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    • 2 hours, 42 minutes ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 4 hours, 33 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 7 hours, 15 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 7 hours, 17 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 7 hours, 17 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 9 hours, 54 minutes ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 10 hours, 25 minutes ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 12 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 12 hours, 2 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 12 hours, 6 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 12 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 13 hours ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 4 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 9 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 9 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 9 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 9 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 9 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
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    How did you schedule your next appointment with your main T1D health care provider?

    Home > LC Polls > How did you schedule your next appointment with your main T1D health care provider?
    Previous

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    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    26 Comments

    1. LizB

      I scheduled it at the end of my previous appointment.

      4 years ago Log in to Reply
    2. Cindy DeLano

      At a virtual visit

      4 years ago Log in to Reply
    3. AnitaS

      I usually schedule right at the clinic, but since I did a phone appointment this last time (this was my first visit not done in-office) , I made my next appointment over the phone

      4 years ago Log in to Reply
    4. Barbara Bubar

      Arranged at the end of the current appointment.

      4 years ago Log in to Reply
    5. Lisa Moir

      It’s always scheduled as I leave my current appointment.

      2
      4 years ago Log in to Reply
    6. Jane Cerullo

      Set next appointment at checkout. Also for in office labs

      4 years ago Log in to Reply
    7. Becky Cain

      At the end of my appointment yesterday.

      4 years ago Log in to Reply
    8. Mick Martin

      Snail mail, though I am informed that a new appointment will be made for me at the current appointment and will be mailed out to me.

      4 years ago Log in to Reply
    9. Gerald Oefelein

      I schedule my next appointment at the conclusion of each visit.

      1
      4 years ago Log in to Reply
      1. RegMunro

        So do I!

        4 years ago Log in to Reply
    10. ELYSSE HELLER

      Well, all of my medical appointments have been cancelled/rescheduled due to the Covid surge.

      4 years ago Log in to Reply
    11. Anthony Angel

      I always schedule at the time of the current visit. My appointment for this month was made about 6 months ago.

      1
      4 years ago Log in to Reply
    12. Bonatay

      I use to schedule my next appt at the time of an in-office visit. Now with telemedicine appts, after my first visit, someone called me afterward to schedule my next visit. Since then I have had to call to schedule an appt. No one calls me so I have fallen behind in my visits last year.

      4 years ago Log in to Reply
    13. cynthia jaworski

      I make a phone call when it is time for me to make an appointment. 6 month time frame, unless I feel I need it sooner.

      4 years ago Log in to Reply
    14. Tina Roberts

      Through the My Chart app.

      4 years ago Log in to Reply
    15. Mig Vascos

      I scheduled for in person since for the last 2 years all I’ve had are tele health appointments, but I’m not sure is going to happen or it’s going to be changed again. It’s not the same.

      4 years ago Log in to Reply
    16. Beckett Nelson

      My next appointment is in person, which will be the first in person visit since COVID started…assuming that’s not changed with numbers going up

      4 years ago Log in to Reply
    17. Kathryn Keller

      I scheduled an appointment through my chart app. I should have scheduled a long time ago. Made appointment in December and can’t get in till May….thankfully, I don’t feel like there is an urgent need to see the endo

      4 years ago Log in to Reply
    18. Chrisanda

      My NP always schedules the next appointment and lab work with me at the conclusion of my current appointment. My endo likes to see me and do lab work 3-4 times a year. They’ve had in-person visits since last year.

      4 years ago Log in to Reply
    19. Patricia Dalrymple

      Scheduled all in person, even through pandemic, but I had to cancel. My husband got COVID through a volunteer job, and I have to wait until he tests negative, then I can test (because it doesn’t make sense any other way). I can meet virtually but without labs, what’s the point? And I won’t go to the lab possibly positive. Then have to find a test site and wait about 5 days for results.

      4 years ago Log in to Reply
    20. Anthony Harder

      I typically schedule my next appointment at the conclusion of my current appointment. However, I have no issue changing my appointment or even scheduling an appointment via online patient portal.

      4 years ago Log in to Reply
    21. Antsy

      I try to schedule my next visit while waiting to be called for that day’s visit. Parking is REALLY expensive there, and when my appt is over, I want to get out of the parking garage ASAP, not get back in line to schedule another one. I avoid making visits over the phone as the wait to talk to a live person is lengthy. Sadly, this endocrinology dept prohibits patients from making appts online.

      4 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I’m a Maxicare original program (77 Years Old). After my appointment my ENDO. automatically reschedules because of Medicare’s three-month requirements. Easy a simple.

      4 years ago Log in to Reply
    23. Brad Larson

      Switched from Kaiser to Blue Shield. Found a GP, but their medical group (LL) is not taking anymore endocrinology appointments. I must look elsewhere. The GP is presently writing script for CGM and insulin, but is not familiar with the products

      4 years ago Log in to Reply
    24. Leona Hanson

      I see the doctor 2 times a year now and according to the insurance have to have 2 in person visits a year the rest can be on the portal

      4 years ago Log in to Reply
    25. Patricia H

      My provider automatically has me scheduled following our visit; every 3 months.

      4 years ago Log in to Reply

    How did you schedule your next appointment with your main T1D health care provider? Cancel reply

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