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    • 7 hours, 47 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 7 hours, 48 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 7 hours, 48 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 9 hours, 2 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 12 hours, 35 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 12 hours, 37 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 1 minute ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 16 hours, 1 minute ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 16 hours, 1 minute ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 16 hours, 1 minute ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 16 hours, 2 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 16 hours, 26 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 26 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 17 hours, 15 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 12 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 20 hours, 12 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 20 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 20 hours, 19 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 22 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 25 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 26 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 15 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 15 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 17 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 17 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Next

    Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Rafaela

      Yes, during college. That was when I stopped getting the early warnings of low blood sugars. My doctor thought at the time I needed Dilantin for the seizures that were accompanying the extended lows. I ended up withdrawing one quarter, returning home and made all Cs. This was during the 1980s and the information available now was not out there.

      1
      5 years ago Log in to Reply
    2. Patricia Dalrymple

      No, I am LADA but it sure impacted my work before I was diagnosed.

      1
      5 years ago Log in to Reply
    3. Stephen Woodward

      Any parent who thinks that T1D does not affect their child schooling is missing something. Although many kids say no, after 51 good T1D years, it does. However, it may not negatively impact things, overcoming the challenges is overcome by the knowledge and awareness of the T1D in the school environment. This comes from years as a teacher and student.

      2
      5 years ago Log in to Reply
    4. Bob Durstenfeld

      I think that it made me more mature and more curious.

      3
      5 years ago Log in to Reply
    5. Steve Rumble

      I was diagnosed with T1D in my early 20s and it did not affect my performance in college.

      5 years ago Log in to Reply
    6. connie ker

      T1D affects every aspect of your life no matter where, when, or why. It is an unrelenting 24/7/365 job with no time off, no vacations, and no paid leave. Yes, it affects physical, mental, and emotional health.

      1
      5 years ago Log in to Reply
    7. casey shane

      I was diagnosed at 24. All my schooling had been finished 2 years earlier. I’m really not sure where or how it would have changed schooling for me other then it would have had an impact somewheres same answer if the question was about summer camp, I did not have to manage camp and t1 at the same time. Great question

      1
      5 years ago Log in to Reply
    8. ConnieT1D62

      Not sure. I was diagnosed in the 3rd grade at age 8 in December 1962. Up to that point I had always been a bright, curious, industrious and creative student. In the quarter prior to being dx’d my report card indicated “Lack of application” and I remember my mother freaking out and blaming it on my father and their recent divorce.

      During the three week inpatient hospital stay learning to live with diabetes, I missed out on learning foundational math concepts and applications beyond addition and subtraction. As a result, as a child, adolescent, and teen I struggled with advanced math concepts and interpreting equation symbols of multiplication, division, fractions, and algebra. As I matured I seemed to have chronic difficulties staying focused – was called a “day dreamer”, and did extremely well in most subjects, but lousy in math. It wasn’t that I didn’t like it, I just couldn’t fully engage with it. I struggled with it in college undergrad and graduate school years as well.

      It wasn’t until I was in my mid-forties that I was diagnosed with ADD, inattentive type. So did it and does it have anything to do with TID? Don’t know – maybe yes, maybe no. If anything living with TID has made me more curious, determined and resourceful.

      5 years ago Log in to Reply
    9. Ken Raiche

      I guess like anything in life it comes down to the individual and how you cope with it. My life has been a really mixed bag and I can say for sure if diabetes had anything to do with it the outcome. I’ll I can say is I’m truly happy to be alive and kicking.

      5 years ago Log in to Reply
    10. Janis Senungetuk

      Yes, I was in the third grade when dx. in 1955. I know that life on a continuous roller-coaster of unpredictable highs and lows impacted my physical and mental health on a daily basis. From the time of my dx. until high school graduation in 1964 I was hospitalized at least a month every year with attempts to stabilize glucose levels. In college I delt with severe lows from NPH with urine testing as my only guide. My graduate school studies were hit the hardest when first macula edema and then diabetic retinopathy distorted my vision to the point where I could no longer produce my Master of Fine Arts thesis work. I had to reapply, get approval for an altered focus and add an additional year of studio studies to successfully produce a new thesis exhibition.

      5 years ago Log in to Reply
    11. M C

      Save for periodic doctor’s appointments, it really had no impact.

      5 years ago Log in to Reply
    12. Richard Vaughn

      My performance in school, 1945-1957, was very much affected by my T1D.

      5 years ago Log in to Reply
    13. Cheryl Seibert

      My schools years were in the 60s and 70s (all with T1D). I was valedictorian of my class and had straight As all through school so No, my performance was not affected. This was before the days of snacks, drinks and ‘disability’ exceptions in the schools.

      2
      5 years ago Log in to Reply
    14. Sydney Bush

      I was diagnosed in 1952, when I was 16 months old. Home BG testing was not available until I was in my early 30’s, so having hypoglycemic episodes during class time and especially during tests was inevitable in the 50’s through 70’s from grade school through college. I can remember sweating profusely in the middle of a college midterm, and popping several Livesavers, but doing rather poorly on that particular exam! No special compensations were made back then for those with T1D!

      5 years ago Log in to Reply
    15. Ahh Life

      No. In spite of what several have said (both teachers & learners). I know and knew no other life. So you simply do what is required from kindergarten on. I probably over-consumed candy bars, carbs, or whatever to maintain equanimity. But I simply do not recall any test affected by BG. Maybe it’s alzheimer’s? (╥︣﹏᷅╥)

      5 years ago Log in to Reply
    16. Jneticdiabetic

      I was diagnosed as a freshman in college. One of my early T1D symptoms was falling asleep in my biology lecture after lunch. I loved science, and couldn’t understand why. Tried eating candy to keep myself awake. High BGs made me sleepy. After diagnosis, keeping BGs stable during 3hr labs with NPH insulin on board and no food allowed were the biggest challenge. Overall, I did well in school before and after diagnosis, but I’m my blood sugar swings affected a test or lab report from time to time. As others have said, I think my T1D has made me tougher and a better problem solver.

      5 years ago Log in to Reply
    17. Wanacure

      It was the stress of trying to get straight A’s in classes like Algebra and Latin that contributed to getting Type 1 at age 15. I had an older first cousin who’d been diagnosed before me, so my mother immediately took me to a doctor just days after I was getting up to pee at night. And that strange breath odor that coincided with the urine smell: ketones. Up to age 12 I guzzled candy and pop, so my pancreas was probably worn out. I was also probably exposed to radiation from Hanford before and at age 3, because my Dad was stationed at that port during WWII. When I was 3 after (another?) radioactive plume of smoke was released, we moved to Seattle. Actually I did very well in school after my mother got me into high school Honors classes (college prep for high IQ test scorers). After being diagnosed, I took more control of my life, gained confidence, took up training with a barbell and dumbbells at home, made some very close friends. But college was another story interrupted with emotional problems that interfered with my Type 1. With help from a specialized diabetes clinic and later a shrink, I finally “grow up” enough to get jobs, finish my bachelors degree and go to graduate school, etc. Yes, I remember Clinitest tablets and urine tests and Tes Tape and boiling a syringe and taking one daily beef/pork NPH dose.

      5 years ago Log in to Reply

    Do you think your (or your child’s) performance in school was affected by T1D? Cancel reply

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