36 Comments
If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
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My grandmother’s cousin had T1D and passed away in the period between insulin being discovered, and insulin actually being refined and produced in enough quantities to be available as a treatment. (Imagine what that was like for the family!)
I was diagnosed when I was 18. My eldest child, a daughter, was diagnosed when she was 23 (or so?). I hope her children (2 daughters) do not also become T1D.
I think I had the right combination of propensity, environmental codituons and my kids getting the chicken pox to get T1
I also became t1 within 1 1/2 months after I’d gotten the chicken pox in 1962. I’m a big believer a virus can indeed cause t1
Chicken pox was also one theory behind my T1D diagnosis. I had a severe case of chicken pox on my 16th birthday. Diagnosed with T1D two years later.
I was diagnosed at age 8 a few months after having the mumps. My brother and cousins all had the mumps at the same time, but I was the only one who developed T1D.
I was married to a T1D and 16 years later I became a T1D with LADA. 4 years after that, one of our sons became a juvenile T1D. So there were 3 of us living under the same roof at the time. No one knows what triggers this disease, but if it is a virus maybe that is what happened to us??????
I’m the oldest and was diagnosed in 2000 at almost 11 years old. One of my sisters was then diagnosed in 2008 at 10 years old, and my brother was diagnosed in 2017 at 16 years old. No issues for my other sister and no other family history, so we have no idea why three of us were affected!
Oops I answered incorrectly. I have 1 sibling and other non-first degree relatives.
I was initially diagnosed with Type 2 in 1985. A year or so later we recognized my daughter was exhibiting diabetic symptoms and learned she had T1D at age 8. I have since been “upgraded” to LADA in 1993 and she has lived with her T1D for 38 years.
I selected 0 family with T1D…. as none had developed T1D in a “natural” way…. One aunt, who was diagnosed with T1D after a severe car accident that crushed her pancreas, The other relative is my father, who had cancer treatments that weakened other internal organs, including the pancreas. He’d never even had Type 2 Diabetes. While still undergoing treatments, and 6 weeks after losing the love of his life, my mother, he developed T1D (combination of the weakened organ and shock). Doctors were confounded, as he became T1D at the age of 82, but the proof was in the monthly blood tests done, all showing normal blood glucose levels, as his cancer was being treated for the 2 years prior to the diagnosis!
My grandmother is the only one that I know of.
Absurdly, both parents, who can get us to 1%?
My grandmother was diagnosed in her forties as Type 2 and given pills
I was diagnosed as an adult (mid forties) with no family history. Since them my mother and uncle have been diagnosed (in their late sixties).
To continue: my brother was diagnosed at 23, and the Type 1 diagnosis was a 40th birthday present. Years after I realized my grandmother was also late onset Type 1. She died of gangrene to the misery and horror of her family at age 45 in 1933. I wasn’t treated as a Type 1 until I had lost 35 lbs at my doctor and a dietitian’s Rx and years later when they checked I had an A1c of 12. I then started on insulin.
My dad was the first in his family to be diagnosed, in 1931, just after insulin was commercialized. He was an only child at the suggestion of my grandparents family doctor. I was diagosed at 18 months of age, two out of three younger brothers were diagnosed at ages four and six. My eldest of three sons was diagnosed with T1D at eight months of age, so far my two other sons are fine. My eldest son’s daughter was diagnosed at 18 months.
My mother was also diagnosed around 1930 31 at 11 years of age. I’ll be forever grateful that insulin was available to her. I was diagnosed with T1D at 40.
My first cousin’s daughter (i.e., second cousin). Otherwise no other cases in my very large extended family. No one with T2 either, afaik.
17 blood relative aunts & uncles, 28 cousins, 3 siblings, 2 parents all add up to a grand total of zero. Guess I am the winner and new champeen weighing in at 154 pounds. Lucky me. I won the luck of the heterozygote draw. (>‿◠)✌
a brother, and his son (my nephew.) no ancestors that we know of. My sister has been type 2 for many years and is now undergoing a change which could signal the onset of “type 1.5” or other.
One sister is also LADA and 2 cousins once removed are juvenile T1D
My maternal grandfather had T1D, dx as a young adult just as insulin was made available, and my second cousin on my father’s side was dx. as a young child.
Interesting 44% no relatives with T1D. I think we need to be researching what in our environment or food that our body are reacting to setting of T1D. I was 27 athlete when diagnosis. People get T1D and T2D mixed up. I wast 5’6″ 125-130 lbs. Not overweight.
While I am the only T1D in my (very large) extended family, interestingly my maternal grandmother, my mom, and her 7 sisters all have autoimmune hypothyroid.
My older brother (by 3 yrs) was dx about 15 years ago; we were all in a quandary, as no known family history; then I was dx about about 6 years ago at age 58. I was going thru a very stressful period in my life prior to that.
I’m the only one with T1D, but everyone in my mother’s side has hypothyroidism and many others have other autoimmune conditions.
My brother (1.5 years older) was diagnosed at age 10. I was diagnosed with LADA at age 66. No other type 1s in the family though my father and his sister suffered from terrible autoimmune psoriasis and I have hypothyroidism and rheumatoid arthritis.
My Grandfathers sister had T1D. She was diagnosed in the late 1920’s. Lived to be 65 which I think was remarkable at the time
At 42 I was diagnosed as T2 and went on insulin two years later. It was two years later after that when I officially heard from my endo that I was a T1 diabetic. At 50 my younger brother was put on T2meds. A few years later he was put on Lantus. And about two years later he began taking Humalog with meals. As far as I know he has never been told he is T1.
Answers are fascinating in their distinctiveness and diversity. Some humorous, some helpful, and some downright deadly. It’s a wonder any of us survived. But thanks for the shot at it Drs. Banting and Best. ʕ( ͡❛ ͜ʖ ͡❛)ʔ ʕ( ͡❛ ͜ʖ ͡❛)ʔ
Correction: I’m almost 70, dx age 4.5 , my sister age 60 was dx around same age. I was 2nd child of 4 & sister was last of 4. I sister almost 65 had severe allergies & asthma.
Although there had been T2 diabetes in previous generations I was 1st T1 in immediate & extended family. Other T1’s – Maternal side: 1st cousin, female 3 yr younger, dx age 5; 2 daughters of 8 yr older male cousin.
Paternal – I was 1st T1; 1 older, male 1st cousin’s son dx very young.
So far no other individuals of any generation of my family have developed T1.
I don’t have a T1D, but my son and my mom have it.
I was dx’d at 8, brothers were at 25 and 30, one niece at 8, three nephews at 12, 18 and 24. My brother says we don’t have a gene pool, but rather a genetic cesspool.
We’re pretty sure our Great Grandmother died from T1 in 1915 since she was robust, took ill and died a month later of what they deemed “the decline”.
We continue to hope that we seven are all it will hit.
I really feel like I have two paternal aunts with type 1 diabetes. I also have one first cousin and one second cuz its in with type 1 diabetes. Distantly I have to type 1 diabetic it’s not related by blood
opps. Speech to text. I have one paternal aunt, one first cousin, a second cousin, and an non biological aunt with T1D