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    • 1 hour, 24 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 7 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 34 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 34 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 34 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 47 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 47 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 48 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 30 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 53 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 50 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Do you (or your loved one with T1D) take a Vitamin D supplement?

    Home > LC Polls > Do you (or your loved one with T1D) take a Vitamin D supplement?
    Previous

    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Next

    Moving out on your own for the first time is exciting but extra challenging with T1D. If you’ve made it past the ‘moving out’ transition in your life, what is one piece of advice or something you wish you had known to give to young adults moving out today? If you are a young adult moving out on your own (or still finding your way!), do you have any questions for those who have successfully made the move from parent home to independent living?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    46 Comments

    1. KarenM6

      Yup!
      I have been diagnosed in the past with Vitamin D deficiency, so have been on doctor ordered Vit. D for many years.
      I also have calcium issues and I know the two are connected. At one point, I was diagnosed with osteopenia, but I don’t know if that is still the case.
      Hoping all the calcium “horse pills” are doing their job! 🙂

      2
      3 years ago Log in to Reply
    2. Jillmarie61

      I have been on a prescription for Vitamin D for the last three years because m levels are so low.

      3 years ago Log in to Reply
    3. Ms Cris

      2500 IUs every day!

      3 years ago Log in to Reply
    4. Lyn McQuaid

      My answer is yes and my endo was the one who recommended it. He said vitamin D is more of a hormone than a vitamin and is crucial for health.

      3 years ago Log in to Reply
    5. kflying1@yahoo.com

      And as weather allows, I take my daily walks exposed as legally possible. I don’t give a S**t what people think about my flabby body or the CGM on my gut. I’ll get my natural Vitamin D production the way we were designed to.

      3 years ago Log in to Reply
      1. Wanacure

        Ha! Over 20 years ago California had a discrete public “clothing optional” beach. Even Seattle has a “Fraternity Snoqualmie” nudist club, again discrete. But my dermatologist told me to wear long sleeve shirts, full length pants, sunglasses and a broad brimmed hat, and SPF 50 sun blocker…even on wintry cloudy days. Every year she checks me for skin rashes and melanoma and so far has found a couple of small ones she removed in the office w/ just local anesthetic.

        1
        3 years ago Log in to Reply
    6. dave hedeen

      take D3 only during winter months

      2
      3 years ago Log in to Reply
    7. Henry Renn

      Only bc blood test showed a deficiency. Never took it before last year.

      1
      3 years ago Log in to Reply
    8. stillarobyn

      Seasonally – every day in the winter DST months

      1
      3 years ago Log in to Reply
    9. Sherolyn Newell

      My endo left the practice she was in, so my last appointment was with the nurse practitioner. It was annual lab time, and she added the vitamin D test. I had never had one before. My level was nearly 0. I saw the labs and bought a bottle of vitamin D. The nurse also sent in a prescription of super dosage D for once a week. I was already taking the others every, so I kept on doing that.

      1
      3 years ago Log in to Reply
    10. Melinda Lipe

      Not because I’m Type 1, but because my blood work showed a low Vit. D level.

      1
      3 years ago Log in to Reply
    11. Francisco Varea

      I take as part of a daily multi vitamin supplement

      3 years ago Log in to Reply
    12. TEH

      Just what’s in my multivitamin

      3 years ago Log in to Reply
    13. Gerald Oefelein

      My daily multivitamin contains 25 mcg of vitamin D.

      3 years ago Log in to Reply
    14. cynthia jaworski

      i believe that it is common for people with ti to have low Vitamin D levels.

      3
      3 years ago Log in to Reply
    15. Eva

      I get my vitamin d level checked every year so if I dont get sun for an extended period of time, I take a supplement.

      3 years ago Log in to Reply
    16. Jennifer Wilson

      Yes, high dose D2 weekly.

      3 years ago Log in to Reply
    17. P-O Heidling

      Yes, 5000 IE of D3 vitamins daily, during the fall/winter months (Oct-March).

      3 years ago Log in to Reply
    18. HMW

      My doctor recommended I take my full weekly dose once per week.

      3 years ago Log in to Reply
    19. Kim J

      Yes, once a week.

      3 years ago Log in to Reply
    20. Moe Giguere

      Have been for 20 years when diagnosed with Low D. Large % of population is low. Had read that people with normal D less likely to get COVID and other diseases. My wife, brother and I have not gotten it even though we’ve been exposed many times. We’ve all had our shots as well, but that only affects severity. Who knows. Have been and continue to be a believer in D.

      3 years ago Log in to Reply
    21. Carole Ludwig

      I was deficient in Vit D so I take 1000 units daily. Am just having blood work to see if it is more normal. Have osteoporosis so I take Calcium pills and also get a Prolia shot twice a year. Nine months ago I tripped and dislocated my shoulder. My doc said the fall could have been a lot worse if I hadn’t been taking supplements.

      3 years ago Log in to Reply
    22. Bonnie Lundblom

      Yes, 2000 IU (50 mcg) D3 daily due to low levels many years ago. My PCP and endocrinologist both monitor my blood levels I think because of problems those with low levels have when ill with COVID. I’m fully immunized and boosted, as is my husband, but he’s got COVID right now.

      3 years ago Log in to Reply
    23. Janis Senungetuk

      Have been taking a daily D3 25 mcg supplement for many years.

      3 years ago Log in to Reply
    24. Trisha Oldenkamp

      2000 units every day. I also have just crossed into osteoporosis so it matters.

      3 years ago Log in to Reply
    25. mbulzomi@optonline.net

      I have been taking Vitamin D3, 250 MCG (10,000 IU) twice a day for over twenty years.

      3 years ago Log in to Reply
    26. Lynn Smith

      D3, 2000 mg. I’m old and old people need more vitamin D. 😂

      1
      3 years ago Log in to Reply
      1. Lynn Smith

        Actually that should say 2000 units, not mg. And I also have osteoporosis.

        3 years ago Log in to Reply
    27. Lawrence S.

      To my surprise, last year I had a blood test that showed low vitamin D. I don’t remember being tested to vitamin D before. Since then, I’ve been taking a daily dose of D3, 25mcg, 1000IU.

      3 years ago Log in to Reply
    28. Anneyun

      Yes I do, but not because I’m diabetic, because I live in the Pacific Northwest and don’t get much sun. I didn’t know there was any correlation with diabetes and vitamin D deficiency.

      3 years ago Log in to Reply
    29. trisha moynihan

      i have been prescribed large amounts 2x a month…which i put as “other,” but the answer is YES

      3 years ago Log in to Reply
    30. M C

      I now only get what the daily multi-vitamin provides. At one point I had been taking additional Vit D, only to finally make the connection between doing that and an increasing severe pain and weakness in my hands. It was the only thing new I had added in my life over the previous year – so I stopped taking the additional Vit D, and my hands, quite quickly, reverted back to ‘normal’! For whatever reason, my body can’t handle the additional boost of Vit D.

      3 years ago Log in to Reply
    31. Wanacure

      As prescribed I take 40 mcg/day Vit D3 (200% daily value) in caplets w/ calcium citrate 2520 mg/day (192% daily value) since diagnosis of osteopenia and possible SAD (Seasonal Affect Disorder). Up here at meridian 47 degrees north w/ 9 months of
      overcast/year and/or drizzle SAD is frequently diagnosed in Seattle residents. Despite 3 glasses of milk/day & weightlifting, etc since age 15 T1D onset, diabetes and genetics resulted in
      osteopenia diagnosis in my 50’s. I went from 6’4” to today’s 6’1”. COULD OSTEOPENIA HAVE BEEN PREVENTED IF I’D STARTING SUPPLEMENTING IN MY MID-40S AFTER 30 YEAR TID ONSET? This is the only dietary supplement I take.

      3 years ago Log in to Reply
    32. Jneticdiabetic

      I answered “Sometimes”. Aka (when I remember).
      I actually do notice a difference in how I feel when I take Vit D regularly. I don’t know if this is related to my T1D, thyroid function (I also have Hashimoto’s), independent factors, all of the above?
      Risking TMI… I have noticed that I find my spouse more irristible when I’m taking my Vit D. 😘
      Lots of interesting articles in the medical literature about Vit D level correlations with immune function, cardiovascular disease, sex drive, mental health, etc.
      Okay I talked to myself into it – just said a daily alarm. 🙂

      1
      3 years ago Log in to Reply
    33. Patricia Dalrymple

      I live in FLA and ride my bike at lunch for 20 5 out of 7 days usually. I sometimes take it, especially when a little constipated (sorry probably TMI) and it seems to help. I take red yeast rice on advice of Endo because my cholesterol is only slightly elevated and liver enzymes are good. I also take turmeric for joint pain and that DOES work for me.

      1
      3 years ago Log in to Reply
      1. Ahh Life

        Patricia–hey! This is a health research web site. There is definitionally no such thing as TMI. Even for psychopathy (ala Doc Martin)

        1
        3 years ago Log in to Reply
      2. Patricia Dalrymple

        Good to know! I’m pretty sure I’ve shared other personal info on here. I find you all incredibly kind and supportive.

        3 years ago Log in to Reply
    34. LL

      Yes, daily especially because was found to be deficient. Has more than one autoimmune condition, as does a sibling and parent.

      3 years ago Log in to Reply
    35. Robert Brooks

      Daily does prescribed by my nephrologist. Vitamin D3 plays a crucial role in kidney function.

      3 years ago Log in to Reply
      1. Becky Hertz

        Interesting cause my nephrologist took me off of mine!!! I’ll have to revisit this with her.

        3 years ago Log in to Reply
    36. Becky Hertz

      I used to everyday because of where I live (Seattle Area) and because my levels were low, but my nephrologist took my off all my silent except fish oil. My non-D sister also has low levels (lower than I ever did and she lives in southern Oregon) and also supplements daily.

      3 years ago Log in to Reply
    37. Lenora Ventura

      My Endo prescribed once weekly 50,000 iu supplement. Been taking it for over 5 years.

      3 years ago Log in to Reply
    38. Cheryl Seibert

      I do not take Vit D supplement. My endo says I eat a balanced enough nutrition-laden meal to not need supplements. My OB-GYN has been pushing Vitamin D. I won’t take the supplements without my endo’s approval.

      3 years ago Log in to Reply
    39. PamK

      I answered “Yes” but I do not take it for my diabetes. My mother has Osteoporosis so I was told to take vitamin D with calcium to protect myself. I started this when I was 30 years old.

      3 years ago Log in to Reply
    40. Stang777

      I was diagnosed with type 1 almost 9 years ago and other than the amount of vitamin d that is in the multi-vitamin I have taken daily, I did not take vitamin d until I had a bone density scan last month which revealed I have osteoporosis. At that time, after doing some research on osteoporosis, I started taking a vitamin d pill each day in addition to the multi-vitamin.

      3 years ago Log in to Reply
    41. Cmore

      My Endo prescribed twice weekly 50,000 iu (prescription)in 2000. It was switched to once weekly in 2020.

      3 years ago Log in to Reply

    Do you (or your loved one with T1D) take a Vitamin D supplement? Cancel reply

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