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    • 7 hours, 18 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 7 hours, 18 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 7 hours, 19 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 7 hours, 20 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 32 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 4 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 13 hours, 58 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 15 hours, 23 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 16 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 16 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 16 hours, 41 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 4 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 5 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 13 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 13 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 13 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

    Home > LC Polls > If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Nevin Bowman

      140

      5 years ago Log in to Reply
    2. Maggie Morgan

      160 mg/dL… I start to feel the high just above this number so I have it set so that I can attempt to prevent any ill feelings. Any lower than this causes too many alarms that don’t really help other than to annoy me or cause over correction on my part.

      5 years ago Log in to Reply
    3. Austin Tremblay

      I see someone has it set for 140. If my blood sugar could just stabilize at 140 for 24 hours, I would be elated. I wish we could have a conversation thread in these comments because I would love to know what sorcery this user employs such that 140 is considered hyperglycemic.

      5 years ago Log in to Reply
    4. Megan L

      Mine is set at 250, but it never gets that high. I was getting annoyed when I was already correcting it when it was high 100’s for a high.

      5 years ago Log in to Reply
    5. connie ker

      I use an Abbott Freestyle Libre without alarms, so am in the small percent of 3%. My blue range is 70 to 180 and I try to run in the blue range for sure. I am finding that if I delay eating after taking Humalog, numbers don’t spike so high. I go by the numbers not any alarms.

      5 years ago Log in to Reply
    6. Gene Maggard

      I have mine set for 170, which is ten less than my TIR (180) so when it alarms I have some wiggle room to get it back in line without affecting TIR. I retired two years ago so have plenty of time to mess with my numbers without worry of being in a meeting or traveling as it was in the “olden days”.

      5 years ago Log in to Reply
    7. Mike S

      I think the flip side of this would be interesting. I’ve been using 160 during the days (but seeing some of your responses, I’m tempted to try for lower now) That said, at night I shift to 220. No matter what I’ve eaten, I tend to spike somewhere around 4 am every morning and the alarms drove me nutty with lost sleep.

      5 years ago Log in to Reply
    8. Sherolyn Newell

      Mine’s at 200. That’s where my endo said to put it. I think it’s a little high, but it keeps me from getting waked up at night.

      5 years ago Log in to Reply
    9. Kristen Clifford

      My alerts begin at 250.

      5 years ago Log in to Reply
    10. Tod Herman

      While I aim for something much lower, I had to set the range to 180 because I was tired of the alarm going off at work during the afternoons after lunch.

      5 years ago Log in to Reply
    11. kylekk@gmail.com

      I use 130 during the day and 120 overnight. I sometimes get alarms after meals, but rarely other than that. 🙂

      5 years ago Log in to Reply
    12. Ahh Life

      200. ✍(◔◡◔) But kudos to @Austin Tremblay on the conversational thread that is sadly lacking here. There is sorcery. And there are miracles being worked managing the T1D condition. We need to know what works, in what circumstances, for what people, how often, and why. We are a tremendously pragmatic group, and if something works, it’s worth a try. (ง︡’-‘︠)ง

      5 years ago Log in to Reply
    13. Mick Martin

      I have my “high” setting at 8.4 mmol/l [151.2 mg/dL], and I use that setting 24 hours per day.

      5 years ago Log in to Reply
    14. kristina blake

      I chose below 140, although in actuality my alert is set at 120. Depending on IOB, trend arrows, when I ate something I take action. That action may be a small correction or an increased basal. Over 140 I start to get horrid heartburn so if I ignore the alert, I have a backup waring system.

      5 years ago Log in to Reply
    15. Julie Akawie

      I set mine to 120. I do not consider that “hyperglycemic” but it is out of range for a non-diabetic. I try to manage my blood glucose to that of a non-diabetic, in order to achieve the best long-term outcomes. (Fifty years as a T1D, so far so good!)

      5 years ago Log in to Reply
    16. Daniel Alvarez

      140 for me as well. I restrict carbs to 30-40gr /day with few exceptions (intermittent keto) and rarely go over 140, with very few mild lows (1-2 mo). It’s hard not to miss bread, rice, pasta -it’s not fun, but I prioritize it hoping I will enjoy my children grow for many years to come.

      5 years ago Log in to Reply
    17. Ceolmhor

      Mine is set at 230, but I would set it lower if I didn’t also have “rise alerts”, in which my Medtronic 670G makes predictions about where I’ll wind up based on current level, rate of change, and perhaps more. That’s almost always my first warning that I’m going high. So my high alert is actually the backup setting, where I get a second alert if I haven’t reacted appropriately or fast enough to the rise alert.

      5 years ago Log in to Reply
    18. Janis Senungetuk

      I set the high for 200. Depending on what and when I eat, I may go over that number once during the day. My latest Time In Range is 97%.

      5 years ago Log in to Reply
    19. john36m

      I selected the range 160-179, but I think that range is way too big. My high alarm is 160 because I want to keep below 180. If it alarms at 160, I may have a chance. If it was at 179, there would be nothing I could do. They are not the same

      5 years ago Log in to Reply
    20. ConnieT1D62

      180. I set it there because it does get that high occasionally but not that often and I don’t want to hear my pump alarms beeping at me when I am 146 or 167 after a meal. If I am at 180 or over, I take a look at why and can make adjustments as needed. Did I forget to bolus for food intake? Is the infusion set occluded? Is the cartridge empty? Overall with Tandem CIQ, BG fluctuations are much smoother and consistently in range.

      5 years ago Log in to Reply
    21. Molly Jones

      My Dexcom high alert is 280. After eating almost all kinds of carbs I will be well above 200 for a short amount of time and then come down. Tandem’s high and low are more in the normal range. Control IQ may not be working for me due to how quickly variable my BG is. Maybe when I can inform Tandem of an event such as sugar for a hypoglycemic event and it therefore doesn’t deliver insulin.

      5 years ago Log in to Reply
    22. Bonnie Lundblom

      180, if I see I’m going up I’ll set a higher temp basal rate on my Tandem pump.

      5 years ago Log in to Reply
    23. Sally Numrich

      Set at 170. This helps me stay under my 180 goal.

      5 years ago Log in to Reply

    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone. Cancel reply

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