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    • 17 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 5 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 48 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 11 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 34 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 31 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.

    Home > LC Polls > During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled.
    Previous

    If you wear a CGM, on a scale of 1-5 how much additional stress or anxiety would you feel if you were unable to wear a sensor for a full week? (1 = very little stress added, 5 = the most stress added)

    Next

    How long, on average, would you say that it takes for you to start feeling better after treating a moderately low blood sugar?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Carol Meares

      Turned out to be not significant because I try to do plan ahead. Living in Alaska one always has to plan ahead because of shipping. Sometimes insurance makes it difficult to plan ahead because they refuse to pay. I always want to have 30-60 days of backup insulin, supplies, and meds. I have learned that lesson through times like 911 and now the pandemic.

      5 years ago Log in to Reply
    2. Jana Wardian

      It’s really hard to know if shipping delays are related to the pandemic or other factors. It’s important to order early and try not to get short on supplies.

      5 years ago Log in to Reply
    3. connie ker

      I was so thankful to have all supplies and medications delivered to my front door during this pandemic. No problem in receiving or no delays in receiving. All positive news for Mail Order pharmacies !

      5 years ago Log in to Reply
    4. Yaffa Steubinger

      No shipping delays during the pandemic but I’m suffering from shipping delays since we had a little winter storm here in TX. Been working for two weeks to get my Dexcom order and only have a few days left on my last Dexcom.

      5 years ago Log in to Reply
    5. Anthony Harder

      I had delays getting CGM sensors, but I attribute that to extremely poor customer service from my supplier, not particularly related to pandemic.

      5 years ago Log in to Reply
    6. Anne Blayney

      I had an order of Dexcom sensors that got “stuck” in a FedEx warehouse for several days in December. I called FedEx and explained that they were medical supplies, and the absolutely incredible agent called me back with daily updates until the package was delivered. I can’t measure the extent to which she was able to expedite the parcel (versus when it would have arrived if I hadn’t called in), but the customer service was phenomenal. I did run out of sensors and had to resort to fingerpricks only for several days, but better to run out of sensors than pump supplies or insulin!

      5 years ago Log in to Reply
    7. Peter Shank

      Shipping got plugged up around the holidays.

      5 years ago Log in to Reply
    8. Rose Lentzke

      The winter weather has caused delays more than Covid has caused issues.

      5 years ago Log in to Reply
    9. Maureen Helinski

      I could not get my Dexcom G6 sensors from Solara-they didn’t have them. I also had a new doctor so a problem with prescription. Dexcom would not let me buy them from them because I am on Medicare. I found a Giant Pharmacy that did let me buy some. Eventually Solara sent them.

      5 years ago Log in to Reply
    10. John Henninger

      Having multiple inputs to my source for supplies, the delay from the time they post they have the order until it gets shipped is sometimes extraordinary. I understand one day or a hold over a weekend. But up to five days to get it into shipping is not necessary. It has happened a couple of times. But the worst thing is the Medicare rule of only a thirty day supply! Really? I plan to be around for more than a thirty day supply.

      5 years ago Log in to Reply
    11. ConnieT1D62

      Nope. Byram for pump and CGM supplies has been great and everything has arrived in a timely way. CVS for insulin and other meds with no delay issues.

      5 years ago Log in to Reply
    12. Ernie Richmann

      Amazingly no but letters I mailed weeks ago have not arrived at destinations and I am hopeful all Christmas cards sent my way will arrive before Spring.

      5 years ago Log in to Reply
    13. Lakesha McDonald Kee

      Not sure if the shipping delay for my pump supplies were pandemic or holiday related, but I never received the order. It was just pending in the tracking system with no movement. The supplier sent the next set out overnight shipping.

      5 years ago Log in to Reply
    14. Mary Ann Sayers

      NO!!! At age 7, there’s no such thing as a “honeymoon” stage! All I knew was I got a shot every day AND I HATED SHOTS!!! (You could put one of today’s needles down the barrel of one used on me then!)

      5 years ago Log in to Reply
    15. George Lovelace

      Located in N TX so there were massive delays, had Dex Sensors scheduled for Tue 16th, not received until Tue 23rd. It felt like being back in the dark ages before any help, sort of like going back to urine testing. I need a Spare Sensor.

      5 years ago Log in to Reply
    16. Cheryl Seibert

      I only had one delay. It was minor (just a couple of days). EdgePark immediately notified me of the delay.

      5 years ago Log in to Reply
    17. Grey Gray

      Answered yes but I think mimimed was just back ordered on cgm sensors at the time

      5 years ago Log in to Reply
    18. Kristine Warmecke

      I don’t know if it was related to COVID-19 or not. Could be many things, mostly Byram sending the wrong supplies repeatedly. That made me have to to pay out of pocket for insulin pump and Dexcom supplies or go without for months on end. Since Medicare wouldn’t pay another company for the correct ones and Byram refused to send the correct ones.

      5 years ago Log in to Reply
    19. Dennis Dacey

      I responded NO, and I’ll supplement that response with, since COVID-19, DELIVERY FROM MY SUPPLIERS HAS IMPROVED. All my pump supplies, and all my CGM supplies come through Byram, and with doctor prescription, my CGM orders are placed and shipped on a timely basis by Byram technology without need for my action. Additionally, my other prescriptive medications are shipped automatically, usually much sooner than I need, by the United Health OPTUM Px – I assume the “early delivery is because of this SARS-voX2 pandemic.

      5 years ago Log in to Reply
    20. Donald Cragun

      I have had numerous problems getting Solara to send me CGM sensors and transmitters, and pump infusion sets (and they keep sending me more cartridges than I need). During the past year I have been unable to use my CGM for more than a week twice. I’m looking for a new supplier.

      5 years ago Log in to Reply
    21. Jillmarie61

      Items tops longer than before the pandemic.

      5 years ago Log in to Reply
    22. Mel Jackson

      My supplies that the supplier insisted on shipping USPS were two to seven weeks late, so I had to pay extra to have them shipped UPS or FedEx.

      5 years ago Log in to Reply
    23. Marie Seymour-Green

      3 weeks late and I’m still waiting. (Better Living Now)

      5 years ago Log in to Reply
    24. Karen Maffucci

      My OmniDash just quit working. I called and support team was to send me a replacement. This was a Friday evening. Sent via FedEx. No pump by the following Tues. Called and spoke to the support team again. Due to weather issues I was told it was held up. They sent me another one that Tuesday and I did not get the second one until a week later on Wednesday evening. I went 13 days having to take injections.

      5 years ago Log in to Reply

    During the pandemic, have you experienced shipping delays for your T1D supplies? Tell us in the comments how these issues were handled. Cancel reply

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