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    • 1 hour, 26 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 8 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 48 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 31 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 54 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 52 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

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    Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Rafaela

      Yes, during college. That was when I stopped getting the early warnings of low blood sugars. My doctor thought at the time I needed Dilantin for the seizures that were accompanying the extended lows. I ended up withdrawing one quarter, returning home and made all Cs. This was during the 1980s and the information available now was not out there.

      1
      5 years ago Log in to Reply
    2. Patricia Dalrymple

      No, I am LADA but it sure impacted my work before I was diagnosed.

      1
      5 years ago Log in to Reply
    3. Stephen Woodward

      Any parent who thinks that T1D does not affect their child schooling is missing something. Although many kids say no, after 51 good T1D years, it does. However, it may not negatively impact things, overcoming the challenges is overcome by the knowledge and awareness of the T1D in the school environment. This comes from years as a teacher and student.

      2
      5 years ago Log in to Reply
    4. Bob Durstenfeld

      I think that it made me more mature and more curious.

      3
      5 years ago Log in to Reply
    5. Steve Rumble

      I was diagnosed with T1D in my early 20s and it did not affect my performance in college.

      5 years ago Log in to Reply
    6. connie ker

      T1D affects every aspect of your life no matter where, when, or why. It is an unrelenting 24/7/365 job with no time off, no vacations, and no paid leave. Yes, it affects physical, mental, and emotional health.

      1
      5 years ago Log in to Reply
    7. casey shane

      I was diagnosed at 24. All my schooling had been finished 2 years earlier. I’m really not sure where or how it would have changed schooling for me other then it would have had an impact somewheres same answer if the question was about summer camp, I did not have to manage camp and t1 at the same time. Great question

      1
      5 years ago Log in to Reply
    8. ConnieT1D62

      Not sure. I was diagnosed in the 3rd grade at age 8 in December 1962. Up to that point I had always been a bright, curious, industrious and creative student. In the quarter prior to being dx’d my report card indicated “Lack of application” and I remember my mother freaking out and blaming it on my father and their recent divorce.

      During the three week inpatient hospital stay learning to live with diabetes, I missed out on learning foundational math concepts and applications beyond addition and subtraction. As a result, as a child, adolescent, and teen I struggled with advanced math concepts and interpreting equation symbols of multiplication, division, fractions, and algebra. As I matured I seemed to have chronic difficulties staying focused – was called a “day dreamer”, and did extremely well in most subjects, but lousy in math. It wasn’t that I didn’t like it, I just couldn’t fully engage with it. I struggled with it in college undergrad and graduate school years as well.

      It wasn’t until I was in my mid-forties that I was diagnosed with ADD, inattentive type. So did it and does it have anything to do with TID? Don’t know – maybe yes, maybe no. If anything living with TID has made me more curious, determined and resourceful.

      5 years ago Log in to Reply
    9. Ken Raiche

      I guess like anything in life it comes down to the individual and how you cope with it. My life has been a really mixed bag and I can say for sure if diabetes had anything to do with it the outcome. I’ll I can say is I’m truly happy to be alive and kicking.

      5 years ago Log in to Reply
    10. Janis Senungetuk

      Yes, I was in the third grade when dx. in 1955. I know that life on a continuous roller-coaster of unpredictable highs and lows impacted my physical and mental health on a daily basis. From the time of my dx. until high school graduation in 1964 I was hospitalized at least a month every year with attempts to stabilize glucose levels. In college I delt with severe lows from NPH with urine testing as my only guide. My graduate school studies were hit the hardest when first macula edema and then diabetic retinopathy distorted my vision to the point where I could no longer produce my Master of Fine Arts thesis work. I had to reapply, get approval for an altered focus and add an additional year of studio studies to successfully produce a new thesis exhibition.

      5 years ago Log in to Reply
    11. M C

      Save for periodic doctor’s appointments, it really had no impact.

      5 years ago Log in to Reply
    12. Richard Vaughn

      My performance in school, 1945-1957, was very much affected by my T1D.

      5 years ago Log in to Reply
    13. Cheryl Seibert

      My schools years were in the 60s and 70s (all with T1D). I was valedictorian of my class and had straight As all through school so No, my performance was not affected. This was before the days of snacks, drinks and ‘disability’ exceptions in the schools.

      2
      5 years ago Log in to Reply
    14. Sydney Bush

      I was diagnosed in 1952, when I was 16 months old. Home BG testing was not available until I was in my early 30’s, so having hypoglycemic episodes during class time and especially during tests was inevitable in the 50’s through 70’s from grade school through college. I can remember sweating profusely in the middle of a college midterm, and popping several Livesavers, but doing rather poorly on that particular exam! No special compensations were made back then for those with T1D!

      5 years ago Log in to Reply
    15. Ahh Life

      No. In spite of what several have said (both teachers & learners). I know and knew no other life. So you simply do what is required from kindergarten on. I probably over-consumed candy bars, carbs, or whatever to maintain equanimity. But I simply do not recall any test affected by BG. Maybe it’s alzheimer’s? (╥︣﹏᷅╥)

      5 years ago Log in to Reply
    16. Jneticdiabetic

      I was diagnosed as a freshman in college. One of my early T1D symptoms was falling asleep in my biology lecture after lunch. I loved science, and couldn’t understand why. Tried eating candy to keep myself awake. High BGs made me sleepy. After diagnosis, keeping BGs stable during 3hr labs with NPH insulin on board and no food allowed were the biggest challenge. Overall, I did well in school before and after diagnosis, but I’m my blood sugar swings affected a test or lab report from time to time. As others have said, I think my T1D has made me tougher and a better problem solver.

      4 years ago Log in to Reply
    17. Wanacure

      It was the stress of trying to get straight A’s in classes like Algebra and Latin that contributed to getting Type 1 at age 15. I had an older first cousin who’d been diagnosed before me, so my mother immediately took me to a doctor just days after I was getting up to pee at night. And that strange breath odor that coincided with the urine smell: ketones. Up to age 12 I guzzled candy and pop, so my pancreas was probably worn out. I was also probably exposed to radiation from Hanford before and at age 3, because my Dad was stationed at that port during WWII. When I was 3 after (another?) radioactive plume of smoke was released, we moved to Seattle. Actually I did very well in school after my mother got me into high school Honors classes (college prep for high IQ test scorers). After being diagnosed, I took more control of my life, gained confidence, took up training with a barbell and dumbbells at home, made some very close friends. But college was another story interrupted with emotional problems that interfered with my Type 1. With help from a specialized diabetes clinic and later a shrink, I finally “grow up” enough to get jobs, finish my bachelors degree and go to graduate school, etc. Yes, I remember Clinitest tablets and urine tests and Tes Tape and boiling a syringe and taking one daily beef/pork NPH dose.

      4 years ago Log in to Reply

    Do you think your (or your child’s) performance in school was affected by T1D? Cancel reply

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