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    • 11 hours, 32 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 11 hours, 32 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 12 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 12 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 12 hours, 50 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 12 hours, 51 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 52 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 12 hours, 52 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 14 hours, 53 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 15 hours, 31 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 15 hours, 32 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 16 hours, 14 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 16 hours, 37 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 17 hours ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 17 hours, 1 minute ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 17 hours, 1 minute ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 17 hours, 16 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 18 hours, 17 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 18 hours, 18 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 9 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 9 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 9 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 15 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

    Home > LC Polls > With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?
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    If you wear a pump, have you ever gotten sunscreen on a pump site? If so, share if it had any effect and how you handled it in the comments!

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    If you wear an insulin pump, do you think the insulin inside of your pump while you were wearing it has ever lost its potency due to extreme temperatures?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      I chose other as I do not need to eat at scheduled times, but I cannot go for extended times without eating, say more than five hours unless I want hypoglycemia. The longer I have T1D, I am becoming more and more sensitive to insulin. I need to change my basals, ratios and sensitivites often.

      5 years ago Log in to Reply
    2. Carol Meares

      I never eat on a prescribed schedule. My BS may certainly be affected by that as it does make things more difficult to manage probably. But I do have my own general rhythm and foods that I eat that keep me on track. I have a pretty good TIR and A1c. I would like less ups and downs within that range.

      5 years ago Log in to Reply
    3. Ahh Life

      No. A 24-houe fast I would recommend for the tSlim control IQ in order to see how good / accurate the basal rate is. I can literally and actually eat any time of the day or night. Control IQ seems to sense small amounts of carb intake. Big amounts, of course, must be bolused for. ⚡ 🤳

      2
      5 years ago Log in to Reply
    4. Kathleen Amper

      My basals are dialed in perfectly and control IQ on my tslim seems to correct any extra I might have. Can eat or not if I want to without a problem.

      3
      5 years ago Log in to Reply
    5. ConnieT1D62

      No. With Control IQ I generally eat three time a day when I my body signals I am hungry and it needs replenishment. While engaged in work, household, or creative projects I often do not need to eat for several hours until I do feel hungry. When I do eat, I chose healthy food sources that provide balanced nutrition for energy and well-being.

      1
      5 years ago Log in to Reply
      1. ConnieT1D62

        And some days I do not eat at all – just drink water – and I do fine with that.

        1
        5 years ago Log in to Reply
    6. connie ker

      I think a lot of this scheduled eating depends on if you’re on a pump or doing MDI. I do MDI which requires a more scheduled lifestyle.

      5 years ago Log in to Reply
    7. Anthony Harder

      Insulin’s have gotten much better overtime and I am not as tightly bound to a clock as I once was. However, eating is more than just an action controlled by T1D. It’s also patterns and habits. If one usually eats lunch at noon, one can deviate, but doing so significantly or continually, is difficult with or without T1D.

      5 years ago Log in to Reply
    8. Daniel Bestvater

      I use the Tandem control IQ which does a good job of keeping your TIR and A1c okay.
      But if you are looking for tighter control you still need to prebolus watch carbs …….

      5 years ago Log in to Reply
    9. Patricia Dalrymple

      I definitely notice on weekend if I eat breakfast later my BG is higher, which is odd because when I went on the pump, one of the things they sell you on us you no longer have to eat on a prescribed time period. I haven’t noticed lunch because I am pretty consistent there. The longer I wait to eat dinner, the more risk of a hypo. That makes sense because I don’t often think to adjust the basal rate. I don’t have a CGM but have tried them twice and both times couldn’t get them calibrated, but there have been improvements so time to try again.

      5 years ago Log in to Reply
    10. Keira Thurheimer

      If I dont eat breakfast and bolus at my usual time in the morning, my bg starts to rise quickly. It has always done this, despite efforts to fine-tune my basal rate for that time.

      1
      5 years ago Log in to Reply
    11. Mark Schweim

      I have never followed any set meal schedule and instead always let my blood glucose levels determine when or if I eat so I had to say “OTHER” since I have never had any set meal schedule.

      5 years ago Log in to Reply
    12. Nevin Bowman

      Only if I eat a large meal very late in the evening.

      1
      5 years ago Log in to Reply
    13. William Bennett

      The question is basically about basal insulin management, which has undergone a sea change during the 38 yrs I’ve had T1. The single most fundamental and life-altering change I’ve experienced in that time was the introduction of a true (or close enough) basal insulin, Lantus, and the advent of basal-bolus MDI using Lantus and Novolog. Previously we’d used the R/NPH regimen, which was maybe a step in the right direction from the old one-shot-per-day Lente, but NPH was not a basal insulin as such and doing MDI that way was, well, kind of nuts. A dx of T1 was a sentence to being shackled to a medication and the routine IT imposed on you. You could find yourself in danger if for some reason you couldn’t eat at the right time, and it’s hard to communicate what that was like, 24/7, if you didn’t live through it. I called it the Eat Now Or DIE regimen. Those of us who use a CGM to do pre-bolusing can think of R/NPH as the blind-folded Russian roulette version of pre-bolusing. You knew when the effect was SUPPOSED to come on, and you hoped like heck it more or less did what it was supposed to and you were sitting down with your plateful in front of you when it did. The first real flat-effect (close enough anyway) basal insulin was like being let out of prison after 20 years of that. I could eat a late lunch and not die! WOW! Pumps were a step up from that, allowing you to set different basal rates during the day rather than just a single shot, and closed-loop systems (when they work right, which is not a given) are an advance over standard pumps, but it was really Lantus that was the threshold moment. Before then, “Eat what you want and bolus for it” would have been incomprehensible advice. Everything since then–pumps, CGM, looping–has just been a refinement, allowing us to modify our medication to fit our lives and not the other way around.

      I realize this is a little long, but “eating to your insulin schedule” is a bit of a trigger for me!

      3
      5 years ago Log in to Reply
      1. Lucia Maya

        I totally relate, having lived with type 1 for 45 years! Thanks for saying it so well. I now use the tslim with CIQ and it gives me a lot of freedom!

        5 years ago Log in to Reply
    14. Sue Martin

      Yes, and I like to have the tools to track it better, like a CGM. I like the new tools and insulin that allows me to adjust my eating pattern as needed. I really dislike being on insulin that required me to eat on a specific schedule to meet its peaks. Like if I didn’t eat a snack before bed I would experience a low during the night and have to get up to correct it. Now I can eat, or not, as know where I stand.

      2
      5 years ago Log in to Reply
      1. ConnieT1D62

        I hear you and agree with everything you said. In the days before the use of T1D tech tools & new insulins we always had to “feed the insulin” whether we were hungry or wanted to eat or not.

        5 years ago Log in to Reply
    15. Tod Herman

      Once upon a time I worked in an office with an 8 to 5 daily routine. On my pump it was easy to set the basal rates to fit that routine. Since I retired, my daily schedule changes with the wind (I now cook in a small restaurant for fun) and my meals are often different and sometimes unique, which makes estimating carbs challenging. As such it’s difficult to set a basal rate that works with my flexible schedule. My pump needs a wind sock to try and keep up!

      1
      5 years ago Log in to Reply
    16. Ernie Richmann

      I have experienced increasing blood sugar readings if I skip breakfast. Overall it is my activity schedule that influences my blood sugar more than diet. I usually am very active during most of the day. If I have an unusually low activity morning or day- even with less carb intake- I run in more difficult management staying non a desired range of blood sugar levels.

      5 years ago Log in to Reply
    17. M C

      When I was on daily injections, the answer would have been ‘yes’, but since going on the pump, I no longer have an issue – Thus the current answer of ‘No’.

      1
      5 years ago Log in to Reply
    18. John McHenery

      Not sure. Changed schedule is usually associated with dietary change so whilst levels are usually impacted not sure if it is the diet or schedule change which is the cause.

      5 years ago Log in to Reply
    19. Brandon Denson

      When I go long extended periods of time without eating is when I can tell a big difference in my blood glucose levels. The tools come in handy so I have something to go back and reference my days against.

      5 years ago Log in to Reply
    20. Janice B

      Since I have been on a pump and have my basal rates set right I am no longer a slave to the clock for eating.

      3
      5 years ago Log in to Reply
    21. Beth Franz

      With summer here I seemingly tend to eat less cooked/heavy food, more cool fresh salads, and much less at dinner time which has certainly impacted my basal need at night. Had a few mild lows and corrected with a bit less basal insulin in my evening MDI shot.

      5 years ago Log in to Reply
    22. Cheryl Seibert

      If I do not eat at all, I can achieve 95-100% in range. Sporadic eating does not seem to cause any difficulties, it is just eating in general. Carb Ratios, Insulin Sensitivity, etc are correct. Major causes are site absorption (most due to 54 yrs of scar tissue) and stress.

      5 years ago Log in to Reply

    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day? Cancel reply

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