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Activity
- 10 hours, 50 minutes ago
  
  Gerald Oefelein likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
- 10 hours, 50 minutes ago
  
  Gerald Oefelein likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
- 10 hours, 51 minutes ago
  
  Gerald Oefelein likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  no immunosuppression needed - 👍 immunosuppression needed - 👎
- 16 hours, 38 minutes ago
  
  Natalie Daley likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
- 16 hours, 38 minutes ago
  
  Natalie Daley likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  no immunosuppression needed - 👍 immunosuppression needed - 👎
- 17 hours, 38 minutes ago
  
  Marthaeg likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  no immunosuppression needed - 👍 immunosuppression needed - 👎
- 17 hours, 48 minutes ago
  
  kristina blake likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
- 17 hours, 57 minutes ago
  
  Mike S likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  no immunosuppression needed - 👍 immunosuppression needed - 👎
- 18 hours, 17 minutes ago
  
  Eve Rabbiner likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
- 18 hours, 20 minutes ago
  
  Marty likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  no immunosuppression needed - 👍 immunosuppression needed - 👎
- 18 hours, 32 minutes ago
  
  John Barbuto likes your comment at
  How likely is it that you would participate in a clinical trial for islet cell transplantation?
  I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
- 1 day, 13 hours ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  not for those of moderate income.
- 1 day, 13 hours ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 1 day, 13 hours ago
  
  Kristi Warmecke likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 1 day, 15 hours ago
  
  dholl62@gmail.com likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 1 day, 15 hours ago
  
  dholl62@gmail.com likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 1 day, 16 hours ago
  
  Bruce Schnitzler likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 1 day, 16 hours ago
  
  Steve Rumble likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
- 1 day, 16 hours ago
  
  Natalie Daley likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
- 1 day, 17 hours ago
  
  Marty likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
- 1 day, 17 hours ago
  
  Marty likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  But probably not in my lifetime.
- 1 day, 17 hours ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
- 1 day, 17 hours ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  as long as it doesn't require immunosuppression, I'm interested
- 1 day, 17 hours ago
  
  Kathy Hanavan likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
- 1 day, 17 hours ago
  
  Kathy Hanavan likes your comment at
  How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
  I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
Clear All

Do you prefer to financially support any non-profit organizations through any of the following ways? Select all that apply.

CGM users: Do your sensors typically last for their full approved session duration? If not, how many days early does your sensor fail or fall off, on average?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

3 Comments

connie ker

When my husband passed away who was one of the longest living T1Ds in the country, memorials gifts to our church and the JDRF were listed and both were supported in that way. I have also given online for my son’s (T1D) wedding as a gift, and I did the online matching donation times 3 at the end of the past year. All went to JDRF.

5 years ago Log in to Reply
George Hamilton

I give to some causes monthly, some annually, and some on a single gift basis. The method of giving I use in each case depends on a combination of the nature of the need and my personal attachment to the ongoing work of the organization.

5 years ago Log in to Reply
Becky Hertz

I give to some organizations. I prefer cash or check, or buying from a website that donates a portion of your purchase to the non-profit. I’ve learned that if giving through a” campaign “ about 10% is deducted and given to administrative costs to the campaign company.

5 years ago Log in to Reply

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Trending News

Do you prefer to financially support any non-profit organizations through any of the following ways? Select all that apply.

CGM users: Do your sensors typically last for their full approved session duration? If not, how many days early does your sensor fail or fall off, on average?

Based on your experiences with customer service representatives from insurance companies, do you feel that they understand the needs of people with T1D?

Sarah Howard

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