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    • 2 hours, 21 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has a stranger ever approached you to talk about your visible diabetes device(s)?

    Home > LC Polls > Has a stranger ever approached you to talk about your visible diabetes device(s)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    26 Comments

    1. PamK

      I was shopping at Costco and a woman approached me. She asked if she could ask me something personal. I said okay. She then pointed at the tubing at my waistband and asked if it was to an insulin pump. I told her it was. She went on to explain that her son was diagnosed at a young age and had just started pumping. He noticed my tube and told her I had a pump like his. She told him she didn’t think so, but he insisted that she ask me. Well, he was right!
      I told her that I was diagnosed when I was 2 1/2 years old (her son was 3) and had been living with diabetes for several decades. She told me I had given her great hope for his future. 🙂
      I’m glad you asked this because this is a very fond memory for me!

      7
      4 years ago Log in to Reply
    2. Steve Rumble

      I wear a CGM but it is normally covered by my clothing, only occasionally visible on my upper arm.

      4 years ago Log in to Reply
    3. Patricia Dalrymple

      I was in a restaurant and got up to leave and this teenager ran up to me and said: is that an insulin pump very excitedly. I said yes and he said he just got his and did I like mine. I told him it was a game changer and I loved it. He was too cute. Like the person below, it is a fond memory. I’ve approached a couple of people. One young man I did not because he was with a group of friends at a bar and I didn’t want to interrupt. I like talking to others about it.

      2
      4 years ago Log in to Reply
    4. Liz Avery

      I answered “other” as strangers haven’t asked, but people that are part of a large group of acquaintances often do. They aren’t ‘t strangers, but less than friends. I have encouraged many grandparents to get their grandchildren pumping.

      1
      4 years ago Log in to Reply
    5. Maureen Helinski

      Often when I have the G6 on my arm people say, oh my son has one, or how do you like it.

      2
      4 years ago Log in to Reply
    6. Lisa Coyne

      When walking in my neighborhood, a gentleman called out, as I passed by, “Is that a thing for your blood sugar?” My Dexcom was on the back of my arm at the time. He had seen a commercial on TV about CGMS and was excited to see one in person!

      1
      4 years ago Log in to Reply
    7. Hieromonk Alexis

      My pump is visible only briefly if I’m entering a bolus and the same goes for my G6 receiver whenever I check my levels. I do attract attention if starts beeping, in which case I tell curious strangers that I’m backing up.

      4
      4 years ago Log in to Reply
    8. Lawrence S.

      I have always worn my pump out in the open where it is easily visible. I want people to know that I am diabetic in case I need help. Anyway, yes, I’ve been approached a few times. Occasionally, a person might ask, and I am eager to have a discussion about my pump. One occasion, I was asked at a pool by two persons. They said that their granddaughter was recently diagnosed and just started on a pump. Those folks became two of my now closest friends. Another time, I was at another pool, and a woman called over to her son who was in the pool, “Hey, you have a friend with a device like yours.” At the time, he was wearing an Omnipod, I was wearing a Medtronic pump. We had a nice discussion about the similarities and differences between our pumps.
      I love to talk to people about my pump.

      2
      4 years ago Log in to Reply
    9. Lyn McQuaid

      I’ve never been approached because I hide everything but I have approached other people wearing diabetes devices to chat with them.

      2
      4 years ago Log in to Reply
    10. Louise Robinson

      I live in Florida and wear my DexG6 on my upper arm. Because of the heat, I don’t scruple about wearing sleeveless blouses. As I was leaving the Publix Supermarket checkout clerk, yesterday, the clerk commented, “Hey, I have a Dexcom too!”.

      2
      4 years ago Log in to Reply
    11. Trisha Oldenkamp

      One time it even led to a new friendship!

      4 years ago Log in to Reply
    12. gary rind

      I answered no but should have answered that my device isn’t (usually) visible. Libre2 on the tricep so it normally can’t be seen.

      4 years ago Log in to Reply
    13. Cheryl Seibert

      We were dining in a Bob Evans restaurant and I was bolusing for dinner. A nearby customer came over and asked about the pump

      4 years ago Log in to Reply
    14. Sue Herflicker

      YES, not only asked but touched. An older gentleman in an elevator started rubbing his finger on my dex located on my arm. I was very uncomfortable at the time, he asked me what it was. Thank Goodness I was getting off on the 2nd floor!!

      4 years ago Log in to Reply
    15. Jillmarie61

      All the time! Most of the time I wear my pump hidden inside or under clothing, but I wear my Dexcom G6 on my arm right out in the open. It always leads me to taking about my pump and telling them how the two connect up with each other and how it’s changed my life. I’ve even had physicians ask me about it when they see one because most of the don’t deal with diabetes. It never hurts to eaducate someone.

      3
      4 years ago Log in to Reply
    16. Greg Felton

      I’m usually wearing several layers of clothes in this part of the US, so devices are rarely visible. When the are, I have had a few people approach me, but the majority are other T1Ds, rather than curious strangers.

      2
      4 years ago Log in to Reply
    17. TomH

      I don’t try to hide them, if they show, they show. I don’t get questioned often, but try to take advantage of any question to educate. On a recent cruise, a lady next to me asked; she turned out to be T2, gut wasn’t aware (despite Dexcom’s ads) about CGMs. I explained the various types/makers as well as how I was using Loop to integrate my CGM and Omni Dash to work together better and more automated.

      4 years ago Log in to Reply
    18. Tina Roberts

      All the time.

      4 years ago Log in to Reply
    19. Ahh Life

      Back in the paleolithic period when CGM’s weren’t invented, pump usage was rare, and Southwest Airlines was a little puddle jumper of an airline, I stayed seated between flights while whipping out my glucometer to test BG. The young stewardess busy cleaning up between flights stopped to ask what the number was? Then she pulled out her glucometer just to show me she had one.

      I thought, “What a great company. They hired her for one of the most difficult jobs in the world and she was showing a kindred spirit with one of them.” ( ͡❛ ͜ʖ ͡❛)✊

      3
      4 years ago Log in to Reply
    20. Donna Condi

      Yes/no. I was at a breakfast buffet at a hotel when I was approached by a lady who asked if she could pray for me. I said yes and I stopped and she began her prayer. I later figured out that I was wearing my Omnipod on my arm and it looks just like the cancer “after chemo next day shot” that she must have assumed I had cancer.

      4 years ago Log in to Reply
    21. Tb-well

      I am someone who asks others about their tattoos and their devices. I want to know if they like what they have and what they suggest.

      4 years ago Log in to Reply
    22. Douglas Holt

      Most people can’t believe I’m still using a pager…

      2
      4 years ago Log in to Reply
    23. ConnieT1D62

      So far only other PWDs who are also wearing a device in a nod of solidarity, or a person w/o diabetes and other PWDs who ask if I like wearing wearing it and to describe the pros and cons between the device (pump &/or cgm) as opposed to injections and finger prick testing.

      4 years ago Log in to Reply
    24. mbulzomi@optonline.net

      I have been asked if Pagers were still being used. Had a good laugh.

      4 years ago Log in to Reply
    25. Molly Jones

      “Oh! You have one too.” Then usually waits for a response.

      4 years ago Log in to Reply
    26. Nicholas Argento

      Many times but like others it is usually someone who has T1D or has a friend-relative-child w diabetes. Often in airports- I see lots of DM devices there. I find it contributes to a sense of community. Once someone in church thought I had cancer – and said she would pray for me…

      4 years ago Log in to Reply

    Has a stranger ever approached you to talk about your visible diabetes device(s)? Cancel reply

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