Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 8 hours, 46 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 47 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 10 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 10 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 5 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 6 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 10 hours, 6 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 8 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 46 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 46 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 29 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 51 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 14 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 15 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 14 hours, 15 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 30 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 31 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 15 hours, 32 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 12 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you wear an insulin pump, how often do you carry a backup method of insulin delivery when you leave your home? (I.e. supplies for a pump site change, an insulin pen, syringes, etc.)

    Home > LC Polls > If you wear an insulin pump, how often do you carry a backup method of insulin delivery when you leave your home? (I.e. supplies for a pump site change, an insulin pen, syringes, etc.)
    Previous

    On average, how many test strips do you currently use in a day?

    Next

    How old were you when you were first diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 week ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 3 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 4 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 1 month ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 2 months ago 5 min read  

    41 Comments

    1. Ernie Richmann

      I carry extra supplies especially if I am gone overnight.

      5 years ago Log in to Reply
    2. Tina Roberts

      I carry supplies if I’m going to be gone over night or on vacation. When I worked I kept one of everything at work as well.

      2
      5 years ago Log in to Reply
    3. Britni Steingard

      I said “often.” I don’t actually wear a pump anymore, but when I did I had extra supplies with me any time I was leaving the house for more than a couple hours. For example, I always brought extra supplies to work, but wouldn’t bring extra to go grocery shopping.

      1
      5 years ago Log in to Reply
      1. Lawrence Stearns

        Curious. You don’t wear a pump anymore? Are you doing some experimental therapy?

        5 years ago Log in to Reply
    4. Sue Herflicker

      I said often. I only bring my supplies if I am traveling more than a half an hour from home or if I am going to a function that lasts several hours.

      5 years ago Log in to Reply
    5. Patricia Dalrymple

      I said sometimes. All depends on where I’m going and for how long as others have said. Definitely on any overnight trip. Sometimes if it would be difficult to come home if something goes wrong. I went to a party once over 25 miles away and we played a game that made my site disconnect from my stomach. I didn’t realize it until I started feeling bad. Then we had to race home to fix it.

      1
      5 years ago Log in to Reply
    6. Kaylea Bowers

      Always… I’ve had several occasions where I forgot a backup method, and without fail those are the times that my pod would fail, leak, or get ripped off. Learned my lesson!

      3
      5 years ago Log in to Reply
    7. George Lovelace

      I said Rarely because I hardly ever go anywhere more than 10 minutes from home.

      1
      5 years ago Log in to Reply
    8. Sherolyn Newell

      Work is only 15-20 minutes from home. If there’s a problem, I can usually pack up and work from home the rest of the day. If for some reason I have to actually be in the office, I can get home and back in under an hour. Same for just running around town. If I have a rare pump failure, as long as I don’t need a bolus, I can go for a few hours before I even start to get high glucose levels. If I go out of town, I bring extra supplies.

      5 years ago Log in to Reply
    9. Ken Raiche

      As I always say better safe then sorry. So my little bicycling backpack which goes everywhere that I go has everything in it that I may need. Tester, Dex 4, and Humalog pen.

      5 years ago Log in to Reply
    10. Sahran Holiday

      Always if I leave the house other than walking distance from where I live.

      1
      5 years ago Log in to Reply
    11. Gary Taylor

      For all who said always or often, good for you. You are better at it than I am. I said “never”. The one exception is if I know I will run out of insulin. Even on day trips to Minneapolis/St. Paul, a 3 hour drive each way, I don’t carry backup supplies. 99% of the time, all is good. Then there is the 1% . . .

      5 years ago Log in to Reply
    12. Nevin Bowman

      Only when going away from home for more than a day.

      1
      5 years ago Log in to Reply
    13. David Smith

      I picked “sometimes” because I’ll carry back-up if I’m traveling more than a few hours from home. In 20+ years of using an insulin pump, never had one fail (have only used Medtronic). But when I do travel, I carry a functioning, if out-of-warranty pump as my first back-up option. Also have some syringes if I need to inject.

      5 years ago Log in to Reply
    14. Tod Herman

      Basically, anytime I plan on leaving home (or town) for a day or more, I bring a backup.

      5 years ago Log in to Reply
    15. William Bennett

      Not for daily outings but any time I’m going to be away for a whole day or more, yup.

      1
      5 years ago Log in to Reply
    16. Kathleen Amper

      Only for extended times from home but just local zipping around town I don’t take anything.

      1
      5 years ago Log in to Reply
    17. Amanda Barras

      Always have a vial and a few syringes with me. Even if my pump doesn’t fail, I use it on the regular if I run out of insulin while I’m out, or if I am running low and have a meal I’ll just take a shot for the meal so that I have enough insulin to continue running basal until I get home. Also, I can’t use Fiasp in my Tslim pump so I’ll use that to do a shot for a large meal or a high instead of my pump on occasion because novolog just doesn’t work as fast as I need it to.

      1
      5 years ago Log in to Reply
      1. Patricia Maddix

        Why is it not allowed to use Fiasp in your tandem pump? I’ve tried a vial of it in my med Tronic pump to see if indeed it was more rapid acting than my nova log and it was not. I am now usingLyumjev in my Medtronic pump and it works amazingly fast and keeps my blood sugar very steady. Both of these trials were under the supervision of my endocrinologist. The Lyumjev does tend to foam very easily when drawing into the Medtronic Reservoir so I can see how it might be a problem in a tandem pump as you have to draw the insulin first into a syringe and then inject into the cartridge where the foam and bubbles might not be visible.

        5 years ago Log in to Reply
    18. Retired and glad

      I retired about three years ago. Whenever we travel such as a cruise or other vacation (not lately!) I always have a “go bag” with supplies, insulin, other medications, etc. But these days I don’t really think about it because I’m never that far from home. That being said, when I was working I traveled a lot all across the country. One day I flew from home in ATL to Chicago, and upon arrival I suddenly remembered I had not brought my pump! It was the first time in my life I had done such a thing. I called my boss and said I was sorry but had a medical issue and would be returning home. I didn’t eat anything in the few hours it took me to fly back and get to my house and reattach. Luckily my number hadn’t risen about 250 so it wasn’t so bad. Just stupid!

      5 years ago Log in to Reply
    19. Jana Foley

      I honestly only take back up supplies when I’m going out of town and know I will need them. Saying this now, it sounds like poor planning on my part. I may have to rethink this.

      5 years ago Log in to Reply
    20. ConnieT1D62

      Except for brief trips to the post office, CVS or the grocery store I would seldom leave home without my diabetes back-up bag – a “just in case” extra supply of diabetes self-care everything. However, sometimes I would forget to bring it, and of course those are the few times when I really needed it!

      Recently I treated myself to a really cool Myabetic tote bag with a detachable purse. It is cleverly designed to provide safe & organized storage for diabetes self-care essentials plus plenty of room for all the other stuff I carry around with me in my daily life for professional and personal business. These days, I never leave home with it.

      5 years ago Log in to Reply
    21. Janis Senungetuk

      Rarely go any distance from home. I’d pack extra pump supplies in addition to extra insulin and a couple of syringes if I was traveling anywhere overnight.

      5 years ago Log in to Reply
    22. Holly Miller

      I’ve been a pump user for 27 yrs. I said “Always” because of 2 times back in the dark ages of MDI when I left home for work and, due to a weather event (BOTH TIMES), wan’t able to return home for my evening and following morning injections. Luckily only one expensive and not-fun trip to the emergency room resulted. I now carry my open vial of insulin and a couple of syringes as a basic part of my ‘diabetes kit.’ I can think of at least 4 times when a friend with T1D asked to ‘borrow’ some of my spare insulin because they had run out with no backups. I’ve recently changed pumps and am still working out a good way to carry all of the ‘extra’ parts of my new pump’s sets.

      5 years ago Log in to Reply
    23. Scott Doerner

      I always carry the pump hardware, but do not carry insulin

      5 years ago Log in to Reply
    24. Bob Durstenfeld

      I have had two Medtronic pumps FAIL while traveling, I had back up syringes. Now I use a Tandem pump and I have not had any issues on multiple international trips. I do pack an expired pump just in case. Around town, I just carry my glucose tabs. Away from home more than a few hours, I have my go bag with a site change, syringes and insulin.

      5 years ago Log in to Reply
    25. dave hedeen

      poor question, never if I am returning home same day. Always have back up items for over night trips.

      1
      5 years ago Log in to Reply
      1. Beverly Crosby

        I’m with David.

        5 years ago Log in to Reply
    26. Becky Hertz

      As others have said, I rarely go anywhere more than 30 minutes from my house. I will carry extra supplies if I’m low on insulin or have a site change that might take place when I’m out. If going on a trip or overnight, will carry supplies. When I worked, I did carry extra insulin Andrea syringe, and had supplies at work. I worked at a hospital so if I got in a bind I could get in touch with it CDE’s.

      5 years ago Log in to Reply
    27. Sally Numrich

      I said other. I have backup pump supplies at work & in the car. Also backup insulin at work. If I am spending the day away from home I will take my meter case with me that has insulin & syringe. Now I don’t carry supplies because I don’t test anymore. But if it is an all day kind of outing, I carry backup.

      5 years ago Log in to Reply
    28. ellencherry

      I always have my kit with me that includes an extra pod, fast and slow acting insulin and syringes just in case. We went to breakfast a few weeks ago and I realized I forgot my PDM for my pump. No biggie, I just gave a shot.

      5 years ago Log in to Reply
    29. Carol Meares

      I always carry extra syringe and sometimes carry an extra pen. With the syringe I could get insulin out of the pump cartridge to tide me over until I got to supplies but if I go far away like on a boat trip I carry a pen unless I forget:-/

      5 years ago Log in to Reply
    30. KarenM6

      Overnight travel = always
      Running around town = rarely, and that is even despite being caught out a few times. I was lucky, though, and able to return home to change my pump site before anything dire happened.
      If I’m traveling more than an hour away from home, but not on an overnight trip, I really should carry backup. This RARELY happens now (and not only because of COVID), so I don’t know what I would do. I hope I would remember to carry backup!

      5 years ago Log in to Reply
    31. ANN GALLUZZO

      I only carry extra supplies if I am going out of town. If I travel abroad, I bring about 50% more supplies than I should need for the duration of my trip, and never in my suitcase. I take them into whatever restaurant or restroom I visit.

      2
      5 years ago Log in to Reply
    32. Donna Condi

      I only carry backup Humalog and Lantus pens when I go on vacation.

      5 years ago Log in to Reply
    33. Sasha Wooldridge

      For everyday goings on, only if I know I’m close to the end of a cartridge. Other than that, only if I’m going on a trip. Then I’m obsessive and usually pack triple what I think I might actually need just in case.

      5 years ago Log in to Reply
    34. LizB

      When I used to commute to/from work every day I had a small soft case kit in my bag with an extra infusion set or two, a reservoir, current vial of insulin, some syringes, an extra battery or two and small things like maybe some wipes. It didn’t take up much room and I did have to use it sometimes at work. There was no place to really keep extra supplies at my last job. If I’m out running errands I don’t carry anything.

      5 years ago Log in to Reply
    35. Cheryl Seibert

      I answered “Often”. I always take backup delivery supplies, when I’m going out of town or will be away from home for an extended period of time (working, visiting relatives, etc.). However, I don’t take supplies if just going to the grocery. I always keep an emergency supply of infusion sets, etc. in the car.

      5 years ago Log in to Reply
    36. Leona Hanson

      I always carry extra pump supplies with me . it’s an hour to town.if I’m out walking I carry insulin and syringes with me until I get to the car the forest has a mind of it’s own a tree branch pulled out my set. I’m glad for the extra pump supplies in car.

      5 years ago Log in to Reply
    37. CindyGoddard

      I only take additional supplies when I am gone longer than a day

      5 years ago Log in to Reply
    38. Molly Jones

      If I am leaving my home for overnight I make sure to bring these, if for a few hours, no.

      5 years ago Log in to Reply

    If you wear an insulin pump, how often do you carry a backup method of insulin delivery when you leave your home? (I.e. supplies for a pump site change, an insulin pen, syringes, etc.) Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]