Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 27 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 15 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 58 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 25 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 21 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 44 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 41 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
    Previous

    If you’re an adult with T1D, have you worked at a job that requires strenuous physical activity (ex: construction, landscaping, etc.)? Share your experiences and advice for managing T1D on the job in the comments!

    Next

    Do you consider the glycemic index of different foods before deciding what to eat?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    17 Comments

    1. Nevin Bowman

      Is 8 an option? 🙂

      4
      4 years ago Log in to Reply
    2. Sahran Holiday

      More than once per night. CGM saving me.

      1
      4 years ago Log in to Reply
    3. Kristine Warmecke

      By my device 0, by my DAD twice. Way to go Mimi!

      1
      4 years ago Log in to Reply
    4. Joan McGinnis

      I woke because I forgot to press start on my new sensor and I regularly ck when I wake for anything, so had to run downstairs and find my code to enter, this is rare for me, very rare now I am in control IQ

      4 years ago Log in to Reply
    5. Patricia Kilwein

      Mostly to check bg……

      4 years ago Log in to Reply
    6. kristina blake

      I run a tight ship – narrow range of acceptability (60-120), so frequent alerts are par for the course. But I don’t mind. I do what i need to and fall back asleep.

      2
      4 years ago Log in to Reply
    7. Becky Hertz

      Usually it’s no big deal, but this past week has been annoying as I’m not sleeping well either and usually I’m a great sleeper.

      4 years ago Log in to Reply
    8. ConnieT1D62

      None. 0. Tandem CQI works for me!

      1
      4 years ago Log in to Reply
    9. lis be

      I said 6, but only recently. Perimenopause is causing so many fluctuations that are difficult to predict. Before perimenopause i would have said 3

      1
      4 years ago Log in to Reply
    10. Chrisanda

      I can go weeks with no interruptions, but then I hit a night where I’m ready to throw everything out the window! The usual cause is constant low alarms. I’ve figured out that if my sensor is within about 12-24 hours of expiring, it sometimes gives me low readings. There have been times when I’m alarming that I’m in the low 60s, or even 50s, and when I use a meter I’m in my range…80s to 120s! And no amount of calibration will work. I’ve learned that if that’s the case, the first time it happens the sensor comes off until the next morning!

      4 years ago Log in to Reply
      1. Wanacure

        Tried calibrating two times? I’ve tried that and it helps to make sure the frigging Dexcom registers my input.

        4 years ago Log in to Reply
    11. BARRY HUNSINGER

      The alerts always have to do with “blocked insulin flow”. I simply disconnect my quickset and reconnect it and maybe move my pump around.

      4 years ago Log in to Reply
    12. Thomas Cline

      I routinely check blood sugar at night even without CGM alarming (and often take sugar or insulin to correct), made easier by my need to use the bathroom in the wee hours due to the necessity of having to stay well hydrated to avoid severe night leg cramps, as well as age. However, I find a particularly annoying aspect of the Dexcomb G6 CGM that I use is that sensors routinely display a severe, erratic dip during the first night of use, likely from pressure on the sensor. The last example on my current sensor was a reading of below 40 (‘low”) when my blood sugar was 85 by multiple finger ticks. Typical and annoying (particularly for my wife), since one cannot silence the alarms, even if one knows bogus readings are likely. And the “low” alarm is particularly annoying, as it is intended to be. After one day the sensor seems to settle down (in) and not give the huge bogus swings, but I do wonder how DEXCOM got this thing past the FDA when it shows such erratic behavior during the first day. Since I save all my CGM readings, I can document to anyone who cares that this behavior is not in my imagination. I wonder if anyone else has had this problem. The other annoying thing is that I find the G6 to be most reliable in the last few days of its mandated 10-day life. DEXCOM designed it so that sensors cannot be used beyond the 10-day limit even if they are functioning flawlessly. There is no justification for this, since when a sensor truly does run out of life (this has happened to me prematurely a couple of times), it simply drops the signal multiple times, making it clear that it is at the end of its life, rather than giving inaccurate readings. I routinely used the G5 twice its “normal” life, but DEXCOM made sure to fill that loophole when they replaced the G5 with the G6. Yes I use less strips with the G6 (certainly not 0 like one person on this site wrote), but that doesn’t begin to compensate for the increased requirement for sensor replacement (not to mention the huge increase in the amount of plastic waste associated with the G6 vs. the G5).

      3
      4 years ago Log in to Reply
      1. Lynn Smith

        Thomas, I agree wholeheartedly with all your G6 issues as I have had the exact same things happen to me. Recently I called Dexcom because my G6 sensor was acting as though it was a G5. It kept wanting me to calibrate. They told me it is a known issue, but that it seems to not happen as long as you wait at least 15 minutes to start a new sensor after stopping the previous one. Ridiculous. And I seem to forget that every time. So, I have been wasting lots of strips lately. If you didn’t have to wait two hours to start getting readings, it wouldn’t be such a big deal to wait the 15 minutes. But, alas, after 54 years of Type I diabetes, I am eternally grateful for the advances in care, so I will quit complaining and move on. 😬

        1
        4 years ago Log in to Reply
      2. Wanacure

        I first noticed discombobulated readings with Dexcom G6 when my sensor is within 24 hours of death. I assume each new sensor needs calibrating. Yes, YOU CAN prevent false lows that interrupt sleep. It’s a balancing act, isn’t it? You’ve got to avoid hypoglycemia to protect your prefrontal cortex, BUT false lows disrupting deep sleep and dream state are
        an annoyance and can also to a lesser extent (?) be risky. Siestas, if you can take ‘em, will help. Or catchup naps on the weekend.

        4 years ago Log in to Reply
    13. Molly Jones

      This week was not bad. Only two interrupted nights. I make sure my sugar is not dropping or in the normal/low range when I go to bed. If it is I make sure to have some fatty food possibly with a small amount of carbs that take a while to digest. I don’t remember being woken from high alarms.

      1
      4 years ago Log in to Reply
    14. Cheryl Seibert

      I chose “1” but it may have been “0”. I have the night BGs controlled and seldom have lows or highs disrupt my sleep. Occasionally, I will eat too much after 9pm and overcorrect trying to keep the overnight BGs from going high (I use Sleep Mode on the TSlim so no autocorrections). That will cause a low about 2am.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]