor, the agent has to transfer the call.

      2 years ago Log in to Reply
    4. Sherolyn Newell

      When I call BCBS, the representative may not know about T1D, but the reps at the Kansas City number are extremely helpful. They will 3-way call the device providers when I can’t explain something. I have never felt the need to ask for a supervisor.

      2 years ago Log in to Reply
    5. George Lovelace

      Sometimes you get lucky and they are T1 also. It was nice when I was on an Animas Pump as most of the Reps were T1 also but that didn’t always help with Insurance.

      2 years ago Log in to Reply
    6. Bill Williams

      Has anyone else ever tried to talk to CMS? I get nothing but ā€œthose are our rulesā€.

      2 years ago Log in to Reply
    7. Steve Gold

      They don’t, never had and given their business model is to reduce costs irrespective of the patient impact for as long as they can get away with it. I don’t think that situation will change unless the industry itself changes. Which would need to come from somewhere other than the insurance industry. This may be viewed as a being overly negative, however I’ve been a Type 1 diabetic for 40+ years and I have not seen a lot of change other than in technology to manage Type 1 diabetes. The technology and processes used have dramatically improved.

      2 years ago Log in to Reply
    8. Kristine Warmecke

      I’ve found since being on Medicare & a Medicare Advantage Plan for a year now, that customer service representatives have to have a printed out script they must follow. It wasn’t until I got to the next level that I was told that everything my endocrinologist & I did to get my insulin wasn’t necessary because it goes through Part B and not Part D. Which I explained to the first line people, who kept repeating the exact same words over & over.

      2 years ago Log in to Reply
    9. Rose Lentzke

      I have had the same issues as Christine when calling Medicare. The script is their protocol.

      2 years ago Log in to Reply
    10. persevereT1D52

      I have never had a representative who understood my T1 needs. It got much worse when I moved to Medicare from my employer provided insurance. It has been a nightmare. And even if I do get a somewhat clear answer after hours, days or months of time and effort on my part – coordinating that answer with my dr and the pharmacy or supplier is another nightmare. It is one of the worst struggles in life. It drains me physically mentally and emotionally.

      2 years ago Log in to Reply
    11. Patricia Dalrymple

      I can see I am very fortunate. My employee insurance is excellent. I pay nothing for insulin currently and when I did I paid $90 for a 3 month supply. I pay nothing for strips. Just pay for pump supplies. However, I am going to Medicare in two years. Yikes!

      2 years ago Log in to Reply
    12. Cheryl Seibert

      I answered No, but it does depend on whether I’m talking tothe major medical insurance company or the Pharmacy Benefits Manager (PBM like CVS Caremark). My major medical insurance reps have been helpful and caring, but knowledge of T1D is limited. CVS Caremark reps and policies lump all diabetics together and do not differentiate between T1D and T2D medical needs. Insurance policies and systems especially with sensors, insulin, test strips (don’t get me started on allowed strips / day) and pump supplies do not seem to accommodate the variance day to day in number of units used. Reordering supplies with (not until mm/dd/yyyy for the 90 days) is limiting if you fall ill and need more insulin for an extended period of time. Pump and Sensor equipment failures also cause issues with reordering. Our doctors have to increase the number of units for 90 days to provide a buffer for these things. Quantity Limits by insurance companies on ANY diabetic need should be against the law. I was told by Caremark as a T1D for 54 years on a Medtronic pump at the time, that the American Diabetes Association made a ‘ruling’ that a diabetic should only test their blood sugar a maximum of 3 times a day, so they wouldn’t fill my doctor’s prescription for 10-12 times/day. We got it straightened out but I honestly think it was because of the Senate hearings on PBMs and insurance companies withholding needed medication. Sad šŸ™

      2 years ago Log in to Reply
    13. Jeanne McMillan-Olson

      I have used CCS for years and they are easy for me to work with for pump supplies. Byram was terrible and I left them when they would not send me my CGMs and now get them at Walgreens. Walgreens has been easy to work with too.

      2 years ago Log in to Reply
    14. T1D5/1971

      The requirements for being a customer service rep for insurance companies do not include any form of medical training/knowledge. Yes, indeed, they are reading an allowed script from a computer screen on the recorded phone line. They have no power to do anything else. It is deadly dangerous to not be able to get necessary supplies because of the lack of knowledge about T1D. Unfortunately, that same lack of knowledge extends well beyond the insurance companies.

      2 years ago Log in to Reply
    15. Paul Scaglione

      My experience is limited to online conversations, sometimes very good, others moments negative. It is a very hit-and-miss situation, needs major improvement in the area of customer service by suppliers.

      2 years ago Log in to Reply

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