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    • 6 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 8 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 12 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 16 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 hour, 6 minutes ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 16 hours, 22 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 16 hours, 22 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 16 hours, 23 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 16 hours, 24 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 16 hours, 24 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 16 hours, 25 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 16 hours, 25 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 20 hours, 2 minutes ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 22 hours, 2 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 22 hours, 2 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 22 hours, 3 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 22 hours, 3 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 22 hours, 3 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 23 hours, 6 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 23 hours, 6 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 23 hours, 7 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 23 hours, 7 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 23 hours, 24 minutes ago
      Anita Stokar likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 23 hours, 39 minutes ago
      Amy Schneider likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
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    If you have T1D, have you also been diagnosed with Dupuytren’s contracture? (Dupuytren’s contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)

    Home > LC Polls > If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)
    Previous

    Which of the following options best describes your primary insulin delivery method (the one you use most) and your most recent A1c? (Note: 7% is equivalent to 53 mmol/mol)

    Next

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. ConnieT1D62

      I have neuropathy in my hands and fingers, including contracture and stiffening of the finger joints and muscle wasting at the base of my thumbs. I was once told it was carpal tunnel syndrome, but not Dupuytren’s since most of my fingers could still touch when I placed my palms together in prayer position. Now the joints in my first and middle fingers are bent and don’t quite straighten out.

      Several years ago I was also told i needed surgery to correct it all with no guarantees. I refused and went to see an occupational therapist instead and learned very effective hand flexibility and strengthening exercises that I still do today. My hands are still affected by neuropathic numbness, tingling, and stiff fingers but I have adapted and have learned to live with it.

      3
      4 years ago Log in to Reply
      1. lis be

        almost the same story for me, myofascial massage therapy and stretches have helped quite a bit over time.

        1
        4 years ago Log in to Reply
    2. Jane Cerullo

      Duputrens name of my existence. My mother had very mild case. I have had three surgeries. Not a bad surgery but when my little finger was bending again I opted for Xiaflex injection. Worked like a charm. Only problem was bleeding because not one told me to stop baby aspirin. It has been a year and finger still straight. Wish i did injection first time. I do wear my splint at night. Not sure if help but makes me feel proactive. I have never gone this long without finger starting to bend again.

      4 years ago Log in to Reply
    3. Louise Robinson

      I had surgery for Duputryn’s contracture on my left hand six years ago and should have it done on my right hand as it has become more pronounced. A brother and husband, who do NOT have diabetes, also have Duputryn’s. I’m reluctant to have the right hand done because I never fully recovered the feeling in my left hand post-surgery. I am right-handed and an avid quilter. As long as I can continue to function without any pain in the right hand, I most likely will defer any surgery…although the right hand deformity does have “witchy” aspects.

      1
      4 years ago Log in to Reply
    4. Nancy Burgess

      I’ve struggled with Dupuytren’s contracture for many years having had surgery 5 times for the condition. I have a growth now on my little & ring fingers of my left hand. Previously it’s always been on my right hand.

      4 years ago Log in to Reply
    5. Tod Herman

      I answered no, but my primary care doctor once diagnosed me with having this. But when I went to a specialist it turned out to be something else called trigger finger. Turns out I have since had that in both hands and three different fingers.

      4 years ago Log in to Reply
      1. Vivian Moon

        Trigger finger is Dupuytrens

        1
        4 years ago Log in to Reply
      2. AnitaS

        I have read where Dupuytren’s contracture is not the same thing as trigger finger. In fact they are considered very different medical conditions. I have had surgery for trigger finger myself.

        4 years ago Log in to Reply
    6. Tina Roberts

      Yes and it’s worse in the right hand.

      4 years ago Log in to Reply
    7. Bob Durstenfeld

      I had them in the past and they receded with improved control with a pump and cgm.

      1
      4 years ago Log in to Reply
    8. Joan Fray

      Yes, in several fingers. Had to have surgery on left hand b/c i couldn’t be thpe. Worked for a few years then came back. Now in foue fingers but I can still workdo anything worth doing……

      4 years ago Log in to Reply
    9. Teri Morris

      I hit my thumb on something in the past, maybe injured/dislocated it, as the last knuckle in my thumb was bent about 90 degrees for around two years. It did look quite unusual, and I was unable to straighten it. I just noticed, when reading your question, that it is pretty much back to normal.

      4 years ago Log in to Reply
    10. Jillmarie61

      Dupuytren’s Contracture (aka Palmer’s Fibromatosis) is NOT the thickening of the skin of the palm. It’s inflammation of the tendons that causes scar tissue on the sheaths covering the tendon as it rubs under the bands in the palm. While it is considered an inheritable disease common in Eastern or Northern Europeans, it also is common diabetics.

      1
      4 years ago Log in to Reply
      1. Jillmarie61

        BTW, I have it in both hands and had numerous surgeries over the years to remove the scar tissue.

        4 years ago Log in to Reply
      2. Modee

        I think you may be mistaken.

        4 years ago Log in to Reply
      3. Stang777

        According to the Mayo Clinic (for those who want to know for sure what it is)…

        Dupuytren’s contracture typically progresses slowly, over years. The condition usually begins as a thickening of the skin on the palm of your hand. As it progresses, the skin on your palm might appear puckered or dimpled. A firm lump of tissue can form on your palm. This lump might be sensitive to the touch but usually isn’t painful.

        In later stages of Dupuytren’s contracture, cords of tissue form under the skin on your palm and can extend up to your fingers. As these cords tighten, your fingers might be pulled toward your palm, sometimes severely.

        The two fingers farthest from the thumb are most commonly affected, though the middle finger also can be involved. Only rarely are the thumb and index finger affected. Dupuytren’s contracture can occur in both hands, though one hand is usually affected more severely.

        That and more info is from…
        https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/symptoms-causes/syc-20371943

        4 years ago Log in to Reply
    11. KarenM6

      I’ve had trigger finger but not Dupuytren’s contracture.

      4 years ago Log in to Reply
    12. Modee

      I have had trigger finger in 7 different fingers. I have dupuytren’s in right ring finger which is not one of the 7 that triggered. These two conditions are completely different and don’t feel anything alike.

      4 years ago Log in to Reply
    13. Cheryl Seibert

      Yes, on both hands. It is stable and not interfering with daily tasks. Interestingly, my son, age 39, is NOT diabetic and is developing the condition as well, but he does have gout. We have no family history of the condition though.

      4 years ago Log in to Reply

    If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.) Cancel reply

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